Question:
- Hide quoted text — Show quoted text -Shelagh wrote: > "Deb" <debi.ash…@btopenworld.com> wrote in message >>I’ve always had problems with my vision,but worse since starting on >>hydroxychloroquine, been on it since January; now having 3 monthly eye >>checks. apparently my left eyeball is changing shape, rugby ball instead >>of >>football;optician unsure if its meds or something else, anyone else odd >>like >>me? >>Deb > Not just like you but … since beginning chloroquin I have gotten many very > large floaters in both eyes that are actually creating havoc with my > vision…. actually getting in the way of letters on the page of whatever I > am reading! And I have been told that I may have to stop driving if they > continue to worsen… (aaack! I can’t imagine not having my freedom!) They > are that big and that many! They have gotten worse over time. I see the > specialist every 9 months (he too is watching them) and he says they are > oddly large and numerous…. I don’t think he has seen them before with > chloroquin specifically though….. perhaps it isn’t related but I go with > my gut on that… and it says ‘yes’ <g>…. > good luck with your eye problems… I pray it doesn’t affect your vision and > that it is reversible! > hugs from Shelagh
I had terrible floaters before hydroxychloroquine and they don’t seem to have gotten worse. I have an appointment with my opthamologist on Friday and we’ll see how it’s going. Nell
Response:
"Deb" <debi.ash…@btopenworld.com> wrote in message > I’ve always had problems with my vision,but worse since starting on > hydroxychloroquine, been on it since January; now having 3 monthly eye > checks. apparently my left eyeball is changing shape, rugby ball instead > of > football;optician unsure if its meds or something else, anyone else odd > like > me? > Deb
Not just like you but … since beginning chloroquin I have gotten many very large floaters in both eyes that are actually creating havoc with my vision…. actually getting in the way of letters on the page of whatever I am reading! And I have been told that I may have to stop driving if they continue to worsen… (aaack! I can’t imagine not having my freedom!) They are that big and that many! They have gotten worse over time. I see the specialist every 9 months (he too is watching them) and he says they are oddly large and numerous…. I don’t think he has seen them before with chloroquin specifically though….. perhaps it isn’t related but I go with my gut on that… and it says ‘yes’ <g>…. good luck with your eye problems… I pray it doesn’t affect your vision and that it is reversible! hugs from Shelagh
Response:
Were you on a high dose? (I think 200 mg/day is standard??) Was the damage permanent? cp – Hide quoted text — Show quoted text -maria Pinder wrote: > Yes I do. It started after only 1/2 year of taking the tablets. > Maria > "Susan Fornell" <Shiloh…@earthlink.net> wrote in message > news:EHPed.337$kM.7@newsread3.news.pas.earthlink.net… <snip> >>? for the group – has anyone had retinal toxicity from > hydroxychloroquine??
Response:
I’ve always had problems with my vision,but worse since starting on hydroxychloroquine, been on it since January; now having 3 monthly eye checks. apparently my left eyeball is changing shape, rugby ball instead of football;optician unsure if its meds or something else, anyone else odd like me? Deb x "Susan Fornell" <Shiloh…@earthlink.net> wrote in message
news:EHPed.337$kM.7@newsread3.news.pas.earthlink.net… > Hi > I am new to the list however have had systemic lupus for for 38 yrs with a > 16 yr complete remission. > However, it did come back about 19 yrs ago. > ? for the group – has anyone had retinal toxicity from
hydroxychloroquine?? – Hide quoted text — Show quoted text -> Thanks……Sue F
Response:
Yes I do. It started after only 1/2 year of taking the tablets. Maria "Susan Fornell" <Shiloh…@earthlink.net> wrote in message
news:EHPed.337$kM.7@newsread3.news.pas.earthlink.net… > Hi > I am new to the list however have had systemic lupus for for 38 yrs with a > 16 yr complete remission. > However, it did come back about 19 yrs ago. > ? for the group – has anyone had retinal toxicity from
hydroxychloroquine?? – Hide quoted text — Show quoted text -> Thanks……Sue F
Response:
Hi ya Sue, Welcome to alt.support.lupus I hope that you understood my previous message. I was trying to help you set up your newsreader so your full name didn’t show. Please come back when you can. Hugs J
Response:
Hi Sue, I must have missed your post somehow. Sorry that I haven’t welcomed you before now. I can’t answer your question, but someone else may be able to help. Talk to us anytime. BJ-Sk. Canada "Susan Fornell" <Shiloh…@earthlink.net> wrote in message
news:EHPed.337$kM.7@newsread3.news.pas.earthlink.net… > Hi > I am new to the list however have had systemic lupus for for 38 yrs with a > 16 yr complete remission. > However, it did come back about 19 yrs ago. > ? for the group – has anyone had retinal toxicity from
hydroxychloroquine?? – Hide quoted text — Show quoted text -> Thanks……Sue F
Response:
Sue, Newsgroups aren’t like "lists". You post yourself. Here is how to "munge your email" and change settings in your Outlook, This helps cut down on spam. If someone asks to email you, you can be on KC’s private list or type your real email in reply to someone who asks: for example j…@privacy.net should be typed joan at privacy dot net (fix the obvious) or joan…@dogprivacydog.net (take the dogs out). Instructions start here: In Outlook Express 6. Click on *tools* at the top. Down to *accounts* and click. In the box that opens, click on *news* tab at the top. Now click on the *properties* tab at the right. Leave the top box alone (this needs to be the server you get your groups from for real) Where it says Name: type in whatever you want people to see as your name (name or screen name). You will also see where it says Email : type here whatever you want people to see as your address. Examples: The part before the @ can be anything you wish. non…@forspammers.net no…@spammers.net NoN…@spammers.net nos…@forspammers.net sunny @privacy.net jellybe…@anon.anon jo…@anon.invalid hear…@anon.inv mypu…@inv.invalid na…@anon.anon The part after @ should NOT be a valid website unless you own the website or have permission from them. Do not change the tab at the top that says server . This is just seen in your computer to get the newsgroups to pull in . Click at the bottom *apply* and then "ok" to close the box. Go ahead and close out all boxes that are still open. As long as you clicked the "apply" button before "ok", your changes are held. If you later upgrade your software (or reinstall), you should recheck to make sure you are still anonymous – ie follow the instructions above. So save these instructions.
Response:
I have been using plaquenil for 15 years, (400mg per day) and have not had any toxicity from it. My ophthalmologist says he rarely sees it. HTH Boo R "Susan Fornell" <Shiloh…@earthlink.net> wrote in message
news:EHPed.337$kM.7@newsread3.news.pas.earthlink.net… – Hide quoted text — Show quoted text -> Hi > I am new to the list however have had systemic lupus for for 38 yrs with a > 16 yr complete remission. > However, it did come back about 19 yrs ago. > ? for the group – has anyone had retinal toxicity from > hydroxychloroquine?? > Thanks……Sue F
Response:
Hi I am new to the list however have had systemic lupus for for 38 yrs with a 16 yr complete remission. However, it did come back about 19 yrs ago. ? for the group – has anyone had retinal toxicity from hydroxychloroquine?? Thanks……Sue F
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