Question:
Hi Teresa, Yes, please do let us know. I will be watching for your message. Good luck. BJ-willing your platelets to be HIGH "Teresa" <tnowo…@snet.net> wrote in message
news:3C5D5CC2.1AC6BCFE@snet.net… – Hide quoted text — Show quoted text -> Hi BJ, > Hope you’re feeling ok. > I go tomorrow. Keeping my fingers crossed that at least the count stayed at > 194K, then they will take the pred. down to 40 hopefully. I really hate the > stuff, I’m starting to get swelling in my legs and cramps. The sleeping is a > bit better, they also gave me Ambien for the nights that I just can’t fall > asleep. This stuff is pretty good, works fast and I don’t feel like a zombie > the next day. I only take it if I need it or when I have something important at > work the next day that I have to be very alert for. > I’ll post tomorrow and let you know. > Take care > Teresa > BJ wrote: > > Hi Teresa, > > Have you had another blood test since the last good one? I hope the > > platelets are still impressively high. I am due for a test this week. I > > think it will be fine, now that I am back on the pred. I’m still plagued by > > nosebleeds though. Oh well, it keeps things interesting. > > BJ-enjoying the Sask. sunshine. > > "Teresa" <tnowo…@snet.net> wrote in message > > news:3C5BF71C.65B52A4E@snet.net… > > > Hi Alice, > > > I’m new here too. I’ve had Lupus for 21 years but recently have had a new > > > problem related to my Lupus which led me here to ask questions and input. > > Got > > > both and more. Made me feel not quite so anxious. > > > I was welcomed with open arms and support. The people here have been > > > wonderful, BJ in particular. > > > You will get a lot of support and smiles, it’s not all gloomy. > > > Welcome. > > > Teresa > > > Sherry wrote: > > > > Hi Alice, > > > > Welcome to the group. I mostly just hang out and read but do jump in > > every > > > > once in awhile. Have learned so much, laughed a lot at ourselves and > > with > > > > everyone else, and made some good friends. Don’t think too many > > actually > > > > have met face to face but it is as if we really know one another and can > > > > say, ask or share just about anything that comes to mind. > > > > A few are absent or taking a break and there are lots of new > > people….so > > > > kick off your shoes, get a cup of coffee (or tea) (be careful with a > > mouth > > > > full of liquid when you read some of the posts….the screen gets > > sprayed > > > > frequently!) and hang out with the rest of us!!!! > > > > Sherry
Response:
Gee, we’ve got the Inyo national Forest, Death Valley, and Yellowstone. Anyone here from Cape Cod National Seashore? Mt. Desert Island? Tired, happy, hugs from SoCal to the Dowager and the Newbie "Jackie" <lkolb…@earthlink.net> wrote in message
news:Dv578.4656$3E5.376456@newsread2.prod.itd.earthlink.net… – Hide quoted text — Show quoted text -> "arb" <lvrgrl041…@netscape.net> wrote in message > news:f41f7878.0202011834.a075264@posting.google.com… > > I am 28yrs old and have had lupus since ‘97. I would love to have > > people to talk to other my BH. He works with computers all day and > > when he comes home he is to tired to talk or he brings work home with > > him. I live in Montana just outside Yellowstone National Park. Hope > > to talk to you all soon. > > Thanks > > ARB ALICE > Hi Alice, > Glad to meet you! Sorry you meet the criteria for this ng. I’m somewhat > isolated too. I live just inside the Inyo National Forest in the Eastern > Sierras. Wonderful views, great air, animals, etc. but few folks and no > medical specialists. I have to go 225 miles to Reno NV to see a rheumy. > How far do you have to go? > Jackie
Response:
Well Jackie i don’t have to go quite that far. we have specialist about 83 miles away. But my DR. likes to send me to Billings which is 150 miles or so. The nearest hospital is at least 52 miles. I hope that you are well and that everybody on this chat page is doing good to day. Alice
Response:
Well Jackie i don’t have to go quite that far. we have specialist about 83 miles away. But my DR. likes to send me to Billings which is 150 miles or so. The nearest hospital is at least 52 miles. I hope that you are well and that everybody on this chat page is doing good to day. Alice"JARogow" <JARo…@home.com> wrote in message <news:zEe78.59757$B61.21458865@news1.rsm1.occa.home.com>… – Hide quoted text — Show quoted text -> Gee, we’ve got the Inyo national Forest, Death Valley, and Yellowstone. > Anyone here from Cape Cod National Seashore? Mt. Desert Island? > Tired, happy, hugs from SoCal to the Dowager and the Newbie > "Jackie" <lkolb…@earthlink.net> wrote in message > news:Dv578.4656$3E5.376456@newsread2.prod.itd.earthlink.net… > > "arb" <lvrgrl041…@netscape.net> wrote in message > > news:f41f7878.0202011834.a075264@posting.google.com… > > > I am 28yrs old and have had lupus since ‘97. I would love to have > > > people to talk to other my BH. He works with computers all day and > > > when he comes home he is to tired to talk or he brings work home with > > > him. I live in Montana just outside Yellowstone National Park. Hope > > > to talk to you all soon. > > > Thanks > > > ARB ALICE > > Hi Alice, > > Glad to meet you! Sorry you meet the criteria for this ng. I’m somewhat > > isolated too. I live just inside the Inyo National Forest in the Eastern > > Sierras. Wonderful views, great air, animals, etc. but few folks and no > > medical specialists. I have to go 225 miles to Reno NV to see a rheumy. > > How far do you have to go? > > Jackie
Response:
