Question:
J <StrangeAdva…@example.com> wrote in message
news:3E47E4BD.EADE2259@execulink.com… > Go away Tom,
I am going to ask you nicely to stay away from me .. Stay away from me .. please . > Lupus and associated disorders are way too complex for you.
I have more of a medical education in regards to this disease than you. YOU .. ‘have’ it .. and THAT is YOUR ‘claim to fame’ in regards to this disease. > and you could kill someone with your ideas.
Explain .. or shut up .. > And the Canadians here could sue you.
They could could they .. Let’s have a go then .. eh .. Keep your threats to yourself .. I may take umbridge .. and THAT you wouldn’t like .. Who loves ya. Tom — Jesus Was A Vegetarian! http://jesuswasavegetarian.7h.com Man Is A Herbivore! http://pages.ivillage.com/ironjustice/manisaherbivore
Response:
"Sherry" <hurst…@NoSpam.invalid> wrote in message
news:sER1a.501$5H6.42270880@newssvr21.news.prodigy.com… > Or to brush your hair, use a blow dryer, curling iron, or do anything that > resembles putting on your face and looking like you took some time to look > "nice"!
Ha! I didn’t even think of those things… I am such a slob..gave up primping and preening years ago. BTW I blow dry my hair with my head *down.* It adds fullness to the hair, plus you don’t have to hold your arms up. mary – Hide quoted text — Show quoted text -> Sherry > "Mary T. Rawle" <stin…@earthlink.net> wrote in message > news:9oQ1a.9259$1q2.912970@newsread2.prod.itd.earthlink.net… > > Me too. Well, myalgia. I am diagnosed with "arthralgias and myalgias." > > I have trouble most noticably holding my arms up, such as holding my > > binoculars to watch the birds, or to play guitar or wash the dishes. > > Mary > > "Grace Casselman" <gr…@casselman.net> wrote in message > > news:3E4709EC.4A1B033F@casselman.net… > > > So, apparently my biggest Lupus issue is muscle inflammation/weakness, > > > also called Myositis. > > > Who else out there has this? > > > Here are a couple good URLs on it: > > > http://www.orthop.washington.edu/arthritis/types/myositis/02 > > > http://www.myositis.org/ > > > Grace.
Response:
ironjustice wrote:
<snipped> What Content is Appropriate for ASL? ASL’s purpose stated above should imply content. However, the following are the basic rules of Netiquette that members are asked to follow. No Flaming: i.e., Please do not harm the group or others with harsh criticism. No Peddling: Groups that support persons with chronic illnesses are often the target of "snake oil" salespersons. Though the members of the group do not mind suggestions for alternative treatments or supplements, posting advertisements for products of any kind is generally frowned upon. Guide to Live by on Usenet including This Group: If you earn a commission in money or in kind by advocating an item, do so elsewhere. Use appropriate Notations: Off-topic posts are welcome on ASL with the exceptions of advocating religious groups, political ideals and similar "flame-prone" topics. If a post is Off-Topic, that is not directly related to SLE, please indicate this by putting the proper notation in the Subject line. Examples: OT: My Dog is Sick. or OT: I’m Getting Married. This is not a hard and fast rule as threads often degenerate into humorous parleys or other OT discussions. If a post is OT but contains profanity or is a rant, than please try to remember to indicate such on the subject line. Again, this is not carved in stone. The group is dynamic and friendly and generally takes little issue, if any, with OT or Rant posts. These are, after all, parts of our lives and Lupus affects our lives in every way. Text Only: No pictures, video clips, music, etc. Try not to have a file attached to your signature and do not use "stationery". Stationery may look pretty but many of us just get dozens of little pictures in our attachments directory or other artifacts of little or no use. Try not to post in