Question:
I went to my Rheumy yesterday, who also does my pain management. I have been asking him since March if we could change my Duragesic from every 72 hours, to every 48 hours, as they don’t work for 3 days, and now that it’s warm, they don’t even stay put that long (even with the bioclusive patches). So, FINALLY, he wrote the prescription for #15 at every 48 hours. Whew! So, that’s the good news…. My thyroid is once again under attack by the lupus antibodies. I have been Hypothyroid for about 5 years, and now, all of a sudden, I am *severely* HYPERthyroid. My doc says that he has only seen about two others with levels as high as mine were. So, we are adjusting the Synthroid, with hopes that it will calm down, but my doc is hesitant to think it will because the Lupus just LOVES things like the thyroid, and it’s a lot harder to control hyperthyroidism than it is to control hypothyroidism. So, I might have to have a thyroid biopsy if my next labs come back screwed up. This could explain why I have been so shaky, and also why I lost 9lbs in the past 4 weeks (I am happy about this, but my doc says it’s probably because of the hyperthyroid…I sort of don’t want to go down on the medicine since I need to lose about 20 more pounds…I have lost 38lbs so far now…but with every visit in recent months, even without the hyperthyroid, I have been losing weight). Anyhow, my other labs came back not so good as well, and that explains why I feel so damn awful. Also, he put me on another Beta-Blocker because my heart beat is so erratic. Even doc was worried that this could cause a heart attack. I usually don’t see him this concerned. Sorry I haven’t been really posing a lot lately. I am just having a really hard time, with pain and just with not feeling well. Typing is getting to be impossible, and this computer can’t handle any voice software (not enough hard drive space, and computer is too old), and I can’t sit here anymore more than a few minutes. Right now, my neck and lower back hurt so bad, I can’t stand it. I took my breakthrough medication (and yesterday, my Rheumy told me I could take 2 as needed, but didn’t change the amount…I guess he forgot and with him upping the Duragesic for me, I didn’t want to push things), and it isn’t helping. I feel like such a failure…laying on the couch all day, and not being able to do much of anything. My house, though basically clean already, needs a lot of work, and Rich doesn’t want to do it, and I cant do it. It’s too damn frustrating. Rooms need to be painted, and walls need to be washed down. Also, the carpet needs steam-cleaning. Plus, we just can’t afford to do these things anyway…finances are *really* bad, and that’s also why I feel like a failure, because I can’t work, and can’t contribute. I need a haircut so bad right now, and can’t get one. My hair is a *mess* and I can’t hold my arms up long to shampoo it and brush it, so I need a couple of inches taken off, and also some thinning done (I have very thick hair). I am very sick of bad hair days now…LOL. I’m sorry…I am rambling. I just feel like crap. Have to go lay down. I wish I had a laptop…would be much easier to lay down and read all the posts. I will try to read some now, but I am almost to the breaking point here. 
Love to all, Nikki "… lost in the darkness of my own circumstance, criticizing echoes leaving me awake in the night… the barrier and blockades that keep me safe and in control while I pretend that I am okay… "
Response:
Nikki at least there a bit of good news in that he increased the frequency of your pain patch. I sure know that pain when you try to lift your arms to do your hair. Crushing chest pain. What causes that anyway? These days I’m glad the man hassled me to let my hair keep growing. There’s not as much pain to it if you can get it washed in the shower and just let it dry. Not like fooling around with trying to style short hair. A french braid and I’m ready for wine and candlelight…well dilaudid and candlelight at least:) I figure they’re going to find a cure for Lupus within 5 years and then we’ll be ok. Acourse I said that 5 years ago too. I hope things get better. Would you like to be an official member of the FCB? love, catherine
– Hide quoted text — Show quoted text – I went to my Rheumy yesterday, who also does my pain management. I have been asking him since March if we could change my Duragesic from every 72 hours, to every 48 hours, as they don’t work for 3 days, and now that it’s warm, they don’t even stay put that long (even with the bioclusive patches). So, FINALLY, he wrote the prescription for #15 at every 48 hours. Whew! So, that’s the good news…. My thyroid is once again under attack by the lupus antibodies. I have been Hypothyroid for about 5 years, and now, all of a sudden, I am *severely* HYPERthyroid. My doc says that he has only seen about two others with levels as high as mine were. So, we are adjusting the Synthroid, with hopes that it will calm down, but my doc is hesitant to think it will because the Lupus just LOVES things like the thyroid, and it’s a lot harder to control hyperthyroidism than it is to control hypothyroidism. So, I might have to have a thyroid biopsy if my next labs come back screwed up. This could explain why I have been so shaky, and also why I lost 9lbs in the