Lupus FAQ

Question:

So I spoke with my dad today, and he’s in a cheery mood.  They’re taking him to another hospital tomorrow, where he’ll have an angiogram to determine how blocked his arteries are.  Then they will be giving him two stents and doing an angioplasty tomorrow. I’m just so glad they caught this before ‘The Big One’ hit. He told me in more detail today what happened.  He went to his local gp for some antibiotics for his bronchitis (sp?).  He mentioned some chest pains, and so his gp gave him an EKG.  They compared this to a previous EKG he had, and the gp noticed some minute changes, and suggested he had this looked into.  Thankfully my dad did, ’cause he now needs two stents and an angioplasty! So even though it’s bad news that there’s something wrong, it’s great news that they caught it before the heart attack.  :) Thanks everyone for the good wishes.  They helped a bunch! I will be going to the hospital tomorrow to be there for the procedure with my mom.  Hopefully it’s all smoothe sailing from here on out. -Sharon — Visit my webpage: http://www.qc.edu/~sperlof1/stills/webpage.html ~Integrity~ Integrity is one of the several paths. It distinguishes itself from the others because it is the right path… and the only one upon which you will never get lost.                                 -M.H. McKee

Response:

Not to worry, as I said in an earlier post, the whole thing is about an hour (even with the stents) and he will feel SO much better afterwards. Hugs Judith, in Sunny SoCal "Sharon Perloff" <noway…@hotmail.com> wrote in message

news:av9tmd$dist1$1@ID-163463.news.dfncis.de… – Hide quoted text — Show quoted text -> So I spoke with my dad today, and he’s in a cheery mood.  They’re taking > him to another hospital tomorrow, where he’ll have an angiogram to > determine how blocked his arteries are.  Then they will be giving him > two stents and doing an angioplasty tomorrow. > I’m just so glad they caught this before ‘The Big One’ hit. He told me > in more detail today what happened.  He went to his local gp for some > antibiotics for his bronchitis (sp?).  He mentioned some chest pains, > and so his gp gave him an EKG.  They compared this to a previous EKG he > had, and the gp noticed some minute changes, and suggested he had this > looked into.  Thankfully my dad did, ’cause he now needs two stents and > an angioplasty! > So even though it’s bad news that there’s something wrong, it’s great > news that they caught it before the heart attack.  :) > Thanks everyone for the good wishes.  They helped a bunch! > I will be going to the hospital tomorrow to be there for the procedure > with my mom.  Hopefully it’s all smoothe sailing from here on out. > -Sharon > — > Visit my webpage: > http://www.qc.edu/~sperlof1/stills/webpage.html > ~Integrity~ > Integrity is one of the several paths. > It distinguishes itself from the others > because it is the right path… > and the only one upon which you will never > get lost. >                                 -M.H. McKee

Response:

Sharon, Will be thinking of your and your Dad and saying extra prayers. Hug, Sherry "Sharon Perloff" <noway…@hotmail.com> wrote in message

news:av9tmd$dist1$1@ID-163463.news.dfncis.de… – Hide quoted text — Show quoted text -> So I spoke with my dad today, and he’s in a cheery mood.  They’re taking > him to another hospital tomorrow, where he’ll have an angiogram to > determine how blocked his arteries are.  Then they will be giving him > two stents and doing an angioplasty tomorrow. > I’m just so glad they caught this before ‘The Big One’ hit. He told me > in more detail today what happened.  He went to his local gp for some > antibiotics for his bronchitis (sp?).  He mentioned some chest pains, > and so his gp gave him an EKG.  They compared this to a previous EKG he > had, and the gp noticed some minute changes, and suggested he had this > looked into.  Thankfully my dad did, ’cause he now needs two stents and > an angioplasty! > So even though it’s bad news that there’s something wrong, it’s great > news that they caught it before the heart attack.  :) > Thanks everyone for the good wishes.  They helped a bunch! > I will be going to the hospital tomorrow to be there for the procedure > with my mom.  Hopefully it’s all smoothe sailing from here on out. > -Sharon > — > Visit my webpage: > http://www.qc.edu/~sperlof1/stills/webpage.html > ~Integrity~ > Integrity is one of the several paths. > It distinguishes itself from the others > because it is the right path… > and the only one upon which you will never > get lost. >                                 -M.H. McKee

Response:

Ah Sharon. At least he will continue to get good care and monitoring. janers

Response:

Hi Sharon, I’m sorry to hear that your dad is having these heart problems.  It is a good thing that the probs have been identified and can be fixed easily.  I will keep you and your family in my thoughts. Dawn "Sharon Perloff" <noway…@hotmail.com> wrote in message

news:av9tmd$dist1$1@ID-163463.news.dfncis.de… – Hide quoted text — Show quoted text -> So I spoke with my dad today, and he’s in a cheery mood.  They’re taking > him to another hospital tomorrow, where he’ll have an angiogram to > determine how blocked his arteries are.  Then they will be giving him > two stents and doing an angioplasty tomorrow. > I’m just so glad they caught this before ‘The Big One’ hit. He told me > in more detail today what happened.  He went to his local gp for some > antibiotics for his bronchitis (sp?).  He mentioned some chest pains, > and so his gp gave him an EKG.  They compared this to a previous EKG he > had, and the gp noticed some minute changes, and suggested he had this > looked into.  Thankfully my dad did, ’cause he now needs two stents and > an angioplasty! > So even though it’s bad news that there’s something wrong, it’s great > news that they caught it before the heart attack.  :) > Thanks everyone for the good wishes.  They helped a bunch! > I will be going to the hospital tomorrow to be there for the procedure > with my mom.  Hopefully it’s all smoothe sailing from here on out. > -Sharon > — > Visit my webpage: > http://www.qc.edu/~sperlof1/stills/webpage.html > ~Integrity~ > Integrity is one of the several paths. > It distinguishes itself from the others > because it is the right path… > and the only one upon which you will never > get lost. >                                 -M.H. McKee

Response:

(((Sharon, dad and family))) Suzie "Sharon Perloff" <noway…@hotmail.com> wrote in message

news:av9tmd$dist1$1@ID-163463.news.dfncis.de… – Hide quoted text — Show quoted text -> So I spoke with my dad today, and he’s in a cheery mood.  They’re taking > him to another hospital tomorrow, where he’ll have an angiogram to > determine how blocked his arteries are.  Then they will be giving him > two stents and doing an angioplasty tomorrow. > I’m just so glad they caught this before ‘The Big One’ hit. He told me > in more detail today what happened.  He went to his local gp for some > antibiotics for his bronchitis (sp?).  He mentioned some chest pains, > and so his gp gave him an EKG.  They compared this to a previous EKG he > had, and the gp noticed some minute changes, and suggested he had this > looked into.  Thankfully my dad did, ’cause he now needs two stents and > an angioplasty! > So even though it’s bad news that there’s something wrong, it’s great > news that they caught it before the heart attack.  :) > Thanks everyone for the good wishes.  They helped a bunch! > I will be going to the hospital tomorrow to be there for the procedure > with my mom.  Hopefully it’s all smoothe sailing from here on out. > -Sharon > — > Visit my webpage: > http://www.qc.edu/~sperlof1/stills/webpage.html > ~Integrity~ > Integrity is one of the several paths. > It distinguishes itself from the others > because it is the right path… > and the only one upon which you will never > get lost. >                                 -M.H. McKee

Response:

Such great news- give him my (and I’m sure everyone’s) best wishes and a great big hug. While you’re at it, give it to yourself and your family, too. Have a good time- don’t forget the goodies! -Kristin "Sharon Perloff" <noway…@hotmail.com> wrote in message

news:av9tmd$dist1$1@ID-163463.news.dfncis.de… – Hide quoted text — Show quoted text -> So I spoke with my dad today, and he’s in a cheery mood.  They’re taking > him to another hospital tomorrow, where he’ll have an angiogram to > determine how blocked his arteries are.  Then they will be giving him > two stents and doing an angioplasty tomorrow. > I’m just so glad they caught this before ‘The Big One’ hit. He told me > in more detail today what happened.  He went to his local gp for some > antibiotics for his bronchitis (sp?).  He mentioned some chest pains, > and so his gp gave him an EKG.  They compared this to a previous EKG he > had, and the gp noticed some minute changes, and suggested he had this > looked into.  Thankfully my dad did, ’cause he now needs two stents and > an angioplasty! > So even though it’s bad news that there’s something wrong, it’s great > news that they caught it before the heart attack.  :) > Thanks everyone for the good wishes.  They helped a bunch! > I will be going to the hospital tomorrow to be there for the procedure > with my mom.  Hopefully it’s all smoothe sailing from here on out. > -Sharon > — > Visit my webpage: > http://www.qc.edu/~sperlof1/stills/webpage.html > ~Integrity~ > Integrity is one of the several paths. > It distinguishes itself from the others > because it is the right path… > and the only one upon which you will never > get lost. >                                 -M.H. McKee

Response:

kendawn wrote: > Hi Sharon, > I’m sorry to hear that your dad is having these heart problems.  It is a > good thing that the probs have been identified and can be fixed easily.  I > will keep you and your family in my thoughts. > Dawn

<snip> Thanks Dawn!  Seems all the prayers and good thoughts worked!  No stents! -Sharon — Visit my webpage: http://www.qc.edu/~sperlof1/stills/webpage.html ~Integrity~ Integrity is one of the several paths. It distinguishes itself from the others because it is the right path… and the only one upon which you will never get lost.                                 -M.H. McKee

Response:

Suzie wrote: > (((Sharon, dad and family))) > Suzie

<snip> Thanks Suzie! -Sharon — Visit my webpage: http://www.qc.edu/~sperlof1/stills/webpage.html ~Integrity~ Integrity is one of the several paths. It distinguishes itself from the others because it is the right path… and the only one upon which you will never get lost.                                 -M.H. McKee

Response:

Aerochick wrote: > Such great news- give him my (and I’m sure everyone’s) best wishes and a > great big hug. > While you’re at it, give it to yourself and your family, too. > Have a good time- don’t forget the goodies! > -Kristin

<snip> Thanks Kristin!  Turns out he didn’t even need the two stents!  <VBG> -Sharon — Visit my webpage: http://www.qc.edu/~sperlof1/stills/webpage.html ~Integrity~ Integrity is one of the several paths. It distinguishes itself from the others because it is the right path… and the only one upon which you will never get lost.                                 -M.H. McKee

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Sherry wrote: > Sharon, Will be thinking of your and your Dad and saying extra prayers. > Hug, > Sherry

<snip> Thanks Sherry!  (Trying to catch up with all the posts I missed!) -Sharon — Visit my webpage: http://www.qc.edu/~sperlof1/stills/webpage.html ~Integrity~ Integrity is one of the several paths. It distinguishes itself from the others because it is the right path… and the only one upon which you will never get lost.                                 -M.H. McKee

Response:

Good luck Sharon’s Dad….my step dad had 2 stents last year – sailed through no probs and is great now!!   Didn’t think his heart was affecting him much, never really got pain, until they took it all away.  Felt like during the procedure (he was awake) someone took a tight belt off from around his chest and he could take a big breath for the first time in ages. He’ll be fine Lyndal "Sharon Perloff" <noway…@hotmail.com> wrote in message

news:avfg7p$f3aeq$2@ID-163463.news.dfncis.de… – Hide quoted text — Show quoted text -> Sherry wrote: > > Sharon, Will be thinking of your and your Dad and saying extra prayers. > > Hug, > > Sherry > <snip> > Thanks Sherry!  (Trying to catch up with all the posts I missed!) > -Sharon > — > Visit my webpage: > http://www.qc.edu/~sperlof1/stills/webpage.html > ~Integrity~ > Integrity is one of the several paths. > It distinguishes itself from the others > because it is the right path… > and the only one upon which you will never > get lost. >                                 -M.H. McKee

Response:

Lyndal Parker-Newlyn and Phill Newlyn wrote: > Good luck Sharon’s Dad….my step dad had 2 stents last year – sailed > through no probs and is great now!!   Didn’t think his heart was affecting > him much, never really got pain, until they took it all away.  Felt like > during the procedure (he was awake) someone took a tight belt off from > around his chest and he could take a big breath for the first time in ages. > He’ll be fine > Lyndal

<snip> Thanks so much Lydal!  I’m so glad your dad sailed through it.  Turns out my dad didn’t need the stents afterall!  Only 10-20% blockages, so he’s fine! Glad to see you posting again.  How are you feeling? -Sharon — Visit my webpage: http://www.qc.edu/~sperlof1/stills/webpage.html ~Integrity~ Integrity is one of the several paths. It distinguishes itself from the others because it is the right path… and the only one upon which you will never get lost.                                 -M.H. McKee

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"Lyndal Parker-Newlyn and Phill Newlyn" wrote in message: |Felt like during the procedure (he was awake) someone took a |tight belt off from around his chest and he could take a big |breath for the first time in ages. |/snip| Lyndal, you are back posting! good to see your name up there again. Hope you are feeling somewhat better? That is good news about the stents, for Sharon’s dad and yours too! I am sure that will put her more at ease with it all. Anything to do with the heart scares me more than other ailments, and yet I have a systolic murmer with regurg.; a pmv and an enlarged heart and I still feel relatively healthy. A question, out of curiosity:  from a doctor’s perspective,  which dx puts more fear into your soul, knowing the medical physiology in detail as you do, other than one with the obvious ‘terminal’ foreword? — Shelagh http://continue.to/lupus Nothing Ventured ~ Nothing Gained

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Sharon— even better news that he doesn’t need them at all (yay) Yes I’m back, steroidal up to the eyeballs, not sleeping, jumping out of my skin…but feeling good.  Lets see what happens when we try and wean again Lyndal "Shelagh" <tidering…@shaw.ca> wrote in message

news:hejU9.21976$H7.1188628@news2.calgary.shaw.ca… – Hide quoted text — Show quoted text -> "Lyndal Parker-Newlyn and Phill Newlyn" wrote in message: > |Felt like during the procedure (he was awake) someone took a |tight > belt off from around his chest and he could take a big |breath for the > first time in ages. > |/snip| > Lyndal, you are back posting! good to see your name up there again. > Hope you are feeling somewhat better? > That is good news about the stents, for Sharon’s dad and yours too! I am > sure that will put her more at ease with it all. > Anything to do with the heart scares me more than other ailments, and > yet I have a systolic murmer with regurg.; a pmv and an enlarged heart > and I still feel relatively healthy. > A question, out of curiosity:  from a doctor’s perspective,  which dx > puts more fear into your soul, knowing the medical physiology in detail > as you do, > other than one with the obvious ‘terminal’ foreword? > — > Shelagh > http://continue.to/lupus > Nothing Ventured ~ Nothing Gained

Response:

Lyndal Parker-Newlyn and Phill Newlyn wrote: > Sharon— even better news that he doesn’t need them at all (yay) > Yes I’m back, steroidal up to the eyeballs, not sleeping, jumping out of my > skin…but feeling good.  Lets see what happens when we try and wean again > > Lyndal

<snip> When are you going to try to wean?  I will send my prayers for you! -Sharon — Visit my webpage: http://www.qc.edu/~sperlof1/stills/webpage.html ~Integrity~ Integrity is one of the several paths. It distinguishes itself from the others because it is the right path… and the only one upon which you will never get lost.                                 -M.H. McKee

Response:

I’m supposed to stay on this dose till I see Roman on 23rd, then he wants to change Imuran for methotrexate, so will probably still be on 25 for a while. Mind you, got my bloods today and my ESR (sed rate)has dropped from 65 three weeks ago to 21 today—so that’s why I’m feeling so much better.  AT least the steroids are doing something,. Lyndal "Sharon Perloff" <noway…@hotmail.com> wrote in message

news:avv3g8$ipcg2$2@ID-163463.news.dfncis.de… – Hide quoted text — Show quoted text -> Lyndal Parker-Newlyn and Phill Newlyn wrote: > > Sharon— even better news that he doesn’t need them at all (yay) > > Yes I’m back, steroidal up to the eyeballs, not sleeping, jumping out of my > > skin…but feeling good.  Lets see what happens when we try and wean again > > > > Lyndal > <snip> > When are you going to try to wean?  I will send my prayers for you! > -Sharon > — > Visit my webpage: > http://www.qc.edu/~sperlof1/stills/webpage.html > ~Integrity~ > Integrity is one of the several paths. > It distinguishes itself from the others > because it is the right path… > and the only one upon which you will never > get lost. >                                 -M.H. McKee

Response:

Lyndal, </snip> > Mind you, got my bloods today and my ESR (sed rate)has dropped from 65 three > weeks ago to 21 today—so that’s why I’m feeling so much better.  AT least > the steroids are doing something,.

Glad to hear the meds are working for you. Maureen

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"Maureen" <BlueEyedMoeNOS…@telus.net> wrote in message

news:IgXU9.32096$8V5.2731878@news1.telusplanet.net… > Lyndal, > </snip> > > Mind you, got my bloods today and my ESR (sed rate)has dropped > from 65 three > > weeks ago to 21 today—so that’s why I’m feeling so much > better.  AT least > > the steroids are doing something,. > Glad to hear the meds are working for you.

Amen to that!

Response:

Lyndal Parker-Newlyn and Phill Newlyn wrote: > I’m supposed to stay on this dose till I see Roman on 23rd, then he wants to > change Imuran for methotrexate,

I’ve heard about methotrexate, but I don’t know much about it. I’m on Imuran. I was on something calls Cell-Cept instead for several months, but worsened, so I’m back on Imuran. (I’ve heard Cell-Cept can be very good for kidney issues, but my biggest issues are muscle-related). Does anyone have any thoughts about Imuran versus methotrexate? Is it alwasy one or the other, or is anyone on both? Grace.

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Lyndal Parker-Newlyn and Phill Newlyn wrote: > I’m supposed to stay on this dose till I see Roman on 23rd, then he wants to > change Imuran for methotrexate, so will probably still be on 25 for a while. > Mind you, got my bloods today and my ESR (sed rate)has dropped from 65 three > weeks ago to 21 today—so that’s why I’m feeling so much better.  AT least > the steroids are doing something,. > Lyndal

<snip> That’s great, Lyndal, that at least the meds are doing their jobs! Hopefully you will only need them for a short while. -Sharon — Visit my webpage: http://www.qc.edu/~sperlof1/stills/webpage.html ~Integrity~ Integrity is one of the several paths. It distinguishes itself from the others because it is the right path… and the only one upon which you will never get lost.                                 -M.H. McKee

Response:

Question:

Hello everyone! This holiday season only went to show that even happy excitement can be a stressor which can induce a significant flare.  I was on the maximum dosage of all my meds while I was away, and then also just had to get flat on my back and rest the day before I took the plane-bus-car to get back home. I am at 7 mg of pred now without much problem, and my sneeziness seems to be due to my chronically "wet sinuses" and not a cold at all. I had a horrible night’s sleep, and so am headed back to pillow and mattress, two of my best friends in this world. Later in the day, maybe we can find out what is inside that box waiting for Geo (on my website) http://radio.weblogs.com/0114986/ Thank you all for your support; it makes a huge difference mary — stin…@earthlink.net

Response:

"Mary T. Rawle" <stin…@earthlink.net> wrote in message:  | Later in the day, maybe we can find out what is inside that box waiting for | Geo (on my website) | http://radio.weblogs.com/0114986/ </snip> Mary, so glad to hear you are taking care of yourself and so will soon be on the road of good health again! I did read Pigmet’s poem and it is cute. (btw, I had some of those sun chokes I told you about -for pigmet,- the other day and they were as sweet as I remembered. I hadn’t been able to find them forever! and now I have a ’source’ again! <g>) I am also waiting for Geo’s ‘box’ to be opened at the other site! Take good care of yourself and perhaps we will meet ‘in the forest’ on one of these fine days! — from Shelagh http://continue.to/lupus

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"Shelagh" <tidering…@shaw.ca> wrote in message

news:HH6S9.232206$Qr.6569365@news3.calgary.shaw.ca… > Take good care of yourself and perhaps we will meet ‘in the forest’ on > one of these fine days!

