Question:
Dear New Friends…I posted a CRY FOR HELP a little while ago in here and the response I have received is overwhelming and I just wanted Thank Each and everyone of you for the letters of warmth and encouragement. I now do not feel so alone on this journey I feel as if I have dozens of new and wonderful friends holding my hand. : ) After reading all the letters of support and encouragement and a major Flair up and a trip to the hospital. I found the courage to stand up and take the bull by the horns. I let my local physician know i shall not stand by while he takes a wait and see approch to my suffering and or until a ANA comes back positive and if the truth be known the only reason I had the courage to do that is because of all Your letters of encouragement, As I laid there feeling like i was in Hell and frightened and feeling oh so sick i recalled your words and it helped me do what i should have done a long time ago but didnt have the courage to do! Thank you! I called my insurance company told them the what has been going on and the stress this is causing in addition to the medical problems. Those folks they were kind and helpful and down right great they agreed that i shouldnt have to take a wait and see approach and gave me permission to go to Johns Hopkins Hospital to see Dr. Michele Petri whom is their Lupus Specialist. I called to make my appointment and as we spoke about the problems I am experiencing such as the blisters and the weakness and the tiredness and the rashes,pain and the whole meddley of other assorted odd things they told me I should never had to go this long before someone helped me and they reassured me they never take the wait and see approach they made room to see me next week! 
To me this i am hoping and praying is at least a start to finding a solution to the problems and or at least a stepping stone in the right direction. So once again Thank you Thank You Thank you! Warm Wishes and May God Bless each and everyone of you for your efforts to help others such as me : )
Response:
Terri Lynn… Congratulations on having the courage to stand up for yourself. I’ve been urging my step-sister who has at least Sjogren’s Syndrome, and probably rheumatoid arthritis to get an app’t at Johns Hopkins. Hope your app’t works out well, and you get some relief… —
Response:
You Gooooooo Girl!!!!!! Retta – Hide quoted text — Show quoted text -TERRI LYNN wrote: > Dear New Friends…I posted a CRY FOR HELP a little while ago in here > and the response I have received is overwhelming and I just wanted Thank > Each and everyone of you for the letters of warmth and encouragement. I > now do not feel so alone on this journey I feel as if I have dozens of > new and wonderful friends holding my hand. : ) > After reading all the letters of support and encouragement and a major > Flair up and a trip to the hospital. I found the courage to stand up and > take the bull by the horns. I let my local physician know i shall not > stand by while he takes a wait and see approch to my suffering and or > until a ANA comes back positive and if the truth be known the only > reason I had the courage to do that is because of all Your letters of > encouragement, As I laid there feeling like i was in Hell and frightened > and feeling oh so sick i recalled your words and it helped me do what i > should have done a long time ago but didnt have the courage to do! Thank > you! > I called my insurance company told them the what has been going on and > the stress this is causing in addition to the medical problems. Those > folks they were kind and helpful and down right great they agreed that i > shouldnt have to take a wait and see approach and gave me permission to > go to Johns Hopkins Hospital to see Dr. Michele Petri whom is their > Lupus Specialist. I called to make my appointment and as we spoke about > the problems I am experiencing such as the blisters and the weakness and > the tiredness and the rashes,pain and the whole meddley of other > assorted odd things they told me I should never had to go this long > before someone helped me and they reassured me they never take the wait > and see approach they made room to see me next week! To me this i > am hoping and praying is at least a start to finding a solution to the > problems and or at least a stepping stone in the right direction. > So once again Thank you Thank You Thank you! > Warm Wishes and May God Bless each and everyone of you for your efforts > to help others such as me : )
Response:
Terri Lynn, I was very happy to see your positive results with the insurance company. I am hoping and praying that you finally get the answers that you need. audi
Response:
i could not agree with you more. Being recently diagnosed I felt lost and abandoned. It seemed that no one I knew really understood what I was going through. And as much as you have draw strength from these letters, please be assured that you have not gone without touching others. You sent me an e-mail after my first posting and it was a bright spot in an otherwise bleak and dreary day. I appreciate that you reached and touched a stranger and it makes it all the more moving that you did it while your own life was in upheavel. "Let no man imagine he has no influence."
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