Question:
<<The new rheumy is going to check for APLS I asked about it specifically. I am so glad to have everyone’s help from here so I can ask about these things.>> I’m so glad to hear that you’ll be checked for this. BTW, was he surprised that you knew about APLS? Sandra
Response:
I’ve heard it said that a mild stroke is a blessing, it’s a warning that prevents you from having the big one if not diagnosed. Of course that is very unsettling to find out you have had a stroke. Bev – Hide quoted text — Show quoted text -bassward wrote in message <39666D28.658C…@flash.net>… >Hi Everyone, I saw the neurologist today and she feels it was a mild >stroke. She put me on a aspirin a day and got me right in with a new >Rheumy first thing monday and doing brain MRI and full length MRI to >make sure no pinched nerves . The blood sugar has stayed high and my >color is really bad extremely red the last few days so must be a flare >on top of all of it too. She feels we need a more serious approach to >this , with the stroke type stuff and diabetes now. She wants to do >cytoxan after all the testing is done and see what new rheumy says. I >hate to go much higher on the pred. I know that. She is still waiting >to see bout the muscle biopsy. >Kcat have you ever heard of Dr. Ruth Lucci she at at St. Johns in >Nassau Bay. I just wondered she is who I am seeing monday. >It is getting hard to see Dr. Daniels at UTMB so I hope I like this new >dr. she is alot closer too. Thanks for input you guys are so helpful I >would truly be lost >Cindy
Response:
Hi Sandra, The new rheumy is going to check for APLS I asked about it specifically. I am so glad to have everyone’s help from here so I can ask about these things. Cindy – Hide quoted text — Show quoted text -SCroyle909 wrote: > Sorry to hear about the stroke. I have to say I’m not surprised to hear that > they’ve recommended Cytoxan. It’s the only lupus med I know of with a proven > track record for dealing with CNS lupus. It can produce tremendous > improvement. > BTW, have you been tested for antiphospholipid syndrome? (positive > anticardiolipins IgG and IgM, and/or lupus anticoagulant) > Sandra
Response:
Hi Everyone, I saw the neurologist today and she feels it was a mild stroke. She put me on a aspirin a day and got me right in with a new Rheumy first thing monday and doing brain MRI and full length MRI to make sure no pinched nerves . The blood sugar has stayed high and my color is really bad extremely red the last few days so must be a flare on top of all of it too. She feels we need a more serious approach to this , with the stroke type stuff and diabetes now. She wants to do cytoxan after all the testing is done and see what new rheumy says. I hate to go much higher on the pred. I know that. She is still waiting to see bout the muscle biopsy. Kcat have you ever heard of Dr. Ruth Lucci she at at St. Johns in Nassau Bay. I just wondered she is who I am seeing monday. It is getting hard to see Dr. Daniels at UTMB so I hope I like this new dr. she is alot closer too. Thanks for input you guys are so helpful I would truly be lost Cindy
Response:
Bassword~~~I’m so glad you have competent care that you feel comfortable with now. The cytoxan therapy we can talk about later, as I am off it a month now, it didn’t work for me, but does wonders for others. Keep your faith up!!! This is finally coming together for you!! (((Kim)))) * Sent from AltaVista http://www.altavista.com Where you can also find related Web Pages, Images, Audios, Videos, News, and Shopping. Smart is Beautiful
Response:
Sorry to hear about the stroke. I have to say I’m not surprised to hear that they’ve recommended Cytoxan. It’s the only lupus med I know of with a proven track record for dealing with CNS lupus. It can produce tremendous improvement. BTW, have you been tested for antiphospholipid syndrome? (positive anticardiolipins IgG and IgM, and/or lupus anticoagulant) Sandra
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