Question:
Willow Tree what a perfect analogy (0: where I grew up as a child in New York (upstate) down the creek bout half way between my Grampas house and my best friends house was a grove of Willows ,my most favorite place, one had bent and grown over the creek and we would lay on it. I often go back to my hometown in my mind visualize the happy places I went as a child, feel the cool summer evenings. This is a very difficult disease at times, It helps me to escape, if only in my mind. Maybe if we can all find a happy place like that it can help sometimes. Cindy
Response:
MICHELLE, WHEN YOUR BODY SAY STOP…STOP..
Response:
In article <14760-3B493032-…@storefull-267.iap.bryant.webtv.net>, Rita Bradley <sweepncl…@webtv.net> wrote: >Did not go out for 2 days. Trying to figure out if it was >tiredness, chemicals in cleaning, or lights in wal mart. Happens alot, >but never that bad. Let me know if you have had anymore spells. Lots
Cirtrus-based cleaners (usually orange) contain d-lemonene as a grease solvent. The stuff is notorious for causing skin reactions in _normal_ people, and it’s worse for people with lupus. It’s the same offensive compound that’s in bergamot and several other things (like cheap nasty perfumes) that can cause lupus flares. — Lee M.Thompson-Herbert l…@retro.com KoX 1995, SP4 Head Muso, White Rats Morris Member, Knights of Xenu (1995). Chaos Monger and Jill of All Trades. "A head-on collision between Morticia Adams and Martha Stewart"
Response:
Regarding the tonsillitis, did you ever get back in touch with your doctor about that? Did they ever give you any antibiotics? I hope so, and I hope you’re feeling better soon. Until then, it’s really best to take it easy on yourself. Pushing yourself to take on more and more isn’t going to help you get better any time soon. With acute toncillitis, most people wouldn’t be trying an all day CPR course. With lupus added to the picture, it sounds like an even worse idea. Sandra
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Michelle, A few months back, I was working ( I run a cleaning service ) mostly businesses, and then went to wal mart . When I got home, my face turned beet red. I was running around trying to scratch it, it was burning and pulling my eyes together and causing a headache over my eyes. My husband was yelling, don,t scratch. I know how you felt. I looked horrible!!! Hair pulled back and steriod cream on it. Did not go out for 2 days. Trying to figure out if it was tiredness, chemicals in cleaning, or lights in wal mart. Happens alot, but never that bad. Let me know if you have had anymore spells. Lots of Hugs, Rta
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My name is judy. I have only been sick for two months, My body gives me singles and I have no choice but to rest or go to sleep. I learned the HARD WAY when I tried to push myself I will pass out or feel like I am going to. I read that you should space stuff you do out a little at a time . I also found that I have to let someone else do it.Take what is important like your son and let other stuff go what has to be done now today. These are just my options and you know what they say about options they are like butholes everybody has one. Judy
Response:
Hi Michelle, It’s just not fair is it. The only guideline I know of with this illness is that if I do too much I will eventually pay for it. Sometimes the payback comes a little later than others, but it always comes. Sometimes I knowingly do too much just to remind myself that I am in there fighting, that I am not going to be dictated to all of the time. When the payback comes, that’s alright, it was expected. Sometimes though the illness just decides to have a go, without any real provocation. The natural reaction is to think "But this isn’t fair! This is too much payback! I have been good!" We all know though that it is not a fair illness and does not always reward good behaviour with being quiet. Then I have to try and relax, let go of my anger at the unfairness of it and wait for the bad time to pass. I think, willow tree! Doesn’t look too strong and when the storm comes it bends right over, enough to almost break it. But it doesn’t break, and when the storm has passed it is back upright again. Maybe minus a few leaves and twigs, but still upright. ‘Willow Tree’ Martin "Michelle" <SabresGir…@webtv.net> wrote in message
news:11543-3B44E045-3@storefull-623.iap.bryant.webtv.net… – Hide quoted text — Show quoted text -> Can someone tell me more about this? > As you all know I have been havin a hard time lately, and I am thinking > my body is really tryin to get me to stop. Earlier today I took my son > to school, did one load of laundry, and worked on the computer, when my > face turned bright red-felt like it was on fire and itched like crazy, > immediately after this I got VERY dizzy and sick to my stomach. I have > been "resting" since monday, but I did not nap today, didn’t have the > feeling that I could if I tried. > I cannot believe that a 7 hour weekend trip could have done this to me, > so far I have been out of commision for 4 days, this is nuts! Can > anyone give me examples of their limitations/recovery time, just so I > can begin to estimate the appropriate length I may (or may not, since > everyone is different) be able to do something with my son. > I am lucky I have this week off from school, but saturday I have CPR > training from 8am-5pm and have a class starting on monday. I was hoping > to get back to working, but I don’t see that happening for a while. > *sigh* > Alright, thats it for me, getting to ‘tired’ to keep typing, > Michelle