I have to consider myself really lucky. The I’m in CT and really close to Yale, which is where I go. Took the proximity for granted, won’t do that anymore. Teresa – Hide quoted text — Show quoted text -arb wrote: > Well Jackie i don’t have to go quite that far. we have specialist > about 83 miles away. But my DR. likes to send me to Billings which is > 150 miles or so. The nearest hospital is at least 52 miles. I hope > that you are well and that everybody on this chat page is doing good > to day. > Alice
Response:
Hi and Welcome to this site, I’m single, 52, had lupus since teenager and only dignoised when i was 34; this is a great place to talk and get info. hope you can stick around, love elfgirl "arb" <lvrgrl041…@netscape.net> wrote in message
news:f41f7878.0202011834.a075264@posting.google.com… > I am 28yrs old and have had lupus since ‘97. I would love to have > people to talk to other my BH. He works with computers all day and > when he comes home he is to tired to talk or he brings work home with > him. I live in Montana just outside Yellowstone National Park. Hope > to talk to you all soon. > Thanks > ARB ALICE
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Response:
"arb" <lvrgrl041…@netscape.net> wrote in message
news:f41f7878.0202011834.a075264@posting.google.com… > I am 28yrs old and have had lupus since ‘97. I would love to have > people to talk to other my BH. He works with computers all day and > when he comes home he is to tired to talk or he brings work home with > him. I live in Montana just outside Yellowstone National Park. Hope > to talk to you all soon. > Thanks > ARB ALICE
Hi Alice, Glad to meet you! Sorry you meet the criteria for this ng. I’m somewhat isolated too. I live just inside the Inyo National Forest in the Eastern Sierras. Wonderful views, great air, animals, etc. but few folks and no medical specialists. I have to go 225 miles to Reno NV to see a rheumy. How far do you have to go? Jackie
Response:
Hi BJ, Hope you’re feeling ok. I go tomorrow. Keeping my fingers crossed that at least the count stayed at 194K, then they will take the pred. down to 40 hopefully. I really hate the stuff, I’m starting to get swelling in my legs and cramps. The sleeping is a bit better, they also gave me Ambien for the nights that I just can’t fall asleep. This stuff is pretty good, works fast and I don’t feel like a zombie the next day. I only take it if I need it or when I have something important at work the next day that I have to be very alert for. I’ll post tomorrow and let you know. Take care Teresa – Hide quoted text — Show quoted text -BJ wrote: > Hi Teresa, > Have you had another blood test since the last good one? I hope the > platelets are still impressively high. I am due for a test this week. I > think it will be fine, now that I am back on the pred. I’m still plagued by > nosebleeds though. Oh well, it keeps things interesting. > BJ-enjoying the Sask. sunshine. > "Teresa" <tnowo…@snet.net> wrote in message > news:3C5BF71C.65B52A4E@snet.net… > > Hi Alice, > > I’m new here too. I’ve had Lupus for 21 years but recently have had a new > > problem related to my Lupus which led me here to ask questions and input. > Got > > both and more. Made me feel not quite so anxious. > > I was welcomed with open arms and support. The people here have been > > wonderful, BJ in particular. > > You will get a lot of support and smiles, it’s not all gloomy. > > Welcome. > > Teresa > > Sherry wrote: > > > Hi Alice, > > > Welcome to the group. I mostly just hang out and read but do jump in > every > > > once in awhile. Have learned so much, laughed a lot at ourselves and > with > > > everyone else, and made some good friends. Don’t think too many > actually > > > have met face to face but it is as if we really know one another and can > > > say, ask or share just about anything that comes to mind. > > > A few are absent or taking a break and there are lots of new > people….so > > > kick off your shoes, get a cup of coffee (or tea) (be careful with a > mouth > > > full of liquid when you read some of the posts….the screen gets > sprayed > > > frequently!) and hang out with the rest of us!!!! > > > Sherry
Response:
On 1 Feb 2002 18:34:34 -0800, lvrgrl041…@netscape.net (arb) wrote: >I am 28yrs old and have had lupus since ‘97. I would love to have >people to talk to other my BH. He works with computers all day and >when he comes home he is to tired to talk or he brings work home with >him. I live in Montana just outside Yellowstone National Park. Hope >to talk to you all soon. >Thanks >ARB ALICE
Hi Ya. My hubby is very understanding as well. And he works his backside off all week and is exhausted so I *try* not to witch and moan too much. it helps that I’ve felt pretty good these past few months. but ya still have to have someone to talk to – or email. Have you looked in your area for an LFA chapter. Probably not real promising given your location, but you never know. check out www.lupus.org and click on Chapters. It can help to have people in RL to talk to as well. I find ASL to be probably one of the best support groups online if not the best. Despite our "open" status (that is, the group is not moderated) we have very little in the way of flames or trolls or any other negative influences. I’d say we don’t get much spam but since I use newsguy, I probably have a biased view of that because newsguy blocks a lot of that. Anyway – it’s a wonderful group (as you know I’ve said) and I hope you find support here and look forward to getting to know you.