We will visit the moles (Ursa and Aster) and ask them to pull out their barbecue.  We will barbecue the Sun Chokes right on the grill along with Pigmet’s potatoes and crickets for the moles.  Ursa will make her special Earthworms Primavera, but really we usually leave that for the moles to enjoy by themselves. the flare is coming and going… I will have to contact my doctor today. Darn.  I will make a new post about it. I will have to go back to bed today, with my journal.  I have lots of things to figure out, since I am trying to create a whole new universe for my characters… quite a challenge! I talked to the produce man about Sun Chokes.  He said they look quite a bit like ginger root, and taste quite a bit like celery hearts.  I hate celery, so I was a bit crestfallen over this.  I hope I can get my crest to stand back up again soon.  What do you think the chokes taste like? salud! Mary – Hide quoted text — Show quoted text -> "Mary T. Rawle" <stin…@earthlink.net> wrote in message: >  | Later in the day, maybe we can find out what is inside that box > waiting for > | Geo (on my website) > | http://radio.weblogs.com/0114986/ > </snip> > Mary, so glad to hear you are taking care of yourself and so will soon > be on the road of good health again! > I did read Pigmet’s poem and it is cute. > (btw, I had some of those sun chokes I told you about -for pigmet,- the > other day and they were as sweet as I remembered. I hadn’t been able to > find them forever! and now I have a ’source’ again! <g>) > I am also waiting for Geo’s ‘box’ to be opened at the other site! > — > from Shelagh > http://continue.to/lupus

Response:

"Mary T. Rawle" wrote in message:

|  I talked to the produce man about Sun Chokes.  He said they look quite a bit | like ginger root, and taste quite a bit like celery hearts.  I hate celery, | so I was a bit crestfallen over this.  I hope I can get my crest to stand | back up again soon.  What do you think the chokes taste like? </snip> NOT like celery hearts!!! not even a bit, though I for one do like them… but sun chokes  have more of a sweet potatoe or yam flavor and an artichoke heart texture.. sort of firm, almost crunchy but not if you steam right, and are kinda sweetish. so pick up that crest and go out and find a couple, cook em and try them ‘you just might like them’!  he was right about their appearance though.. they do have a ‘ginger root look’ but the good stuff is on the inside that pops out of the skin once steamed, much like a beet will pop out of it’s rough when cooked. Good luck and see you in the ‘woods’ once you have been to your doc and gotten back onto your feet! ((hugs)) — Shelagh http://continue.to/lupus

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It is definitely a bad thing when your crest will not stand up.  I think it should be considered one of the major criteria for lupus.  None of the red-crested birds in the forest is ever crestfallen, for, if you haven’t deduced it (maybe you haven’t stayed tuned long enough), the red-crested birds are the eyes of god. Perhaps I can put mousse on my crest…. Mair "Shelagh" <tidering…@shaw.ca> wrote in message

news:pOFS9.241056$Qr.6905946@news3.calgary.shaw.ca… – Hide quoted text — Show quoted text -> "Mary T. Rawle" wrote in message: > |  I talked to the produce man about Sun Chokes.  He said they look > quite a bit > | like ginger root, and taste quite a bit like celery hearts.  I hate > celery, > | so I was a bit crestfallen over this.  I hope I can get my crest to > stand > | back up again soon.  What do you think the chokes taste like? > </snip> > NOT like celery hearts!!! not even a bit, though I for one do like > them… > but sun chokes  have more of a sweet potatoe or yam flavor and an > artichoke heart texture.. sort of firm, almost crunchy but not if you > steam right, and are kinda sweetish. > so pick up that crest and go out and find a couple, cook em and try them > ‘you just might like them’!  he was right about their appearance > though.. they do have a ‘ginger root look’ but the good stuff is on the > inside that pops out of the skin once steamed, much like a beet will pop > out of it’s rough when cooked. > Good luck and see you in the ‘woods’ once you have been to your doc and > gotten back onto your feet! > ((hugs)) > — > Shelagh > http://continue.to/lupus

Response:

Mary T. Rawle wrote: > It is definitely a bad thing when your crest will not stand up.  I think it > should be considered one of the major criteria for lupus.  None of the > red-crested birds in the forest is ever crestfallen, for, if you haven’t > deduced it (maybe you haven’t stayed tuned long enough), the red-crested > birds are the eyes of god. > Perhaps I can put mousse on my crest…. > Mair

<snip> LOL!  I think the crest needs more strength than mousse!  How about a gel/mousse combo, with a spritz of hairspray and a drop of crazy glue? -Sharon — Visit my webpage: http://www.qc.edu/~sperlof1/stills/webpage.html ~Integrity~ Integrity is one of the several paths. It distinguishes itself from the others because it is the right path… and the only one upon which you will never get lost.                                 -M.H. McKee

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And since the favored color for all crests is bright red (this is what the redbirds of my forest would tell you if they could speak), I went out and got some stoplight red haircolor, to touch up the crest. I figure while it has fallen, I will wash and color it, and then put on the crazy glue to keep it looking perky. I thought you were staying in bed, sharon.  Glad to see your post.  BTW, BCC (basal cell carcinoma) is not a bad thing to have.  I think I have one on my arm.  I just look at it and go "hmm" every time I am in the shower.  You don’t want to let them go forever, though, especially on your face.  I will probably have mine removed in the next couple of years. I’m actually gonna *cook* dinner.  I must be feeling pretty good. Mair "Sharon Perloff" <noway…@hotmail.com> wrote in message

news:avflme$f8804$2@ID-163463.news.dfncis.de… – Hide quoted text — Show quoted text -> Mary T. Rawle wrote: > > It is definitely a bad thing when your crest will not stand up.  I think it > > should be considered one of the major criteria for lupus.  None of the > > red-crested birds in the forest is ever crestfallen, for, if you haven’t > > deduced it (maybe you haven’t stayed tuned long enough), the red-crested > > birds are the eyes of god. > > Perhaps I can put mousse on my crest…. > > Mair > <snip> > LOL!  I think the crest needs more strength than mousse!  How about a > gel/mousse combo, with a spritz of hairspray and a drop of crazy glue? > -Sharon > — > Visit my webpage: > http://www.qc.edu/~sperlof1/stills/webpage.html > ~Integrity~ > Integrity is one of the several paths. > It distinguishes itself from the others > because it is the right path… > and the only one upon which you will never > get lost. >                                 -M.H. McKee

Response:

- Hide quoted text — Show quoted text -Mary T. Rawle wrote: > And since the favored color for all crests is bright red (this is what the > redbirds of my forest would tell you if they could speak), I went out and > got some stoplight red haircolor, to touch up the crest. I figure while it > has fallen, I will wash and color it, and then put on the crazy glue to keep > it looking perky. > I thought you were staying in bed, sharon.  Glad to see your post.  BTW, BCC > (basal cell carcinoma) is not a bad thing to have.  I think I have one on my > arm.  I just look at it and go "hmm" every time I am in the shower.  You > don’t want to let them go forever, though, especially on your face.  I will > probably have mine removed in the next couple of years. > I’m actually gonna *cook* dinner.  I must be feeling pretty good. > Mair

<snip> Glad to hear you’re up to cooking!  Always good to hear.  I’m taking it easy on the couch today. And get your butt to a dermy to remove that growth!  I don’t have to come to San Fran to drag you there, now do I???! -Sharon — Visit my webpage: http://www.qc.edu/~sperlof1/stills/webpage.html ~Integrity~ Integrity is one of the several paths. It distinguishes itself from the others because it is the right path… and the only one upon which you will never get lost.                                 -M.H. McKee

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"Sharon Perloff" <noway…@hotmail.com> wrote in message

news:avfsq3$f40ru$1@ID-163463.news.dfncis.de… > And get your butt to a dermy to remove that growth!  I don’t have to > come to San Fran to drag you there, now do I???!

Now, don’t be a pain in the ass Dear Heart.  It is about 3mm in diameter.  I worked for a pathology group for a year doing transcription of their intermediate and final reports.  I have a bit of knowledge here or I would be sh*tting down both legs.  Now that I have your attention.  I also think I have one on the crown of my head, but to take it off will disfigure my crest, so I think I will let it eat into my brain. Me and Pigmet are just getting ready to eat this pasta casserole.  mmmmmm. It is hard to control the weight being DID… all of us want to eat dinner! M. – Hide quoted text — Show quoted text -> Mary T. Rawle wrote: > > And since the favored color for all crests is bright red (this is what the > > redbirds of my forest would tell you if they could speak), I went out and > > got some stoplight red haircolor, to touch up the crest. I figure while it > > has fallen, I will wash and color it, and then put on the crazy glue to keep > > it looking perky. > > I thought you were staying in bed, sharon.  Glad to see your post.  BTW, BCC > > (basal cell carcinoma) is not a bad thing to have.  I think I have one on my > > arm.  I just look at it and go "hmm" every time I am in the shower.  You > > don’t want to let them go forever, though, especially on your face.  I will > > probably have mine removed in the next couple of years. > > I’m actually gonna *cook* dinner.  I must be feeling pretty good. > > Mair > <snip> > Glad to hear you’re up to cooking!  Always good to hear.  I’m taking it > easy on the couch today. > -Sharon > — > Visit my webpage: > http://www.qc.edu/~sperlof1/stills/webpage.html > ~Integrity~ > Integrity is one of the several paths. > It distinguishes itself from the others > because it is the right path… > and the only one upon which you will never > get lost. >                                 -M.H. McKee

Response:

Mary T. Rawle wrote:

<snip> > Now, don’t be a pain in the ass Dear Heart.  

LOL, you discovered my alter ego! > It is about 3mm in diameter.  I > worked for a pathology group for a year doing transcription of their > intermediate and final reports.  I have a bit of knowledge here or I would > be sh*tting down both legs.  

But you should still get it looked at soon.  I know it’s so hard with all the danged doc appts we have to deal with, it’s like, not another one!!  But cancer is not something to fool with. > Now that I have your attention.  I also think I > have one on the crown of my head, but to take it off will disfigure my > crest, so I think I will let it eat into my brain.

I hope you’re joking! > Me and Pigmet are just getting ready to eat this pasta casserole.  mmmmmm. > It is hard to control the weight being DID… all of us want to eat dinner! > M.

<snip> Totally off-topic: I have a great tuna casserole that hubby made for me on New Year’s Eve, and I modified it a bit.  It’ didn’t hurt my IBS, so I’m in love with it: Tuna Casserole for IBSers: (Makes about six full bowls of yum!) 1 lb rotini or rotelle pasta 18 oz (3 6oz cans) chunk white tuna (albacore) in *water* (NOT oil!) half bag of frozen peas half bag of frozen sliced carrots two heaping tablespoons of mayo Cook a lb of rotelle pasta (or Rotini) While waiting for water boil for pasta, start defrosting the carrots and peas (I did it in the microwave, and it came out fine) The frozen veggies and pasta will probably be done around the same time. Drain pasta and do NOT rinse.  Put back in pot. Mix pasta with the cooked veggies and the three cans of tuna. Add two heaping tablespoons of mayo and mix well. Enjoy!  (If you want, you can add a sprinkle of pepper and parm cheese, but I don’t due to my IBS.) To reheat: Heat casserole (for about two minutes per bowl) in microwave.  After heated, add about half a tablespoon of mayo and mix.  Otherwise it’s too dry for my taste.  This reheating still doesn’t hurt my IBS!  :) -Sharon — Visit my webpage: http://www.qc.edu/~sperlof1/stills/webpage.html ~Integrity~ Integrity is one of the several paths. It distinguishes itself from the others because it is the right path… and the only one upon which you will never get lost.                                 -M.H. McKee

Response:

It’s pretty hard to die of basal cell carcinoma.  It’s like trying to flush yourself down the toilet! M "Sharon Perloff" <noway…@hotmail.com> wrote in message

news:avhp00$fsjli$1@ID-163463.news.dfncis.de… – Hide quoted text — Show quoted text -> Mary T. Rawle wrote: > <snip> > > Now, don’t be a pain in the ass Dear Heart. > LOL, you discovered my alter ego! > > It is about 3mm in diameter.  I > > worked for a pathology group for a year doing transcription of their > > intermediate and final reports.  I have a bit of knowledge here or I would > > be sh*tting down both legs. > But you should still get it looked at soon.  I know it’s so hard with > all the danged doc appts we have to deal with, it’s like, not another > one!!  But cancer is not something to fool with. > > Now that I have your attention.  I also think I > > have one on the crown of my head, but to take it off will disfigure my > > crest, so I think I will let it eat into my brain. > I hope you’re joking! > > Me and Pigmet are just getting ready to eat this pasta casserole. mmmmmm. > > It is hard to control the weight being DID… all of us want to eat dinner! > > M. > <snip> > Totally off-topic: > I have a great tuna casserole that hubby made for me on New Year’s Eve, > and I modified it a bit.  It’ didn’t hurt my IBS, so I’m in love with it: > Tuna Casserole for IBSers: > (Makes about six full bowls of yum!) > 1 lb rotini or rotelle pasta > 18 oz (3 6oz cans) chunk white tuna (albacore) in *water* (NOT oil!) > half bag of frozen peas > half bag of frozen sliced carrots > two heaping tablespoons of mayo > Cook a lb of rotelle pasta (or Rotini) > While waiting for water boil for pasta, start defrosting the carrots and > peas (I did it in the microwave, and it came out fine) > The frozen veggies and pasta will probably be done around the same time. > Drain pasta and do NOT rinse.  Put back in pot. > Mix pasta with the cooked veggies and the three cans of tuna. > Add two heaping tablespoons of mayo and mix well. > Enjoy!  (If you want, you can add a sprinkle of pepper and parm cheese, > but I don’t due to my IBS.) > To reheat: > Heat casserole (for about two minutes per bowl) in microwave.  After > heated, add about half a tablespoon of mayo and mix.  Otherwise it’s too > dry for my taste.  This reheating still doesn’t hurt my IBS!  :) > -Sharon > — > Visit my webpage: > http://www.qc.edu/~sperlof1/stills/webpage.html > ~Integrity~ > Integrity is one of the several paths. > It distinguishes itself from the others > because it is the right path… > and the only one upon which you will never > get lost. >                                 -M.H. McKee

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anyway, regarding flare subsiding… yeah, right.  I’ts back.  Yuck. M "Mary T. Rawle" <stin…@earthlink.net> wrote in message news:LeJR9.14910$9N5.1410798@newsread2.prod.itd.earthlink.net… – Hide quoted text — Show quoted text -> Hello everyone! > This holiday season only went to show that even happy excitement can be a > stressor which can induce a significant flare.  I was on the maximum dosage > of all my meds while I was away, and then also just had to get flat on my > back and rest the day before I took the plane-bus-car to get back home. > I am at 7 mg of pred now without much problem, and my sneeziness seems to be > due to my chronically "wet sinuses" and not a cold at all. > I had a horrible night’s sleep, and so am headed back to pillow and > mattress, two of my best friends in this world. > Later in the day, maybe we can find out what is inside that box waiting for > Geo (on my website) > http://radio.weblogs.com/0114986/ > Thank you all for your support; it makes a huge difference > mary > — > stin…@earthlink.net

Response:

"Mary T. Rawle" wrote: >  my sneeziness seems to be > due to my chronically "wet sinuses" and not a cold at all.

Is anyone aware of this as a Lupus symptom? The last half-year I seem to need to carry around tissue in my purse all the time… Grace.

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Grace, I have trouble with my sinuses year round.  This is what Dr. Daniel J Wallace in his book "The Lupus Book Revised and Expanded" has to say. Pg 118 " Some of my patients have been wrongly accused os using cocaine when they have nasal septal perforations.  The nasal septum-the cartilage membrane that divides the nose into two nostrils-can perforate, or develop holes, in 1 to 2 percent of lupus patients.  Ulcerations may also be found on the nasal mucosa.  I usually prescribe petroleum jell (e.g. vaseline) or a steriod preparation (e.g. Kenalog in Orabase) for these.  RECURRENT sinus infections in a patient who does not improve with antibiotics, decongestants, or antialergy medications and seems to have lupus warrants a blood test for a closely related disorder known as Wegener’s granulomatosis. A blood test for anti-neutrophilic cytoplasmic antibody (ANCA) can help defferentiate these two types of vasculitis, which are treated quite differently." Not sure if that really answers your question. Sherry "Grace Casselman" <gr…@casselman.net> wrote in message

news:3E24DB24.5F73DCAF@casselman.net… – Hide quoted text — Show quoted text -> "Mary T. Rawle" wrote: > >  my sneeziness seems to be > > due to my chronically "wet sinuses" and not a cold at all. > Is anyone aware of this as a Lupus symptom? The last half-year I seem to need to > carry around tissue in my purse all the time… > Grace.

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"Grace Casselman" <gr…@casselman.net> wrote in message

news:3E24DB24.5F73DCAF@casselman.net… > "Mary T. Rawle" wrote: > >  my sneeziness seems to be > > due to my chronically "wet sinuses" and not a cold at all. > Is anyone aware of this as a Lupus symptom? The last half-year I seem to need to > carry around tissue in my purse all the time…

My rheumy says he sees it "often" in his patients.

Response:

Thank you for the information, Sherry. I did mention that I was having sinus issues to my rheumatologist and he said he wasn’t aware of that as a Lupus thing; it sounded like allergies. But I’ve never had allergies… anyhow, I’ll keep what you’ve said in mind; it’s not a big problem at this point. I do have Daniel Wallace’s book too, so I’ll read up on it… Thanks, Grace.

Response:

Grace, You are welcome.  If it becomes an issue you can always take the book with you when you go to the Rheumy.  Sure hope that it doesn’t become an issue. Sherry "Grace Casselman" <gr…@casselman.net> wrote in message

news:3E25E46B.D0B83C01@casselman.net… – Hide quoted text — Show quoted text -> Thank you for the information, Sherry. I did mention that I was having sinus > issues to my rheumatologist and he said he wasn’t aware of that as a Lupus > thing; it sounded like allergies. > But I’ve never had allergies… anyhow, I’ll keep what you’ve said in mind; it’s > not a big problem at this point. I do have Daniel Wallace’s book too, so I’ll > read up on it… > Thanks, > Grace.

