Question:
vous devriez demander
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Question:
If money is a problem, go with methadone…cheap as dirt and almost as good as OxyContin (I know some here who would prefer it over oxycodone). — Bill Work
– Hide quoted text — Show quoted text – actually i have no idea if they work. I haven’t used it yet. He was trying to find something stronger and long acting. It really doesn’t matter in the long run. those patches are exspensive. Duragesic patch (fentenyl transdermal)…others here know that I am not a big fan of those but if they work for you, great. — Bill Work wrote to the general assembly: that should be 220mg per day with the option to go up if i need to . oh its actually very blessed. Seems i got a good pain doc this time he’s orthodox 
i talked him out of giving me steroids for my swelling in the back (which means no more super struggle to stay with the fast). but his choice of meds have me confused. I’m now one a 3 day patch of…. dang i forgot what it’s called. I never heard of it before and i left the script with the pharmacist so i can’t look it up. any way he also upped my methodose. I’m taking 220 mg No problem…someone still needs to look inside… And I hope you are having a blessed Advent. — Bill Work Hey doc, I hate to do this… you stated that you are a lupus suffer cathrine?? It just so happens that the systemic part of lupus causes bleeding from everywhere ( Ive even heard of tear ducts bleeding) randomly at various degrees. for instance my wife is now bleeding so badly that there considering blood transfusions. Many doctors don’t know or just won’t acept that lupus causes this kind of bleeding. I agree with Doc on one thing though go see a ear doc about just to get a good idea of why?? if he says ideopathic or unknown causes talk to a lupologist. I would say a Rhumy but they will send you to a ear doctor. By the way call the lupus foundation they also can help with getting you to a lupologist if there is one in your area. You need to have someone take a gander inside with an otoscope. That will solve the mystery of where it is originating from. Go see your doc. — Bill Work When I got up this morning I noticed that there was blood on my pillow. I looked in the mirror and it’s coming from my left ear. Any idea what this could be from? It doesn’t hurt and my hearing seems ok. My only new med in, well years, is neurontin. thanks in advance, catherine I accidently posted this to the lupus newsgroup first, ok so now they know too that I am a blonde:)
Response:
actually i have no idea if they work. I haven’t used it yet. He was trying to find something stronger and long acting. It really doesn’t matter in the long run. those patches are exspensive. – Hide quoted text — Show quoted text -Duragesic patch (fentenyl transdermal)…others here know that I am not a big fan of those but if they work for you, great. — Bill Work wrote to the general assembly: that should be 220mg per day with the option to go up if i need to . oh its actually very blessed. Seems i got a good pain doc this time he’s orthodox i talked him out of giving me steroids for my swelling in the back (which means no more super struggle to stay with the fast). but his choice of meds have me confused. I’m now one a 3 day patch of…. dang i forgot what it’s called. I never heard of it before and i left the script with the pharmacist so i can’t look it up. any way he also upped my methodose. I’m taking 220 mg No problem…someone still needs to look inside… And I hope you are having a blessed Advent. — Bill Work Hey doc, I hate to do this… you stated that you are a lupus suffer cathrine?? It just so happens that the systemic part of lupus causes bleeding from everywhere ( Ive even heard of tear ducts bleeding) randomly at various degrees. for instance my wife is now bleeding so badly that there considering blood transfusions. Many doctors don’t know or just won’t acept that lupus causes this kind of bleeding. I agree with Doc on one thing though go see a ear doc about just to get a good idea of why?? if he says ideopathic or unknown causes talk to a lupologist. I would say a Rhumy but they will send you to a ear doctor. By the way call the lupus foundation they also can help with getting you to a lupologist if there is one in your area. You need to have someone take a gander inside with an otoscope. That will solve the mystery of where it is originating from. Go see your doc. — Bill Work When I got up this morning I noticed that there was blood on my pillow. I looked in the mirror and it’s coming from my left ear. Any idea what this could be from? It doesn’t hurt and my hearing seems ok. My only new med in, well years, is neurontin. thanks in advance, catherine I accidently posted this to the lupus newsgroup first, ok so now they know too that I am a blonde:)
Response:
When I got up this morning I noticed that there was blood on my pillow. I looked in the mirror and it’s coming from my left ear. Any idea what this could be from? It doesn’t hurt and my hearing seems ok. My only new med in, well years, is neurontin. thanks in advance, catherine I accidently posted this to the lupus newsgroup first, ok so now they know too that I am a blonde:)
Response:
Hi Catherine, Do you have any ear pain? Maybe there is an infection. You could have scratched your ear too while sleeping and not realizing it because you were sleeping hard enough to really know, or just didn’t remember. Is it still bleeding?? If so, call the Dr. and get in. If it has stopped, it could be just that you scratched it. Robin I am *not* a Medical Doctor (MD) or *any* other type of Medical Professional. PLEASE consult your own Dr. for medical advice. The information posted is information I have learned from researching or learning from my own disease.
Response:
Hi Robin:) I don’t think it’s a scratch cuz I washed the blood off the outside of my ear and it’s still bleeding, but slowly, so it’s coming from the inside of my ear, maybe my brains are leaking out, gawd I can’t afford to lose any:) Wait a minute, brains are gray…maybe I’ve already lost some. catherine.