Response:
Hi Alice, Let us know how things go with the doc and your blood work. BJ-Canada "arb" <lvrgrl041…@netscape.net> wrote in message
news:f41f7878.0202020739.1b86df1d@posting.google.com… > actually they had me on predisone for a while but now iam aon > hydrocortisone twice a day. i just found a DR. here that knows how to > treat lupus just in November. the doctor has ordered pelvic exam and > a breast exam for me on Tuesday. plus blood work for my thyroid. > alice > "Trin" <trinit…@attbi.com> wrote in message
<news:TUJ68.2567$Ri2.7978@rwcrnsc54>… – Hide quoted text — Show quoted text -> > Hello i am trin i am sorta new here too but they are great people to talk > > to!! i have had lupus for almost 14yrs!! i am 26 now!! it is very hard at > > times!! i know i had to go though my teen years with it!! but youcan email > > me anytime if you want!! i will listen and try and help i have found a few > > friends here already!! yes john that means you and you bev as well!!! i > > am also known as mean mommy!! well i think i have written lot so far > > email me anytime or post something i check everyday!! Trin from IN > > "arb" <lvrgrl041…@netscape.net> wrote in message > > news:f41f7878.0202011834.a075264@posting.google.com… > > > I am 28yrs old and have had lupus since ‘97. I would love to have > > > people to talk to other my BH. He works with computers all day and > > > when he comes home he is to tired to talk or he brings work home with > > > him. I live in Montana just outside Yellowstone National Park. Hope > > > to talk to you all soon. > > > Thanks > > > ARB ALICE
Response:
Hi Teresa, Have you had another blood test since the last good one? I hope the platelets are still impressively high. I am due for a test this week. I think it will be fine, now that I am back on the pred. I’m still plagued by nosebleeds though. Oh well, it keeps things interesting. BJ-enjoying the Sask. sunshine. "Teresa" <tnowo…@snet.net> wrote in message
news:3C5BF71C.65B52A4E@snet.net… – Hide quoted text — Show quoted text -> Hi Alice, > I’m new here too. I’ve had Lupus for 21 years but recently have had a new > problem related to my Lupus which led me here to ask questions and input. Got > both and more. Made me feel not quite so anxious. > I was welcomed with open arms and support. The people here have been > wonderful, BJ in particular. > You will get a lot of support and smiles, it’s not all gloomy. > Welcome. > Teresa > Sherry wrote: > > Hi Alice, > > Welcome to the group. I mostly just hang out and read but do jump in every > > once in awhile. Have learned so much, laughed a lot at ourselves and with > > everyone else, and made some good friends. Don’t think too many actually > > have met face to face but it is as if we really know one another and can > > say, ask or share just about anything that comes to mind. > > A few are absent or taking a break and there are lots of new people….so > > kick off your shoes, get a cup of coffee (or tea) (be careful with a mouth > > full of liquid when you read some of the posts….the screen gets sprayed > > frequently!) and hang out with the rest of us!!!! > > Sherry
Response:
Hi Alice, Welcome to the group. I mostly just hang out and read but do jump in every once in awhile. Have learned so much, laughed a lot at ourselves and with everyone else, and made some good friends. Don’t think too many actually have met face to face but it is as if we really know one another and can say, ask or share just about anything that comes to mind. A few are absent or taking a break and there are lots of new people….so kick off your shoes, get a cup of coffee (or tea) (be careful with a mouth full of liquid when you read some of the posts….the screen gets sprayed frequently!) and hang out with the rest of us!!!! Sherry
Response:
Hi Alice, I’m new here too. I’ve had Lupus for 21 years but recently have had a new problem related to my Lupus which led me here to ask questions and input. Got both and more. Made me feel not quite so anxious. I was welcomed with open arms and support. The people here have been wonderful, BJ in particular. You will get a lot of support and smiles, it’s not all gloomy. Welcome. Teresa – Hide quoted text — Show quoted text -Sherry wrote: > Hi Alice, > Welcome to the group. I mostly just hang out and read but do jump in every > once in awhile. Have learned so much, laughed a lot at ourselves and with > everyone else, and made some good friends. Don’t think too many actually > have met face to face but it is as if we really know one another and can > say, ask or share just about anything that comes to mind. > A few are absent or taking a break and there are lots of new people….so > kick off your shoes, get a cup of coffee (or tea) (be careful with a mouth > full of liquid when you read some of the posts….the screen gets sprayed > frequently!) and hang out with the rest of us!!!! > Sherry