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Question:

I got the vaccine back in 1966 and still have the round scar on the top of my arm from it!  I’m going with my hunches and not going through it again…figure once was enough for me.

Different vaccine, but- I got a BCG (TB) immunization back in the late 60s. That causes any subsequent TB tests to react positively. Several years ago, I had to be tested for TB for a class I was taking. I called the health dept to ask how long that immunization usually lasts and what to do and they suggested having the nurse use a diluted solution. She used like 1/4 or 1/2 of the normal strength and I still got a big nasty reaction. So so as near as I can tell that one still works (I still had to get a chest xray, though, to prove I didn’t have it). Lee

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Hi Jennifer, Not far-fetched at all!  I have this scenario playing on loop in my head, Carmen.  I can see lines backed up for people to get the shots!!  I’m seriously considering volunteering to help give the inoculations when/if the crisis arrives.  Perhaps, you can get the shots now, if you want to volunteer.

I found a call on my answering machine this afternoon.  A meeting of all the local volunteers for the agency we volunteer as emergency comms for is calling an urgent meeting Tuesday night, and guess what the subject is? Yup.  Small pox.  Someone from Public Health will be there, and I’m very curious as to what the agenda is, since the message said it had to do with *us*, the volunteers.  If we’re offered the vaccine I’m going to take it. If I ever got it I don’t have a scar, and that’s unlikely.  Same with DH. (He was born in 1963, me in 1967) This is the loop: Talk shows, news magazines, and all other yellow journalists will foretell the perils of the vaccination.  Soon, there will be public outrage.  "You can’t make me take that shot!" (which they can’t—yet)  There will be talk of governmental conspiracies involving secret medical studies…Until the first case hits, then the chaos will truly begin!  People fighting in long lines, thinking there is an elitist plot to vaccinate the wealthy/powerful first, general panic, and much death.

I read something in the local paper today that put a spin on the panic scenario that I had given no consideration at all.  They foresaw Mexicans coming north in an attempt to gain access to health care resources their own government was unlikely to be able to provide.  Theoretically that could happen from our northern neighbor, but I’d like to think the Canadian government has or is developing plans to protect their citizens too. If no one waits, people will die. If everyone waits, more people will die. It’s a dice roll either way, as far as I can tell.  But, as I’ve had many vaccinations, I’m already a high-roller.

I take much bigger risks every day than the vaccine poses.  I found a page that gives the various odds of dying due to different causes.  Couple of examples: All "Lifetime odds" below: 1 in 55,578 of being killed by lightning 1 in 5,822 of being killed as a result falling due to tripping, slipping or stumbling – on a flat surface! Here’s a link to the page: http://www.nsc.org/lrs/statinfo/odds.htm I have much more research to study, but I think I might avoid the panic and get vaccinated early.

Me too.  I’m just looking for an opportunity.  :-) — Take care, Carmen Under the most rigorously controlled conditions of pressure, temperature, volume, humidity, and other variables, the organism will do as it damn well pleases. Harvard’s Law

Response:

I found a call on my answering machine this afternoon.  A meeting of all the local volunteers for the agency we volunteer as emergency comms for is calling an urgent meeting Tuesday night, and guess what the subject is? Yup.  Small pox.  Someone from Public Health will be there, and I’m very curious as to what the agenda is, since the message said it had to do with *us*, the volunteers.  If we’re offered the vaccine I’m going to take it. If I ever got it I don’t have a scar, and that’s unlikely.  Same with DH. (He was born in 1963, me in 1967)

Well, aren’t I sage…lol!  Cool.  AFAIK, they will offer your family the same opportunity.  My mother was the public official of such a meeting yesterday.  The topic was bioterrorism.  I haven’t spoken to her about it yet, but she led me to believe it was about coordinating emergency plans for a public health disaster.  I’ll ask her later this evening.  Let you know if there is more. I read something in the local paper today that put a spin on the panic scenario that I had given no consideration at all.  They foresaw Mexicans coming north in an attempt to gain access to health care resources their own government was unlikely to be able to provide.  Theoretically that could happen from our northern neighbor, but I’d like to think the Canadian government has or is developing plans to protect their citizens too.

Hadn’t thought of that either.  Yuck.  I find it doubtful that they will have enough vaccine for everyone.   I mean our government isn’t especially known for their expert number crunching.  LOL.  Maybe they should get their estimates from Price Waterhouse or one of the major credit card companies? Take care, Carmen Under the most rigorously controlled conditions of pressure, temperature, volume, humidity, and other variables, the organism will do as it damn well pleases. Harvard’s Law

– Mdmquincy  (Jennifer)

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I was vaccinated twice for smallpox .. once in grade school with innoculation, and again in high school with the then new-fangled oral vaccine …  I’m still here   Are you sure you aren’t talking about the polio vaccine?  I don’t believe they’ve had an oral small pox vaccine.

Yes, of course!  Duh!  I ws thinking of the "booster" shots that they gave every few years back then, got it momentarily confused with the oral polio vaccine.  Happens with old age <g I’d be happy to donate my already-immune blood  :) Why is it men are always anxious to volunteer body fluids?

lmao! — Peter Website:  http://users.thelink.net/marengo – Hide quoted text — Show quoted text – —

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Hi Peter, You cannot contract smallpox from the vaccine; the virii are dead.  The extremely small percentage of people who die from the vaccine are from rare allergic reactions.

Just a nitpick here.  :-)  The part where you wrote "You cannot contract smallpox from the vaccine…" is correct.  The reason you can’t get smallpox from the vaccine is because the virus used is a related virus, but not the smallpox virus itself.  Smallpox virus is "Variola" and the vaccine virus is "Vaccinia".  It *is* a live virus vaccine though.  The deaths almost exclusively result from the vaccinia virus killing enough skin tissue to take the person out.  Kind of like the nasty that you may have heard about – "the flesh eating virus". Yes Virginia.  There *are* so many boring facts crammed into my head that it’s a miracle it doesn’t explode.  <G — Take care, Carmen Geocachers get right to the point. http://members14.clubphoto.com/carmen634742/guest-1.phtml

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I live in a relatively small farm town, relatively distant from any large population centers. …However, your son may move to the city eventually.

Hey, when he’s old enough to move to the city on his own, he’ll be old enough to weigh the risks and decide for himself. — Jason Baugher 355/310/215 LC since 10/1/02 mini-goal: under 300 by Xmas

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I live in a relatively small farm town, relatively distant from any large population centers.

…However, your son may move to the city eventually.

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Hi Jason, Which would be worse, having your kid die from the vaccination, and years from now looking back, knowing that there never was a smallpox outbreak, knowing that they could still be alive?  Or not vaccinating, and having the outbreak, and knowing that maybe if you’d vaccinated, they might still be alive? It’s a tough choice, and one that I hope I won’t have to make.  But if it comes down to it, I’ll probably choose NOT to vaccinate unless an outbreak has been detected somewhere.

For me there would be no real dilemma.  Death rates from the vaccination are given as 1 to 2 deaths per million vaccinations.  Death rates from active infection in a completely susceptible population run about 3 in 10.  Death rates in a population where inoculations are given *after* an attack are projected to be 2.4 to 9.4 per 1000 cases, depending on the percentage of persons in that population who had been previously vaccinated. The combination of factors that make me choose in favor of prior vaccination is firstly the odds.  The best odds are with those with prior vaccination. The second one is having studied basic immunology.  There’s a whole array of things that factor into immunity, and even the modest coursework I’ve had so far is enough to convince me of the value of vaccination programs, risk and all. I’m not saying your choice isn’t valid, BTW.  I’m just explaining why my choice differs.  :-) — Take care, Carmen Geocachers get right to the point. http://members14.clubphoto.com/carmen634742/guest-1.phtml

Response:

– Hide quoted text — Show quoted text – Hi Jason, Which would be worse, having your kid die from the vaccination, and years from now looking back, knowing that there never was a smallpox outbreak, knowing that they could still be alive?  Or not vaccinating, and having the outbreak, and knowing that maybe if you’d vaccinated, they might still be alive? It’s a tough choice, and one that I hope I won’t have to make.  But if it comes down to it, I’ll probably choose NOT to vaccinate unless an outbreak has been detected somewhere. For me there would be no real dilemma.  Death rates from the vaccination are given as 1 to 2 deaths per million vaccinations. Death rates from active infection in a completely susceptible population run about 3 in 10.  Death rates in a population where inoculations are given *after* an attack are projected to be 2.4 to 9.4 per 1000 cases, depending on the percentage of persons in that population who had been previously vaccinated. The combination of factors that make me choose in favor of prior vaccination is firstly the odds.  The best odds are with those with prior vaccination. The second one is having studied basic immunology.  There’s a whole array of things that factor into immunity, and even the modest coursework I’ve had so far is enough to convince me of the value of vaccination programs, risk and all. I’m not saying your choice isn’t valid, BTW.  I’m just explaining why my choice differs.  :-)

So then the chances of my son dying from pre-attack vaccination are 1-2 per million.  The chances of him dying from post-attack vaccination will of course vary with location of the attack and location of us, but let’s go with your 2.4-9.4 per 1000.  What that doesn’t take into account is the odds of the attack happening at all in the first place, which of course are pretty much impossible to calculate. I live in a relatively small farm town, relatively distant from any large population centers.  My guess would be that IF smallpox hit NYC or LA or wherever, we’d know about it here with at least some advance notice.   Assuming that vaccinations were on hand at all hospitals, how much advance is needed to make the vaccinations fully effective?  If you got vaccinated today, how many days until you are in the 1-2 per million category? Maybe part of my reluctance is because I don’t trust doctors in general.   I know too many mis-diagnosed, over-medicated people.  My sister almost died during her last pregnancy because her doctor was a moron.  My great- uncle went in to the hospital this week for an exam and was dead in a few hours.  I had an emergency room doctor years ago tell me I had a respiratory infection – when I didn’t get better and went to the local ambulatory clinic, I found out it was mono+strep throat. I’ve seen way too many cases where doctors swore by one idea until it was proven wrong, and then swore by the new idea and tried to act like they were never wrong in the first place.  As LC people, we see this all the time. So, I tend to lean towards, "I’ll go to the doctor if I’m desperate (smallpox outbreak), but until then, I’m not going to let them screw me up ahead of time (vaccination)." As for whether anyone will release smallpox….  I kind of doubt it.  I figure if anyone had it now, and wanted to do it, they would have done it already.  They know it won’t kill us all, and will just make us more determined.  After all, if the bin Laden’s of the world, who think anyone not Muslim is evil and must be killed, had a way to off 3 out of 10 of us, I think they’d jump at the chance. — Jason Baugher 355/310/215 LC since 10/1/02 mini-goal: under 300 by Xmas

Response:

I was vaccinated twice for smallpox .. once in grade school with innoculation, and again in high school with the then new-fangled oral vaccine …  I’m still here  

Are you sure you aren’t talking about the polio vaccine?  I don’t believe they’ve had an oral small pox vaccine. You cannot contract smallpox from the vaccine; the virii are dead.  The extremely small percentage of people who die from the vaccine are from rare allergic reactions.

Here’s the rub!  I don’t know for certain they are using the 30-40 yr. old stuff or a newer vaccine?  I was told the older, but all the news isn’t in yet. … Then again, I don’t fly despite the statistics in favor of surviving an airplane trip  ;)

You got to be kidding, cuz you got me trippin’.  <G I’d be happy to donate my already-immune blood  :)

Why is it men are always anxious to volunteer body fluids? — Peter Website:  http://users.thelink.net/marengo

Mdmquincy (Jennifer)

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This is one of my major concerns, Jason!  There is no guarantee that your child will ever be exposed to polio, and you’ve had him vaccinated right? Little to no chance, that he has PKU, you had him tested,etc… I’m hoping to see the numbers line up for this vaccination vs. the others. I hope you don’t have to make the choice either! — Mdmquincy  (Jennifer)

– Hide quoted text — Show quoted text – I agree that it isn’t that farfetched that it could happen, but it’s still an IF.  Maybe I’d get vaccinated if I had the opportunity, but how can I in good conscience take my 1 1/2 year old boy to get vaccinated when I know there is a very small, but still possible, risk of it killing him? On the one hand, the vaccination MIGHT kill him.  On the other hand, someone MIGHT release smallpox on us, and we MIGHT not have time to get him vaccinated in time before it gets here, and he MIGHT die from it.  I KNOW that USA-wide vaccination might kill him – I DON’T KNOW if anyone will ever release smallpox. Which would be worse, having your kid die from the vaccination, and years from now looking back, knowing that there never was a smallpox outbreak, knowing that they could still be alive?  Or not vaccinating, and having the outbreak, and knowing that maybe if you’d vaccinated, they might still be alive? It’s a tough choice, and one that I hope I won’t have to make.  But if it comes down to it, I’ll probably choose NOT to vaccinate unless an outbreak has been detected somewhere. — Jason Baugher 355/310/215 LC since 10/1/02 mini-goal: under 300 by Xmas

Response:

Not far-fetched at all!  I have this scenario playing on loop in my head, Carmen.  I can see lines backed up for people to get the shots!!  I’m seriously considering volunteering to help give the inoculations when/if the crisis arrives.  Perhaps, you can get the shots now, if you want to volunteer. . This is the loop: Talk shows, news magazines, and all other yellow journalists will foretell the perils of the vaccination.  Soon, there will be public outrage.  "You can’t make me take that shot!" (which they can’t—yet)  There will be talk of governmental conspiracies involving secret medical studies…Until the first case hits, then the chaos will truly begin!  People fighting in long lines, thinking there is an elitist plot to vaccinate the wealthy/powerful first, general panic, and much death. If no one waits, people will die. If everyone waits, more people will die. It’s a dice roll either way, as far as I can tell.  But, as I’ve had many vaccinations, I’m already a high-roller. I have much more research to study, but I think I might avoid the panic and get vaccinated early. — Mdmquincy  (Jennifer)

snipped… – Hide quoted text — Show quoted text – Just to play devil’s advocate think about this scenario:  Terrorists release an aerosol can of the virus at a concert.  After the concert all those people go back where they came from.  A relative few contract the disease and it incubates.  They become contagious as it replicates inside them and it begins to be spread.  Some of them spread it at their college, some of them spread it to their children, some spread it to the customers at their restaurant job, some spread it to loved ones they visit at the hospital, some spread it across the country as they travel.  By the time the first cases are diagnosed the disease has been spread beyond the point of feasible containment.  The decision is made to mass inoculate the populus, but there’s a problem.  Many of those who would ordinarily be involved in the distribution of the vaccine are too ill to do so.  The vaccination program is extremely slow and inefficient.  Widespread panic might well ensue as people watch as many as 30% of their loved ones die. The scarey thing is it isn’t even far-fetched.  If I have the opportunity to get vaccinated I’m taking it. Take care, Carmen Geocachers get right to the point. http://members14.clubphoto.com/carmen634742/guest-1.phtml

Response:

Thanks for the link, Lee!!! Not pretty, but it may be worthwhile.  I wonder if having had the flu shot will ward off any of the flu symptoms? hmmm… doubtful. — Mdmquincy  (Jennifer) – Hide quoted text — Show quoted text – BTW, as I was writing this, I got a "news alert" regarding the smallpox vaccine. http://www.msnbc.com/news/./843411.asp?0na=x2224230- Scary stuff. Lee -Who had the original immunization & would prefer a titer 1st

Response:

– Hide quoted text — Show quoted text – Ya’d think they could do titers to see if someone still has immunity. When I started my new job, they ran titers to check my immunity for several diseases (and if they’d been low, would have reimmunized me). Even with my dog(!) I’ve started to do titers on him, since the research is showing that immunity lasts way longer than the manufacturers claim. See http://www.888webtoday.com/joyce4.html "a study by the Israeli Defense Force found that even 30 years after booster shots of such vaccinations, many patients still show a titer of antibodies against smallpox in their blood streams sufficient to resist the disease" BTW, as I was writing this, I got a "news alert" regarding the smallpox vaccine. http://www.msnbc.com/news/./843411.asp?0na=x2224230- Scary stuff. Lee -Who had the original immunization & would prefer a titer 1st I’m with you, Lee.  I was vacinated in 1950 before I entered school and again in 1963 prior to entering college.  Until I see conclusive evidence otherwise I’ll take my chances that I’m still protected. BillJ

I heard an infectious disease expert on the radio a couple days ago explaining that IF they vaccinated everyone in the USA right now, somewhere around 30 would die.  They all seemed to think that was acceptable – which I suppose it is, if you don’t know any of the 30 who die. As far as I am concerned, let’s build up our stockpile of doses so we CAN vaccinate if we need to.  But only do so IF smallpox gets dumped on us. The way I see it, today I have 0% risk of dying from smallpox.  If they vaccinate me today, I have a very small risk, but still a risk of dying. So today I choose to pass on the vaccine. If terrorists dump smallpox on us tomorrow, I’ll have a 1 in 3 chance of dying, I think – in which case I’ll take the vaccination to reduce my risk back to just a small amount. — Jason Baugher 355/310/215 LC since 10/1/02 mini-goal: under 300 by Xmas

Response:

– Hide quoted text — Show quoted text – Hi Jason, As far as I am concerned, let’s build up our stockpile of doses so we CAN vaccinate if we need to.  But only do so IF smallpox gets dumped on us. It’s not as effective after infection.  The immune system needs time to confer immunity to a disease.  The vaccination (in this case) is a extremely weakened strain of the virus.  Your immune system freaks out when it sees it, and then begins to make a bunch of antibodies to the pathogen.  The one that’s most effective at neutralizing the pathogen in some fashion (that can be due to preventing it from attaching to cells, or by interfering with its ability to replicate, or by preventing a toxin it produces from working) gets preferentially produced to deal with the infection.  When the infection is over the cells that produce the antibodies gear down and disappear, leaving what are called "memory cells" that are specific for that one pathogen to stay on vigil for any subsequent appearance of it.  If it *does* show up again the second response is stronger and faster than the first one, because the refinement and selection process for the most effective immune system response has already been done. Without the prior vaccination you face higher risks from an infection. Additionally, since someone can be contagious for days before they show any signs of the disease they can spread the virus all over the place. Just to play devil’s advocate think about this scenario:  Terrorists release an aerosol can of the virus at a concert.  After the concert all those people go back where they came from.  A relative few contract the disease and it incubates.  They become contagious as it replicates inside them and it begins to be spread.  Some of them spread it at their college, some of them spread it to their children, some spread it to the customers at their restaurant job, some spread it to loved ones they visit at the hospital, some spread it across the country as they travel.  By the time the first cases are diagnosed the disease has been spread beyond the point of feasible containment.  The decision is made to mass inoculate the populus, but there’s a problem.  Many of those who would ordinarily be involved in the distribution of the vaccine are too ill to do so.  The vaccination program is extremely slow and inefficient.  Widespread panic might well ensue as people watch as many as 30% of their loved ones die. The scarey thing is it isn’t even far-fetched.  If I have the opportunity to get vaccinated I’m taking it. Take care, Carmen Geocachers get right to the point. http://members14.clubphoto.com/carmen634742/guest-1.phtml

I agree that it isn’t that farfetched that it could happen, but it’s still an IF.  Maybe I’d get vaccinated if I had the opportunity, but how can I in good conscience take my 1 1/2 year old boy to get vaccinated when I know there is a very small, but still possible, risk of it killing him?   On the one hand, the vaccination MIGHT kill him.  On the other hand, someone MIGHT release smallpox on us, and we MIGHT not have time to get him vaccinated in time before it gets here, and he MIGHT die from it.  I KNOW that USA-wide vaccination might kill him – I DON’T KNOW if anyone will ever release smallpox. Which would be worse, having your kid die from the vaccination, and years from now looking back, knowing that there never was a smallpox outbreak, knowing that they could still be alive?  Or not vaccinating, and having the outbreak, and knowing that maybe if you’d vaccinated, they might still be alive? It’s a tough choice, and one that I hope I won’t have to make.  But if it comes down to it, I’ll probably choose NOT to vaccinate unless an outbreak has been detected somewhere. — Jason Baugher 355/310/215 LC since 10/1/02 mini-goal: under 300 by Xmas

Response:

Hi Jason, As far as I am concerned, let’s build up our stockpile of doses so we CAN vaccinate if we need to.  But only do so IF smallpox gets dumped on us.

