Question:
Does anyone here have a relative with MS? My father has it, his cousin has it, and I have it. I’m wondering if it’s more common to run on the father’s side (even if they say it’s not genetic, I don’t believe that 100%). I’m also wondering if the type of MS (ie., secondary progressive, r/r…) runs in the family. I hope not. Right now I have r/r but my dad has progressive and he’s totally unable to care for himself anymore. This scares me very much. Anyway thank you for listening. Jo
Response:
I am surrounded by MS. Sister-in-law, brother-in-law, two sons, and me. No, I am not genetically connected to the in-laws, but my sons are. There are major studies being conducted on genetic susceptibility, with no definite conclusions yet, other than that there is a complicated genetic connection requiring an environmental trigger. As for type, I would say that mine and my two sons are 3 different types. Gaylan "Jo" <scrunch…@hotmail.com> wrote in message
news:eb0d243c.0110291627.17efe805@posting.google.com… – Hide quoted text — Show quoted text -> Does anyone here have a relative with MS? My father has it, his > cousin has it, and I have it. I’m wondering if it’s more common to > run on the father’s side (even if they say it’s not genetic, I don’t > believe that 100%). I’m also wondering if the type of MS (ie., > secondary progressive, r/r…) runs in the family. I hope not. Right > now I have r/r but my dad has progressive and he’s totally unable to > care for himself anymore. This scares me very much. Anyway thank you > for listening. Jo
Response:
Hiya, Statistics are funny funny things, and can be made to say many things. A number of people here have family members with ms, and it’s hard to argue with the reality of that fact, BUT… you know that there are many of us with no ms in our families at all. sigh. I’m very sorry to hear about your father. I think I’m safe in assuming he didn’t have access to interferon’s before he progressed right? The fact that you’re on one is very much in your favour, please try to remember that. I’m sure your father is very glad you have it. Jo wrote: > Does anyone here have a relative with MS? My father has it, his > cousin has it, and I have it. I’m wondering if it’s more common to > run on the father’s side (even if they say it’s not genetic, I don’t > believe that 100%). I’m also wondering if the type of MS (ie., > secondary progressive, r/r…) runs in the family. I hope not. Right > now I have r/r but my dad has progressive and he’s totally unable to > care for himself anymore. This scares me very much. Anyway thank you > for listening. Jo
– Eliz. ^^^^^ "aaaasssssssshhhHHHHHOLE!" (Otto – A Fish Called Wanda)
Response:
Hi Jo! << Does anyone here have a relative with MS? My father has it, his cousin has it, and I have it.>> The only relative I had with MS was my late cousin by marriage. So far, none of her children or grandchildren have it. <<I’m wondering if it’s more common to run on the father’s side (even if they say it’s not genetic, I don’t believe that 100%). >> I have heard that it "runs" on the mother’s side. I don’t think they’re saying it’s not genetic anymore. *sigh I believe you have to have a certain combination of genes, and then the genes have to be "triggered" into action. What triggers it? Nobody knows. Viruses, chemicals, foods. . .the theories go on. I’m sorry to hear about your father, but you have to remember that he did not have access to the drugs that are out now. Maybe, maybe someday they will be able to give us the cause and treatments that really work. Still hoping; Sylvia
Response:
Jo…they say it is not hereditory but it runs in families *go figure* i know I got it from my fathers side of the family as i am the oldest daughter of the oldest son, my cousin is the oldest daughter of the oldest daughter. in other words her mom and my dad were brother and sister. I have RR, my cousin has secondary progresive. we are very different, you would not think we had the same condition. i take all the meds available to me, my cousin who lives in the Uk takes NOTHING !!! just not available to her. So yes I say it runs in families. I have a 22 year old neice who I swear has MS, also lives in Uk, she goes to the doctors regular [as we all have] and is told all kinds of nonsence, the most stupid thing they said to her that she had growing pains….at 22 !!! come on lets get serious. Joyce "Jo" <scrunch…@hotmail.com> wrote in message
