Question:
Hi Maggie! I’m going to ask my nephrologist to retest me when I see him in two weeks. He has been my all-around doctor, even though he is not my PCP. He ordered the first test. – Hide quoted text — Show quoted text -JD…@webtv.net wrote in message <news:21668-3FF65716-148@storefull-3214.bay.webtv.net>… > Hi Wesley! > Will they retest your adrenals before taking you off the pred > completely? I’m gonna research the adrenal gland as soon as I can focus > a little better. Yesterday did me in. I find it all very weird. I > understand what Shelagh (Thank you Shelagh!:)) means now. I’m just > weirded out on my own though. : ) > I know another test isn’t something you want more of, but it’s worrisome > to think they’d stop the pred without making sure the adrenals are > working again. > Hugs, > Maggie
Response:
Hi Nettie, I have been on prednisone since 1985. It is going to be tough to get off now, especially since I have developed a lupus-like disease and adrenal insufficiency. What I need to do is get my doctors talking to each other. You may know how hard that is. My nephrologist, endocrinologist, and rheumy want me to stay on prednisone, but with this new transplant medication protocol, the transplant surgeons are hot to get me off it altogether. They claim that it messes things up as far as tracking lab work, rejection, etc., and it makes it harder to adjust medications. So you see, they have a point also. I just feel so much better on at least a small dose. – Hide quoted text — Show quoted text -"Mercy" <pickadillyNOS…@charter.net> wrote in message <news:vvd15i26ajm5a@corp.supernews.com>… > Wesley, I feel bad for you. Sometimes we just cannot go off Prednisone > ever. If I drop below 3mg. I go into such a bad flare and it sets so many > bad things into motion. I had to go way up to come back down. Perhaps your > drs. should start listening to you because you know your body best. 5mg. is > a reasonable dose and if that is where you are comfortable, then why not be > there? Sounds riduculous on the part of your drs….. I have been on > Prednisone since 1997…. there is no turning back for me; I don’t think > ever in this life time. Perhaps you may need to get assertive. I know I > have become very assertive with my drs. and they now listen to me instead of > trying to lead me down the wrong paths and then I am only sorry for it later > when they say, oh yes, you were right…. think about it. 2mg. is not going > to make a huge difference. I’m in your court, especially on this one. > Nettie :>))
Response:
Wesley wrote: > I have been on prednisone since 1985. It is going to be tough to get > off now, especially since I have developed a lupus-like disease and > adrenal insufficiency. What I need to do is get my doctors talking to > each other. You may know how hard that is. My nephrologist, > endocrinologist, and rheumy want me to stay on prednisone, but with > this new transplant medication protocol, the transplant surgeons are > hot to get me off it altogether. They claim that it messes things up > as far as tracking lab work, rejection, etc., and it makes it harder > to adjust medications. So you see, they have a point also. I just > feel so much better on at least a small dose.
A very real concern, because it took so long to find you a kidney and you’re had a lifetime of surgeries. Each one, as we age, get more difficult to recover from and I sure hope you can stay on some pred to help with the symptoms. Hugs Wes J
Response:
Hi Nettie, I am going to start the shots next week if all goes well. I got myself psyched to actually do it & discovered I had 1/3cc syringes. That’s an ouchy
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