HTML, even if you also post in plain text (you may need to alter your news-posting software’s settings.) If you would like to share pictures or other large documents with others in the group, please post only a website address where the file can be viewed or ask individuals to contact you for the download in private email. To Top Who can be a part of this group? You can! This is Usenet – so anyone who wants to be here, can be here. Our members consist of lupus patients (both SLE and DLE) as well as patients still in the throes of what you could call "diagnostic limbo". Other members of ASL include support persons who have family members, friends or co-workers that have some form of the disease. Still other members are folks who have similar diseases but not precisely the same as SLE or DLE and yet find that their symptoms are sufficiently similar to get information from this group. Physicians or Researchers are encouraged to participate in the group as long as they are not advocating their practice or a specific product. Advocating (for profit) in general is considered bad netiquette where support newsgroups are concerned. ASL is no different in this respect. As this is an open (unmoderated) Usenet group, people will sometimes post material which you may find abusive, upsetting, indecent, offensive, etc. Please ignore it. Don’t reply to such postings as it only encourages those who post them and may subject you to personal email that is equally offensive. These posts might be cross-posted, that is posted to several unrelated groups, either by accident or deliberately
Response:
That describes me as well. And as someone else said – it is roving. It is constant in my knees and up my thighs. Sometimes as weird as it sounds, my buttocks ache. Sometime my upper arms, hip, shoulders, feet. I have problems sleeping because I ache worse lying in bed. Now this darn eye thing. I did call and the eye doctor wanted to see me tomorrow morning. (He was in surgery all day today, but I at least got a call back from his office!) On Mon, 10 Feb 2003 04:07:43 GMT, "Sherry" <hurst…@NoSpam.invalid> wrote: – Hide quoted text — Show quoted text ->I guess you can add me to the list. I just know that I hurt, and it seems >to be from the top of my head to the tips of my toes, my joints, my muscles >and everything in between. Does that make any sense? >Sherry
Response:
and adds a head rush from hanging your head down? "Mary T. Rawle" <stin…@earthlink.net> wrote in message news:D5W1a.9741$tO2.942945@newsread1.prod.itd.earthlink.net… – Hide quoted text — Show quoted text -> "Sherry" <hurst…@NoSpam.invalid> wrote in message > news:sER1a.501$5H6.42270880@newssvr21.news.prodigy.com… > > Or to brush your hair, use a blow dryer, curling iron, or do anything that > > resembles putting on your face and looking like you took some time to look > > "nice"! > Ha! I didn’t even think of those things… I am such a slob..gave up > primping and preening years ago. BTW I blow dry my hair with my head > *down.* It adds fullness to the hair, plus you don’t have to hold your arms > up. > mary > > Sherry > > "Mary T. Rawle" <stin…@earthlink.net> wrote in message > > news:9oQ1a.9259$1q2.912970@newsread2.prod.itd.earthlink.net… > > > Me too. Well, myalgia. I am diagnosed with "arthralgias and myalgias." > > > I have trouble most noticably holding my arms up, such as holding my > > > binoculars to watch the birds, or to play guitar or wash the dishes. > > > Mary > > > "Grace Casselman" <gr…@casselman.net> wrote in message > > > news:3E4709EC.4A1B033F@casselman.net… > > > > So, apparently my biggest Lupus issue is muscle
inflammation/weakness, – Hide quoted text — Show quoted text -> > > > also called Myositis. > > > > Who else out there has this? > > > > Here are a couple good URLs on it: > > > > http://www.orthop.washington.edu/arthritis/types/myositis/02 > > > > http://www.myositis.org/ > > > > Grace.