news:eb0d243c.0110291627.17efe805@posting.google.com… – Hide quoted text — Show quoted text -> Does anyone here have a relative with MS? My father has it, his > cousin has it, and I have it. I’m wondering if it’s more common to > run on the father’s side (even if they say it’s not genetic, I don’t > believe that 100%). I’m also wondering if the type of MS (ie., > secondary progressive, r/r…) runs in the family. I hope not. Right > now I have r/r but my dad has progressive and he’s totally unable to > care for himself anymore. This scares me very much. Anyway thank you > for listening. Jo
Response:
Hello Jo, what they say is that there is a "genetic susceptibility" to MS. So identical twins (who have *exactly* the same genes, don’t necessarily have it, if the other twin has it. I think the chances of both (identical) twins having MS is thirty percent. There has been a lot of work done looking at families (over generations) and more recently lots of work done looking at genes. That really show up how complex it is! different genes, different triggers, different symptoms! how come we all have MS? lotsa different reasons! and yes, I have someone in my family with MS. My husband’s aunt! (and no, we are not related) and this all reminds me that I need to publicise Rex Simmon’s new survey too…. at http://www.msls.com.au/ Rex and friends will be looking at lots of different things. Its up to us to let him know what to look at! <g> byeee, Linda PS there is lots more information on Medline.http://www.ncbi.nlm.nih.gov/PubMed/ Look for articles by George Ebers. Also Paul’s MS site http://www.mult-sclerosis.org/index.html On 29 Oct 2001 16:27:05 -0800, scrunch…@hotmail.com (Jo) wrote: >Does anyone here have a relative with MS? My father has it, his >cousin has it, and I have it. I’m wondering if it’s more common to >run on the father’s side (even if they say it’s not genetic, I don’t >believe that 100%). I’m also wondering if the type of MS (ie., >secondary progressive, r/r…) runs in the family. I hope not. Right >now I have r/r but my dad has progressive and he’s totally unable to >care for himself anymore. This scares me very much. Anyway thank you >for listening. Jo
http://www.ozemail.com.au/~lindafrd/ remove JUNK from address to reply
Response:
I know that MS may be scary for you, but I have been coping with it for years. The biggest problem that I have is the symptoms that only I can feel. Many people think that I’m kidding or joking around, but MS is a disease that is slicing part of my personality away. I think that it is hereditary, because it just comes up without any other explanation. My imediate family members do not have MS but my cousin on my father’s side does. he has chronic progressive MS and can no longer take care of himself.
Response:
Hi! I was diagnosed Nov.1989.Untill recently I was the only one in the family.1 year ago my sister was diagnosed.I don’t know about anyone else in the family with it. I guess we are the only "lucky" ones. Godd Luck to you! This newsgroup is very helpful to us. I am glad we found it. love & prayers, Jodie http://hometown.aol.com/satinglow/my homepage/profile.html
Response:
Yes, Jo… my mother has MS. Apparently, it’s more common for MS to follow maternal lines than paternal, but that’s not saying much. I don’t have anything here that quantifies it, but I do have a statement from a book written by the fellow who’s head of the University of Toronto MS Clinic… saying that for resons not yet explained, childern of men with MS have a lower risk of developing MS than children of women with MS. Your question about types of MS in relation to genetic association is one I haven’t seen any mention of before, officially or otherwise. I wouldn’t mind seeing some sort of answer to it, myself. — Michael <muirh…@island.net> Peace is not the absence of war, but the universal presence of justice. "Jo" <scrunch…@hotmail.com> wrote in message
