Question:
- Hide quoted text — Show quoted text -Lee Thompson-Herbert wrote in message <7cdi1t$…@crl3.crl.com>… >In article <36e94727.2222…@news.ghgcorp.com>, >KCDockal <kcdoc…@ghg.net> wrote: >[...] >>It isn’t uncommon for MS and Lupus to get confused nor it is it >>uncommon for them to overlap (though I hope that’s not the case for >>you). Lupus can sometimes "chew away" at the myelin sheath in much >>the same way that MS does (though not as drastically). this can cause >>the neural deterioration and neuropathy that resembles MS. >Lupus can also cause deterioration of the capillaries that feed the >nerves, causing nerve damage. This is why if you see any signs of >vasculitis, get your ass into your doctor’s office. I suffered a fair >amount of nerve damage because we weren’t sure what was going on at first. >Now, I go in and demand a Medrol pack if I see those telltale bloody dots >appearing on my skin. I hate steroids, but I’m terrified of ever >being that damaged again.
How do you know if you have vasculitis? I have bloody looking dots on my legs…could that be what it is?
Response:
In article <36e94727.2222…@news.ghgcorp.com>, KCDockal <kcdoc…@ghg.net> wrote:
[...] >It isn’t uncommon for MS and Lupus to get confused nor it is it >uncommon for them to overlap (though I hope that’s not the case for >you). Lupus can sometimes "chew away" at the myelin sheath in much >the same way that MS does (though not as drastically). this can cause >the neural deterioration and neuropathy that resembles MS.
Lupus can also cause deterioration of the capillaries that feed the nerves, causing nerve damage. This is why if you see any signs of vasculitis, get your ass into your doctor’s office. I suffered a fair amount of nerve damage because we weren’t sure what was going on at first. Now, I go in and demand a Medrol pack if I see those telltale bloody dots appearing on my skin. I hate steroids, but I’m terrified of ever being that damaged again. I had a brain MRI, numerous xrays of my head, neck, and shoulders, a neurological exam, and an exam by an eye surgeon before they decided I probably didn’t have MS. Later symptoms and family history made it pretty clear that I have lupus. — Lee M.Thompson-Herbert KD6WUR l…@crl.com Member, Knights of Xenu (1995). Chaos Monger and Jill of All Trades. "There are some people who will argue whether the flames are blue or green, when the real question is that their arse is on fire."
Response:
Hi Paulette I can only partially imagine what you’ve been through. I don’ thave a definite diagnosis myself so it may be 30 years before I do… which would be fine at this point given how horsey my insurance company is being. But still, to go though so much discomfort and pain and frustration with not even a clue of what was happening to you must have been very difficult indeed. Just from the tone of your post you sound like a strong person. If there’s one thing this disease does, it creates strong people. It isn’t uncommon for MS and Lupus to get confused nor it is it uncommon for them to overlap (though I hope that’s not the case for you). Lupus can sometimes "chew away" at the myelin sheath in much the same way that MS does (though not as drastically). this can cause the neural deterioration and neuropathy that resembles MS. Anyway.. I’m glad you delurked. What you talk about here is something that someone else suggested be explained in the FAQ (which looks like it will take quite some time to pull together and I am being graciously aided with technical and administrative details by Andy). So there will be a section in the FAQ about vague diagnoses or no diagnoses going on for many years for many people. I briefly mentioned it in the first version but it deserves more attention. thank you for the post. When someone new comes in and says they are just now being diagnosed but they’re getting conflicting answers, I may refer them to your post. Accurate dx is just flat a pain in the arse. good luck and welcome! kc cat p’d and e’d On 11 Mar 1999 23:12:02 GMT, paulett…@aol.com (PAULETTEMC) wrote: – Hide quoted text — Show quoted text ->Hi everybody, I have been lurking last couple months so wanted to introduce >myself and tell a little of my story. I have had symptoms for over 30 years >with the usual response of
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