Response:
Let us know how the appt goes. Suzie "Lissa Kearney" <Sweat…@yahoo.com> wrote in message
news:aucg4vkourt6svmap3h8rtioi4pto0676t@4ax.com… – Hide quoted text — Show quoted text -> That describes me as well. And as someone else said – it is roving. > It is constant in my knees and up my thighs. Sometimes as weird as > it sounds, my buttocks ache. Sometime my upper arms, hip, shoulders, > feet. I have problems sleeping because I ache worse lying in bed. > Now this darn eye thing. I did call and the eye doctor wanted to see > me tomorrow morning. (He was in surgery all day today, but I at least > got a call back from his office!) > On Mon, 10 Feb 2003 04:07:43 GMT, "Sherry" <hurst…@NoSpam.invalid> > wrote: > >I guess you can add me to the list. I just know that I hurt, and it seems > >to be from the top of my head to the tips of my toes, my joints, my muscles > >and everything in between. Does that make any sense? > >Sherry
Response:
Mary T. Rawle wrote: > Me too. Well, myalgia. I am diagnosed with "arthralgias and myalgias." > I have trouble most noticably holding my arms up, such as holding my > binoculars to watch the birds, or to play guitar or wash the dishes. > Mary
<snip> I was dxed with the same "arthralgias, neuralgias and myalgias." All I can say is ouch! -Sharon — ~Joy~ If the sight of the blue skies fills you with joy, if the simple things of nature have a messsage that you understand, rejoice, because your soul is alive. -Eleonora Duse
Response:
Mary T. Rawle wrote: > "Sherry" <hurst…@NoSpam.invalid> wrote in message > news:sER1a.501$5H6.42270880@newssvr21.news.prodigy.com… >>Or to brush your hair, use a blow dryer, curling iron, or do anything that >>resembles putting on your face and looking like you took some time to look >>"nice"! > Ha! I didn’t even think of those things… I am such a slob..gave up > primping and preening years ago. BTW I blow dry my hair with my head > *down.* It adds fullness to the hair, plus you don’t have to hold your arms > up. > mary
<snip> What’s this ‘blow dry’ you speak of? 
I just wash, comb with fingers, tye back and go! Not much to look at, but it works for me! -Sharon — ~Joy~ If the sight of the blue skies fills you with joy, if the simple things of nature have a messsage that you understand, rejoice, because your soul is alive. -Eleonora Duse
Response:
J <StrangeAdva…@example.com> wrote in message
news:3E480364.874566FB@execulink.com… > > You have something to say about connective tissue disorder .. or myositis > > ..? > > Didn’t think so .. > > You have nothing but personal OPINIONS .. and on a medical newsgroup those > > don’t account for diddley-squat .. let alone the fact it is considered to be > > BAD MANNERS .. but don’t let that stop ya .. > No Flaming: i.e., Please do not harm the group or others with harsh
criticism. So I suppose one could .. discern .. you have just broken a rule ..? > or is a rant, than please try to remember > to indicate such on the subject line
Another rule broken .. So .. GET WITH THE PROGRAM !! Who loves ya. Tom — Jesus Was A Vegetarian! http://jesuswasavegetarian.7h.com Man Is A Herbivore! http://pages.ivillage.com/ironjustice/manisaherbivore
Response:
ironjustice wrote:
<snipped>What Content is Appropriate for ASL? ASL’s purpose stated above should imply content. However, the following are the basic rules of Netiquette that members are asked to follow. No Flaming: i.e., Please do not harm the group or others with harsh criticism. No Peddling: Groups that support persons with chronic illnesses are often the target of "snake oil" salespersons. Though the members of the group do not mind suggestions for alternative treatments or supplements, posting advertisements for products of any kind is generally frowned upon. Guide to Live by on Usenet including This Group: If you earn a commission in money or in kind by advocating an item, do so elsewhere. Use appropriate Notations: Off-topic posts are welcome on ASL with the exceptions of advocating religious groups, political ideals and similar "flame-prone" topics. If a post is Off-Topic, that is not directly related to SLE, please indicate this by putting the proper notation in the Subject line. Examples: OT: My Dog is Sick. or OT: I’m Getting Married. This is not a hard and fast rule as threads often degenerate into humorous parleys or other OT discussions. If a post is OT but contains profanity or is a rant, than please try to remember to indicate such on the subject line. Again, this is not carved in stone. The group is dynamic and friendly and generally takes little issue, if any, with OT or Rant posts. These are, after all, parts of our lives and Lupus affects our lives in every way. Text Only: No pictures, video clips, music, etc. Try not to have a file attached to your signature and do not use "stationery". Stationery may look pretty but many of us just get dozens of little pictures in our attachments directory or other artifacts of little or no use. Try not to post in HTML, even if you also post in plain text (you may need to alter your news-posting software’s settings.) If you would like to share pictures or other large documents with others in the group, please post only a website address where the file can be viewed or ask individuals to contact you for the download in private email. To Top Who can be a part of this group? You can! This is Usenet – so anyone who wants to be here, can be here. Our members consist of lupus patients (both SLE and DLE) as well as patients still in the throes of what you could call "diagnostic limbo". Other members of ASL include support persons who have family members, friends or co-workers that have some form of the disease. Still other members are folks who have similar diseases but not precisely the same as SLE or DLE and yet find that their symptoms are