news:eb0d243c.0110291627.17efe805@posting.google.com… – Hide quoted text — Show quoted text -> Does anyone here have a relative with MS? My father has it, his > cousin has it, and I have it. I’m wondering if it’s more common to > run on the father’s side (even if they say it’s not genetic, I don’t > believe that 100%). I’m also wondering if the type of MS (ie., > secondary progressive, r/r…) runs in the family. I hope not. Right > now I have r/r but my dad has progressive and he’s totally unable to > care for himself anymore. This scares me very much. Anyway thank you > for listening. Jo
Response:
I am in the same situation. I have a 22 year old niece who was dx with RRMS and is on Copaxone. None of my aunts/uncles had MS nor did my parents. It would have to be a generation skip in all probability. "Kris Lewis" <unr…@domain.invalid> wrote in message
news:3be0f37f.872550@news.earthlink.net… > On 29 Oct 2001 16:27:05 -0800, scrunch…@hotmail.com (Jo) wrote: > |Does anyone here have a relative with MS? > Only one of my cousins (on my father’s side) had MS. She died in 2000 from complications. > She was about 15 years older than me, and she had RR during the 1960’s and 1970’s which > progressed, of course. Back then, there wasn’t anything they could give to her to help. > She was my uncle’s second child. > I am my father’s second child. > Neither of our older siblings have MS. Neither of us have younger
siblings, so it ends > there. > From the responses I’ve seen, it seems that quite a lot of us have
relatives direct and > through marriage with MS. If anything, I think it proves that the
"statistics" that folks > quote in news stories of MS "strikes XXX,000 people around the world" is very innacurate. > I’ve often wondered where they get those numbers. > Kris Lewis > 
I asked God for strength, and He gave me Richard, my hero, my
inspiration, my reason to breathe, and my one true love.
Response:
Uncle Steve; Hell’s bells, my man. I’d trade the damn disease for any old bottle of rotgut you could give me. And, if it cured me, I’d even drink it. << Damn, I’ll trade my MS for a 12 year old bottle of Scotch.>> We’ll save that for the celebration! Sylvia
Response:
On 29 Oct 2001 16:27:05 -0800, scrunch…@hotmail.com (Jo) wrote: |Does anyone here have a relative with MS? Only one of my cousins (on my father’s side) had MS. She died in 2000 from complications. She was about 15 years older than me, and she had RR during the 1960’s and 1970’s which progressed, of course. Back then, there wasn’t anything they could give to her to help. She was my uncle’s second child. I am my father’s second child. Neither of our older siblings have MS. Neither of us have younger siblings, so it ends there. From the responses I’ve seen, it seems that quite a lot of us have relatives direct and through marriage with MS. If anything, I think it proves that the "statistics" that folks quote in news stories of MS "strikes XXX,000 people around the world" is very innacurate. I’ve often wondered where they get those numbers. Kris Lewis I asked God for strength, and He gave me Richard, my hero, my inspiration, my reason to breathe, and my one true love.
Response:
‘Cept, even when I am not drunk, I don’t recognize my own initials. Damn, I’ll trade my MS for a 12 year old bottle of Scotch. Old Uncle Steve – Hide quoted text — Show quoted text ->Dear OUS >You have just given us a new hope. >We should all become drunks >and avoid developing MS. >Wow, gang, what an idea!. >Gaylan
Response:
"Mona" <mona_ra…@hotmail.com> wrote in message
news:9rnt3i$u5sd6$1@ID-95032.news.dfncis.de… > Men are genetically inferior to women. Has to do with those x and y > thingys.. .
As far as mother nature is concerned men are disposable women aren’t. Gordon
Response:
my sister has lupus, she is not bedridded, but she is the steroid queen, otherwise she would be very dehabilitated. I believe my grandmother had MS, she is dead, she was treated like a crazy lady and given lot of sedatives and painkillers when she went to the docter repeatedly for her health problems, the "its all in your head treatment" she eventually became addicted to these meds and went to several docters every month getting duplicate prescriptions for the same drugs. She carted my mother around with her as a child while she did this. Needless to say she died young.