Response:
Can someone tell me more about this? As you all know I have been havin a hard time lately, and I am thinking my body is really tryin to get me to stop. Earlier today I took my son to school, did one load of laundry, and worked on the computer, when my face turned bright red-felt like it was on fire and itched like crazy, immediately after this I got VERY dizzy and sick to my stomach. I have been "resting" since monday, but I did not nap today, didn’t have the feeling that I could if I tried. I cannot believe that a 7 hour weekend trip could have done this to me, so far I have been out of commision for 4 days, this is nuts! Can anyone give me examples of their limitations/recovery time, just so I can begin to estimate the appropriate length I may (or may not, since everyone is different) be able to do something with my son. I am lucky I have this week off from school, but saturday I have CPR training from 8am-5pm and have a class starting on monday. I was hoping to get back to working, but I don’t see that happening for a while. *sigh* Alright, thats it for me, getting to ‘tired’ to keep typing, Michelle
Response:
Michelle, I hate to admit it but your body id probably right. I can have the same effect from alot less than 7 hours it is hard to accept. I get so frustrated. My daughter is 12 and she needs a mom she doesn’t have to treat like glass. It is so hot in Texas i have to get everything done by at least 10 am or I pay the rest of the week for it. I wish we had some easy answers. We do have to listen to our bodies though. I really hope you feel better soon Soft hugs Cindy
Response:
<< Can anyone give me examples of their limitations/recovery time, just so I can begin to estimate the appropriate length I may (or may not, since everyone is different) be able to do something with my son.>> All I can say is that if we take a trip like you took recently, my daughter typically "pays" for it for a couple of days after we return. That’s one of the toughest things about lupus, I think. The fact that whenever you do something that another might consider "ordinary," you end up paying for it afterwards in the form of a flareup. While you’re on your trip, other people might think you look very good and think everything must be perfectly fine. They don’t see what you go through after. Anyway, I have to tell you what you likely already know. Each person is a little different in terms of what he/she can tolerate and how much payback time is involved. You simply have to become familiar with your own limitations, as well as how far you can exceed them without ending up in a major flare. I’m sorry to hear that you’re having such a hard time right now. I hope you can get things back under control soon. I sure wish there were some easy answers to give you. Dealing with lupus though can be tough sometimes. Sandra
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Hi Michelle, I found that when to stop was very hard to learn. Like you, I kept trying to tough it out and keep going – as though will power was all it took! Eventually (over several years) I learned that when my body said "stop" that if I did I felt better faster and did not get as bad. For me, "stop" means just that. I don’t do anything that is not necessary for survival. I sit or sleep, read, watch TV, drink plenty of juice and/or herbal tea and get all the exercise I can handle going to the john. I also find that even "working at the computer" can be too much. For me, any effort – mental or physical – delays recovery. I realize that your son’s survival needs are as important to you as your own but perhaps if you limit your actions on his behalf as soon as your body starts telling you, you could get back to "normal" even faster. I know what it means to feel guilty because of a child’s needs – It was hard for me to realize that I was my child’s primary need and that I had to take care of myself for him. I do hope you feel much better soon. Jackie
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I am trying to do as my body says but its being so difficult, I rested all this morning, but I had to go to the store this afternoon (as I cannot eat anything because of the toncilitis and what I managed to eat just came back up) to get some popcicles, jello, 7-up….you know all those "I’m sick" foods. Just going to the store kicked my butt hard! I felt as if I would passout or even worse vomit. I cannot play around with this flare, I have stuff to do-tomarrow I am supposed to go to CPR training all day- but somehow I don’t think reasoning with my body is going to help any. It says stop, and I just have to listen to it no matter what, my willpower isn’t going to win, and THAT is what bothers me the most!! I hate laying here while I watch my son tear up the house- not having a voice to tell him to clean up, guess when I am better I will have plenty to do. Anyways thats it for the typing…. Michelle
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