– Hide quoted text — Show quoted text – Hi Catherine, Do you have any ear pain? Maybe there is an infection. You could have scratched your ear too while sleeping and not realizing it because you were sleeping hard enough to really know, or just didn’t remember. Is it still bleeding?? If so, call the Dr. and get in. If it has stopped, it could be just that you scratched it. Robin I am *not* a Medical Doctor (MD) or *any* other type of Medical Professional. PLEASE consult your own Dr. for medical advice. The information posted is information I have learned from researching or learning from my own
disease.
Response:
Catherine, I’m glad you can be humerous about this. Forget about waiting for Dr. Work to take 24 hours to answer. I would have already been at the doctors. However, since you have already started it…. All I could think of is the Star Trek movie "The Wrath of Khan" where Richardo Monteban puts some creepy crawly, sluglike creature into Chekov’s ear in order to control him. I think blood trickled down his neck….. Now I’m even grossing me out! Sue
– Hide quoted text — Show quoted text – Hi Robin:) I don’t think it’s a scratch cuz I washed the blood off the outside of my ear and it’s still bleeding, but slowly, so it’s coming from the inside of my ear, maybe my brains are leaking out, gawd I can’t afford to lose any:) Wait a minute, brains are gray…maybe I’ve already lost some. catherine. Hi Catherine, Do you have any ear pain? Maybe there is an infection. You could have scratched your ear too while sleeping and not realizing it because you were sleeping hard enough to really know, or just didn’t remember. Is it still bleeding?? If so, call the Dr. and get in. If it has stopped, it could be just that you scratched it. Robin I am *not* a Medical Doctor (MD) or *any* other type of Medical Professional. PLEASE consult your own Dr. for medical advice. The information posted is information I have learned from researching or learning from my own disease.
Response:
You need to have someone take a gander inside with an otoscope. That will solve the mystery of where it is originating from. Go see your doc. — Bill Work
– Hide quoted text — Show quoted text – When I got up this morning I noticed that there was blood on my pillow. I looked in the mirror and it’s coming from my left ear. Any idea what this could be from? It doesn’t hurt and my hearing seems ok. My only new med in, well years, is neurontin. thanks in advance, catherine I accidently posted this to the lupus newsgroup first, ok so now they know too that I am a blonde:)
Response:
Hey doc, I hate to do this… you stated that you are a lupus suffer cathrine?? It just so happens that the systemic part of lupus causes bleeding from everywhere ( Ive even heard of tear ducts bleeding) randomly at various degrees. for instance my wife is now bleeding so badly that there considering blood transfusions. Many doctors don’t know or just won’t acept that lupus causes this kind of bleeding. I agree with Doc on one thing though go see a ear doc about just to get a good idea of why?? if he says ideopathic or unknown causes talk to a lupologist. I would say a Rhumy but they will send you to a ear doctor. By the way call the lupus foundation they also can help with getting you to a lupologist if there is one in your area. – Hide quoted text — Show quoted text -You need to have someone take a gander inside with an otoscope. That will solve the mystery of where it is originating from. Go see your doc. — Bill Work When I got up this morning I noticed that there was blood on my pillow. I looked in the mirror and it’s coming from my left ear. Any idea what this could be from? It doesn’t hurt and my hearing seems ok. My only new med in, well years, is neurontin. thanks in advance, catherine I accidently posted this to the lupus newsgroup first, ok so now they know too that I am a blonde:)
Response:
Thank you for you concern orthodoxstudent:) I went to my doc and it was a lupus lesion that had just decided to bleed for it’s own reason. Cortisone cream on a q-tip will take care of it he says. He didn’t say however to keep the cortisone cream on the lesion when as it bleeds the cream comes off with the blood…blech, sorry for being gross. catherine
– Hide quoted text — Show quoted text – Hey doc, I hate to do this… you stated that you are a lupus suffer cathrine?? It just so happens that the systemic part of lupus causes bleeding from everywhere ( Ive even heard of tear ducts bleeding) randomly at various degrees. for instance my wife is now bleeding so badly that there considering blood transfusions. Many doctors don’t know or just won’t acept that lupus causes this kind of bleeding. I agree with Doc on one thing though go see a ear doc about just to get a good idea of why?? if he says ideopathic or unknown causes talk to a lupologist. I would say a Rhumy but they will send you to a ear doctor. By the way call the lupus foundation they also can help with getting you to a lupologist if there is one in your area. You need to have someone take a gander inside with an otoscope. That will solve the mystery of where it is originating from. Go see your doc. — Bill Work When I got up this morning I noticed that there was blood on my pillow. I looked in the mirror and it’s coming from my left ear. Any idea what this could be from? It doesn’t hurt and my hearing seems ok. My only new med in, well years, is neurontin. thanks in advance, catherine I accidently posted this to the lupus newsgroup first, ok so now they know too that I am a blonde:)
Response:
No problem…someone still needs to look inside… And I hope you are having a blessed Advent. — Bill Work