Response:
Dear OUS You have just given us a new hope. We should all become drunks and avoid developing MS. Wow, gang, what an idea!. Gaylan "Old Uncle Steve" <alden8…@aol.com4getit> wrote in message news:20011030175037.03608.00000454@mb-mw.aol.com… – Hide quoted text — Show quoted text -> Me old Mum is bed-ridden with Lupus. Her brother died of complications with > treatment of Rheumatoid Arthritis. Her other brothers and sisters are healthy > drunks. > I was dx’d with MS in 1996, Rheumatoid Arthritis in 2001. > Old Uncle Steve
Response:
Yes, my older brother and only sibling has MS R&R. I also have a first cousin on my fathers side and her niece have "it". My cousin and I and her neice all started with R&R but we all are now not seeing any remissions. My brother on the other hand had one horendous epasode 11 years ago however, although he has perodic mild symtoms he has not had any progression since. – Hide quoted text — Show quoted text ->On 29 Oct 2001 16:27:05 -0800, scrunch…@hotmail.com (Jo) wrote: >>Does anyone here have a relative with MS? My father has it, his >>cousin has it, and I have it. I’m wondering if it’s more common to >>run on the father’s side (even if they say it’s not genetic, I don’t >>believe that 100%). I’m also wondering if the type of MS (I.e.., >>secondary progressive, r/r…) runs in the family. I hope not. Right >>now I have r/r but my dad has progressive and he’s totally unable to >>care for himself anymore. This scares me very much. Anyway thank you >>for listening. Jo >http://www.ozemail.com.au/~lindafrd/ >remove JUNK from address to reply
Response:
Albee Kuminova wrote: > Yes, I have a very close relative with MS and it is rough.
My 2nd cousin’s husband has MS, so he is not a close relation, and only by marriage, so probably doesn’t count as a relative, does he? Heather
Response:
Jo, I have some statistics from a notebook of the Univ of Wash MS Center puts together for their patients. As many as 20% of MS patients have another close relative with MS. If a parent has MS, the risk of a son getting MS is 1% and the risk of a daughter getting MS is 5%. Siblings of a MS patient have a 4% risk. If one identical twin has MS there is a 30% chance of the other twin having MS. Gerry Ann — — Remove the CAPS to reply — "Jo" <scrunch…@hotmail.com> wrote in message
news:eb0d243c.0110291627.17efe805@posting.google.com… – Hide quoted text — Show quoted text -> Does anyone here have a relative with MS? My father has it, his > cousin has it, and I have it. I’m wondering if it’s more common to > run on the father’s side (even if they say it’s not genetic, I don’t > believe that 100%). I’m also wondering if the type of MS (ie., > secondary progressive, r/r…) runs in the family. I hope not. Right > now I have r/r but my dad has progressive and he’s totally unable to > care for himself anymore. This scares me very much. Anyway thank you > for listening. Jo
Response:
Men are genetically inferior to women. Has to do with those x and y thingys.. . — Laura "Michael" <muirh…@island.net> wrote in message
news:9rmnv3$v10od$1@ID-78693.news.dfncis.de… – Hide quoted text — Show quoted text -> Yes, Jo… my mother has MS. > Apparently, it’s more common for MS to follow maternal lines than paternal, but > that’s not saying much. I don’t have anything here that quantifies it, but I do > have a statement from a book written by the fellow who’s head of the University of > Toronto MS Clinic… saying that for resons not yet explained, childern of men > with MS have a lower risk of developing MS than children of women with MS. > Your question about types of MS in relation to genetic association is one I > haven’t seen any mention of before, officially or otherwise. I wouldn’t mind > seeing some sort of answer to it, myself. > — > Michael <muirh…@island.net> > Peace is not the absence of war, but the universal presence of justice. > "Jo" <scrunch…@hotmail.com> wrote in message > news:eb0d243c.0110291627.17efe805@posting.google.com… > > Does anyone here have a relative with MS? My father has it, his > > cousin has it, and I have it. I’m wondering if it’s more common to > > run on the father’s side (even if they say it’s not genetic, I don’t > > believe that 100%). I’m also wondering if the type of MS (ie., > > secondary progressive, r/r…) runs in the family. I hope not. Right > > now I have r/r but my dad has progressive and he’s totally unable to > > care for himself anymore. This scares me very much. Anyway thank you > > for listening. Jo