It’s not as effective after infection.  The immune system needs time to confer immunity to a disease.  The vaccination (in this case) is a extremely weakened strain of the virus.  Your immune system freaks out when it sees it, and then begins to make a bunch of antibodies to the pathogen.  The one that’s most effective at neutralizing the pathogen in some fashion (that can be due to preventing it from attaching to cells, or by interfering with its ability to replicate, or by preventing a toxin it produces from working) gets preferentially produced to deal with the infection.  When the infection is over the cells that produce the antibodies gear down and disappear, leaving what are called "memory cells" that are specific for that one pathogen to stay on vigil for any subsequent appearance of it.  If it *does* show up again the second response is stronger and faster than the first one, because the refinement and selection process for the most effective immune system response has already been done. Without the prior vaccination you face higher risks from an infection. Additionally, since someone can be contagious for days before they show any signs of the disease they can spread the virus all over the place. Just to play devil’s advocate think about this scenario:  Terrorists release an aerosol can of the virus at a concert.  After the concert all those people go back where they came from.  A relative few contract the disease and it incubates.  They become contagious as it replicates inside them and it begins to be spread.  Some of them spread it at their college, some of them spread it to their children, some spread it to the customers at their restaurant job, some spread it to loved ones they visit at the hospital, some spread it across the country as they travel.  By the time the first cases are diagnosed the disease has been spread beyond the point of feasible containment.  The decision is made to mass inoculate the populus, but there’s a problem.  Many of those who would ordinarily be involved in the distribution of the vaccine are too ill to do so.  The vaccination program is extremely slow and inefficient.  Widespread panic might well ensue as people watch as many as 30% of their loved ones die. The scarey thing is it isn’t even far-fetched.  If I have the opportunity to get vaccinated I’m taking it. Take care, Carmen Geocachers get right to the point. http://members14.clubphoto.com/carmen634742/guest-1.phtml

Response:

In the very near future (buzz is early Jan.), they are going to start inoculating health care providers with the small pox vaccination.  I believe the actual vaccination is made from the cow pox virus.  To the workers of health depts., though maybe to all health workers, they are extending this vaccination to immediate families.  My mom is single-so my family is her immediate family- so I have the opportunity to get this shot for my family. Does anyone have any information or links about the vaccine?  I have found this link http://www.fpnotebook.com/ID184.htm, which looks to be promising. Anyone else making this decision?  I was born in 71 and was never vaccinated, so this is really a new concept to me.  My mother said the fatality rate for the vaccine is app. 1:1,000,000.  Sounds reasonable enough, but if I’m not mistaken the vaccines are 30 yrs. old.   Also, I know they recently did a study at Vanderbilt.  Any of you JAMA subscribers or med research hounds know how I can access this study? Any information you have would be helpful.  Other than the pharmacology, I’m unsure what key words to use to narrow my search. TIA, — Mdmquincy  (Jennifer)

Response:

Had I not been vaccinated previously, however, I would probably take the chance rather than be unprotected.

Don’t worry, the UN weapons inspectors in Iraq are helping to make sure that terrorists won’t release smallpox in the US. <rolls eyes -Scott Johnson "The United States of America will not live at the  mercy of any group or regime that has the motive  and seeks the power to murder Americans on a massive  scale." -President GWB 11/8/2002

Response:

I was vaccinated in the late 60s before I went to college and got the reaction they are talking about in the news alert, fever, aches all over and blisters on my legs and abdomen. I was pretty sick for a week. My current physician says that kind of a reaction means I should still be safe. One of my children got the mumps from his MMR vaccine at 18 months.

I can’t remember what, if any, reaction I got to the shot. I can’t even remember how many I got. I know I got one as a kid, but can’t remember if I ever got a booster, like when I started nursing school. I just hope the next time "they" declare a disease eradicated, they remember this quandary <sigh. Lee – sitting home, watching the snow

Response:

writes: BTW, as I was writing this, I got a "news alert" regarding the smallpox vaccine. http://www.msnbc.com/news/./843411.asp?0na=x2224230- Scary stuff. Lee -Who had the original immunization & would prefer a titer 1st I’m with you, Lee.  I was vacinated in 1950 before I entered school and again in 1963 prior to entering college.  Until I see conclusive evidence otherwise I’ll take my chances that I’m still protected.

I was vaccinated in the late 60s before I went to college and got the reaction they are talking about in the news alert, fever, aches all over and blisters on my legs and abdomen. I was pretty sick for a week. My current physician says that kind of a reaction means I should still be safe. One of my children got the mumps from his MMR vaccine at 18 months. Kitty.

Response:

– Hide quoted text — Show quoted text -Ya’d think they could do titers to see if someone still has immunity. When I started my new job, they ran titers to check my immunity for several diseases (and if they’d been low, would have reimmunized me). Even with my dog(!) I’ve started to do titers on him, since the research is showing that immunity lasts way longer than the manufacturers claim. See http://www.888webtoday.com/joyce4.html "a study by the Israeli Defense Force found that even 30 years after booster shots of such vaccinations, many patients still show a titer of antibodies against smallpox in their blood streams sufficient to resist the disease" BTW, as I was writing this, I got a "news alert" regarding the smallpox vaccine. http://www.msnbc.com/news/./843411.asp?0na=x2224230- Scary stuff. Lee -Who had the original immunization & would prefer a titer 1st

I’m with you, Lee.  I was vacinated in 1950 before I entered school and again in 1963 prior to entering college.  Until I see conclusive evidence otherwise I’ll take my chances that I’m still protected. BillJ

Response:

I was vaccinated twice for smallpox .. once in grade school with innoculation, and again in high school with the then new-fangled oral vaccine …  I’m still here  

Might you be thinking of the polio vaccine? — AF

Response:

In the meanwhile, the talk about those of us who were immunized prior to 1971 no longer being immune is pure speculative, unsubstantiated *bullshit.*  Everywhere you check on this fact it will say that the immunization is "only good for 10 years," but that a "nationwide study is currently underway to verify this.!"  LOL!   Someone would like to scare us into getting expensive new shots with absolutely no basis in fact – my guess is the AMA or the drug manufacturers are  behind it.  Why would mumps, measles, chicken pox, etc, vaccines be lifelong and smallpox only10 years? How do they know?  Have they tried to kill someone by exposing them to smallpox after 11 years?  I know when the time comes, I’ll rely on my old smallpox vaccine scars rather than take chances with the man made germ.

Ya’d think they could do titers to see if someone still has immunity. When I started my new job, they ran titers to check my immunity for several diseases (and if they’d been low, would have reimmunized me). Even with my dog(!) I’ve started to do titers on him, since the research is showing that immunity lasts way longer than the manufacturers claim. See http://www.888webtoday.com/joyce4.html "a study by the Israeli Defense Force found that even 30 years after booster shots of such vaccinations, many patients still show a titer of antibodies against smallpox in their blood streams sufficient to resist the disease" BTW, as I was writing this, I got a "news alert" regarding the smallpox vaccine. http://www.msnbc.com/news/./843411.asp?0na=x2224230- Scary stuff. Lee -Who had the original immunization & would prefer a titer 1st

Response:

Oops — I engaged mouth before putting brain into gear. I just researched several articles.  The contemporary vaccine is a *live* man-made germ that does not exist in nature.  They really don’t know what the effect would be on the general population, acording to the literature anyone with a compromised immune system (HIV, lupus, certain allergies,etc.) would be especially susceptible to illness or death. Also those with a form of skin exzema (believe it or not) that 15% of the population has would be susceptible also! In the meanwhile, the talk about those of us who were immunized prior to 1971 no longer being immune is pure speculative, unsubstantiated *bullshit.*  Everywhere you check on this fact it will say that the immunization is "only good for 10 years," but that a "nationwide study is currently underway to verify this.!"  LOL!   Someone would like to scare us into getting expensive new shots with absolutely no basis in fact – my guess is the AMA or the drug manufacturers are  behind it.  Why would mumps, measles, chicken pox, etc, vaccines be lifelong and smallpox only10 years? How do they know?  Have they tried to kill someone by exposing them to smallpox after 11 years?  I know when the time comes, I’ll rely on my old smallpox vaccine scars rather than take chances with the man made germ. Had I not been vaccinated previously, however, I would probably take the chance rather than be unprotected. — Peter Website:  http://users.thelink.net/marengo    http://www.newsfeed.com       The #1 Newsgroup Service in the World! —–= Over 100,000 Newsgroups – Unlimited Fast Downloads – 19 Servers =—–

Response:

– Hide quoted text — Show quoted text – In the very near future (buzz is early Jan.), they are going to start inoculating health care providers with the small pox vaccination.  I believe the actual vaccination is made from the cow pox virus.  To the workers of health depts., though maybe to all health workers, they are extending this vaccination to immediate families.  My mom is single-so my family is her immediate family- so I have the opportunity to get this shot for my family. Does anyone have any information or links about the vaccine?  I have found this link http://www.fpnotebook.com/ID184.htm, which looks to be promising. Anyone else making this decision?  I was born in 71 and was never vaccinated, so this is really a new concept to me.  My mother said the fatality rate for the vaccine is app. 1:1,000,000.  Sounds reasonable enough, but if I’m not mistaken the vaccines are 30 yrs. old.   Also, I know they recently did a study at Vanderbilt.  Any of you JAMA subscribers or med research hounds know how I can access this study? Any information you have would be helpful.  Other than the pharmacology, I’m unsure what key words to use to narrow my search. TIA, — Mdmquincy  (Jennifer)

I was vaccinated twice for smallpox .. once in grade school with innoculation, and again in high school with the then new-fangled oral vaccine …  I’m still here   You cannot contract smallpox from the vaccine; the virii are dead.  The extremely small percentage of people who die from the vaccine are from rare allergic reactions. … Then again, I don’t fly despite the statistics in favor of surviving an airplane trip  ;) I’d be happy to donate my already-immune blood  :) — Peter Website:  http://users.thelink.net/marengo    http://www.newsfeed.com       The #1 Newsgroup Service in the World! —–= Over 100,000 Newsgroups – Unlimited Fast Downloads – 19 Servers =—–

Response:

Question:

Beverley wrote:

<snip> > With a chook, chook here, and a chook, chook there, here a chook, there a > chook, everywhere a chook, chook. > Bev

LOL!  Good one! -Sharon — Clear your mind, relax and float downstream.

Response:

i would think a mozz – quito??? maybe?? Shelagh  Co-ordinator Of Valley-Lupus – Invisible in Plain Sight http://www3.telus.net/valleylupus/index.html Subgroup of BC Lupus Society and Lupus Canada Email: valleylu…@telus.net "Beverley" <pottings…@sybercom.net> wrote in message

news:ulpsca2qrjqpf9@corp.supernews.com… – Hide quoted text — Show quoted text -> What is a mozzie? > Bev > "Lyndal Parker-Newlyn and Phill Newlyn" <l.p.new…@bigpond.com> wrote in > message news:qPU69.7005$g9.23936@newsfeeds.bigpond.com… > > That is interesting…and so gross!!! > > What is really odd with all our bite reactions, I got bitten by a red back > > spider last year (nasty little buggers, can be fatal for babies or dogs, > > make adults pretty sick) – and I had a usual reaction from the > > envenomation – fevers diarrhoea pain sweats glands up etc.  but it was all > > textbook – no over-reaction no need for antivenom and I was OK in 24 > > hours…Very typical and unexciting!! > > So I may hate mozzies and sand flies, but I can handle the big guns!! > > Lyndal > > "Beverley" <pottings…@sybercom.net> wrote in message > > news:ulhul83ke41091@corp.supernews.com… > > > I’ve sat through plenty of entomology lectures to pick up on a few > > things – > > > so I have lots of normally useless but interesting information on bugs > in > > my > > > brain. So here goes my version of why we react to so many insect > > > bites/stings. > > > The biggest thing is they are dirty. And our skin is dirty to they go > > > plunging that darn stinger in us and who knows where it was last? So all > > > kinds of bacteria, fungus and just plain dirt gets dragged into the > lower > > > layers of skin. Most stings and bites such as from the mosquito contain > a > > > chemical that prevents coagulation of the blood. If they didn’t inject > > that > > > into their prey they would never be able to pull their body part back > out. > > > Some of us "lucky ones" are allergic to the chemical they pump into our > > > bodies. > > > Certain ants have the same basic chemical which is excreted through > their > > > mouth parts as bees have in their stingers so that is why many of us > have > > > nasty reactions to ant bites. The main difference is ants insert much > less > > > than a bee. But enough ant bites could produce the same violent > reactions > > as > > > seen with a bee sting. The common red ant IIRC is closest to bee venom. > > > Now, this is really gross but do you know why fly bites are so bad and > > often > > > cause severe reactions? They are probably the dirtiest of all the bites. > > > Flies do not have intestines or an anus. They eat, digest their food and > > > what is leftover is vomited back up. That is the cause of "fly spots" on > > > windows, lamps, etc. This feces laced with a whole lot of digestive > juices > > > are vomited back up just prior to taking a bite. This way the bite is > > > slightly pre-digested so you can imagine how strong these digestive > juices > > > really are. So we get a chunk of skin removed and all around that hole > in > > > our covering is fly poop and digestive juices. And only god knows what > the > > > fly was eating before he took a bite of us? Dog poop, old garbage, > > squashed > > > slug, etc. > > > Humans tend to think of themselves at the top of the food chain when in > > > actuality we are just food for flies, and other insects. Their job is to > > > recycle us back into the dust from which we came. > > > Bev > > > "CSP" <csper…@juno.com> wrote in message > > > news:GmZ59.7348$uO4.4868@nwrddc01.gnilink.net… > > > > I’m one of those people, too.  A  recent fly bite (not mosquito, but > > > > housefly) made my whole shin/calf turn pink and hot.  Mosquitoes … > > > spiders > > > > … chiggers … fleas … deer flies … fire ants (from the Deep > > South) > > > > … anything of that sort will do the same and more.  Wasp and bee > > stings > > > > are a couple of rungs higher though I have not experienced a life > > > > threatening reaction and hope I never do.  This happens to no one else > > in > > > > the family except my teenage daughter and myself.  (All of us have > > pollen > > > > allergies, though … year round.) > > > > CP > > > > "J Rogow" <JRo…@Newsguy.com> wrote in message > > > > news:aj74u40imn@enews1.newsguy.com… > > > > > Have you even noticed how many of us are allergic to bee stings > > > > > and other insect "bites"?

Response:

Hello everyone, I went to play golf today. The first time in about three weeks.  On the third hole I was looking for my ball and brushed against a cedar tree. I was attacked by wasp or yellow jackets.  Got bit twice. Once on the finger and once on the neck.. I am okay, but I am a little bit allergic to wasp and so I came home early.  I am thinking now that it was a yellow jacket as I think that with the wasp I would be having more pain and the areas would be swollen more. A mosquito bite on my face can cause my eyes to swell shut. I was a little worried about the sting on my neck. Shoot my finger hurts worse than the neck.  I took my benadryl and took a nap.  I am just dissappointed that  I missed golfing.  Oh well Sunday is almost over.  Have a great evening. Cindy

Response:

Cindy, Gee, I thought that I was alone with all the swelling that even a pesty little mosquito causes.  Was always afraid of a sting of a bee.wasp, yellow jacket because of it.  Discovered that they hurt like the dickens and the swelling from a sting on the hand caused lots of swelling and even my lymph nodes in the armpits swelled. So I sure can sympathize with you.  Hope that the benadryl continues to keep the reaction to a min. and that you enjoy what is left of this Sunday. Hugs, Sherry

Response:

Have you even noticed how many of us are allergic to bee stings and other insect "bites"? "Eleanor" <ehur…@elp.rr.com> wrote in message

news:NTC59.77023$Yd.3462726@twister.austin.rr.com… – Hide quoted text — Show quoted text -> Cindy, > Gee, I thought that I was alone with all the swelling that even a pesty > little mosquito causes.  Was always afraid of a sting of a bee.wasp, yellow > jacket because of it.  Discovered that they hurt like the dickens and the > swelling from a sting on the hand caused lots of swelling and even my lymph > nodes in the armpits swelled. > So I sure can sympathize with you.  Hope that the benadryl continues to keep > the reaction to a min. and that you enjoy what is left of this Sunday. > Hugs, > Sherry

Response:

I have discovered that many on this group have the same reactions to insect bites and stings.  Also a lot of other "problems" we seem to share or have in common that aren’t listed as part of the Lupus.

Response:

I think the body is so happy to have something legitimate to attack it just goes nuts! Bev "Eleanor" <ehur…@elp.rr.com> wrote in message

news:jOG59.77430$Yd.3511575@twister.austin.rr.com… – Hide quoted text — Show quoted text -> I have discovered that many on this group have the same reactions to insect > bites and stings.  Also a lot of other "problems" we seem to share or have > in common that aren’t listed as part of the Lupus.