– Hide quoted text — Show quoted text – Hey doc, I hate to do this… you stated that you are a lupus suffer cathrine?? It just so happens that the systemic part of lupus causes bleeding from everywhere ( Ive even heard of tear ducts bleeding) randomly at various degrees. for instance my wife is now bleeding so badly that there considering blood transfusions. Many doctors don’t know or just won’t acept that lupus causes this kind of bleeding. I agree with Doc on one thing though go see a ear doc about just to get a good idea of why?? if he says ideopathic or unknown causes talk to a lupologist. I would say a Rhumy but they will send you to a ear doctor. By the way call the lupus foundation they also can help with getting you to a lupologist if there is one in your area. You need to have someone take a gander inside with an otoscope. That will solve the mystery of where it is originating from. Go see your doc. — Bill Work When I got up this morning I noticed that there was blood on my pillow. I looked in the mirror and it’s coming from my left ear. Any idea what this could be from? It doesn’t hurt and my hearing seems ok. My only new med in, well years, is neurontin. thanks in advance, catherine I accidently posted this to the lupus newsgroup first, ok so now they know too that I am a blonde:)
Response:
oh its actually very blessed. Seems i got a good pain doc this time he’s orthodox i talked him out of giving me steroids for my swelling in the back (which means no more super struggle to stay with the fast). but his choice of meds have me confused. I’m now one a 3 day patch of…. dang i forgot what it’s called. I never heard of it before and i left the script with the pharmacist so i can’t look it up. any way he also upped my methodose. I’m taking 220 mg – Hide quoted text — Show quoted text -No problem…someone still needs to look inside… And I hope you are having a blessed Advent. — Bill Work Hey doc, I hate to do this… you stated that you are a lupus suffer cathrine?? It just so happens that the systemic part of lupus causes bleeding from everywhere ( Ive even heard of tear ducts bleeding) randomly at various degrees. for instance my wife is now bleeding so badly that there considering blood transfusions. Many doctors don’t know or just won’t acept that lupus causes this kind of bleeding. I agree with Doc on one thing though go see a ear doc about just to get a good idea of why?? if he says ideopathic or unknown causes talk to a lupologist. I would say a Rhumy but they will send you to a ear doctor. By the way call the lupus foundation they also can help with getting you to a lupologist if there is one in your area. You need to have someone take a gander inside with an otoscope. That will solve the mystery of where it is originating from. Go see your doc. — Bill Work When I got up this morning I noticed that there was blood on my pillow. I looked in the mirror and it’s coming from my left ear. Any idea what this could be from? It doesn’t hurt and my hearing seems ok. My only new med in, well years, is neurontin. thanks in advance, catherine I accidently posted this to the lupus newsgroup first, ok so now they know too that I am a blonde:)
Response:
wrote to the general assembly: that should be 220mg per day with the option to go up if i need to . – Hide quoted text — Show quoted text – oh its actually very blessed. Seems i got a good pain doc this time he’s orthodox i talked him out of giving me steroids for my swelling in the back (which means no more super struggle to stay with the fast). but his choice of meds have me confused. I’m now one a 3 day patch of…. dang i forgot what it’s called. I never heard of it before and i left the script with the pharmacist so i can’t look it up. any way he also upped my methodose. I’m taking 220 mg No problem…someone still needs to look inside… And I hope you are having a blessed Advent. — Bill Work Hey doc, I hate to do this… you stated that you are a lupus suffer cathrine?? It just so happens that the systemic part of lupus causes bleeding from everywhere ( Ive even heard of tear ducts bleeding) randomly at various degrees. for instance my wife is now bleeding so badly that there considering blood transfusions. Many doctors don’t know or just won’t acept that lupus causes this kind of bleeding. I agree with Doc on one thing though go see a ear doc about just to get a good idea of why?? if he says ideopathic or unknown causes talk to a lupologist. I would say a Rhumy but they will send you to a ear doctor. By the way call the lupus foundation they also can help with getting you to a lupologist if there is one in your area. You need to have someone take a gander inside with an otoscope. That will solve the mystery of where it is originating from. Go see your doc. — Bill Work When I got up this morning I noticed that there was blood on my pillow. I looked in the mirror and it’s coming from my left ear. Any idea what this could be from? It doesn’t hurt and my hearing seems ok. My only new med in, well years, is neurontin. thanks in advance, catherine I accidently posted this to the lupus newsgroup first, ok so now they know too that I am a blonde:)
Response:
Duragesic patch (fentenyl transdermal)…others here know that I am not a big fan of those but if they work for you, great. — Bill Work
– Hide quoted text — Show quoted text – wrote to the general assembly: that should be 220mg per day with the option to go up if i need to . oh its actually very blessed. Seems i got a good pain doc this time he’s orthodox i talked him out of giving me steroids for my swelling in the back (which means no more super struggle to stay with the fast). but his choice of meds have me confused. I’m now one a 3 day patch of…. dang i forgot what it’s called. I never heard of it before and i left the script with the pharmacist so i can’t look it up. any way he also upped my methodose. I’m taking 220 mg No problem…someone still needs to look inside… And I hope you are having a blessed Advent. — Bill Work Hey doc, I hate to do this… you stated that you are a lupus suffer cathrine?? It just so happens that the systemic part of lupus causes bleeding from everywhere ( Ive even heard of tear ducts bleeding) randomly at various degrees. for instance my wife is now bleeding so badly that there considering blood transfusions. Many doctors don’t know or just won’t acept that lupus causes this kind of bleeding. I agree with Doc on one thing though go see a ear doc about just to get a good idea of why?? if he says ideopathic or unknown causes talk to a lupologist. I would say a Rhumy but they will send you to a ear doctor. By the way call the lupus foundation they also can help with getting you to a lupologist if there is one in your area. You need to have someone take a gander inside with an otoscope. That will solve the mystery of where it is originating from. Go see your doc. — Bill Work When I got up this morning I noticed that there was blood on my pillow. I looked in the mirror and it’s coming from my left ear. Any idea what this could be from? It doesn’t hurt and my hearing seems ok. My only new med in, well years, is neurontin. thanks in advance, catherine I accidently posted this to the lupus newsgroup first, ok so now they know too that I am a blonde:)