Response:
I am the only one in my family with MS. — Pam —————- Having a good attitude may not solve all your problems, but it will irritate enough people to make it worthwhile. "Jo" <scrunch…@hotmail.com> wrote in message
news:eb0d243c.0110291627.17efe805@posting.google.com… | Does anyone here have a relative with MS? My father has it, his | cousin has it, and I have it. I’m wondering if it’s more common to | run on the father’s side (even if they say it’s not genetic, I don’t | believe that 100%). I’m also wondering if the type of MS (ie., | secondary progressive, r/r…) runs in the family. I hope not. Right | now I have r/r but my dad has progressive and he’s totally unable to | care for himself anymore. This scares me very much. Anyway thank you | for listening. Jo
Response:
Yes, I have a very close relative with MS and it is rough. it’s hard to watch some one you love disintegrate in front of you. It’s hard dealing with all the changes they go through. MS doesn’t affect only the one with the disease. It has an effect on the entire family. It’s tough to reassure an MS patient all will be ok when they don’t believe it. it’s just rough when you do all you can and feel there HAS to be something more you can do only to realize there is not. – Hide quoted text — Show quoted text -Jo wrote: > Does anyone here have a relative with MS? My father has it, his > cousin has it, and I have it. I’m wondering if it’s more common to > run on the father’s side (even if they say it’s not genetic, I don’t > believe that 100%). I’m also wondering if the type of MS (ie., > secondary progressive, r/r…) runs in the family. I hope not. Right > now I have r/r but my dad has progressive and he’s totally unable to > care for himself anymore. This scares me very much. Anyway thank you > for listening. Jo
Response:
Hi Jo, I think there are quite a few of us that have a relative with ms, but certainly not everybody. Myself, my mother had ms (since deceased), and her cousin has it also. I think they do say now that "genetic susceptibility" is involved, and I think it is more likely to run on the mothers side. When I was diagnosed, the neurologist made a point of saying that there is no correlation between relatives and the course of the disease. Take care, Dwayne – Hide quoted text — Show quoted text -scrunch…@hotmail.com (Jo) wrote in message <news:eb0d243c.0110291627.17efe805@posting.google.com>… > Does anyone here have a relative with MS? My father has it, his > cousin has it, and I have it. I’m wondering if it’s more common to > run on the father’s side (even if they say it’s not genetic, I don’t > believe that 100%). I’m also wondering if the type of MS (ie., > secondary progressive, r/r…) runs in the family. I hope not. Right > now I have r/r but my dad has progressive and he’s totally unable to > care for himself anymore. This scares me very much. Anyway thank you > for listening. Jo
Response:
Me old Mum is bed-ridden with Lupus. Her brother died of complications with treatment of Rheumatoid Arthritis. Her other brothers and sisters are healthy drunks. I was dx’d with MS in 1996, Rheumatoid Arthritis in 2001. Old Uncle Steve
Response:
My Sister had MS. She had a different kind of MS, PPMS while I have SPMS. She was in a wheelchair 18 months after Dx and I am still walking around after 9 years. My voice is very affected while her’s was not. I understand if you have a sibling with MS, your chance of developing it are 30 times normal (3% vs. .1%). Fred. 63% of all statistics are made up. "Jo" <scrunch…@hotmail.com> wrote in message
news:eb0d243c.0110291627.17efe805@posting.google.com… – Hide quoted text — Show quoted text -> Does anyone here have a relative with MS? My father has it, his > cousin has it, and I have it. I’m wondering if it’s more common to > run on the father’s side (even if they say it’s not genetic, I don’t > believe that 100%). I’m also wondering if the type of MS (ie., > secondary progressive, r/r…) runs in the family. I hope not. Right > now I have r/r but my dad has progressive and he’s totally unable to > care for himself anymore. This scares me very much. Anyway thank you > for listening. Jo
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