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The Big one

Question:

Been there and Done that!! So sorry you had to go through all that stuff… it is called a ‘major lupus flare’ and it can hit you anytime it so desires!! That is the part I hate worst of all … the insidious and sneaky way it can creep up out of the blue  and throw you into hospital! Good luck in your recovery, ((hugs to you)) — from Shelagh Co-ordinator Of Valley-Lupus – Invisible in Plain Sight http://www3.telus.net/valleylupus/index.html Subgroup of BC Lupus Society and Lupus Canada Email: valleylu…@telus.net "RhondaM" <woo…@intcon.net> wrote in message

news:1030502698.350085@localhost.localdomain… – Hide quoted text — Show quoted text -> Has anyone ever had a flare where your joints hurt so bad all over your body > that you shake and the throw up and feel like  you are dying? Not to mention > I was so weak I couldn’t walk and swollen in all my joints and my lyph nodes > under my right breast and arm were swollen. > Boy,  I did yesterday. I felt as if I was dying. Ended up at the ER and with > IV injections of solo medrol and torodol, demorol , and something for nausea > x2. I have never done this before and it really freaked me out. Did I have a > major flare? What should I ask my rhuemy to do next? Any ideas or feed back? > I would very much appreciate anything anyone can add to help me out. Drs at > the ER said it was a flare up. I was there six hours + ,  and was told to > contact my Rhuemy soon. > Freaked out here, > RhondaM

Response:

yep, sounds pretty much like a big ol nasty flare to me. I am so sorry you ended up in the ER. Sometimes that hurts as much as the flare. I hope you are feeling much better soon. Gentle (((HUGS))) for you. Wende "J Rogow" <JRo…@Newsguy.com> wrote in message

news:akhn8f0uaa@enews4.newsguy.com… – Hide quoted text — Show quoted text -> Yeah, that’s a "normal" major flare.  Sorry you had to go through that. > "RhondaM" <woo…@intcon.net> wrote in message > news:1030502698.350085@localhost.localdomain… > > Has anyone ever had a flare where your joints hurt so bad all over your > body > > that you shake and the throw up and feel like  you are dying? Not to > mention > > I was so weak I couldn’t walk and swollen in all my joints and my lyph > nodes > > under my right breast and arm were swollen. > > Boy,  I did yesterday. I felt as if I was dying. Ended up at the ER and > with > > IV injections of solo medrol and torodol, demorol , and something for > nausea > > x2. I have never done this before and it really freaked me out. Did I have > a > > major flare? What should I ask my rhuemy to do next? Any ideas or feed > back? > > I would very much appreciate anything anyone can add to help me out. Drs > at > > the ER said it was a flare up. I was there six hours + ,  and was told to > > contact my Rhuemy soon. > > Freaked out here, > > RhondaM

Response:

Just call that rheumy and get in to see him or her ASAP.  It could be you need your medications rearranged, or changed. Hope you feel better soon.  OH and ask about repeat blood work in a week or two. janers

Response:

Oh Rhonda, I know all too well where you are coming from! So sorry that anyone has to deal woth such horrible feelings. Then add the docs tend to make you feel like an idiot! sending hugs and blessings!!!! Leslie "RhondaM" <woo…@intcon.net> wrote in message

news:1030502698.350085@localhost.localdomain… – Hide quoted text — Show quoted text -> Has anyone ever had a flare where your joints hurt so bad all over your body > that you shake and the throw up and feel like  you are dying? Not to mention > I was so weak I couldn’t walk and swollen in all my joints and my lyph nodes > under my right breast and arm were swollen. > Boy,  I did yesterday. I felt as if I was dying. Ended up at the ER and with > IV injections of solo medrol and torodol, demorol , and something for nausea > x2. I have never done this before and it really freaked me out. Did I have a > major flare? What should I ask my rhuemy to do next? Any ideas or feed back? > I would very much appreciate anything anyone can add to help me out. Drs at > the ER said it was a flare up. I was there six hours + ,  and was told to > contact my Rhuemy soon. > Freaked out here, > RhondaM

Response:

Yeah, that’s a "normal" major flare.  Sorry you had to go through that. "RhondaM" <woo…@intcon.net> wrote in message

news:1030502698.350085@localhost.localdomain… – Hide quoted text — Show quoted text -> Has anyone ever had a flare where your joints hurt so bad all over your body > that you shake and the throw up and feel like  you are dying? Not to mention > I was so weak I couldn’t walk and swollen in all my joints and my lyph nodes > under my right breast and arm were swollen. > Boy,  I did yesterday. I felt as if I was dying. Ended up at the ER and with > IV injections of solo medrol and torodol, demorol , and something for nausea > x2. I have never done this before and it really freaked me out. Did I have a > major flare? What should I ask my rhuemy to do next? Any ideas or feed back? > I would very much appreciate anything anyone can add to help me out. Drs at > the ER said it was a flare up. I was there six hours + ,  and was told to > contact my Rhuemy soon. > Freaked out here, > RhondaM

Response:

Has anyone ever had a flare where your joints hurt so bad all over your body that you shake and the throw up and feel like  you are dying? Not to mention I was so weak I couldn’t walk and swollen in all my joints and my lyph nodes under my right breast and arm were swollen. Boy,  I did yesterday. I felt as if I was dying. Ended up at the ER and with IV injections of solo medrol and torodol, demorol , and something for nausea x2. I have never done this before and it really freaked me out. Did I have a major flare? What should I ask my rhuemy to do next? Any ideas or feed back? I would very much appreciate anything anyone can add to help me out. Drs at the ER said it was a flare up. I was there six hours + ,  and was told to contact my Rhuemy soon. Freaked out here, RhondaM

Response:

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