Response:

Cindy, Be careful you could still have a serious reaction. Keep the benadryl handy but be prepared in case you have to make an ER trip. I really hope you called or saw a doctor today. Bev "Cindy" <cmath…@cox.net> wrote in message

news:SiC59.21802$SE1.1026@news1.central.cox.net… – Hide quoted text — Show quoted text -> Hello everyone, > I went to play golf today. The first time in about three weeks.  On the > third hole I was looking for my ball and brushed against a cedar tree. I was > attacked by wasp or yellow jackets.  Got bit twice. Once on the finger and > once on the neck.. I am okay, but I am a little bit allergic to wasp and so > I came home early.  I am thinking now that it was a yellow jacket as I think > that with the wasp I would be having more pain and the areas would be > swollen more. A mosquito bite on my face can cause my eyes to swell shut. I > was a little worried about the sting on my neck. Shoot my finger hurts worse > than the neck.  I took my benadryl and took a nap.  I am just dissappointed > that  I missed golfing.  Oh well > Sunday is almost over.  Have a great evening. > Cindy

Response:

I’m one of those people, too.  A  recent fly bite (not mosquito, but housefly) made my whole shin/calf turn pink and hot.  Mosquitoes … spiders … chiggers … fleas … deer flies … fire ants (from the Deep South) … anything of that sort will do the same and more.  Wasp and bee stings are a couple of rungs higher though I have not experienced a life threatening reaction and hope I never do.  This happens to no one else in the family except my teenage daughter and myself.  (All of us have pollen allergies, though … year round.) CP "J Rogow" <JRo…@Newsguy.com> wrote in message

news:aj74u40imn@enews1.newsguy.com… – Hide quoted text — Show quoted text -> Have you even noticed how many of us are allergic to bee stings > and other insect "bites"?

Response:

I think that I am going to be fine. But this sting on the tip of my pointer finger is driving me crazy. The tip of my finger is red and swollen.  But I’ve been putting stuff on it and I will be okay. But I will keep my benadryl handy. Thanks Cindy "Beverley" <pottings…@sybercom.net> wrote in message

news:ulgaos5cmscbf9@corp.supernews.com… – Hide quoted text — Show quoted text -> Cindy, Be careful you could still have a serious reaction. Keep the benadryl > handy but be prepared in case you have to make an ER trip. I really hope you > called or saw a doctor today. > Bev > "Cindy" <cmath…@cox.net> wrote in message > news:SiC59.21802$SE1.1026@news1.central.cox.net… > > Hello everyone, > > I went to play golf today. The first time in about three weeks.  On the > > third hole I was looking for my ball and brushed against a cedar tree. I > was > > attacked by wasp or yellow jackets.  Got bit twice. Once on the finger and > > once on the neck.. I am okay, but I am a little bit allergic to wasp and > so > > I came home early.  I am thinking now that it was a yellow jacket as I > think > > that with the wasp I would be having more pain and the areas would be > > swollen more. A mosquito bite on my face can cause my eyes to swell shut. > I > > was a little worried about the sting on my neck. Shoot my finger hurts > worse > > than the neck.  I took my benadryl and took a nap.  I am just > dissappointed > > that  I missed golfing.  Oh well > > Sunday is almost over.  Have a great evening. > > Cindy

Response:

Just remember this gal keeps chooks in her backyard. Which I believe are chickens but not entirely positive. We both speak English yet neither one of them belongs to the Queen. They have their slang and we have ours. With a chook, chook here, and a chook, chook there, here a chook, there a chook, everywhere a chook, chook. Bev "Shelagh" <valleylu…@telus.net> wrote in message

news:zgg79.797$1L4.86190@news1.telusplanet.net… – Hide quoted text — Show quoted text -> i would think a mozz – quito??? > maybe?? > Shelagh  Co-ordinator Of > Valley-Lupus – Invisible in Plain Sight > http://www3.telus.net/valleylupus/index.html > Subgroup of BC Lupus Society and Lupus Canada > Email: valleylu…@telus.net > "Beverley" <pottings…@sybercom.net> wrote in message > news:ulpsca2qrjqpf9@corp.supernews.com… > > What is a mozzie? > > Bev > > "Lyndal Parker-Newlyn and Phill Newlyn" <l.p.new…@bigpond.com> wrote > in > > message news:qPU69.7005$g9.23936@newsfeeds.bigpond.com… > > > That is interesting…and so gross!!! > > > What is really odd with all our bite reactions, I got bitten by a > red back > > > spider last year (nasty little buggers, can be fatal for babies or > dogs, > > > make adults pretty sick) – and I had a usual reaction from the > > > envenomation – fevers diarrhoea pain sweats glands up etc.  but it > was all > > > textbook – no over-reaction no need for antivenom and I was OK in 24 > > > hours…Very typical and unexciting!! > > > So I may hate mozzies and sand flies, but I can handle the big > guns!! > > > Lyndal > > > "Beverley" <pottings…@sybercom.net> wrote in message > > > news:ulhul83ke41091@corp.supernews.com… > > > > I’ve sat through plenty of entomology lectures to pick up on a few > > > things – > > > > so I have lots of normally useless but interesting information on > bugs > > in > > > my > > > > brain. So here goes my version of why we react to so many insect > > > > bites/stings. > > > > The biggest thing is they are dirty. And our skin is dirty to they > go > > > > plunging that darn stinger in us and who knows where it was last? > So all > > > > kinds of bacteria, fungus and just plain dirt gets dragged into > the > > lower > > > > layers of skin. Most stings and bites such as from the mosquito > contain > > a > > > > chemical that prevents coagulation of the blood. If they didn’t > inject > > > that > > > > into their prey they would never be able to pull their body part > back > > out. > > > > Some of us "lucky ones" are allergic to the chemical they pump > into our > > > > bodies. > > > > Certain ants have the same basic chemical which is excreted > through > > their > > > > mouth parts as bees have in their stingers so that is why many of > us > > have > > > > nasty reactions to ant bites. The main difference is ants insert > much > > less > > > > than a bee. But enough ant bites could produce the same violent > > reactions > > > as > > > > seen with a bee sting. The common red ant IIRC is closest to bee > venom. > > > > Now, this is really gross but do you know why fly bites are so bad > and > > > often > > > > cause severe reactions? They are probably the dirtiest of all the > bites. > > > > Flies do not have intestines or an anus. They eat, digest their > food and > > > > what is leftover is vomited back up. That is the cause of "fly > spots" on > > > > windows, lamps, etc. This feces laced with a whole lot of > digestive > > juices > > > > are vomited back up just prior to taking a bite. This way the bite > is > > > > slightly pre-digested so you can imagine how strong these > digestive > > juices > > > > really are. So we get a chunk of skin removed and all around that > hole > > in > > > > our covering is fly poop and digestive juices. And only god knows > what > > the > > > > fly was eating before he took a bite of us? Dog poop, old garbage, > > > squashed > > > > slug, etc. > > > > Humans tend to think of themselves at the top of the food chain > when in > > > > actuality we are just food for flies, and other insects. Their job > is to > > > > recycle us back into the dust from which we came. > > > > Bev > > > > "CSP" <csper…@juno.com> wrote in message > > > > news:GmZ59.7348$uO4.4868@nwrddc01.gnilink.net… > > > > > I’m one of those people, too.  A  recent fly bite (not mosquito, > but > > > > > housefly) made my whole shin/calf turn pink and hot.  Mosquitoes > … > > > > spiders > > > > > … chiggers … fleas … deer flies … fire ants (from the > Deep > > > South) > > > > > … anything of that sort will do the same and more.  Wasp and > bee > > > stings > > > > > are a couple of rungs higher though I have not experienced a > life > > > > > threatening reaction and hope I never do.  This happens to no > one else > > > in > > > > > the family except my teenage daughter and myself.  (All of us > have > > > pollen > > > > > allergies, though … year round.) > > > > > CP > > > > > "J Rogow" <JRo…@Newsguy.com> wrote in message > > > > > news:aj74u40imn@enews1.newsguy.com… > > > > > > Have you even noticed how many of us are allergic to bee > stings > > > > > > and other insect "bites"?

Response:

Lyndal My brother’s having an awful time for month or more now.  E-mailed me. Some infestation at work.  I’ve just spent last 24 hours or so trying to find on the ‘net what it could be. I’m really concerned, about the way he’s treating it, spraying chlorine on his legs, clothes , arms, etc, because it’s so distracting at work. Latest is he reports headaches (which is very unusual for him).  Ever gotten headaches from bug bites? I guess I’m concerned that this new job (and the added stress of these bug bites which turn into sores) are going to send him into a flare.  And since he’s not yet been diagnosed with Lupus, he (and his doctor) wouldn’t even recognize a flare. Thoughts? J Lyndal Parker-Newlyn and Phill Newlyn wrote: – Hide quoted text — Show quoted text -> That is interesting…and so gross!!! > What is really odd with all our bite reactions, I got bitten by a red back > spider last year (nasty little buggers, can be fatal for babies or dogs, > make adults pretty sick) – and I had a usual reaction from the > envenomation – fevers diarrhoea pain sweats glands up etc.  but it was all > textbook – no over-reaction no need for antivenom and I was OK in 24 > hours…Very typical and unexciting!!

Response:

What is a mozzie? Bev "Lyndal Parker-Newlyn and Phill Newlyn" <l.p.new…@bigpond.com> wrote in message news:qPU69.7005$g9.23936@newsfeeds.bigpond.com… – Hide quoted text — Show quoted text -> That is interesting…and so gross!!! > What is really odd with all our bite reactions, I got bitten by a red back > spider last year (nasty little buggers, can be fatal for babies or dogs, > make adults pretty sick) – and I had a usual reaction from the > envenomation – fevers diarrhoea pain sweats glands up etc.  but it was all > textbook – no over-reaction no need for antivenom and I was OK in 24 > hours…Very typical and unexciting!! > So I may hate mozzies and sand flies, but I can handle the big guns!! > Lyndal > "Beverley" <pottings…@sybercom.net> wrote in message > news:ulhul83ke41091@corp.supernews.com… > > I’ve sat through plenty of entomology lectures to pick up on a few > things – > > so I have lots of normally useless but interesting information on bugs in > my > > brain. So here goes my version of why we react to so many insect > > bites/stings. > > The biggest thing is they are dirty. And our skin is dirty to they go > > plunging that darn stinger in us and who knows where it was last? So all > > kinds of bacteria, fungus and just plain dirt gets dragged into the lower > > layers of skin. Most stings and bites such as from the mosquito contain a > > chemical that prevents coagulation of the blood. If they didn’t inject > that > > into their prey they would never be able to pull their body part back out. > > Some of us "lucky ones" are allergic to the chemical they pump into our > > bodies. > > Certain ants have the same basic chemical which is excreted through their > > mouth parts as bees have in their stingers so that is why many of us have > > nasty reactions to ant bites. The main difference is ants insert much less > > than a bee. But enough ant bites could produce the same violent reactions > as > > seen with a bee sting. The common red ant IIRC is closest to bee venom. > > Now, this is really gross but do you know why fly bites are so bad and > often > > cause severe reactions? They are probably the dirtiest of all the bites. > > Flies do not have intestines or an anus. They eat, digest their food and > > what is leftover is vomited back up. That is the cause of "fly spots" on > > windows, lamps, etc. This feces laced with a whole lot of digestive juices > > are vomited back up just prior to taking a bite. This way the bite is > > slightly pre-digested so you can imagine how strong these digestive juices > > really are. So we get a chunk of skin removed and all around that hole in > > our covering is fly poop and digestive juices. And only god knows what the > > fly was eating before he took a bite of us? Dog poop, old garbage, > squashed > > slug, etc. > > Humans tend to think of themselves at the top of the food chain when in > > actuality we are just food for flies, and other insects. Their job is to > > recycle us back into the dust from which we came. > > Bev > > "CSP" <csper…@juno.com> wrote in message > > news:GmZ59.7348$uO4.4868@nwrddc01.gnilink.net… > > > I’m one of those people, too.  A  recent fly bite (not mosquito, but > > > housefly) made my whole shin/calf turn pink and hot.  Mosquitoes … > > spiders > > > … chiggers … fleas … deer flies … fire ants (from the Deep > South) > > > … anything of that sort will do the same and more.  Wasp and bee > stings > > > are a couple of rungs higher though I have not experienced a life > > > threatening reaction and hope I never do.  This happens to no one else > in > > > the family except my teenage daughter and myself.  (All of us have > pollen > > > allergies, though … year round.) > > > CP > > > "J Rogow" <JRo…@Newsguy.com> wrote in message > > > news:aj74u40imn@enews1.newsguy.com… > > > > Have you even noticed how many of us are allergic to bee stings > > > > and other insect "bites"?

Response:

"Andy" <a…@kitzbuhel.demon.co.uk> wrote in message

news:nE$xlwB+4PW9EwJ6@kitzbuhel.demon.co.uk… > In article <ulhul83ke41…@corp.supernews.com>, Beverley > <pottings…@sybercom.net> wrote > [ > >Humans tend to think of themselves at the top of the food chain > (Nonsense: cats are)

I see you've met the Siamese!

Response:

That is interesting...and so gross!!! What is really odd with all our bite reactions, I got bitten by a red back spider last year (nasty little buggers, can be fatal for babies or dogs, make adults pretty sick) - and I had a usual reaction from the envenomation - fevers diarrhoea pain sweats glands up etc.  but it was all textbook - no over-reaction no need for antivenom and I was OK in 24 hours...Very typical and unexciting!! So I may hate mozzies and sand flies, but I can handle the big guns!! Lyndal "Beverley" <pottings...@sybercom.net> wrote in message

news:ulhul83ke41091@corp.supernews.com... - Hide quoted text -- Show quoted text -> I've sat through plenty of entomology lectures to pick up on a few things - > so I have lots of normally useless but interesting information on bugs in my > brain. So here goes my version of why we react to so many insect > bites/stings. > The biggest thing is they are dirty. And our skin is dirty to they go > plunging that darn stinger in us and who knows where it was last? So all > kinds of bacteria, fungus and just plain dirt gets dragged into the lower > layers of skin. Most stings and bites such as from the mosquito contain a > chemical that prevents coagulation of the blood. If they didn't inject that > into their prey they would never be able to pull their body part back out. > Some of us "lucky ones" are allergic to the chemical they pump into our > bodies. > Certain ants have the same basic chemical which is excreted through their > mouth parts as bees have in their stingers so that is why many of us have > nasty reactions to ant bites. The main difference is ants insert much less > than a bee. But enough ant bites could produce the same violent reactions as > seen with a bee sting. The common red ant IIRC is closest to bee venom. > Now, this is really gross but do you know why fly bites are so bad and often > cause severe reactions? They are probably the dirtiest of all the bites. > Flies do not have intestines or an anus. They eat, digest their food and > what is leftover is vomited back up. That is the cause of "fly spots" on > windows, lamps, etc. This feces laced with a whole lot of digestive juices > are vomited back up just prior to taking a bite. This way the bite is > slightly pre-digested so you can imagine how strong these digestive juices > really are. So we get a chunk of skin removed and all around that hole in > our covering is fly poop and digestive juices. And only god knows what the > fly was eating before he took a bite of us? Dog poop, old garbage, squashed > slug, etc. > Humans tend to think of themselves at the top of the food chain when in > actuality we are just food for flies, and other insects. Their job is to > recycle us back into the dust from which we came. > Bev > "CSP" <csper...@juno.com> wrote in message > news:GmZ59.7348$uO4.4868@nwrddc01.gnilink.net... > > I'm one of those people, too.  A  recent fly bite (not mosquito, but > > housefly) made my whole shin/calf turn pink and hot.  Mosquitoes ... > spiders > > ... chiggers ... fleas ... deer flies ... fire ants (from the Deep South) > > ... anything of that sort will do the same and more.  Wasp and bee stings > > are a couple of rungs higher though I have not experienced a life > > threatening reaction and hope I never do.  This happens to no one else in > > the family except my teenage daughter and myself.  (All of us have pollen > > allergies, though ... year round.) > > CP > > "J Rogow" <JRo...@Newsguy.com> wrote in message > > news:aj74u40imn@enews1.newsguy.com... > > > Have you even noticed how many of us are allergic to bee stings > > > and other insect "bites"?

Response:

In article <ulhul83ke41...@corp.supernews.com>, Beverley <pottings...@sybercom.net> wrote [ >Humans tend to think of themselves at the top of the food chain

(Nonsense: cats are) >when in >actuality we are just food for flies, and other insects. Their job is to >recycle us back into the dust from which we came. >Bev

Yeah, but not while I'm still alive. -- Andy [Editor, Austrian Philatelic Society] For Austrian philately <URL:http://www.kitzbuhel.demon.co.uk/austamps> For Lupus <URL:http://www.kitzbuhel.demon.co.uk/lupus> For my other interests <URL:http://www.kitzbuhel.demon.co.uk>

Response:

I’ve sat through plenty of entomology lectures to pick up on a few things – so I have lots of normally useless but interesting information on bugs in my brain. So here goes my version of why we react to so many insect bites/stings. The biggest thing is they are dirty. And our skin is dirty to they go plunging that darn stinger in us and who knows where it was last? So all kinds of bacteria, fungus and just plain dirt gets dragged into the lower layers of skin. Most stings and bites such as from the mosquito contain a chemical that prevents coagulation of the blood. If they didn’t inject that into their prey they would never be able to pull their body part back out. Some of us "lucky ones" are allergic to the chemical they pump into our bodies. Certain ants have the same basic chemical which is excreted through their mouth parts as bees have in their stingers so that is why many of us have nasty reactions to ant bites. The main difference is ants insert much less than a bee. But enough ant bites could produce the same violent reactions as seen with a bee sting. The common red ant IIRC is closest to bee venom. Now, this is really gross but do you know why fly bites are so bad and often cause severe reactions? They are probably the dirtiest of all the bites. Flies do not have intestines or an anus. They eat, digest their food and what is leftover is vomited back up. That is the cause of "fly spots" on windows, lamps, etc. This feces laced with a whole lot of digestive juices are vomited back up just prior to taking a bite. This way the bite is slightly pre-digested so you can imagine how strong these digestive juices really are. So we get a chunk of skin removed and all around that hole in our covering is fly poop and digestive juices. And only god knows what the fly was eating before he took a bite of us? Dog poop, old garbage, squashed slug, etc. Humans tend to think of themselves at the top of the food chain when in actuality we are just food for flies, and other insects. Their job is to recycle us back into the dust from which we came. Bev "CSP" <csper…@juno.com> wrote in message

news:GmZ59.7348$uO4.4868@nwrddc01.gnilink.net… – Hide quoted text — Show quoted text -> I’m one of those people, too.  A  recent fly bite (not mosquito, but > housefly) made my whole shin/calf turn pink and hot.  Mosquitoes … spiders > … chiggers … fleas … deer flies … fire ants (from the Deep South) > … anything of that sort will do the same and more.  Wasp and bee stings > are a couple of rungs higher though I have not experienced a life > threatening reaction and hope I never do.  This happens to no one else in > the family except my teenage daughter and myself.  (All of us have pollen > allergies, though … year round.) > CP > "J Rogow" <JRo…@Newsguy.com> wrote in message > news:aj74u40imn@enews1.newsguy.com… > > Have you even noticed how many of us are allergic to bee stings > > and other insect "bites"?