sufficiently similar to get information from this group. Physicians or Researchers are encouraged to participate in the group as long as they are not advocating their practice or a specific product. Advocating (for profit) in general is considered bad netiquette where support newsgroups are concerned. ASL is no different in this respect. As this is an open (unmoderated) Usenet group, people will sometimes post material which you may find abusive, upsetting, indecent, offensive, etc. Please ignore it. Don’t reply to such postings as it only encourages those who post them and may subject you to personal email that is equally offensive. These posts might be cross-posted, that is posted to several unrelated groups, either by accident or deliberately http://www.telus.net/aup.html Acceptable Use Policy Introduction TELUS Consumer and Small Business Internet Services (for the purposes of this document referred to as "TELUS") is committed to being the best possible network citizen. To assist us in protecting the usefulness and enjoyment of the Internet for our members and for other users, we require that you comply with the terms of this document, which outlines our policies on acceptable use of our services. When using your TELUS Internet access service or any chat rooms, message boards, news groups, software libraries, personal web pages or any other message or communication services that may be available to you on or through TELUS Internet systems (collectively, the "Communication Services"), you are prohibited from engaging in certain activities which include, but are not limited to, those described below. Such prohibited activities may, at the sole discretion of TELUS, be grounds for termination of any Communication Services (including your TELUS Internet access service), for the application of additional service charges, or for the involvement of law enforcement agencies. The terms of this Policy may change at any time and without prior warning. 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Response:
ironjustice wrote:
<snipped> ASL’s purpose stated above should imply content. However, the following are the basic rules of Netiquette that members are asked to follow. No Flaming: i.e., Please do not harm the group or others with harsh criticism. No Peddling: Groups that support persons with chronic illnesses are often the target of "snake oil" salespersons. Though the members of the group do not mind suggestions for alternative treatments or supplements, posting advertisements for products of any kind is generally frowned upon. Guide to Live by on Usenet including This Group: If you earn a commission in money or in kind by advocating an item, do so elsewhere. Use appropriate Notations: Off-topic posts are welcome on ASL with the exceptions of advocating religious groups, political ideals and similar "flame-prone" topics. If a post is Off-Topic, that is not directly related to SLE, please indicate this by putting the proper notation in the Subject line. Examples: OT: My Dog is Sick. or OT: I’m Getting Married. This is not a hard and fast rule as threads often degenerate into humorous parleys or other OT discussions. If a post is OT but contains profanity or is a rant, than please try to remember to indicate such on the subject line. Again, this is not carved in stone. The group is dynamic and friendly and generally takes little issue, if any, with OT or Rant posts. These are, after all, parts of our lives and Lupus affects our lives in every way. Text Only: No pictures, video clips, music, etc. Try not to have a file attached to your signature and do not use "stationery". Stationery may look pretty but many of us just get dozens of little pictures in our attachments directory or other artifacts of little or no use. Try not to post in HTML, even if you also post in plain text (you may need to alter your news-posting software’s settings.) If you would like to share pictures or other large documents with others in the group, please post only a website address where the file can be viewed or ask individuals to contact you for the download in private email. To Top Who can be a part of this group? You can! This is Usenet – so anyone who wants to be here, can be here. Our members consist of lupus patients (both SLE and DLE) as well as patients still in the throes of what you could call "diagnostic limbo". Other members of ASL include support persons who have family members, friends or co-workers that have some form of the disease. Still other members are folks who have similar diseases but not precisely the same as SLE or DLE and yet find that their symptoms are sufficiently similar to get information from this group. Physicians or Researchers are encouraged to participate in the group as long as they are not advocating their practice or a specific product. Advocating (for profit) in general is considered bad netiquette where support newsgroups are concerned. ASL is no different in this respect. As this is an open (unmoderated) Usenet group, people will sometimes post material which you may find abusive, upsetting, indecent, offensive, etc. Please ignore it. Don’t reply to such postings as it only encourages those who post them and may subject you to personal email that is equally offensive. These posts might be cross-posted, that is posted to several unrelated groups, either by accident or deliberately. For more on this topic, KC highly recommendsDianne’s Patented Magic Flame
Response:
Grace Casselman <gr…@casselman.net> wrote in message
news:3E4709EC.4A1B033F@casselman.net… > So, apparently my biggest Lupus issue is muscle inflammation/weakness, > also called Myositis. > Who else out there has this? > Here are a couple good URLs on it: > http://www.orthop.washington.edu/arthritis/types/myositis/02 > http://www.myositis.org/ > Grace.