Response:
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Question:
Sounds like you’ve really had a double whammy. I can’t imagine what it must be like to have both lupus and cancer. I hope you’ll find this newsgroup though to be a place of comfort and help. Hang in there! Sandra
Response:
Hi,My ame is Maria, I am 39 F from Pa.I have Systemic Lupus ,and Lympph node cancer throughout my body.i have and still go thru alot of terrible and hell days,but with,alot of prayers and ,great daughter,Nikki,I want to say she makes my life worth living ,she gave me a beautiful grandson,and other baby,on the way.She has been there always for the bad,and there was alot of bad,but she helped me through them.I started a scrapbook ,at home collecting post cards,from every state .it is so hard,for me to do,on my own ,if you would like to help me fulliful my dream,in helping me with my post card collection of different states please ,my addy will be at the end of this e-mail,Please everyone don`t give-up,it`s easy to say,and god i know that.This idea of the post card help me,i can`t travel,alot of bad days,and pain, but i get to look at alot of beautiful,states.Thanks ,to everyone who read this e-mail,i am so sorry it is long.Thanks Everyone,And "God Bless"Everyone,don`t give-up. Love a friend, Maria addy; Maria Klem 568 Main Street,Apt.6 Edwardsville,Pa.18704
* Duane I Love You Honey* My World * Love,Star*
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Question:
I just started reading the Wallace book. While I greatly enjoyed the non-medical sections (they fill me with hope and confidence), the medical sections make me very nervous. Considering an individual case of lupus, it appears that a first thing to find out is: is it organ threatening or not? I have several questions related to this. 1. Can they make this determination accurately? Can they do this early in the treatment? How long does it take? 2. Assuming a given case is the non organ threatening kind, how often should someone be tested to see whether it has changed to the other kind or not? 3. Is the determination (of which kind the lupus is) based on objective measures such as SED rate, etc. or is it based on examining each subsystem in the body – lungs, kidney, brain, CNS, etc.? Thanks. Good luck to everybody. — Regards. oak6789 Sent via Deja.com http://www.deja.com/ Before you buy.
Response:
My doc said blood tests once every six months at least for a while because they can see things in the blood work usually before I will know that I have any life threatening problem. Aside from that I get the feeling it is pretty much up to us to know our own bodies and understand this disease. The better we can communicate with our doctors the better we will fair when it comes to needing treatment. Just my honest opinion. Bev – Hide quoted text — Show quoted text -oak6…@my-deja.com wrote in message <8nf1rl$qf…@nnrp1.deja.com>… >I just started reading the Wallace book. While I greatly enjoyed the >non-medical sections (they fill me with hope and confidence), the >medical sections make me very nervous. >Considering an individual case of lupus, it appears that a first thing >to find out is: is it organ threatening or not? I have several >questions related to this. >1. Can they make this determination accurately? Can they do this early >in the treatment? How long does it take? >2. Assuming a given case is the non organ threatening kind, how often >should someone be tested to see whether it has changed to the other >kind or not? >3. Is the determination (of which kind the lupus is) based on objective >measures such as SED rate, etc. or is it based on examining each >subsystem in the body – lungs, kidney, brain, CNS, etc.? >Thanks. Good luck to everybody. >– >Regards. >oak6789 >Sent via Deja.com http://www.deja.com/ >Before you buy.
Response:
On Wed, 16 Aug 2000 21:42:17 GMT, you wrote: >Considering an individual case of lupus, it appears that a first thing >to find out is: is it organ threatening or not? I have several >questions related to this.
I’m not a doctor, I’m winging this. >1. Can they make this determination accurately?
Only if they see obvious signs of organ involvement such as elevated liver enzymes, protein in urine, low blood albumin, positive ACA (for antiphospholipid syndrome which by definition would cause systemic problems that could be organ threatening – especially the central nervous system). >Can they do this early >in the treatment?
from my experience – yes and no. Depends on the individual system involved. That is, kidney problems can be detected early. CNS problems are often not. >How long does it take?
a week? two weeks? Two months? (again, organ dependent – took a good friend of mine a couple of months to determine she was having multiple strokes due to lupus cerebritis) >2. Assuming a given case is the non organ threatening kind, how often >should someone be tested to see whether it has changed to the other >kind or not?
the rule of thumb is about every six months – unless you start feeling bad (worse) at which point you should see your doc and double check things more often. I am supposed to be getting my urine checked every two months…….. 
