Question:
In the Lupus book it states: interstial lung disease and pulmonary emboli are the second and third most observed lung complications in systemic lupus. I don’t quit understand why your doctors seem surprised to see this. The doctor I see has quite a few patients with severe lung problems. (I meet them in the waiting room) I hope they find a satisfactory treatment for you soon. I can’t imagine how hard it is for you. Good luck.
Response:
You know. I appreciate your pointing that out to me. It’s simply what I was told but, now that you do mention it, you’re right. Part of it may be that I seem to be the only one in the NG that is dealing with the klung thing right now. You’ve given me an excellent question for the Rheumy tho. Thanks. Michael "Charlotte" <carrabelle2…@yahoo.com> wrote in message
news:rkpt8vo16jojdc2nbjcna0755k3fruf7hg@4ax.com… – Hide quoted text — Show quoted text -> In the Lupus book it states: > interstial lung disease and pulmonary emboli are the second and third > most observed lung complications in systemic lupus. > I don’t quit understand why your doctors seem surprised to see this. > The doctor I see has quite a few patients with severe lung problems. > (I meet them in the waiting room) > I hope they find a satisfactory treatment for you soon. I can’t > imagine how hard it is for you. > Good luck.
Response:
> Part of it may be that I seem to be the only one in the NG that is dealing > with the klung thing right now.
Hi Michael: I imagine many of us face the "being alone" even in this Lupus crowd; because that’s the nature of the disease — it can attack so many different things, potentially, that few of us have the same experience. For me, it was/is an extreme attack on my muscles; and I know most people on the ng don’t specifically relate to that, at least not in the extremes I’ve faced. Anyhow, because lupus is the "disease of 1,000 faces" — I think it’s easy for us to feel alone in our experience… Just a thought, Grace.
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