Iron loading has been SHOWN in those with muscle pain. Increased iron load leads to higher than normal levels of rust / oxidation / oxidative stress. <<snip>> Myoglobin heme iron could potentially serve as a Fenton reagent for the intracellular generation of hydroxyl radicals, which are responsible for the oxidation of the porphyrinogens <<snip>> Am J Pathol 1998 Sep;153(3):703-8 Porphyrin loading of lipofuscin granules in inflamed striated muscle. Kiefer CR, McKenney JB, Trainor JF, Lambrecht RW, Bonkovsky HL, Lifshitz LM, Valeri CR, Snyder LM Department of Hospital Laboratories/Clinical Pathology, University of Massachusetts Medical Center, Worcester, USA. charles.kie…@banyan.ummed.edu To further the understanding of oxidative effects on inflammation injury to muscle fiber structure, fluorescent imaging analysis of human striated muscle tissues from a variety of inflammatory or postinflammatory etiologies was undertaken in a search for accumulated coproporphyrin, a red autofluorescent byproduct of heme biosynthesis that would theoretically be formed under oxidative insult. Using a differential excitation method of in situ analysis, porphyrin autofluorescence was detected in intact fibers within the context of the yellow autofluorescent subsarcolemmal lipofuscin granules. Relative measurements of porphyrin concentration in the granules from different patients indicated that the acute/subacute inflammatory specimens grouped significantly higher than the more chronic inflammatory and nonpathological specimens. Myoglobin was also found to be associated with the granules. Myoglobin heme iron could potentially serve as a Fenton reagent for the intracellular generation of hydroxyl radicals, which are responsible for the oxidation of the porphyrinogens. High-performance liquid chromatography analysis of extracted dense particles revealed coproporphyrin as the sole porphyrin present. The observation of coproporphyrin within lipofuscin granules, previously unreported, suggests that lipofuscin accumulation in striated muscle may begin under conditions of acute oxidative stress, as marked by the oxidation of extramitochondrial porphyrinogens that are immediately incorporated into the granules. PMID: 9736020, UI: 98405427 ————————————————————————— – —- <<snip>> The results disclosed that there was a higher deposition of iron in rheumatoid muscle as compared with normals. <<snip>> Scand J Rheumatol 1976;5(4):205-8 A comparison of the content of iron in normal and rheumatoid striated muscle. Goldie IF, Bjonness T, Tiselius P, Plantin LO, Sato T An investigation has been carried out on the presence of iron in striated muscle from normal individuals and from patients with rheumatoid disease. The methods used for the estimation of iron required a neutron activation analysis of total iron and extraction of hemoglobin in cyanide buffer. The results disclosed that there was a higher deposition of iron in rheumatoid muscle as compared with normals. Iron has a destructive effect on lysosomes and mast cells, the effect of which is an inflammatory reaction which may in part cause "metabolic myopathy" in rheumatoid disease. It is tentatively suggested that this "metabolic myopathy" may cause muscular pain and weakness in rheumatoid disease. PMID: 1006210, UI: 77080814 _________________________________________________________________ Who loves ya. Tom — Jesus Was A Vegetarian! http://jesuswasavegetarian.7h.com Man Is A Herbivore! http://pages.ivillage.com/ironjustice/manisaherbivore
Response:
Go away Tom, Lupus and associated disorders are way too complex for you. and you could kill someone with your ideas. And the Canadians here could sue you. J – Hide quoted text — Show quoted text -ironjustice wrote:
Response:
Or to brush your hair, use a blow dryer, curling iron, or do anything that resembles putting on your face and looking like you took some time to look "nice"! Sherry "Mary T. Rawle" <stin…@earthlink.net> wrote in message news:9oQ1a.9259$1q2.912970@newsread2.prod.itd.earthlink.net… – Hide quoted text — Show quoted text -> Me too. Well, myalgia. I am diagnosed with "arthralgias and myalgias." > I have trouble most noticably holding my arms up, such as holding my > binoculars to watch the birds, or to play guitar or wash the dishes. > Mary > "Grace Casselman" <gr…@casselman.net> wrote in message > news:3E4709EC.4A1B033F@casselman.net… > > So, apparently my biggest Lupus issue is muscle inflammation/weakness, > > also called Myositis. > > Who else out there has this? > > Here are a couple good URLs on it: > > http://www.orthop.washington.edu/arthritis/types/myositis/02 > > http://www.myositis.org/ > > Grace.