Response:

Question:

Should I comment on Bag Balm??? ‘ Sure I will.  I have bag balm at home in my med cupboard.  Honest, I do!! My father was a vet (both army and veterinarian) and he always used bag balm on cows udders.  Now since I don’t have a cow, I still have it on hand because indeed, it is a good skin soother, used to treat open cuts and what ever you can find to use it on. So see, you guys thought I was going to be funny LOL  Fooled ya, it is a good thing that bag balm.   Everyhome needs one jar. janers

Response:

"Janers" <rojak…@bright.net> wrote in message

news:iRHZ8.3735$pv6.367177@cletus.bright.net… > Should I comment on Bag Balm??? > ‘ > Sure I will.  I have bag balm at home in my med cupboard.  Honest, I > do!! > My father was a vet (both army and veterinarian) and he always used bag > balm on cows udders.  Now since I don’t have a cow, I still have it on > hand because indeed, it is a good skin soother, used to treat open cuts > and what ever you can find to use it on. > So see, you guys thought I was going to be funny LOL  Fooled ya, it is a > good thing that bag balm.   Everyhome needs one jar.

"Jar"?  Mine is in a square green tin.

Response:

OK< you got me JR.  It is in a square tin and green. OH but there is a bag balm that you can also buy at your local pharmacy. It is white with black areas, looks just like cows do (black and white) Don’t know the name of it but the pharmacist does.  People use it for skin too.   Cow balm>?  I don’t know the name of it. good night janers

Response:

Ah, I didn’t know that – the "real stuff" is all I’ve ever used. "Designer" bag balm – what *will* "they" think of next? "Janers" <rojak…@bright.net> wrote in message

news:%TKZ8.3742$pv6.369122@cletus.bright.net… – Hide quoted text — Show quoted text -> OK< you got me JR.  It is in a square tin and green. > OH but there is a bag balm that you can also buy at your local pharmacy. > It is white with black areas, looks just like cows do (black and white) > Don’t know the name of it but the pharmacist does.  People use it for > skin too.   Cow balm>?  I don’t know the name of it. > good night > janers

Response:

"BJ" <B…@sk.nojunk.ca> wrote in message

news:ujbrv63pu4m648@corp.supernews.com… – Hide quoted text — Show quoted text -> Hi Everyone, > My skin has been like this for a long time. I have mentioned that I have > weird antibodies between the dermis and epidermis. I think this plays a role > in my problem. My skin has shriveled. It has large flakes, that are all over > my body. I have tried every kind of lotion on the market. I use bath oil, > and try not to have the water too hot. It looks a lot like fish scales. The > lotions only serve to glue them down, so they are less noticeable. Is there > anything that could be taken orally that might help? I do drink lots of > water. I have had several doctors says that it looks like I am chronically > dehydrated. Any suggestions? > BJ-shriveling in the heat of S. Sk.

http://www.sjogrens.com/ Dries out the moisture producing glands in the body. Doctor says is common for lupus patients to also have this. — Zinn website reopened http://www.angelfire.com/zine2/PandorasChemicalBox/links.html

Response:

In article <%TKZ8.3742$pv6.369…@cletus.bright.net>, Janers <rojak…@bright.net> wrote: >OK< you got me JR.  It is in a square tin and green. >OH but there is a bag balm that you can also buy at your local pharmacy. >It is white with black areas, looks just like cows do (black and white) >Don’t know the name of it but the pharmacist does.  People use it for >skin too.   Cow balm>?  I don’t know the name of it.

It’s not the same as bag balm.  I think it has some cutesy name like "Udderly Smooth."  I’ve bought it before when I was searching for a no- fragrance skin cream.  The stuff really is just a heavy lotion, not really much different from Curel or Eucerin lotion. — Lee M.Thompson-Herbert        l…@retro.com            KoX 1995, SP4 Head Muso, White Rats Morris Member, Knights of Xenu (1995).  Chaos Monger and Jill of All Trades. "A head-on collision between Morticia Adams and Martha Stewart"

Response:

If you’re having trouble with big flakies, maybe exfoliating would help before you moisturize. I’m a big fan of lovely smelling liquid soaps applied with a nylon towel. The towel gets rid of the uneven outer layer of skin while it applies the lovely smells to your skin. I tend to use the moisturizing liquid soaps, so maybe that helps too. – Hide quoted text — Show quoted text -"BJ" <B…@sk.nojunk.ca> wrote in message <news:ujbrv63pu4m648@corp.supernews.com>… > Hi Everyone, > My skin has been like this for a long time. I have mentioned that I have > weird antibodies between the dermis and epidermis. I think this plays a role > in my problem. My skin has shriveled. It has large flakes, that are all over > my body. I have tried every kind of lotion on the market. I use bath oil, > and try not to have the water too hot. It looks a lot like fish scales. The > lotions only serve to glue them down, so they are less noticeable. Is there > anything that could be taken orally that might help? I do drink lots of > water. I have had several doctors says that it looks like I am chronically > dehydrated. Any suggestions? > BJ-shriveling in the heat of S. Sk.

Response:

I had that on my face once.  My derm gave me a low dose cortisone cream, that had to be put on when my skin was wet.  Worked like a charm.  Of course I don’t still have the tube to tell you the name, but even though it was low dose cortisone, it was by prescription only. Good luck…..if I can remember the name of the cream, I’ll post back. Tracy "if you’re on thin ice you may as well dance…"

Response:

I do that also when we go out of town.  what I like to do though, is after i get out, when the pores are still open, i’ll slather on some body oil. Neutragena is good.  I bet shea butter would also be heavenly. I have the allergy gunk in my chest alot and the steam works wonders on that too. My grandmother, half Norwegian, used sauna’s quite a bit.  She would use almond oil or something afterward.  She had the softest skin. Enjoy!! dawn "NoSpam" <NoS…@lmhenry.demon.co.uk> wrote in message

news:01HW.B961B5AF000126F605545510@news.demon.co.uk… – Hide quoted text — Show quoted text -> Hello Again, > I find spending time in a steam room <not to be confused with a sauna> helps > both my dry skin, my dry throat/cough and my dry eyes. You can find them in > health clubs and public baths here in the UK. They help with exfoliating too > if flakiness is a problem. > Lynne >  On Wed, 17 Jul 2002 23:29:06 +0100, BJ wrote > (in message <ujbrv63pu4m…@corp.supernews.com>): > > Hi Everyone, > > My skin has been like this for a long time. I have mentioned that I have > > weird antibodies between the dermis and epidermis. I think this plays a role > > in my problem. My skin has shriveled. It has large flakes, that are all over > > my body. I have tried every kind of lotion on the market. I use bath oil, > > and try not to have the water too hot. It looks a lot like fish scales. The > > lotions only serve to glue them down, so they are less noticeable. Is there > > anything that could be taken orally that might help? I do drink lots of > > water. I have had several doctors says that it looks like I am chronically > > dehydrated. Any suggestions? > > BJ-shriveling in the heat of S. Sk.

Response:

I bought Lavender body and lip butters from a company in Australia. Great prices (their dollar is really depressed right now), if you’re interested the URL is http://www.adorebeauty.com.au/cgi-bin/adore and I can vouch for the service. The butters have really made a difference for me/ Judith, smooth and sweet in SoCal "dawn" <kend…@samlink.com> wrote in message

news:bO2%8.3354$D72.38364@eagle.america.net… – Hide quoted text — Show quoted text -> I do that also when we go out of town.  what I like to do though, is after i > get out, when the pores are still open, i’ll slather on some body oil. > Neutragena is good.  I bet shea butter would also be heavenly. > I have the allergy gunk in my chest alot and the steam works wonders on that > too. > My grandmother, half Norwegian, used sauna’s quite a bit.  She would use > almond oil or something afterward.  She had the softest skin. > Enjoy!! > dawn > "NoSpam" <NoS…@lmhenry.demon.co.uk> wrote in message > news:01HW.B961B5AF000126F605545510@news.demon.co.uk… > > Hello Again, > > I find spending time in a steam room <not to be confused with a sauna> > helps > > both my dry skin, my dry throat/cough and my dry eyes. You can find them > in > > health clubs and public baths here in the UK. They help with exfoliating > too > > if flakiness is a problem. > > Lynne > >  On Wed, 17 Jul 2002 23:29:06 +0100, BJ wrote > > (in message <ujbrv63pu4m…@corp.supernews.com>): > > > Hi Everyone, > > > My skin has been like this for a long time. I have mentioned that I have > > > weird antibodies between the dermis and epidermis. I think this plays a > role > > > in my problem. My skin has shriveled. It has large flakes, that are all > over > > > my body. I have tried every kind of lotion on the market. I use bath > oil, > > > and try not to have the water too hot. It looks a lot like fish scales. > The > > > lotions only serve to glue them down, so they are less noticeable. Is > there > > > anything that could be taken orally that might help? I do drink lots of > > > water. I have had several doctors says that it looks like I am > chronically > > > dehydrated. Any suggestions? > > > BJ-shriveling in the heat of S. Sk.

Response:

Hi Sharon, I am sure our large animal vet will have that. I had eczema as a child and teen too. I was actually hospitalized for two weeks because of that. It suddenly disappeared when my second child was a year old. I have never had it since. Isn’t that weird? BJ-Sk. Canada "SPerloff" <SPerl…@yahoo.com> wrote in message

news:3D372542.1080301@yahoo.com… – Hide quoted text — Show quoted text -> BJ wrote: > > Hi Everyone, > > My skin has been like this for a long time. I have mentioned that I have > > weird antibodies between the dermis and epidermis. I think this plays a role > > in my problem. My skin has shriveled. It has large flakes, that are all over > > my body. I have tried every kind of lotion on the market. I use bath oil, > > and try not to have the water too hot. It looks a lot like fish scales. The > > lotions only serve to glue them down, so they are less noticeable. Is there > > anything that could be taken orally that might help? I do drink lots of > > water. I have had several doctors says that it looks like I am chronically > > dehydrated. Any suggestions? > > BJ-shriveling in the heat of S. Sk. > Hi BJ, > Not sure if you’ve tried this yet, but there’s this balm that my sister > ran into when going to college upstate, where there are tons of farms > and the like.  There’s this product called Bag Balm, that is used on > cow’s utters when sore (I think that’s what it was used for, but not > positive).  Sounded gross to me, but works like a charm on humans too! > It comes in a square medal can which is green, red, white and black.  I > found it in a couple of drug stores here, but am not sure if it is > widely available.  I will try to find it on the net, hold on…. Found > it!  http://www.bagbalm.com/  I sympathize with the dry skin problem.  I > used to have really bad eczema, so much that my legs were constantly > bleeding from all the cuts I caused scratching them all the time.  I > still have scars all over.  Cortizone cream helped me, applying it three > times a day my whole childhood.  If I missed an application, I felt it! >   Now, in my 20s, I only need hand cream sometimes, when the itchiness > gets bad.  Wintertime is worse, probably due to the heat drying out the > house. > HTH > -Sharon > — > Fibrofog at it’s best: > "Who knows…Maybe Ephedra is the grinded root of an asparagus tree."  :)

Response:

Ah yes! Bag Balm is good… Tiger Balm almost as good…. Leslie "SPerloff" <SPerl…@yahoo.com> wrote in message

news:3D372542.1080301@yahoo.com… – Hide quoted text — Show quoted text -> BJ wrote: > > Hi Everyone, > > My skin has been like this for a long time. I have mentioned that I have > > weird antibodies between the dermis and epidermis. I think this plays a role > > in my problem. My skin has shriveled. It has large flakes, that are all over > > my body. I have tried every kind of lotion on the market. I use bath oil, > > and try not to have the water too hot. It looks a lot like fish scales. The > > lotions only serve to glue them down, so they are less noticeable. Is there > > anything that could be taken orally that might help? I do drink lots of > > water. I have had several doctors says that it looks like I am chronically > > dehydrated. Any suggestions? > > BJ-shriveling in the heat of S. Sk. > Hi BJ, > Not sure if you’ve tried this yet, but there’s this balm that my sister > ran into when going to college upstate, where there are tons of farms > and the like.  There’s this product called Bag Balm, that is used on > cow’s utters when sore (I think that’s what it was used for, but not > positive).  Sounded gross to me, but works like a charm on humans too! > It comes in a square medal can which is green, red, white and black.  I > found it in a couple of drug stores here, but am not sure if it is > widely available.  I will try to find it on the net, hold on…. Found > it!  http://www.bagbalm.com/  I sympathize with the dry skin problem.  I > used to have really bad eczema, so much that my legs were constantly > bleeding from all the cuts I caused scratching them all the time.  I > still have scars all over.  Cortizone cream helped me, applying it three > times a day my whole childhood.  If I missed an application, I felt it! >   Now, in my 20s, I only need hand cream sometimes, when the itchiness > gets bad.  Wintertime is worse, probably due to the heat drying out the > house. > HTH > -Sharon > — > Fibrofog at it’s best: > "Who knows…Maybe Ephedra is the grinded root of an asparagus tree."  :)

Response:

Hey BJ, I was told one time that use Crisco shortning on your dry skin and it will really help.  They have "butter flavored kind too" I am not kidding here.  LOL.  honest I am not. I found the using plain old vasoline works for me most of the time too. IS that dry skin from the Canadian sun shine LOL. How is the dog doing and are you feeling alright? just think, if you use the flavored crisco, you can think  mmm mmm good "buttered popcorn"  LOL  runs an hides so she don’t slap me.LOL janers

Response:

In article <ujbrv63pu4m…@corp.supernews.com>, "BJ" <B…@sk.nojunk.ca> wrote: > Hi Everyone, > My skin has been like this for a long time. I have mentioned that I have > weird antibodies between the dermis and epidermis. I think this plays a role > in my problem. My skin has shriveled. It has large flakes, that are all over > my body. I have tried every kind of lotion on the market. I use bath oil, > and try not to have the water too hot. It looks a lot like fish scales. The > lotions only serve to glue them down, so they are less noticeable. Is there > anything that could be taken orally that might help? I do drink lots of > water. I have had several doctors says that it looks like I am chronically > dehydrated. Any suggestions?

Don’t know about oral agents, but my skin is awfully dry – my sister-in-law said my bare legs look like I’m wearing white velvet tights. (She wasn’t being mean, especially since she’s right!) When it’s very bad, I use psoriasis stuff (coal tar soap and topical solution) plus I use stuff marketed for diabetics on my skin (even before I was diabetic in fact). It works for me and is cheap.

Response:

BJ, my Mama used to take milk baths. My Daddy used vaseline and then put socks or thin gloves ( obviously depending on the area) and it worked for him. Next idea would be glycerin – there is a lotion available here called Corn Huskers and it is heavy glycerin & fabulous. Cotton pickers in Ga. used it, guitar pickers use it, and so on.  I would happily send you a bottle! Leslie Discombobulated Thoughts of an Adelpated Mind "BJ" <B…@sk.nojunk.ca> wrote in message

news:ujbrv63pu4m648@corp.supernews.com… – Hide quoted text — Show quoted text -> Hi Everyone, > My skin has been like this for a long time. I have mentioned that I have > weird antibodies between the dermis and epidermis. I think this plays a role > in my problem. My skin has shriveled. It has large flakes, that are all over > my body. I have tried every kind of lotion on the market. I use bath oil, > and try not to have the water too hot. It looks a lot like fish scales. The > lotions only serve to glue them down, so they are less noticeable. Is there > anything that could be taken orally that might help? I do drink lots of > water. I have had several doctors says that it looks like I am chronically > dehydrated. Any suggestions? > BJ-shriveling in the heat of S. Sk.

Response:

Hi Everyone, My skin has been like this for a long time. I have mentioned that I have weird antibodies between the dermis and epidermis. I think this plays a role in my problem. My skin has shriveled. It has large flakes, that are all over my body. I have tried every kind of lotion on the market. I use bath oil, and try not to have the water too hot. It looks a lot like fish scales. The lotions only serve to glue them down, so they are less noticeable. Is there anything that could be taken orally that might help? I do drink lots of water. I have had several doctors says that it looks like I am chronically dehydrated. Any suggestions? BJ-shriveling in the heat of S. Sk.

Response:

BJ wrote: > Hi Everyone, > My skin has been like this for a long time. I have mentioned that I have > weird antibodies between the dermis and epidermis. I think this plays a role > in my problem. My skin has shriveled. It has large flakes, that are all over > my body. I have tried every kind of lotion on the market. I use bath oil, > and try not to have the water too hot. It looks a lot like fish scales. The > lotions only serve to glue them down, so they are less noticeable. Is there > anything that could be taken orally that might help? I do drink lots of > water. I have had several doctors says that it looks like I am chronically > dehydrated. Any suggestions? > BJ-shriveling in the heat of S. Sk.

