Lupus FAQ » Lupus » rubbery legs

rubbery legs

Question:

I don’t take Imuran and I have the same experience.  Maybe it’s a lupus thing? George – Hide quoted text — Show quoted text -kim…@my-deja.com wrote: > Lil~~~when I was on Imuran, I had the same sensations that you > describe, and thought the docs felt I was nuts when I told them. I > remember that after I took my dose, sometimes my joints would > voluntarily cramp in and out and that nearly drove me nuts—-I was so > glad to go off that stuff, but it was on to more heavy meds then.  Hang > in there, and vent all you want, and we’ll be here.  (((kim)))In > article <39CCEC9D.4F7D5…@telus.net>, >   li…@telus.net wrote: > > Just wanted to have a little vent this am……Went out for dinner in > > evening for first time since starting Imuran.  Sure got tired just > > sitting there and when got up to leave the old legs sure felt rubbery. > > I’m sure I looked impaired.  It affects me at home too, but I just go > > from chair to computer to couch.  Very annoying.  My brain kinda feels > > like it "shifts" now and then and I go a bit sideways.  Maybe it is > > partly fatigue.  Tell the doc something like that I they think you’re > > crazy. > > Also after being so tired, then having another broken night of sleep > and > > up early (on my day off!!)  I can remember as a teen my mother coming > to > > see if I was still alive at noon as I had slept so long…..oh to be > > able to do that.  Anyway, thanks for the grumble. > > Lil > Sent via Deja.com http://www.deja.com/ > Before you buy.

Response:

Lil~~~when I was on Imuran, I had the same sensations that you describe, and thought the docs felt I was nuts when I told them. I remember that after I took my dose, sometimes my joints would voluntarily cramp in and out and that nearly drove me nuts—-I was so glad to go off that stuff, but it was on to more heavy meds then.  Hang in there, and vent all you want, and we’ll be here.  (((kim)))In article <39CCEC9D.4F7D5…@telus.net>, – Hide quoted text — Show quoted text -  li…@telus.net wrote: > Just wanted to have a little vent this am……Went out for dinner in > evening for first time since starting Imuran.  Sure got tired just > sitting there and when got up to leave the old legs sure felt rubbery. > I’m sure I looked impaired.  It affects me at home too, but I just go > from chair to computer to couch.  Very annoying.  My brain kinda feels > like it "shifts" now and then and I go a bit sideways.  Maybe it is > partly fatigue.  Tell the doc something like that I they think you’re > crazy. > Also after being so tired, then having another broken night of sleep and > up early (on my day off!!)  I can remember as a teen my mother coming to > see if I was still alive at noon as I had slept so long…..oh to be > able to do that.  Anyway, thanks for the grumble. > Lil

Sent via Deja.com http://www.deja.com/ Before you buy.

Response:

Just wanted to have a little vent this am……Went out for dinner in evening for first time since starting Imuran.  Sure got tired just sitting there and when got up to leave the old legs sure felt rubbery. I’m sure I looked impaired.  It affects me at home too, but I just go from chair to computer to couch.  Very annoying.  My brain kinda feels like it "shifts" now and then and I go a bit sideways.  Maybe it is partly fatigue.  Tell the doc something like that I they think you’re crazy. Also after being so tired, then having another broken night of sleep and up early (on my day off!!)  I can remember as a teen my mother coming to see if I was still alive at noon as I had slept so long…..oh to be able to do that.  Anyway, thanks for the grumble. Lil

Response:

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