Response:
J <StrangeAdva…@example.com> wrote in message
news:3E47E4BD.EADE2259@execulink.com… > Go away Tom, > Lupus and associated disorders are way too complex for you. > and you could kill someone with your ideas. > And the Canadians here could sue you.
You have something to say about connective tissue disorder .. or myositis ..? Didn’t think so .. You have nothing but personal OPINIONS .. and on a medical newsgroup those don’t account for diddley-squat .. let alone the fact it is considered to be BAD MANNERS .. but don’t let that stop ya .. How come I get the feeling diddley-squat is about the extent of your .. contribution .. ? Could be because you are FULL .. of .. it .. <<snip>> . These data demonstrate that systemic lupus erythematosus in MRL/MPJ-lpr/lpr mice is altered by dietary iron. <<snip>> J Nutr 1995 Mar;125(3):474-84 Iron status alters murine systemic lupus erythematosus. Leiter LM, Reuhl KR, Racis SP Jr, Sherman AR Department of Nutritional Sciences, Rutgers, State University of New Jersey, New Brunswick 08903. The effect of Fe status on murine systemic lupus erythematosus was investigated. Weanling female MRL/MPJ-lpr/lpr mice (systemic lupus erythematosus strain) were fed diets with the following levels (mg Fe/kg diet): 3 (severely deficient), 10 (moderately deficient), 35 (control) and 250 (supplemented). A fifth group was pair fed the control diet in the amounts consumed by the severely deficient group. C3H/Hej mice fed the same diets were used as non-lupus controls. Anemia was more severe in severely deficient mice than in all other MRL groups and C3H severely deficient mice. Incidence of skin lesions was highest in MRL severely and moderately deficient mice compared with pair-fed, control and supplemented mice. By 22 wk of age, mortality was higher in supplemented and severely deficient mice than in moderately deficient, pair-fed and control MRL mice. Anti-dsDNA activity in serum was not altered by Fe. In a second experiment, kidney function was examined in mice fed severely deficient, control, supplemented and pair-fed diets. Urine protein concentration was highest in supplemented mice at 14 wk of age. Serum urea nitrogen was significantly higher in MRL severely deficient mice than in pair-fed and control mice at 18 wk of age. Glomerular filtration rate, measured by creatinine clearance, was significantly lower in MRL severely deficient mice than in pair-fed and Fe supplemented mice at 16 wk of age and pair-fed and control mice at 18 wk of age. Renal histopathology was more severe in Fe supplemented mice than in pair-fed and control mice, and more severe in severely deficient and pair-fed mice than in control mice. Fluorescent staining of kidneys with anti-Ig G and anti-C3 fluorescein-conjugated antibodies was most intense in severely deficient mice, and the concentration of circulating immune complexes in serum was significantly higher in severely deficient mice than in all other groups. These data demonstrate that systemic lupus erythematosus in MRL/MPJ-lpr/lpr mice is altered by dietary iron. PMID: 7876923, UI: 95182200 Who loves ya. Tom — Jesus Was A Vegetarian! http://jesuswasavegetarian.7h.com Man Is A Herbivore! http://pages.ivillage.com/ironjustice/manisaherbivore
Response:
- Hide quoted text — Show quoted text -ironjustice wrote: > J <StrangeAdva…@example.com> wrote in message > news:3E47E4BD.EADE2259@execulink.com… > > Go away Tom, > > Lupus and associated disorders are way too complex for you. > > and you could kill someone with your ideas. > > And the Canadians here could sue you. > You have something to say about connective tissue disorder .. or myositis > ..? > Didn’t think so .. > You have nothing but personal OPINIONS .. and on a medical newsgroup those > don’t account for diddley-squat .. let alone the fact it is considered to be > BAD MANNERS .. but don’t let that stop ya .. > How come I get the feeling diddley-squat is about the extent of your .. > contribution .. ? > Could be because you are FULL .. of .. it ..
