Question:
I am new to this newsgroup thing and came across this one and think it is great. I was diagnosed with Mixed Connective Tissue Disease (lupus and rheumatoid arthritis) two years ago. It’s nice to come across people who can understand how you are feeling. I don’t like to talk much about my illness but it’s nice to find a place I can. I am taking prednisone, plaquenil and methotrexate. I am not having any problems at the moment, but have in the past. Does anyone else have the same diagnosis? I am lucky to have great doctors as well.
Response:
Hi there , Yep I have MCTD overlap of lupus /scleroderma and RA I am on antibiotic therapy for 2 + yrs now and doing much better. I had severe allergic reaction to methotrexate , plaquenil I am currently on nothing else but minocycline My lab tests have been consistently improving This is what it was last week ANA was1: 2650 before ab therapy now 1:160 anti RNP very high now negative sed rate 80 now 7 Lung fibrosis now not evident Not bad right?? I am thrilled my anti-ENA remains high and my ana at 160 . I still have many symptoms but lessened !! Disease progression has slowed almost to a halt !! Hope this info helps glad you found this great board !! It is a wealth of info !! Welcome to the group , socjog > – Hide quoted text — Show quoted text ->I am new to this newsgroup thing and came across this one and think it is >great. I was diagnosed with Mixed Connective Tissue Disease (lupus and >rheumatoid arthritis) two years ago. It’s nice to come across people who >can understand how you are feeling. I don’t like to talk much about my >illness but it’s nice to find a place I can. I am taking prednisone, >plaquenil and methotrexate. I am not having any problems at the moment, but >have in the past. Does anyone else have the same diagnosis? I am lucky to >have great doctors as well.
Response:
On Wed, 8 Sep 1999 14:01:35 -0400 "Diane Bergman" <dberg…@wwdc.com> wrote: > I am new to this newsgroup thing and came across this one and think it is > great. I was diagnosed with Mixed Connective Tissue Disease (lupus and > rheumatoid arthritis) two years ago. It’s nice to come across people who > can understand how you are feeling. I don’t like to talk much about my > illness but it’s nice to find a place I can. I am taking prednisone, > plaquenil and methotrexate. I am not having any problems at the moment, but > have in the past. Does anyone else have the same diagnosis? I am lucky to > have great doctors as well. >yes, I do and it also includes Fibromalghia and Syjorgen’s. I am on Celexa, Vioxx, and Plaquenil and Flexeril . I just got off Methotrexate after taking it for three years and only use Prednisone if my doctor insists. I am trying to put off anymore meds.. if my nodules in my hands or knee gets much worse it be back on Arriva, a new drug like Methotrexate.
Take care- _lizzie11 — Posted via Talkway – http://www.talkway.com Exchange ideas on practically anything ™.
Response:
On Wed, 8 Sep 1999 14:01:35 -0400 "Diane Bergman" <dberg…@wwdc.com> wrote: > I am new to this newsgroup thing and came across this one and think it is > great. I was diagnosed with Mixed Connective Tissue Disease (lupus and > rheumatoid arthritis) two years ago. It’s nice to come across people who > can understand how you are feeling. I don’t like to talk much about my > illness but it’s nice to find a place I can. I am taking prednisone, > plaquenil and methotrexate. I am not having any problems at the moment, but > have in the past. Does anyone else have the same diagnosis? I am lucky to > have great doctors as well.
Yes, I have lupus, RA and Fibro and Sygoren’s. I was on Metho and Relafen and Plaquenil and flexeril, but removed from Metho last Spring. I totally refuse to take Predinsone and only use it for major flares, please be careful of it, as you probably know it has many side effects! Lizzie — Posted via Talkway – http://www.talkway.com Exchange ideas on practically anything ™.
Response:
In article <pl8D3.9075$LL2.97170@c01read02- admin.service.talkway.com>, "_lizzie11" <_lizzi…@excite.com> wrote: > On Wed, 8 Sep 1999 14:01:35 -0400 "Diane
Bergman" <dberg…@wwdc.com> > wrote: > > I am new to this newsgroup thing and came
across this one and think it is > > great. I was diagnosed with Mixed Connective
Tissue Disease (lupus and > > rheumatoid arthritis) two years ago. It’s
nice to come across people who > > can understand how you are feeling. I don’t
like to talk much about my > > illness but it’s nice to find a place I can.
I am taking prednisone, > > plaquenil and methotrexate. I am not having
any problems at the moment, but > > have in the past. Does anyone else have the
same diagnosis? I am lucky to > > have great doctors as well. > Yes, I have lupus, RA and Fibro and Sygoren’s. I was on Metho and > Relafen and Plaquenil and flexeril, but removed
from Metho last Spring. > I totally refuse to take Predinsone and only
use it for major flares, > please be careful of it, as you probably know
it has many side effects! > Lizzie > — > Posted via Talkway – http://www.talkway.com > Exchange ideas on practically anything ™. >i’m also being treated for lupus and ra and
fibro, i’m only taking plaqunil now. have you tried any natural alts. did anything help?thanks Sent via Deja.com http://www.deja.com/ Share what you know. Learn what you don’t.
Response:
> > Lizzie > > — > > Posted via Talkway – http://www.talkway.com > > Exchange ideas on practically anything ™. > >i’m also being treated for lupus and ra and > fibro, i’m only taking plaqunil now. have you > tried any natural alts. did anything help?thanks > No, never tried any natural alts., but have been on a Low Carb diet soreight months, lost 40 pounds and others on a list-serve are saying that their MD’s are putting them on LC for Fibromyalghia. I guess you could call this this a natural alts… since my cardio risk factor, other lipids and blood surgar are now normal! and I am back to lap swimming and continue to walk, but have increased that to t40 minutes 4 times a week.
Just love "killing two birds with one stone!" > Sent via Deja.com http://www.deja.com/ > Share what you know. Learn what you don’t.
– Posted via Talkway – http://www.talkway.com Exchange ideas on practically anything ™.
If you like this post and would like to receive updates from this blog, please subscribe our feed.