Question:
Hello all, I had been away from here a while and finally switched to nicer, attentive neuro (plus closer to me, an old office I had gone to/ diff. neuro) Anyway, I had been pretty quiet MS-wise, I have a mild case… I really was complaining about past symptoms (summer tonic seizures and neualgias, esp. summer 1998). We discussed my balance probs. that are intermittent, constant sinus headaches that could be causing diizziness in the am (FM doesn’t help) Then…she compared my 1996 and 1997 MRIs. 1997 had many more plaques, to a point where she was almost calling this chronic progressive. I wanted to cry! I know this isn’t nice to say- but was this last neuro that much of a moron to not TELL ME that the MRI he ordered had worsened??????????????? That I had a nystagmus with my right eye a bit?????? That balance (or lack thereof) was a real symptom????????? She ordered another MRI, and wants me to maybe think about taking an ABC drug, like Copaxone. We’ll see from there. But aside from my sinuses, I feel relatively fine! The dizziness is a pain, I may try something new with my antivert that she suggested, but it will soon go away again. Why wasn’t this guy (old neuro) straight with me? This one spent so much more time, etc…. Well- let’s hope for the best with the next MRI. Another (slightly different) rant follows… Thanks for listening (and sorry of any typos- I just rant and send) Kim
Response:
Kim Been there also, my first neuro told me I had very mild ms and that it would be another 10-15 YEARS before I would really have to start worrying about it…ok no problem, 3 months later he started me on avonex but purely as a preventative measure not because the original lesions had grown. A year later we moved, and I found a doctor closer to me, a specialist in the field of ms, he informed me the reason I never felt better was because I would never have a remission, instead he told me I had chronic progressive ms and with it teamed up with sle lupus the two diseases were feeding off each other. I wish the first doctor had better prepared me for this, finding out the truth was a crushing blow. Laura Kim <kimzinn…@worldnet.att.net> wrote in article <l9oo4.1886$LC4.44…@bgtnsc04-news.ops.worldnet.att.net>… – Hide quoted text — Show quoted text -> Hello all, > I had been away from here a while and finally switched to nicer, attentive > neuro (plus closer to me, an old office I had gone to/ diff. neuro) > Thanks for listening (and sorry of any typos- I just rant and send) > Kim
Response:
Well, I shall see with the next MRI what exactly is going on. My first episode was in 1989 and never really had a major attach since then, except mile optic neuritis in 1993-4. My first was also optic neuritis but pretty bad. In fact, it was pre-ADA and the hell that my supervisor at UAL put me through then would have made for a nice lawsuit. Oh well. If I only knew- I was 21. I just don’t know how I am going to be able to survive an ABC drug plus work 2 jobs. I am a librarian and have to be up and about constantly– I was able to dodge the "flu" (knock wood) since I was a kid, now I’ll just feel like I have it. 
Very scary. Hope I can sleep tonight… Kim Laura Thomas wrote in message
<01bf7371$eefb2b80$8624a…@default.mcn.net>… – Hide quoted text — Show quoted text ->Kim >Been there also, my first neuro told me I had very mild ms and that it >would be another 10-15 YEARS before I would really have to start worrying >about it…ok no problem, 3 months later he started me on avonex but purely >as a preventative measure not because the original lesions had grown. A >year later we moved, and I found a doctor closer to me, a specialist in the >field of ms, he informed me the reason I never felt better was because I >would never have a remission, instead he told me I had chronic progressive >ms and with it teamed up with sle lupus the two diseases were feeding off >each other. I wish the first doctor had better prepared me for this, >finding out the truth was a crushing blow. >Laura >Kim <kimzinn…@worldnet.att.net> wrote in article ><l9oo4.1886$LC4.44…@bgtnsc04-news.ops.worldnet.att.net>… >> Hello all, >> I had been away from here a while and finally switched to nicer, >attentive >> neuro (plus closer to me, an old office I had gone to/ diff. neuro) >> Thanks for listening (and sorry of any typos- I just rant and send) >> Kim
Response:
Laura, I, also, have SLE/SS as well as MS. Can I offer anything from my lengthy experience of them? SW "Laura Thomas" <lau…@mcn.net> wrote in message
news:01bf7371$eefb2b80$8624a3cd@default.mcn.net… – Hide quoted text — Show quoted text -> Kim > Been there also, my first neuro told me I had very mild ms and that it > would be another 10-15 YEARS before I would really have to start worrying > about it…ok no problem, 3 months later he started me on avonex but purely > as a preventative measure not because the original lesions had grown. A > year later we moved, and I found a doctor closer to me, a specialist in the > field of ms, he informed me the reason I never felt better was because I > would never have a remission, instead he told me I had chronic progressive > ms and with it teamed up with sle lupus the two diseases were feeding off > each other. I wish the first doctor had better prepared me for this, > finding out the truth was a crushing blow. > Laura > Kim <kimzinn…@worldnet.att.net> wrote in article > <l9oo4.1886$LC4.44…@bgtnsc04-news.ops.worldnet.att.net>… > > Hello all, > > I had been away from here a while and finally switched to nicer, > attentive > > neuro (plus closer to me, an old office I had gone to/ diff. neuro) > > Thanks for listening (and sorry of any typos- I just rant and send) > > Kim
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