>3. Is the determination (of which kind the lupus is) based on objective >measures such as SED rate, etc. or is it based on examining each >subsystem in the body – lungs, kidney, brain, CNS, etc.?
yes and yes. SED rate tells little but ANAs are often tracked to look for disease activity though this is not foolproof. Most of the blood tests you would get every six months would be system specific (liver and kidney function are the most often concerned about because the liver can be damaged by meds and the kidney is of course at risk due to both meds and lupus). Take care… hope that helped. KCat *********************************** KCat http://www.ghg.net/schwerpt/mypage.htm http://www.ghg.net/schwerpt/aslfaq20.htm ("`-”-/").___..–”"`-._ (`6_ 6 ) `-. ( ).`-.__.’`) (_Y_.)’ ._ ) `._ `. “-..-” _..`–’_..-_/ /–’_.’ ,’ (()),-” (()),’ (((.-’
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Question:
Generally topical steroids have very mild sytemic effects and sometimes the frequency of application can be reduced as it resolves. You could also ask for a milder steroid lotion as the condition improves. UV light can cause discoid lupus to worsen so it is recommended to apply sunscreen to the nose when your dog is going to be exposed to a lot of sunlight. Some dogs respond to vitamin E (400 IU twice daily) but it takes 1-2 months before it will have an effect. Dogen – Hide quoted text — Show quoted text – My yellow lab ( 1 year old ) has been diagnosed as having a form of non systemic lupus resulting in a dry scaley nose with some loss of pigmentation. Vet suggested treatment with a steroid cream to keep it controlled. I’m currently using Betnovate ( betamethasone valerate ) but am not happy applying it on a daily basis. Any suggestions? Regards Hoggy
Response:
— Click here, not on Reply – Hide quoted text — Show quoted text – My yellow lab ( 1 year old ) has been diagnosed as having a form of non systemic lupus resulting in a dry scaley nose with some loss of pigmentation. Vet suggested treatment with a steroid cream to keep it controlled. I’m currently using Betnovate ( betamethasone valerate ) but am not happy applying it on a daily basis. Any suggestions? Regards Hoggy
Response:
My yellow lab ( 1 year old ) has been diagnosed as having a form of non systemic lupus resulting in a dry scaley nose with some loss of pigmentation. Vet suggested treatment with a steroid cream to keep it controlled. I’m currently using Betnovate ( betamethasone valerate ) but am not happy applying it on a daily basis. Any suggestions? Regards Hoggy
Response:
Posted in Systemic Lupus | No Comments » |
Question:
George, I’m tucking this away to present to a friend of mine who has systemic Lupus. Thanks, Connie – Hide quoted text — Show quoted text – Below is a string from the lupus NG. I have seen questions about this subject here in the past and thought it would be nice for folks to see that low-carb is beneficial in other ways than weight control. George Newsgroups: alt.support.lupus Linda, Doctor Atkins book is but one of many. Doctor(s) Eades wrote "Protein Power" and then there is the "Carbohydrate Addict Diet" plus many more. If you go to the newsgroup alt.support.diet.low-carb and read their FAQ you will get a tremendous amount of information including the names of the books. I visit this group daily to get recipes and updates on this way of life. Most people are there to lose weight but it is still informative. I think the books are available at the library as well. I strongly recommend reading the complete book or books and get the entire story before proceeding. The references to vitamins and minerals are as important as the eating plan. The system works, it has been proven many times over. However, one must understand all of the ramifications to succeed. The rhetoric about kidney involvement has been revealed as "BS" but is still spread in ignorance. What detractors should keep in mind is that these people are doctors and would have had their respective asses sued off by now if this plan wasn’t sound. I am a 61 year old male. I have SLE. After 2 years on this way of living I have lost about 70 pounds. My LDL count is 114, cholesterol 166, triglycerides (?) 59, blood pressure 108/78, pulse in the 60s. All of these results have improved since I began this plan. More importantly to me, I am able to get up and go! I am no longer a victim. I make it a point to do something physical every day. I have met many people who have diabetes who have been able to reduce their use of or eliminate insulin therapy after switching to low-carb. I find it very easy to live and eat this way. I must only think of the misery that I experienced previously to keep on track. Someone ask how eliminating gluten relates to low-carb. It is only part. I elect to practice this in order to be able to be active and functional. I prefer this to being groggy and bed ridden as I was before. Needless to say, I’m a believer! Good luck, George Hi George, Can you recommend a good "Lo-Carb" book to read and follow? Is the Atkins diet such one? And does a lo-carb diet really help in eliminating pains of Lupus and possibly the pounds? Linda I live "lo-carb" and have for 2 years. It was recommended to me by a lupus specialist, Dr. Philpott in Oklahoma. He has authored many articles about lupus and diet implications. He states very matter of factly that he has never had a lupus patient that did not respond favorably to the elimination of gluten from the diet. I have lupus. My current rheumatoligist supports my way of eating, both for weight control and the obvious positive effects it has on my other conditions including my labs. It really works! I suggest reading some of the books on the subject that are authored by doctors. Read all of the information then decide. George Just a small snippet from a study done by Duke U. for a yer on the effects of the low carb diet. "Now we have documentation for 319 patients studied over an average span of about one year showing that changes in kidney and renal function tests, creatinine, BUN, BUN/creatinine ratios, AST, ALT, and total bilirubin were very small, and mostly in the desirable direction. If the diet has serious consequences for liver and kidney function, they might be expected to show up well within a year time span. Such was clearly not the case. In short, however you look at the data from the study there is every indication that the diet not only confers health benefits but does so safely."