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Response:
Me too. Well, myalgia. I am diagnosed with "arthralgias and myalgias." I have trouble most noticably holding my arms up, such as holding my binoculars to watch the birds, or to play guitar or wash the dishes. Mary "Grace Casselman" <gr…@casselman.net> wrote in message
news:3E4709EC.4A1B033F@casselman.net… – Hide quoted text — Show quoted text -> So, apparently my biggest Lupus issue is muscle inflammation/weakness, > also called Myositis. > Who else out there has this? > Here are a couple good URLs on it: > http://www.orthop.washington.edu/arthritis/types/myositis/02 > http://www.myositis.org/ > Grace.
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Hi Wes, I sure wish they’d get a handle on what’s happening with you and/or treatment for the symptoms http://www.orthop.washington.edu/arthritis/types/myositis/04 mentioned prednisone and/or MTX, have they tried MTX? (or is there a reason they can’t) J – Hide quoted text — Show quoted text -Wesley wrote: > That’s me too! I can barely walk. Every time I go to rheumy, I > complain of pain. He examines my joints, moves arms and legs around, > tests for weakness. I just figured out that most of pain is not at > the joints. Take fingers for instance (please). The pain is BETWEEN > the joints on the palm side of each hand, and is transferred to the > joints with movement. Sort of like a referred pain. Squeeze above > wrists, over calves or achilles tendons, and It hurts like crazy. Is > this possibly MCTD?
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Hi Beverly, That’s me too! I can barely walk. Every time I go to rheumy, I complain of pain. He examines my joints, moves arms and legs around, tests for weakness. I just figured out that most of pain is not at the joints. Take fingers for instance (please). The pain is BETWEEN the joints on the palm side of each hand, and is transferred to the joints with movement. Sort of like a referred pain. Squeeze above wrists, over calves or achilles tendons, and It hurts like crazy. Is this possibly MCTD? Wes – Hide quoted text — Show quoted text -"Beverley" <beverly.brow…@verizon.net> wrote in message <news:_RG1a.13914$9y2.6476@nwrddc01.gnilink.net>… > As in I can barely get down the steps in the morning? Just like I can barely > get up them at night? > Or when I sit down and put my feet up and then try to stand back up and > walk? > I’ve figured out I just can’t stop doing what I’m doing or I can’t do it > again for a while. > Oh, and then the Charlie horses start, sometimes at night sometimes during > the day. Then it feels as if I’ve pulled that muscle. So painful. > Bev > "Grace Casselman" <gr…@casselman.net> wrote in message > news:3E473136.F8EF414C@casselman.net… > > Yes. It seems that muscle pain is generally referred to as myalgia… > versus > > the myocitis, which is muscle weakness/inflammation… although I think > one can > > have both… > > I don’t hurt as much as I used to… but it’s definitely worse in the > morning. > > Grace. > > Sherry wrote: > > > I guess you can add me to the list. I just know that I hurt, and it > seems > > > to be from the top of my head to the tips of my toes, my joints, my > muscles > > > and everything in between. Does that make any sense?