Response:
actually they had me on predisone for a while but now iam aon hydrocortisone twice a day. i just found a DR. here that knows how to treat lupus just in November. the doctor has ordered pelvic exam and a breast exam for me on Tuesday. plus blood work for my thyroid. alice – Hide quoted text — Show quoted text -"Trin" <trinit…@attbi.com> wrote in message <news:TUJ68.2567$Ri2.7978@rwcrnsc54>… > Hello i am trin i am sorta new here too but they are great people to talk > to!! i have had lupus for almost 14yrs!! i am 26 now!! it is very hard at > times!! i know i had to go though my teen years with it!! but youcan email > me anytime if you want!! i will listen and try and help i have found a few > friends here already!! yes john that means you and you bev as well!!! i > am also known as mean mommy!! well i think i have written lot so far > email me anytime or post something i check everyday!! Trin from IN > "arb" <lvrgrl041…@netscape.net> wrote in message > news:f41f7878.0202011834.a075264@posting.google.com… > > I am 28yrs old and have had lupus since ‘97. I would love to have > > people to talk to other my BH. He works with computers all day and > > when he comes home he is to tired to talk or he brings work home with > > him. I live in Montana just outside Yellowstone National Park. Hope > > to talk to you all soon. > > Thanks > > ARB ALICE
Response:
Hi Alice, Welcome to the group. I live in Canada. I am famous for complaining about the cold. This is a great group. You will find them knowledgeable and very willing to listen. I have found it most helpful. My hubby is good too, but I don’t like to worry or burden him needlessly. It is nice to have a place where one can be free to say anything. It is sometimes a little quiet over the weekend. You will be sure to get lots of replies soon. Talk to us often. BJ-Saskatchewan, Canada "arb" <lvrgrl041…@netscape.net> wrote in message
news:f41f7878.0202011834.a075264@posting.google.com… – Hide quoted text — Show quoted text -> I am 28yrs old and have had lupus since ‘97. I would love to have > people to talk to other my BH. He works with computers all day and > when he comes home he is to tired to talk or he brings work home with > him. I live in Montana just outside Yellowstone National Park. Hope > to talk to you all soon. > Thanks > ARB ALICE
Response:
In article <f41f7878.0202011834.a075…@posting.google.com>, lvrgrl041…@netscape.net (arb) wrote: > I am 28yrs old and have had lupus since ‘97. I would love to have > people to talk to other my BH. He works with computers all day and > when he comes home he is to tired to talk or he brings work home with > him. I live in Montana just outside Yellowstone National Park. Hope > to talk to you all soon. > Thanks > ARB ALICE
Hi Alice, Glad you found us because this group is wonderful for information and fun. I have made some really lasting friendships that have been so supportive when lupus overwhelmes your life. Have had lupus diagnosed for l6 years. Are the Drs. treating you with the usual prednisone and plaquinel? Hope that they are agressive and not just letting you coast alone. Will sign off now and let the more knowledgeable folk take over. Glad to see your post ruth
Response:
I am 28yrs old and have had lupus since ‘97. I would love to have people to talk to other my BH. He works with computers all day and when he comes home he is to tired to talk or he brings work home with him. I live in Montana just outside Yellowstone National Park. Hope to talk to you all soon. Thanks ARB ALICE
Response:
Hello i am trin i am sorta new here too but they are great people to talk to!! i have had lupus for almost 14yrs!! i am 26 now!! it is very hard at times!! i know i had to go though my teen years with it!! but youcan email me anytime if you want!! i will listen and try and help i have found a few friends here already!! yes john that means you and you bev as well!!! i am also known as mean mommy!! well i think i have written lot so far email me anytime or post something i check everyday!! Trin from IN "arb" <lvrgrl041…@netscape.net> wrote in message
news:f41f7878.0202011834.a075264@posting.google.com… – Hide quoted text — Show quoted text -> I am 28yrs old and have had lupus since ‘97. I would love to have > people to talk to other my BH. He works with computers all day and > when he comes home he is to tired to talk or he brings work home with > him. I live in Montana just outside Yellowstone National Park. Hope > to talk to you all soon. > Thanks > ARB ALICE
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