Response:
Below is a string from the lupus NG. I have seen questions about this subject here in the past and thought it would be nice for folks to see that low-carb is beneficial in other ways than weight control. George Newsgroups: alt.support.lupus Linda, Doctor Atkins book is but one of many. Doctor(s) Eades wrote "Protein Power" and then there is the "Carbohydrate Addict Diet" plus many more. If you go to the newsgroup alt.support.diet.low-carb and read their FAQ you will get a tremendous amount of information including the names of the books. I visit this group daily to get recipes and updates on this way of life. Most people are there to lose weight but it is still informative. I think the books are available at the library as well. I strongly recommend reading the complete book or books and get the entire story before proceeding. The references to vitamins and minerals are as important as the eating plan. The system works, it has been proven many times over. However, one must understand all of the ramifications to succeed. The rhetoric about kidney involvement has been revealed as "BS" but is still spread in ignorance. What detractors should keep in mind is that these people are doctors and would have had their respective asses sued off by now if this plan wasn’t sound. I am a 61 year old male. I have SLE. After 2 years on this way of living I have lost about 70 pounds. My LDL count is 114, cholesterol 166, triglycerides (?) 59, blood pressure 108/78, pulse in the 60s. All of these results have improved since I began this plan. More importantly to me, I am able to get up and go! I am no longer a victim. I make it a point to do something physical every day. I have met many people who have diabetes who have been able to reduce their use of or eliminate insulin therapy after switching to low-carb. I find it very easy to live and eat this way. I must only think of the misery that I experienced previously to keep on track. Someone ask how eliminating gluten relates to low-carb. It is only part. I elect to practice this in order to be able to be active and functional. I prefer this to being groggy and bed ridden as I was before. Needless to say, I’m a believer! Good luck, George
Hi George, Can you recommend a good "Lo-Carb" book to read and follow? Is the Atkins diet such one? And does a lo-carb diet really help in eliminating pains of Lupus and possibly the pounds? Linda I live "lo-carb" and have for 2 years. It was recommended to me by a lupus specialist, Dr. Philpott in Oklahoma. He has authored many articles about lupus and diet implications. He states very matter of factly that he has never had a lupus patient that did not respond favorably to the elimination of gluten from the diet. I have lupus. My current rheumatoligist supports my way of eating, both for weight control and the obvious positive effects it has on my other conditions including my labs. It really works! I suggest reading some of the books on the subject that are authored by doctors. Read all of the information then decide. George Just a small snippet from a study done by Duke U. for a yer on the effects of the low carb diet. "Now we have documentation for 319 patients studied over an average span of about one year showing that changes in kidney and renal function tests, creatinine, BUN, BUN/creatinine ratios, AST, ALT, and total bilirubin were very small, and mostly in the desirable direction. If the diet has serious consequences for liver and kidney function, they might be expected to show up well within a year time span. Such was clearly not the case. In short, however you look at the data from the study there is every indication that the diet not only confers health benefits but does so safely."
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Question:
I have noticed that frequently I get these bumps in and on the back of my head. First it feels like a sharp pain then it swells up and hurts. Never anywhere else. Ok stop with the jokes and no I do not have cooties or fleas ha ha. Really after the swelling goes down then there is a scab like area there forquit a while. Is this discoid???
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<<Really after the swelling goes down then there is a scab like area there forquit a while. Is this discoid???>> I couldn’t say, though I can say that it does sound like something with which a dermatologist would be helpful. Sandra
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In article <Wafy4.229$Pu2.1…@cletus.bright.net>, Janers <rojak…@bright.net> writes >I have noticed that frequently I get these bumps in and on the back of my >head. First it feels like a sharp pain then it swells up and hurts. >Never anywhere else. Ok stop with the jokes and no I do not have cooties >or fleas ha ha. >Really after the swelling goes down then there is a scab like area there >forquit a while. Is this discoid???
What’s the time-scale – how long does it take for a bump to appear and disappear? — Andy For Austrian philately: <URL:http://www.kitzbuhel.demon.co.uk/austamps/> For Lupus: <URL:http://www.kitzbuhel.demon.co.uk/lupus/> For my other interests: <URL:http://www.kitzbuhel.demon.co.uk/>
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Oh my God!!! I get the same exact thing – I thought I was nuts!! I notice that when my rash on my face is bad, it sometimes puffs up into hives elsewhere on my body. I’ve figured that these are actually hives on the back of my head. Sounds totally nuts, doesn’t it? But I asked my doc and he says ‘perfectly logical’. Some people with SLE also get hives as many do with Discoid. The Atarax I take makes it go away in almost every case. I felt pretty silly telling people I had "hives on my head". (So I usually just kept it to myself….but you guys don’t care, do ya’?) M Janers <rojak…@bright.net> wrote in message
news:Wafy4.229$Pu2.1708@cletus.bright.net… – Hide quoted text — Show quoted text -> I have noticed that frequently I get these bumps in and on the back of my > head. First it feels like a sharp pain then it swells up and hurts. > Never anywhere else. Ok stop with the jokes and no I do not have cooties > or fleas ha ha. > Really after the swelling goes down then there is a scab like area there > forquit a while. Is this discoid???