Hi BJ, Not sure if you’ve tried this yet, but there’s this balm that my sister ran into when going to college upstate, where there are tons of farms and the like.  There’s this product called Bag Balm, that is used on cow’s utters when sore (I think that’s what it was used for, but not positive).  Sounded gross to me, but works like a charm on humans too! It comes in a square medal can which is green, red, white and black.  I found it in a couple of drug stores here, but am not sure if it is widely available.  I will try to find it on the net, hold on…. Found it!  http://www.bagbalm.com/  I sympathize with the dry skin problem.  I used to have really bad eczema, so much that my legs were constantly bleeding from all the cuts I caused scratching them all the time.  I still have scars all over.  Cortizone cream helped me, applying it three times a day my whole childhood.  If I missed an application, I felt it!   Now, in my 20s, I only need hand cream sometimes, when the itchiness gets bad.  Wintertime is worse, probably due to the heat drying out the house. HTH -Sharon — Fibrofog at it’s best: "Who knows…Maybe Ephedra is the grinded root of an asparagus tree."  :)

Response:

On Wed, 17 Jul 2002 16:29:06 -0600, "BJ" <B…@sk.nojunk.ca> wrote: >Hi Everyone, >lotions only serve to glue them down, so they are less noticeable. Is there >anything that could be taken orally that might help? I do drink lots of >water. I have had several doctors says that it looks like I am chronically >dehydrated. Any suggestions? >BJ-shriveling in the heat of S. Sk.

have you tried shea butter?  (not orally though you can eat it if you so desire…) wish I knew – my skin looks young everywhere except my arms which have aged a lot due to weight loss – I no longer have that layer of fat under the skin that makes it smooth and young looking.  (not true everywhere else though).  I’ve tried a number of things myself with little luck. hope you get better answers than this! kc

Response:

Had to laugh Leslie. My maiden name was Kotten   something or other LOL.  Well, every where I went I was told  "you old cotten picker" .  So when I read that I laughed out loud.  OH memories are made of this.. thanks for a smile this morning janers

Response:

Well if you are tall then you have been walking in High Cotton and that is really a good thing!!!! Leslie "Janers" <rojak…@bright.net> wrote in message

news:Y5AZ8.3624$pv6.363901@cletus.bright.net… – Hide quoted text — Show quoted text -> Had to laugh Leslie. > My maiden name was Kotten   something or other LOL.  Well, every where I > went I was told  "you old cotten picker" .  So when I read that I > laughed out loud.  OH memories are made of this.. > thanks for a smile this morning > janers

Response:

Question:

Good Day everyone, I just have a quick question. Does anyone in this group have a problem with high cholesterol? I have been told I need to change my diet because mine is very high, last checked it was near 400. The only problem I have with changing my diet is I only eat one meal a day and that is boneless/skinless chicken. I do not fry the foods we eat. My lupus has been inactive for almost five years now, but I was hoping that maybe some of you are having the same problem. Thank you, Debby

Response:

Debby I too have high cholesterol.  Family tradition LOL.   well some of us. MY brother who just had open heart did NOT have high cholesterol.  can you imagine that? Back to the subject. LOL    I had tried diet and then with my eating problems had to go to high calorie foods to keep wt up.  NOW my cholesterol had shot up to 234 or more.  I was put on pravachol and it helped lower it, but then started muscular pain, so they stopped it. boom cholesterol shot right up there again. NOW I am on Lipitor and I have to say after 6 weeks on that I am back to 171 and take daily at bedtime. If you are following a diet and still found that you have high cholesterol, there are those drugs called statins, which are what the above drugs are.  They work well and once on them, you need to have blood tests to monitor the effect and also liver enzymes. Another thing for a natural help is the use of garlic.  I myself never have tried that one.  Another is the use of niacin, but that SHOULD ONLY be tried after consulting with doctor because of the side  effects of niacin too.’ Please ask the doc about all the above janers LET ME KNOW

Response:

Mine runs in the mid 300’s. Diet will lower it a bit and they tried some sort of drug years ago but I could not afford to stay on it. Problem with a no fat diet is my hair dried to the point of breaking off and my skin gets so dry it’s impossible. So I gave up. I actually gained weight on the diet. Ate no meat at all, no oil, no butter, no dairy, wayyyy- too-much oatmeal and only lowered it about 50 points. Statistically those with levels in the 300’s have only about a 4% chance of a heart attack. It’s those folks with 225- 280’s that drop like flies. Hoping I don’t have a heart attack. Bev "Michael & Debra Shiver" <mshi…@bellsouth.net> wrote in message news:Lh%O8.44591$T05.2524002@e3500-atl2.usenetserver.com… – Hide quoted text — Show quoted text -> Good Day everyone, > I just have a quick question. Does anyone in this group have a problem with > high cholesterol? I have been told I need to change my diet because mine is > very high, last checked it was near 400. The only problem I have with > changing my diet is I only eat one meal a day and that is boneless/skinless > chicken. I do not fry the foods we eat. My lupus has been inactive for > almost five years now, but I was hoping that maybe some of you are having > the same problem. > Thank you, > Debby

Response:

Hello Debby, Your hoping we have the same problem?  LOL  thanks <grin> I don’t actually much to the surprise of my doctor. (oh well, at least it’s one thing he can’t grumble at me about eh?) What kind of diet is that, one meal, just chicken?  First of all, you’re getting too much protein (and nothing else). And you’re also confusing "fat" in foods with "cholesterol". http://216.239.35.100/search?q=cache:Xzx0c6vaVVkC:www.extension.iasta… "cholesterol is found only in foods of animal origin such as meat, eggs, fish, milk, cheese and poultry" Here’s the pdf of the same file http://www.extension.iastate.edu/Publications/NCR337.pdf More reading http://www.nhlbi.nih.gov/health/public/heart/other/chdblack/empower1.htm http://www.americanheart.org/presenter.jhtml?identifier=180 http://www.labtestsonline.org/understanding/analytes/ldl/glance.html http://www.labtestsonline.org/understanding/analytes/hdl/glance.html my friend and her hubby both got dx’d with high cholesterol.  Dietary changes reduced his, not hers.  Now I don’t know if this is true or not, but her doctor said hers must be the "hereditary" type.  Not sure if they can tell by the lab test results or not, but for sure from familial history (others in the family who had similar), but then it’s difficult to sort out long-standing familial eating habits from true hereditary problems.  Anyhow I think she’s on lipitor or something like that. Maybe something to ask your doc about? Back to your diet, sure eat chicken (I haven’t been able to eat it for 8? or 9 years or so, think they’re making even the white meat fatter or something), so fish and white turkey seems to work for me and it’s oven-baked in lots of water, and pour off the water (well I make soup/stew/stock out of it with guess what?…more veggies)..but here’s the important key to it all.. a small portion of the above foods and lots and lots of veggies (preferably raw..yummy) but I suppose cooked veggies is okay too but you lose lots of the good nutrients in cooked unless you save the water from that too.. Now about eating once a day, see above…have 3-5 small meals a day, you can do it, I know you can. And ask your dr about this hereditary and one of those meds that Janers mentioned to get it lowered, then it’s up to you to keep it lowered. oh, John Charles said that rice is good too (protein source) esp Basmati, long-grain I think. Glad you’ve been in remission for quite a while, hope it stays that way. Hugs J-<off soapbox> Michael & Debra Shiver wrote: – Hide quoted text — Show quoted text -> Good Day everyone, > I just have a quick question. Does anyone in this group have a problem with > high cholesterol? I have been told I need to change my diet because mine is > very high, last checked it was near 400. The only problem I have with > changing my diet is I only eat one meal a day and that is boneless/skinless > chicken. I do not fry the foods we eat. My lupus has been inactive for > almost five years now, but I was hoping that maybe some of you are having > the same problem. > Thank you, > Debby

Response:

Question:

I prefer to eat my yogurt also!  But I do hear that it works wonders using it as Judith suggested.  I always buy it and eat it at the first hint of yeast infections. Sherry in windy (gusts) El Paso

Response:

I prefer to eat yogurt. Thanks. BJ-who will never again think of yogurt in quite the same way. "J Rogow" <JRo…@ridgenet.net> wrote in message

news:aacofv220eu@enews1.newsguy.com… – Hide quoted text — Show quoted text -> "Paula Love" <paulalo…@comcast.net> wrote in message > news:B8EF2C6E.7E03%paulalove3@comcast.net… > > Also LADIES– I have > > had  a yeast infection for over two weeks now, have tried 3 different > kinds > > of meds with no luck, first two made it worse. Yes My gyn is aware of > this > > problem hes the one giving me the meds. Anyone have this problem or > any > > suggestions? > Yogurt – use as a douche.  It neutralizes the acid or something.

Response:

"Paula Love" <paulalo…@comcast.net> wrote in message

news:B8EF2C6E.7E03%paulalove3@comcast.net… > Also LADIES– I have > had  a yeast infection for over two weeks now, have tried 3 different kinds > of meds with no luck, first two made it worse. Yes My gyn is aware of this > problem hes the one giving me the meds. Anyone have this problem or any > suggestions?

Yogurt – use as a douche.  It neutralizes the acid or something.

Response:

Yes I had to go see a new doc (kidney doc) on my birthday and am I grouchy!! Was in t-shirt and shorts yesterday am in two sweaters and sweat pants today and STILL feel cold, yes and its raining. Also found out that the 22nd the judge made a decision on my disability case but i have to wait for the damn letter to find out what he decided. They said they sent it out on Monday and was suprised it had not gotten here yet. They are re-sending another letter. OK now this doc– All he did was take some urine and do something with it and ask me a LOT of questions. He told me my urine was fine this time no protein no human skin. He said the human skin thing is normal for lupus patients. Hes not sure why but he see’s it a lot. He’s writing a letter to my GP (yes the one thats graduating in June) to explain this to her. Hes also hoping the new doc at least reads the letter so they dont panic like she did. Now what did he do for me today? Well I was only in his office for an hour and 15 mins, I was impressed. He redid my dose of Detrol, its 2mg twice a day now instead of once a day and he was concerned about the chronic uti’s I tend to have esp. with the last few making it all the way to my kidneys. SO he put me on macrobid 100mg once a day to try and off set some of it. NOW when i got home with my new meds I almost laid a gold one for him!! Macrobid is an anti-botic and every time before i have had any kind of anti botic i have a flare. Even with this I still feel OK with this doc so Im going to proceed with the medicine but keeping a close eye on things. If this is going to cause or feed a long term flare, well Im sure you guys know where I’ll tell him to put it . I know this is a bit of a rant/whine session but Im SO tired right now and dont have anyone else to gripe at!! My gyn/onocologist gave me hormones for the cycsts that set off a flare and it also causes depression so he gave me an anti depressant which is making me TIRED. All I do is sleep, gonna switch to taking it at night and going to bed early and see what that does. He gave me 4 weeks of hormones but wants to wait 6 weeks to decide if he is going to take the ovaries out. But aparently he wants me to stay on the anti depressant cause he gave me 4 refills of it! Anyone else have this problem?? I am starving but i look at food and want to throw up. Been this way for a couple days, of course i have a pill to fix it just want to know if anyone else has had this problem. Also LADIES– I have had  a yeast infection for over two weeks now, have tried 3 different kinds of meds with no luck, first two made it worse. Yes My gyn is aware of this problem hes the one giving me the meds. Anyone have this problem or any suggestions? And yes I have those stupid ‘painless’ mouth sores again. OH I’m just a MESS!!!! Well Im off to bed again, thanx for listening to my rant Paula from AL

Response:

Question:

Sun exposure?  CP "Dawn S" <kend…@samlink.com> wrote in message

news:Ch4l8.2032$GH4.81100@eagle.america.net… – Hide quoted text — Show quoted text -> I was dx with lupus in 10/00 and deal with the everyday aches and pains as > we all do.  Well, yesterday I did what I would call minimal spring time work > in my flower beds, and today I am swollen all over and stiff.  My ankles, > knees, and wrists are usually achy anyway, but today, I thought my knees > would give out walking downstairs. My fingers are swollen.  I feel like if > you stuck a pin in me I would pop. > When we have all this inflamation in our joints and muscles(thighs, upper > arms mainly) do we feel this way with extra exertion?  Before my dx I could > expect a back ache (herniated disk prob) but nothing like this!! > I will be taking it easy today – can’t do much else:.  I guess I’m just in > the middle of learning what I can and can’t.  I think I’ll say it > differently-  in the middle of learning how to prepare and recoup – Better! > Dawn

Response:

On Sun, 17 Mar 2002 11:21:58 -0600, "Dawn S" <kend…@samlink.com> wrote: >I was dx with lupus in 10/00 and deal with the everyday aches and pains as >we all do.  Well, yesterday I did what I would call minimal spring time work >in my flower beds, and today I am swollen all over and stiff.  

how long? What was the weather like? Did you wear sunblock? Were you covered? >knees, and wrists are usually achy anyway, but today, I thought my knees >would give out walking downstairs. My fingers are swollen.  I feel like if >you stuck a pin in me I would pop.

<noted and commiserated with> >When we have all this inflamation in our joints and muscles(thighs, upper >arms mainly) do we feel this way with extra exertion?  

I certainly do under most circumstances.  Some days I can do quite a lot and just be tired for an hour or so. Others I can do relatively little but enough to knock me down for a couple of days.  Spring weeding last year was a week before I went into a 5-week flare – coincidence?  pro’lly not. >Before my dx I could >expect a back ache (herniated disk prob) but nothing like this!!

ditto.  well, or so I thought.  I didn’t connect sun exposure or exertion with the fluish, nasty swelling feeling.  So it wasn’t post diagnosis that I started experiencing that – that’s just when I started realizing the connection.  And it can take a few days for an exposure or exertion to take effect too  - which makes it all the more confusing about  what you can and can’t get away with. I can’t clean my carpets or mop the kitchen.  But I can sweep and dust.  I can’t stand for hymns at church but I can go on evening bikerides with no ill effect.   >differently-  in the middle of learning how to prepare and recoup – Better! >Dawn

and relearn – our bodies are different now – we have to learn our limits as best we can and as you say, prepare for when those limits vary despite our best efforts.

Response:

What about some type of lightweight lycra type clothes.  You know, like what runners/skaters wear?  And then put sunscreen on the parts that show. Is there a way you could plan to take the rest of the day off after rowing? Dawn "Wende" <n…@cox.net> wrote in message

news:6JEq8.6057$lA6.220892@news2.east.cox.net… – Hide quoted text — Show quoted text -> It’s crewing, yes we have quite a few rivers and lakes here in Oklahoma. I > know how to row a boat, paddle a canoe, run a bass boat. This is a > competitive class I wanted to take, the only times they teach are at high > noon, There are four people to a crew, the seats are on rollers, thus the no > loose clothes. It’s the sun that does a number on me. That plus you must > make a five weekend commitment. To be honest I can’t commit to five weekends > because how should I know when I am going to feel like crap? If one person > doesn’t show up everyone else is messed up for the class. Bummed. Wende

Response:

I stay at home now, so I could rest. It is the sun that sometimes kills me. It is really weird. I had on a wide brimmed Bush hat, long sleeved shirt, sunscreen, jeans, and was only out long enough to prune my roses. That would be two bushes, that were attacking my bedroom window screen. I felt weird so I went inside. The next day I hurt so bad all over, muscles joints, everything. My face was red on my cheeks, nose, and forehead. It took several days before I could get up and move around. Scared the living crap out of me. Now every  time I go outside in the sun even with a hat and sunscreen my face instantly turns red. I haven’t had a flare quite like that, but I am afraid to push it. I thought of wearing my exercise clothes, but the sun thing scares me to death. the fact that no hats are allowed is another thing. The wind in Oklahoma is quite fierce and I don’t own a properly trained hat. Even the ones that have those ties blow off. Guess I will just stick to fishing in the late afternoons and evening, playing outside in the later day and night.Thank you for your help. Wende

Response:

On Wed, 3 Apr 2002 19:53:07 -0600, "Dawn S" <kend…@samlink.com> wrote: >What about some type of lightweight lycra type clothes.  You know, like what >runners/skaters wear?  And then put sunscreen on the parts that show. >Is there a way you could plan to take the rest of the day off after rowing? >Dawn

the only problem with clingy clothing is that it tends to let more light through.  you could of course try the RIT stuff that is supposed to block UV.  Or go for the expensive "swim suit" that Solumbra or SunGrubbies makes (full body coverage, close fitting but knit such as to block UV). still – it sounds like there are a lot more than just the sun that concerns you about taking this class.  I understand.  I’ve tried to substitute daytime activities with night (careful guys!).  I do amateur astronomy from my backyard.  it gets me outside but safely. Like you, Wende, I’ve become quite scared of the sun. Pretty much phobic.  I have nightmares about being out in it and people blocking me from getting back inside.  And I did blow it two weeks ago by working in the yard for about an hour.  Completely covered as you said – and still got really sick for 3 days.  My arms still feel sunburned even though they never were. (see separate post). i’m sorry you can’t pursue this.  It sounds like  a blast.  I’ve always wanted to do archery and solar astronomy.  i do some solar now and then but only very briefly.  try to do it on the same day I’ll go out at night ’cause the set-up/takedown of my scope is about 20 mins. (but that’s part of the fun – being AR with all the little gadgets.)

Response:

I never would have expected "more" rays to go through.  But then, I tend to stay away from clingy things, except socks and hose;) Dawn

Response:

Well, Wende, I’m new at this and am learning as I go.  This group is very helpful.  So I’ll be checking in alot.  I’m taking the day off of work tomorrow.  Been on the go for 2 weeks now and its starting to take its toll. Even writing for a short time hurts!  I took some antibiotics for a sinus infect.  and it didn’t clear up.  Called Dr. to get something else.  Besides reminding myself, I have to practice it.  Take Care of Business, before it Takes Care of Me! Dawn

Response:

Amen to that. I surely hope you are feeling much better soon. Take care of yourself. I can’t stress this enough rest, rest, rest! Yeah, I know repetitive. Feel good soon. Hope the new antibiotic works quick. I hate those sinus infections, they hurt. I have hot packed my sinus and then they drain sometimes. What a pain, literally. Rest.Wende

Response:

On Thu, 4 Apr 2002 14:46:05 -0600, "Dawn Schmidt" <cscd…@samlink.com>  wrote: >I never would have expected "more" rays to go through.  But then, I tend to >stay away from clingy things, except socks and hose;) >Dawn

consider that a loose fabric will have folds providing more surface area to reflect light off of and since it won’t "stretch" over your skin it won’t create gaps. There are certainly exceptions – sunGrubbies and the solumbra "4-way" knits are clingy and rely on their structure to reflect light. And the RIT wash in sunshield probably works as well with clingy stuff as it does with loose.   I don’t wear snug stuff either – ’cause it’s uncomfortable. The fact that I can get away with looking a bit like a bag lady for a good reason doesn’t bother me one bit…  Okay, so I’m not Angelina Jolie… who needs those tight low jeans anyway (well, I guess the guys do).

Response:

uuummm, I think I would like to wear those hip huggers. Wore them in the 60’s, had a kid, wore them in the 70’s80’s, got older! Older people should keep their clothes on!  It would be nice though! Reminiscing. wende

Response:

Here here….gee do we have to grow up…remembering the 60’s fondly! "Wende" <n…@cox.net> wrote in message

news:KK6r8.6188$GG1.221942@news2.east.cox.net… – Hide quoted text — Show quoted text -> uuummm, I think I would like to wear those hip huggers. Wore them in the > 60’s, had a kid, wore them in the 70’s80’s, got older! Older people should > keep their clothes on!  It would be nice though! Reminiscing. wende

Response:

You mean Oklahoma has enough water to row a boat around? Try talking to the instructor. Are you taking row boating or crewing? Kayaks are great fun! Bev "Wende" <n…@cox.net> wrote in message

news:rOlq8.1141$lA6.40650@news2.east.cox.net… – Hide quoted text — Show quoted text -> I am more than a little depressed today, I don’t know why sometimes this > just creeps up on me and blam! I wanted to take a rowing class. This is out > of the question. The class is in the sun, on the water, both of which I > love. They said no hats. That let me know what was next, no long or baggy > pants, short sleeved shirts, that must be tucked into your shorts. worn over > a swimsuit. No this, no that, and no class in the evening. GGGrrrrr! Must be > committed to every class, because this is a team sport. Well we all know > there are days we can hardly move. So I guess I will sit on my pity pot for > a while. Sad and Blue in cloudy cold, Oklahoma today. Wende

Response:

It’s crewing, yes we have quite a few rivers and lakes here in Oklahoma. I know how to row a boat, paddle a canoe, run a bass boat. This is a competitive class I wanted to take, the only times they teach are at high noon, There are four people to a crew, the seats are on rollers, thus the no loose clothes. It’s the sun that does a number on me. That plus you must make a five weekend commitment. To be honest I can’t commit to five weekends because how should I know when I am going to feel like crap? If one person doesn’t show up everyone else is messed up for the class. Bummed. Wende

Response:

I am more than a little depressed today, I don’t know why sometimes this just creeps up on me and blam! I wanted to take a rowing class. This is out of the question. The class is in the sun, on the water, both of which I love. They said no hats. That let me know what was next, no long or baggy pants, short sleeved shirts, that must be tucked into your shorts. worn over a swimsuit. No this, no that, and no class in the evening. GGGrrrrr! Must be committed to every class, because this is a team sport. Well we all know there are days we can hardly move. So I guess I will sit on my pity pot for a while. Sad and Blue in cloudy cold, Oklahoma today. Wende

Response:

Hi Wende, Sorry you’re feeling blue today. Did you want to learn competitve rowing or recreational? I’m not even sure what waters are there in OK, is that OK city?  Is there a lake or river nearby? If it’s recreational, can’t you find a place to rent a rowboat with a friend (hopefully you both know how to swim) and just do it your way?  Which would be with hats, baggy pants, early evening after the worst of the sun has gone or early in the morning after sunrise.  It’s fun !  And you can probably find all about techniques in a book in the library or on the ‘net.  The main trick is to not rock the boat LOL and tie up the rowboat if you stop on the shore so you don’t get lost on an island or something. Don’t give up yet. J PS If you go, wear flotation devices. – Hide quoted text — Show quoted text -Wende wrote: > I am more than a little depressed today, I don’t know why sometimes this > just creeps up on me and blam! I wanted to take a rowing class. This is out > of the question. The class is in the sun, on the water, both of which I > love. They said no hats. That let me know what was next, no long or baggy > pants, short sleeved shirts, that must be tucked into your shorts. worn over > a swimsuit. No this, no that, and no class in the evening. GGGrrrrr! Must be > committed to every class, because this is a team sport. Well we all know > there are days we can hardly move. So I guess I will sit on my pity pot for > a while. Sad and Blue in cloudy cold, Oklahoma today. Wende

Response:

"Chaos Hill" <mrsmu…@hotmail.com> wrote in message <news:u99l85hgv7lm0b@corp.supernews.com>… > Dawn, doesn’t it drive you up the wall? I never know what I can or can’t do > anymore, seems the silliest things can set me off and the simplest things > become so complicated. > Bad enough that  you feel bad – then to feel badly about feeling bad is > pouring salt on the wound….. > Hope you feel better soon! > I am having a very bad day – simply having a meltdown…… > Leslie

Dawn. Sorry you’re doing the balloon act. Leslie, hope you’re feeling better by now. For me, meltdowns involve falling apart emotionally. That really makes it hard to get stuff done!