Response:
As in I can barely get down the steps in the morning? Just like I can barely get up them at night? Or when I sit down and put my feet up and then try to stand back up and walk? I’ve figured out I just can’t stop doing what I’m doing or I can’t do it again for a while. Oh, and then the Charlie horses start, sometimes at night sometimes during the day. Then it feels as if I’ve pulled that muscle. So painful. Bev "Grace Casselman" <gr…@casselman.net> wrote in message
news:3E473136.F8EF414C@casselman.net… – Hide quoted text — Show quoted text -> Yes. It seems that muscle pain is generally referred to as myalgia… versus > the myocitis, which is muscle weakness/inflammation… although I think one can > have both… > I don’t hurt as much as I used to… but it’s definitely worse in the morning. > Grace. > Sherry wrote: > > I guess you can add me to the list. I just know that I hurt, and it seems > > to be from the top of my head to the tips of my toes, my joints, my muscles > > and everything in between. Does that make any sense?
Response:
Yep, that is part of the explanation. "Beverley" <beverly.brow…@verizon.net> wrote in message
news:_RG1a.13914$9y2.6476@nwrddc01.gnilink.net… – Hide quoted text — Show quoted text -> As in I can barely get down the steps in the morning? Just like I can barely > get up them at night? > Or when I sit down and put my feet up and then try to stand back up and > walk? > I’ve figured out I just can’t stop doing what I’m doing or I can’t do it > again for a while. > Oh, and then the Charlie horses start, sometimes at night sometimes during > the day. Then it feels as if I’ve pulled that muscle. So painful. > Bev > "Grace Casselman" <gr…@casselman.net> wrote in message > news:3E473136.F8EF414C@casselman.net… > > Yes. It seems that muscle pain is generally referred to as myalgia… > versus > > the myocitis, which is muscle weakness/inflammation… although I think > one can > > have both… > > I don’t hurt as much as I used to… but it’s definitely worse in the > morning. > > Grace. > > Sherry wrote: > > > I guess you can add me to the list. I just know that I hurt, and it > seems > > > to be from the top of my head to the tips of my toes, my joints, my > muscles > > > and everything in between. Does that make any sense?
Response:
So, apparently my biggest Lupus issue is muscle inflammation/weakness, also called Myositis. Who else out there has this? Here are a couple good URLs on it: http://www.orthop.washington.edu/arthritis/types/myositis/02 http://www.myositis.org/ Grace.
Response:
I guess you can add me to the list. I just know that I hurt, and it seems to be from the top of my head to the tips of my toes, my joints, my muscles and everything in between. Does that make any sense? Sherry "Grace Casselman" <gr…@casselman.net> wrote in message
news:3E4709EC.4A1B033F@casselman.net… – Hide quoted text — Show quoted text -> So, apparently my biggest Lupus issue is muscle inflammation/weakness, > also called Myositis. > Who else out there has this? > Here are a couple good URLs on it: > http://www.orthop.washington.edu/arthritis/types/myositis/02 > http://www.myositis.org/ > Grace.
Response:
Yes. It seems that muscle pain is generally referred to as myalgia… versus the myocitis, which is muscle weakness/inflammation… although I think one can have both… I don’t hurt as much as I used to… but it’s definitely worse in the morning. Grace. – Hide quoted text — Show quoted text -Sherry wrote: > I guess you can add me to the list. I just know that I hurt, and it seems > to be from the top of my head to the tips of my toes, my joints, my muscles > and everything in between. Does that make any sense?
Response:
Grace Casselman wrote: > Yes. It seems that muscle pain is generally referred to as myalgia… versus > the myocitis, which is muscle weakness/inflammation… although I think one can > have both… > I don’t hurt as much as I used to… but it’s definitely worse in the morning. > Grace.
<snip> Oh man, hubby can’t talk to me in the morning unless I woke up first and had my moment. The mornings s**k! -Sharon (hurting already- snow’s on the way… Again.) — ~Joy~ If the sight of the blue skies fills you with joy, if the simple things of nature have a messsage that you understand, rejoice, because your soul is alive. -Eleonora Duse
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