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I get that too and I have been told by my doc that it is discoid – im lucky enough to have discoid symptoms and SLE (without major organ involvement though my chest is now troublesome). Not a lot you can do to treat the sores although i find that witchhazel really helps relieve the pain, pressure and scabs. I get them on my neck and face as well. Karen Janers wrote in message … >I have noticed that frequently I get these bumps in and on the back of my
head. First it feels like a sharp pain then it swells up and hurts. – Hide quoted text — Show quoted text ->Never anywhere else. Ok stop with the jokes and no I do not have cooties or fleas ha ha. >Really after the swelling goes down then there is a scab like area there >forquit a while. Is this discoid???
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Went to the dermy about those bumps. And he refused a biopsy and said I did not need anything to confirm that it was lupus. He said I had enough blood tests to do that. I argued and said rheumy wanted it and did this 5 times and he again said you have a pos ANA and others so that is enough. Then went on to say that IF I or the rheumy REALLY wanted on He would do it. Damn I think he wanted another $50.00 visit on top of this one to boot, so out I went and told the rheumy and she will get back with me. What a stinker…. — JANERS
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I have also been getting this lately but having hair loss with it too. Does any one know if there is a good med for this before I go bald?
~SUSAN~
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<<I have also been getting this lately but having hair loss with it too. Does any one know if there is a good med for this before I go bald? >> You really need to go see a dermatologist for this. There are medications for this type of problem. The treatment, though, isn’t generally aimed so much directly at the rashes causing the hair loss as the underlying cause. That usually means systemic treatment. In addition to Prednisone, there are a variety of lupus medications which can be helpful. You’d need to discuss this with your doctor though in order to try to figure out what might be best for you. Sandra
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On Sat, 18 Mar 2000 13:38:30 -0800, "KLR" <karenlrutherf…@telus.net> wrote: >I get that too and I have been told by my doc that it is discoid – im lucky >enough to have discoid symptoms and SLE (without major organ involvement >though my chest is now troublesome). Not a lot you can do to treat the >sores although i find that witchhazel really helps relieve the pain, >pressure and scabs. I get them on my neck and face as well.
I’ve found tea-tree oil shampoo good for the scalp pash and scabbing, too. It’s an anti-fungal, as well as a good cleanser like witchhazel. Suzanne * – * – * – * – * – * – * – * – * – * – * – * – * – * – Suzanne Doig – remove obvious from reply-to address http://www.geocities.com/smdnz/
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Hi Susan: You might want to see your dermatologist for this before it gets any worse. Maybe you need to have some treatment for it… I get shots and also use a strong steroid cream when I get the lesion/bumps/rash… Hair will continue to fall out if the lesion spreads… at least mine did!! Mary/az
maryspeisr.vcf
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Question:
Hi everyone out there. It has been a while since I have accessed this newsgroup. I hope everyone is doing o.k. I have been in the hospital for the last week. I had a well known rheumatologist come in for a consult. I was not hospitalized from my lupus. (I was diagnosed three years ago) But from an abnormal heartrate.(SVT). Anyway; He diagnosed me with adult "Still’s" disease. I am wondering if anyone out there has ever heard of this before or has been diagnosed with this before? He told me this is pretty rare and can often be confused with lupus and or mimic lupus. I got out the" Primer on rheumatological diseases" It is a good book but was put out about five years ago and had one page on this disease. Someone please help!!!! God Bless, Carie
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Here are a couple of websites on Still’s disease (systemic JRA) which I think you’ll find very helpful. http://stilligans.tripod.com/stills1.htm http://www.stillsdisease.org/ It is indeed very much like lupus. Sandra
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Thankyou Sandra for the sites. I will check them out tonight. Thanks Again, Carie
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Question:
Sweating is a natural response to anxiety. The symptoms you are mentioning, needs to be investigated by a professional. Good Luck. Tootles… Goodie 2-oo * Sent from RemarQ http://www.remarq.com The Internet’s Discussion Network * The fastest and easiest way to search and participate in Usenet – Free!
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I thought that my rapid hair loss and turning grey may be anxiety related. Docs did some tests and asked about family history. They have told me that I ‘just’ have ‘male pattern boldness’. Oh well I may have to buy a hat 
Simon
Your doctor is probably right about the *male pattern baldness* I picture you in a big cowboy hat<VBG Jackie
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::::snipped:::: Also can anxiety cause hair loss, I have been losing over 125+ a day for a year now and my hair is really thinning all over.