Response:

 I am learning so much from reading this thread. I feel like this all the time. I never attributed it to lupus. Very interesting. Only how do you find the energy to even do a bit of gardening? Susanne

Response:

I tend to garden (at my house) at 10pm.  The neighbors think it’s funny! But I get an energy burst in the late evening so this is a good time for me. I also garden for my job.  I wear a good sunscreen, hat and a sun jacket. I’ve had this job for over a year and this has worked for me so far. Nicole "Susanne" <msmart…@shaw.ca> wrote in message

news:IUbo8.169699$eb.8666167@news3.calgary.shaw.ca… – Hide quoted text — Show quoted text -> I am learning so much from reading this thread. I feel like this all the > time. I never attributed it to lupus. > Very interesting. Only how do you find the energy to even do a bit of > gardening? > Susanne

Response:

I’m finding that planning your activities is very important.  If I rest a day or two before hand,things usually work out fairly good.  Since I can’t afford to knock myself down so far that I can’t get out of bed, I’ve really had to prioritize.  I don’t like it one bit!    (I’ve always been a get up and go woman- always busy with some type of project)  but now….. Oh well. My meds are really helping.  400 plaquinil, 400 celebrex, effexor 2 x’s a day.  I usually take a multivitamin but have added flaxseed oil capsules, & potassium.  My eye dr suggested the flaxseed oil because of inflammation I have behind my eye.  I also use plenty of eye drops.  Prednisone was making me a flaming *itch.  That was only at 20 mgs.! Dr. weaned off pred. and doubled plaquinil and effexor.  So far so good. I’m am getting a little nervous about this summer.  My dr and I finally made the sun/aches/headaches connection last fall.  Since I live in TX and my boys are really into sports I will be in the sun.  I started the umbrella shade last fall.  Any suggestions on good sunscreen?  I’ve been blessed with oliveish skin (American Indian) and never really needed it.  I do know that I don’t like the cocoabutter smell, but as for the spf – I don’t have a clue.  Which is best for us lupies?? Happy Easter to All Dawn "Susanne" <msmart…@shaw.ca> wrote in message

news:IUbo8.169699$eb.8666167@news3.calgary.shaw.ca… – Hide quoted text — Show quoted text -> I am learning so much from reading this thread. I feel like this all the > time. I never attributed it to lupus. > Very interesting. Only how do you find the energy to even do a bit of > gardening? > Susanne

Response:

No sun exposure.  It’s been very overcast so I figured that would be the best time to do anything outside.  Finally put 2 and 2 together on  the sun connection this past fall when my son was playing football.  Thats what cinched the lupus dx. Yesterday kind of cool and damp.  Today is warm and humid but the little bit that needs doing my son is doing.  I’m just pointing the finger today. Thanks guys for the encouragement. Dawn "CSP" <csper…@juno.com> wrote in message

news:Zu6l8.6483$9F2.5411@nwrddc02.gnilink.net… – Hide quoted text — Show quoted text -> Sun exposure?  CP > "Dawn S" <kend…@samlink.com> wrote in message > news:Ch4l8.2032$GH4.81100@eagle.america.net… > > I was dx with lupus in 10/00 and deal with the everyday aches and pains as > > we all do.  Well, yesterday I did what I would call minimal spring time > work > > in my flower beds, and today I am swollen all over and stiff.  My ankles, > > knees, and wrists are usually achy anyway, but today, I thought my knees > > would give out walking downstairs. My fingers are swollen.  I feel like if > > you stuck a pin in me I would pop. > > When we have all this inflamation in our joints and muscles(thighs, upper > > arms mainly) do we feel this way with extra exertion?  Before my dx I > could > > expect a back ache (herniated disk prob) but nothing like this!! > > I will be taking it easy today – can’t do much else:.  I guess I’m just > in > > the middle of learning what I can and can’t.  I think I’ll say it > > differently-  in the middle of learning how to prepare and recoup – > Better! > > Dawn

Response:

"elfgirl" <elfg…@argolink.net> wrote in message

news:3ca92ff6_2@corp.newsgroups.com… > Oh, you’ve got it. Dawn.  Yes, we feel like someone beat us up when we have > extra exertion.  Saturday, I did too much, Sunday, I helped my granson find > easter eggs, today, I walked about a mile, helped to put a headlight on my > tricycle and TOMORROW, I’LL BE  so sore I’ll probably stay in bed most of > day. > Yes, you have to pace yourself with your activities.  I could only go one > place a day for long time, now I can do a little more, but not much.  I have > a copy of how to pace yourself and arrange the things you do in a way that > is not taxing your energy. Would you like a copy sent to you. It’s not long. > Mabe I’ll give it to whole group. Yes, I’ll do that.

PLEASE!!! – Hide quoted text — Show quoted text -> Keep posting and reading the other posts here and you will find much help to > your questions. > Love and prayers to you > elfgirl > "Dawn S" <kend…@samlink.com> wrote in message > news:Ch4l8.2032$GH4.81100@eagle.america.net… > > I was dx with lupus in 10/00 and deal with the everyday aches and pains as > > we all do.  Well, yesterday I did what I would call minimal spring time > work > > in my flower beds, and today I am swollen all over and stiff.  My ankles, > > knees, and wrists are usually achy anyway, but today, I thought my knees > > would give out walking downstairs. My fingers are swollen.  I feel like if > > you stuck a pin in me I would pop. > > When we have all this inflamation in our joints and muscles(thighs, upper > > arms mainly) do we feel this way with extra exertion?  Before my dx I > could > > expect a back ache (herniated disk prob) but nothing like this!! > > I will be taking it easy today – can’t do much else:.  I guess I’m just > in > > the middle of learning what I can and can’t.  I think I’ll say it > > differently-  in the middle of learning how to prepare and recoup – > Better! > > Dawn > —–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– > http://www.newsfeeds.com – The #1 Newsgroup Service in the World! > —–==  Over 80,000 Newsgroups – 16 Different Servers! =—–

Response:

Oh, you’ve got it. Dawn.  Yes, we feel like someone beat us up when we have extra exertion.  Saturday, I did too much, Sunday, I helped my granson find easter eggs, today, I walked about a mile, helped to put a headlight on my tricycle and TOMORROW, I’LL BE  so sore I’ll probably stay in bed most of day. Yes, you have to pace yourself with your activities.  I could only go one place a day for long time, now I can do a little more, but not much.  I have a copy of how to pace yourself and arrange the things you do in a way that is not taxing your energy. Would you like a copy sent to you. It’s not long. Mabe I’ll give it to whole group. Yes, I’ll do that. Keep posting and reading the other posts here and you will find much help to your questions. Love and prayers to you elfgirl "Dawn S" <kend…@samlink.com> wrote in message

news:Ch4l8.2032$GH4.81100@eagle.america.net… – Hide quoted text — Show quoted text -> I was dx with lupus in 10/00 and deal with the everyday aches and pains as > we all do.  Well, yesterday I did what I would call minimal spring time work > in my flower beds, and today I am swollen all over and stiff.  My ankles, > knees, and wrists are usually achy anyway, but today, I thought my knees > would give out walking downstairs. My fingers are swollen.  I feel like if > you stuck a pin in me I would pop. > When we have all this inflamation in our joints and muscles(thighs, upper > arms mainly) do we feel this way with extra exertion?  Before my dx I could > expect a back ache (herniated disk prob) but nothing like this!! > I will be taking it easy today – can’t do much else:.  I guess I’m just in > the middle of learning what I can and can’t.  I think I’ll say it > differently-  in the middle of learning how to prepare and recoup – Better! > Dawn

—–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– http://www.newsfeeds.com – The #1 Newsgroup Service in the World! —–==  Over 80,000 Newsgroups – 16 Different Servers! =—–

Response:

Even when it’s overcast, UV rays still come thru.  You really should wear sunscreen at all times! I think we all feel your pain!  I never know what I can do and what I can’t. Nicole "Dawn S" <kend…@samlink.com> wrote in message

news:M77l8.2083$GH4.82218@eagle.america.net… – Hide quoted text — Show quoted text -> No sun exposure.  It’s been very overcast so I figured that would be the > best time to do anything outside.  Finally put 2 and 2 together on  the sun > connection this past fall when my son was playing football.  Thats what > cinched the lupus dx. > Yesterday kind of cool and damp.  Today is warm and humid but the little bit > that needs doing my son is doing.  I’m just pointing the finger today. > Thanks guys for the encouragement. > Dawn > "CSP" <csper…@juno.com> wrote in message > news:Zu6l8.6483$9F2.5411@nwrddc02.gnilink.net… > > Sun exposure?  CP > > "Dawn S" <kend…@samlink.com> wrote in message > > news:Ch4l8.2032$GH4.81100@eagle.america.net… > > > I was dx with lupus in 10/00 and deal with the everyday aches and pains > as > > > we all do.  Well, yesterday I did what I would call minimal spring time > > work > > > in my flower beds, and today I am swollen all over and stiff.  My > ankles, > > > knees, and wrists are usually achy anyway, but today, I thought my knees > > > would give out walking downstairs. My fingers are swollen.  I feel like > if > > > you stuck a pin in me I would pop. > > > When we have all this inflamation in our joints and muscles(thighs, > upper > > > arms mainly) do we feel this way with extra exertion?  Before my dx I > > could > > > expect a back ache (herniated disk prob) but nothing like this!! > > > I will be taking it easy today – can’t do much else:.  I guess I’m just > > in > > > the middle of learning what I can and can’t.  I think I’ll say it > > > differently-  in the middle of learning how to prepare and recoup – > > Better! > > > Dawn

Response:

I was dx with lupus in 10/00 and deal with the everyday aches and pains as we all do.  Well, yesterday I did what I would call minimal spring time work in my flower beds, and today I am swollen all over and stiff.  My ankles, knees, and wrists are usually achy anyway, but today, I thought my knees would give out walking downstairs. My fingers are swollen.  I feel like if you stuck a pin in me I would pop. When we have all this inflamation in our joints and muscles(thighs, upper arms mainly) do we feel this way with extra exertion?  Before my dx I could expect a back ache (herniated disk prob) but nothing like this!! I will be taking it easy today – can’t do much else:.  I guess I’m just in the middle of learning what I can and can’t.  I think I’ll say it differently-  in the middle of learning how to prepare and recoup – Better! Dawn

Response:

Dawn, doesn’t it drive you up the wall? I never know what I can or can’t do anymore, seems the silliest things can set me off and the simplest things become so complicated. Bad enough that  you feel bad – then to feel badly about feeling bad is pouring salt on the wound….. Hope you feel better soon! I am having a very bad day – simply having a meltdown…… Leslie "Dawn S" <kend…@samlink.com> wrote in message

news:Ch4l8.2032$GH4.81100@eagle.america.net… – Hide quoted text — Show quoted text -> I was dx with lupus in 10/00 and deal with the everyday aches and pains as > we all do.  Well, yesterday I did what I would call minimal spring time work > in my flower beds, and today I am swollen all over and stiff.  My ankles, > knees, and wrists are usually achy anyway, but today, I thought my knees > would give out walking downstairs. My fingers are swollen.  I feel like if > you stuck a pin in me I would pop. > When we have all this inflamation in our joints and muscles(thighs, upper > arms mainly) do we feel this way with extra exertion?  Before my dx I could > expect a back ache (herniated disk prob) but nothing like this!! > I will be taking it easy today – can’t do much else:.  I guess I’m just in > the middle of learning what I can and can’t.  I think I’ll say it > differently-  in the middle of learning how to prepare and recoup – Better! > Dawn

Response:

Question:

Our Recident Psycho wrote:8a6b9170861ae6f092ecfdef2bfa7…@remailer.segfault.net>… > Hello Jweb. This is your dead lupus addled mother writing to you. I died > of lupus so many years ago but that pain was nothing like the pain > I feel now burning in Hell. Im in hell because I had sex with big black > men in public bathrooms while your impotent father jacked his hot spicy > boner at home. I dont even know who your real father is but it must > have been one of those black men who did me in the butt.

Yeah, this has gotta be a Merkle creation. Who else thinks that you get pregnant from anal sex?

Response:

In article <5d47aa5.0203121848.264a5…@posting.google.com>, hennessyan…@yahoo.com (Teddy) wrote: > Our Recident Psycho

wrote:8a6b9170861ae6f092ecfdef2bfa7…@remailer.segfault.net>… > > Hello Jweb. This is your dead lupus addled mother writing to you. I died > > of lupus so many years ago but that pain was nothing like the pain > > I feel now burning in Hell. Im in hell because I had sex with big black > > men in public bathrooms while your impotent father jacked his hot spicy > > boner at home. I dont even know who your real father is but it must > > have been one of those black men who did me in the butt. > Yeah, this has gotta be a Merkle creation. Who else thinks that you > get pregnant from anal sex?

Well, that would go a long way in explaining why he’s such a shithead…

Response:

Hello Jweb. This is your dead lupus addled mother writing to you. I died of lupus so many years ago but that pain was nothing like the pain I feel now burning in Hell. Im in hell because I had sex with big black men in public bathrooms while your impotent father jacked his hot spicy boner at home. I dont even know who your real father is but it must have been one of those black men who did me in the butt. Why did you watch tv the night I died? Did you check your skin for lupus lately?

Response:

Hello Jweb. This is your dead lupus addled mother writing to you. I died of lupus so many years ago but that pain was nothing like the pain I feel now burning in Hell. Im in hell because I had sex with big black men in public bathrooms while your impotent father jacked his hot spicy boner at home. I dont even know who your real father is but it must have been one of those black men who did me in the butt. Why did you watch tv the night I died? Did you check your skin for lupus lately? Your impotent father died of a heart attack because he caught me in bed with five black men and a midget. but at least both of us have sex unlike the pathetic almost virign you are

Response:

On Tue, 12 Mar 2002 21:06:03 +0100 (CET), Jwebs Dead Lupus Mom – Hide quoted text — Show quoted text -<d…@noreply.com> wrote: >Xref: news.demon.co.uk rec.music.beatles:496099 alt.support.lupus:36062 alt.music.pink-floyd:377838 >Path: news.demon.co.uk!demon!dispose.news.demon.net!demon!news2.euro.net!newspeer .clara.net!news.clara.net!colt.net!deine.net!hamster.europeonline.net!newsf eed.europeonline.net!nslave.kpnqwest.net!nloc1.kpnqwest.net!nloc.kpnqwest.n et!nmaster.kpnqwest.net!newsfeed.Austria.EU.net!newsfeed.kpnqwest.at!anon.l cs.mit.edu!nym.alias.net!mail2news-x3!mail2news-x2!mail2news >Sender: Anonymous Coredump <mixmas…@remailer.segfault.net> >Comments: This message did not originate from the Sender address above. >    It was remailed automatically by anonymizing remailer software. >    Please report problems or inappropriate use to the >    remailer administrator at <joc…@segfault.net>. >    http://remailer.segfault.net/mixmaster/ >Subject: Lupus Hurts But NOt As much as Hell Does >From: Jwebs Dead Lupus Mom <d…@noreply.com> >Newsgroups: rec.music.beatles,alt.support.lupus,alt.music.pink-floyd >Message-ID: <160b55b0d1899122035e3587c6cef…@remailer.segfault.net> >Date: Tue, 12 Mar 2002 21:06:03 +0100 (CET) >Mail-To-News-Contact: postmas…@nym.alias.net >Organization: mail2n…@nym.alias.net >Lines: 7

What class. What style. Lizz ‘What a wanker’ Holmans

Response:

Question:

On Thu,  6 Dec 2001 04:44:05 +0100 (CET), Lizz Holmans <di…@jackalope.demon.co.uk> wrote:

As I know folks with lupus, your forgery makes even less sense than they usually do. Check the headers, folks. L:izz ‘Not that that’s saying a lot’ Holmans – Hide quoted text — Show quoted text ->I bet your dead mother looks like a real freak Jweb now that she died from lupus. Did it make her skin all weak and scaly? Oh well, I bet you still fantasize about her dead rotted pussy and asshole. Did the bitchs tits rot off her dead cunt corpse yet? >Lizz ‘I bet lupus made jwebs mom look like a freak’ Holmans

Response:

I bet your dead mother looks like a real freak Jweb now that she died from lupus. Did it make her skin all weak and scaly? Oh well, I bet you still fantasize about her dead rotted pussy and asshole. Did the bitchs tits rot off her dead cunt corpse yet? Lizz ‘I bet lupus made jwebs mom look like a freak’ Holmans

Response:

Lizz Holmans wrote: > I bet  

Don’t worry, dear. I know your post was forged by Marek Girsch from New York. To all the folks in alt.support.lupus- my mom died of it, and there is a person in the Beatles newsgroup that wants to remind me of this. Sorry he had to invade your group yet again. — -John W.

Response:

His name is Marek Girsch.  He is a monster. – Hide quoted text — Show quoted text -jweb <d…@noreply.com> wrote in message news:3C0EEC41.2A35@noreply.com… > Lizz Holmans wrote: > > I bet > Don’t worry, dear. I know your post was forged by Marek Girsch from New > York. > To all the folks in alt.support.lupus- my mom died of it, and there is a > person in the Beatles newsgroup that wants to remind me of this. > Sorry he had to invade your group yet again. > — > -John W.

Response: