Question:
Boy am I glad I found your site! Im recently married, age 37 and living in Canada. When I was told recently that I may have CREST, I was also discouraged using the NET to get info. Tomorrow is D-Day when I’m suppose to call my doctor. After visiting your site, I’m glad I did. In 96 I was told I had Lupus. During a regular check-up, my doctor noticed my hands and feet were blue and sent me to see a specialist. It was then they told me it was Lupus, however I had no problems with anything else. As far as I was concerned, there was nothing wrong with me. Well….things sure change fast! Recently, they are saying that they are leaning more towards Scleroderma – Crest (Systemic Sclorosis). But what I’m having a problem with is my wonderful and adoring husband. I don’t understand his reaction to all this. I’m so frightened and wish and need to talk about it but he always seams to make light of it. I then begin to feel maybe I’m making a big deal out of nothing. Perhaps I’m over dramatizing it. He always seams so "non worried". I’m not sure if it’s denial or that he really doesn’t understand the severety of this desease? I’ve told a few friends and family but I’m still not sure how to explain it since I’m not fully versed in the subjet mysefl. Please send me e-mail with suggestions when you have a chance. Thanks Paula *-(
Response:
Albert & Paula <albertandpa…@home.com> wrote in message news:377C25E2.25C84D58@home.com… > Boy am I glad I found your site! Im recently married, age 37 and living > in Canada.
Boy, we are so glad you found us to. Sorry you needed us but so pleased you found us. I am 37 also. >When I was told recently that > I may have CREST, I was also discouraged using the NET to get info.
Sometimes the information and support available online can be overwhelming to those that are newly diagnosed. For those I suggest that they read small portions every few days rather then try to read it all at once. I think plunging in and trying to absorb it all is too overwhelming when we have just been told we have a life changing disease. > Tomorrow is D-Day when I’m suppose to call my > doctor. After visiting your site, I’m glad I did.
I hope everything went okay when you called the doctor. > But what I’m having a problem with > is my wonderful and adoring husband. I don’t understand his reaction to > all this. I’m so frightened and wish and need to talk > about it but he always seams to make light of it. I then begin to feel > maybe I’m making a big deal out of nothing. Perhaps I’m > over dramatizing it.
I promise you that you are not over dramatizing. Many spouses find it difficult to face and try to avoid discussing it. Don’t let that make you think you shouldn’t talk about it. You can talk all you need to us and I promise you that we will listen and we will discuss it with you. >He always seams so "non worried". I’m not sure if > it’s denial or that he really doesn’t understand the > severety of this desease?
Or it could be that he doesn’t WANT to understand the severety of this disease. He is probably frightened and truly believes him trying to keep you from talking about it is somehow helping you. Some people feel that if they don’t talk about it they are not focusing on it and that this helps them go on with life to spite the illness. The truth is that they have to face the reality issues eventually and it is best if they do talk with each other about their fears, concerns, etc but this is something he will have to come to terms with. In the mean time you want to talk so you should find someone to talk to. We are happy to be that contact for you. Email me anytime. Sherry Messick surviv…@sclerodermasupport.com ************************************************************* Surviving Scleroderma http://sclerodermasupport.com Scleroderma Foundation Greater Washington DC Serving: MD, VA and DC http://sclerodermagw.org ************************************************************* Join Us Online "Together We Can Beat The Odds"
Response:
Hi Paula! How did Doctor’s visit go? Welcome to our group, I hope you get all the help you need. Families and friends have a hard time coping with something as scary and unknown as this disease. Right now I just burnt supper, so I will have to go and rescue it;-(. I’ll will get back to you later, please take care. Hugs from Susan – Hide quoted text — Show quoted text -Albert & Paula wrote: > Boy am I glad I found your site! Im recently married, age 37 and living > in Canada. When I was told recently that > I may have CREST, I was also discouraged using the NET to get info. > Tomorrow is D-Day when I’m suppose to call my > doctor. After visiting your site, I’m glad I did. In 96 I was told I > had Lupus. During a regular check-up, my doctor noticed my > hands and feet were blue and sent me to see a specialist. It was then > they told me it was Lupus, however I had no problems > with anything else. As far as I was concerned, there was nothing wrong > with me. Well….things sure change fast! Recently, they > are saying that they are leaning more towards Scleroderma – Crest > (Systemic Sclorosis). But what I’m having a problem with > is my wonderful and adoring husband. I don’t understand his reaction to > all this. I’m so frightened and wish and need to talk > about it but he always seams to make light of it. I then begin to feel > maybe I’m making a big deal out of nothing. Perhaps I’m > over dramatizing it. He always seams so "non worried". I’m not sure if > it’s denial or that he really doesn’t understand the > severety of this desease? I’ve told a few friends and family but I’m > still not sure how to explain it since I’m not fully versed in > the subjet mysefl. Please send me e-mail with suggestions when you have > a chance. Thanks Paula *-(
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