Hi Petro, Anxiety, certain medications and some physical disorders can cause hair loss. It would be wise to tell your doctor about the hair loss. A few years ago I would cry when I brushed my hair because of how much was coming out, and it turned out to be my thyroid. It seems like you have had alot of bloodwork and I would imagine that you have been tested for thyroid problems, but you should ask just in case you haven`t. Take care. Jackie
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- Hide quoted text — Show quoted text – I know during times of anxiety my hands get real cold, but there are times when the palms of my hands and the souls of my feet get bright red. I am wondering if this is a anxiety symptom or something else like raynauds phenominon, someone also told me this happens to people when they have a lupus flare also. two types of lupus discoid and systemic-with discoid a butterfly shaped rash or discoloration can occue on the face around the nose and forehead-not the hands-cold hands (warm heart) is due to the circulation of blood moving away from your extremeties during anxiety and going to more critical areas like heart stomach lungs etc-to ready you for flight or fight-also the reduced blood flow to extremeties prevents increased bleeding in the event the whooly mammouth bites your hand-its ain inborn survival mechanism-your palms and soles blanch red as the capilaries in there constrict to prevent blood from enetering thus trapping some in there to continue to mediate functions. Raynauds is a different system that has similar results on a chronic basis with no emotional percipitator. You can train yourself via autohynosis to increase your extremety blood flow (useful for ceratin types of headaches) and actually increase skin temperature LM
I know the cold hans only come on when I am nervous or stressed and having anxiety, but the real red palms and souls happens sometines when nothing is going on, could this be raynauds? I had a full auto-immune panel done and the lupus test came back negative, but I had a real high ANA of 1280, all other tests came back fine, but Iam constantly worried about the high ana. Also can anxiety cause hair loss, I have been losing over 125+ a day for a year now and my hair is really thinning all over.
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I get the same thing all the time. Try this for fun. Sit up in a very relaxed position, and relax your muscles as much as you can, and then let yourself meditate (just focus on something in your mind’s eye, if you don’t really know how to meditate. You should actually be able to feel the warmth of the blood flow returning to you extremities within just a few minutes. Let me know if it works. Pierre
– Hide quoted text — Show quoted text – I know during times of anxiety my hands get real cold, but there are times when the palms of my hands and the souls of my feet get bright red. I am wondering if this is a anxiety symptom or something else like raynauds phenominon, someone also told me this happens to people when they have a lupus flare also.
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I know during times of anxiety my hands get real cold, but there are times when the palms of my hands and the souls of my feet get bright red. I am wondering if this is a anxiety symptom or something else like raynauds phenominon, someone also told me this happens to people when they have a lupus flare also.
Response:
- Hide quoted text — Show quoted text – I know during times of anxiety my hands get real cold, but there are times when the palms of my hands and the souls of my feet get bright red. I am wondering if this is a anxiety symptom or something else like raynauds phenominon, someone also told me this happens to people when they have a lupus flare also.
two types of lupus discoid and systemic-with discoid a butterfly shaped rash or discoloration can occue on the face around the nose and forehead-not the hands-cold hands (warm heart) is due to the circulation of blood moving away from your extremeties during anxiety and going to more critical areas like heart stomach lungs etc-to ready you for flight or fight-also the reduced blood flow to extremeties prevents increased bleeding in the event the whooly mammouth bites your hand-its ain inborn survival mechanism-your palms and soles blanch red as the capilaries in there constrict to prevent blood from enetering thus trapping some in there to continue to mediate functions. Raynauds is a different system that has similar results on a chronic basis with no emotional percipitator. You can train yourself via autohynosis to increase your extremety blood flow (useful for ceratin types of headaches) and actually increase skin temperature LM
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Question:
Hi I, have never heard of that and am a nurse with lupus but we don’t know every thing E-MAIL ME BACK IF YOU FIND OUT WHAT IT IS OK. betty…@cyberlynk.com panniculitis have a nice day and may god bless you.
Response:
In article <BuSc4.1241$T01.40…@nuq-read.news.verio.net>, bettybop <betty…@cyberlynk.com> writes >Hi >I, have never heard of that and am a nurse with lupus but we don’t know >every thing >E-MAIL ME BACK IF YOU FIND OUT WHAT IT IS OK. >panniculitis
Found this on the web.. Re: LUPUS PROFUNDUS Posted by LupusDoc on November 10, 1997 at 13:25:44: Hello Hellen and Penny! We asked the doctor your questions, and this was his reply: I’ve decided to answer these questions together. First, What is Lupus Profundus? Lupus Profundus is a form of Lupus Panniculitis. In the case of profundus, there is also discoid lupus (panniculitis does not have additional DLE involvement). In profundus/panniculitis, firm nodules (1-3cm) form deep under the skin, and usually *nestle* in adipose tissue (fat). The overlying skin usually becomes attached to the nodule, causing it to indent/depress. In profundus, those areas of depression often develop discoid lesions. Only a very small percentage of SLE patients develop profundus, and also only a small percentage of profundus patients develop SLE. Treatment ranges from topical ointments (for the discoid rash) to systemic steroids and even cytotoxic agents (in severe cases). Antimalarials (Plaquenil) have been shown to be effective in the treatment of the *discoid* part of the illness. Profundus is not life-threatening, but can be disfiguring if not treated. Prognosis of profundus is that of a chronic illness, that is not terminal. Whether or not to discontinue plaquenil treatment, is something you need to discuss with your physician. It might be giving you benefits that you are unaware of. Penny–It’s possible that the indentation could be profundus or panniculitis, but not likely. The most likely places for it to occur are: head, upper arms, chest, buttocks, thighs. You mentioned that the indentation is on your nose. The nose has very little adipose tissue in which the nodules can attach. If you are concerned, you should see your dermatologist. He/she will be able to tell you if it’s profundus/panniculits or not. — Andy For Austria & its philately, Lupus, & much else visit <URL:http://www.kitzbuhel.demon.co.uk/>
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