past 4 weeks (I am happy about this, but my doc says it’s probably because of the hyperthyroid…I sort of don’t want to go down on the medicine since I need to lose about 20 more pounds…I have lost 38lbs so far now…but with every visit in recent months, even without the hyperthyroid, I have been losing weight). Anyhow, my other labs came back not so good as well, and that explains why I feel so damn awful. Also, he put me on another Beta-Blocker because my heart beat is so erratic. Even doc was worried that this could cause a heart attack. I usually don’t see him this concerned. Sorry I haven’t been really posing a lot lately. I am just having a really hard time, with pain and just with not feeling well. Typing is getting to be impossible, and this computer can’t handle any voice software (not enough hard drive space, and computer is too old), and I can’t sit here anymore more than a few minutes. Right now, my neck and lower back hurt so bad, I can’t stand it. I took my breakthrough medication (and yesterday, my Rheumy told me I could take 2 as needed, but didn’t change the amount…I guess he forgot and with him upping the Duragesic for me, I didn’t want to push things), and it isn’t helping. I feel like such a failure…laying on the couch all day, and not being able to do much of anything. My house, though basically clean already, needs a lot of work, and Rich doesn’t want to do it, and I cant do it. It’s too damn frustrating. Rooms need to be painted, and walls need to be washed down. Also, the carpet needs steam-cleaning. Plus, we just can’t afford to do these things anyway…finances are *really* bad, and that’s also why I feel like a failure, because I can’t work, and can’t contribute. I need a haircut so bad right now, and can’t get one. My hair is a *mess* and I can’t hold my arms up long to shampoo it and brush it, so I need a couple of inches taken off, and also some thinning done (I have very thick hair). I am very sick of bad hair days now…LOL. I’m sorry…I am rambling. I just feel like crap. Have to go lay down. I wish I had a laptop…would be much easier to lay down and read all the posts. I will try to read some now, but I am almost to the breaking point here. Love to all, Nikki "… lost in the darkness of my own circumstance, criticizing echoes leaving me awake in the night… the barrier and blockades that keep me safe and in control while I pretend that I am okay… "
Response:
Nikki: If you are on Synthroid the problem may be with the medication itself and not you at all! I read an article in the Wall Street Journal either last week or the week before last…sorry Darlin’ my migraine is giving me fits, that stated the medication was and is having serious quality control problems. You can get way too much one script and too little the next or even mixed!!! It also stated that Synthroid has never been FDA approved, nor does it look like it’s going to make the August 2001 deadline to get approval! I will dig and dig until I find it and send it to you. Just thought I would mention it as my doctor also saw it and called me in a different brand this month to make sure I am stable and stay that way. I KNOW that article was in the last couple of weeks…damn I will find it! Sorry you are feeling so poorly….sigh….hope it improves soon. Take Care, Deanie – Hide quoted text — Show quoted text -I went to my Rheumy yesterday, who also does my pain management. I have been asking him since March if we could change my Duragesic from every 72 hours, to every 48 hours, as they don’t work for 3 days, and now that it’s warm, they don’t even stay put that long (even with the bioclusive patches). So, FINALLY, he wrote the prescription for #15 at every 48 hours. Whew! So, that’s the good news…. My thyroid is once again under attack by the lupus antibodies. I have been Hypothyroid for about 5 years, and now, all of a sudden, I am *severely* HYPERthyroid. My doc says that he has only seen about two others with levels as high as mine were. So, we are adjusting the Synthroid, with hopes that it will calm down, but my doc is hesitant to think it will because the Lupus just LOVES things like the thyroid, and it’s a lot harder to control hyperthyroidism than it is to control hypothyroidism. So, I might have to have a thyroid biopsy if my next labs come back screwed up. This could explain why I have been so shaky, and also why I lost 9lbs in the past 4 weeks (I am happy about this, but my doc says it’s probably because of the hyperthyroid…I sort of don’t want to go down on the medicine since I need to lose about 20 more pounds…I have lost 38lbs so far now…but with every visit in recent months, even without the hyperthyroid, I have been losing weight). Anyhow, my other labs came back not so good as well, and that explains why I feel so damn awful. Also, he put me on another Beta-Blocker because my heart beat is so erratic. Even doc was worried that this could cause a heart attack. I usually don’t see him this concerned. Sorry I haven’t been really posing a lot lately. I am just having a really hard time, with pain and just with not feeling well. Typing is getting to be impossible, and this computer can’t handle any voice software (not enough hard drive space, and computer is too old), and I can’t sit here anymore more than a few minutes. Right now, my neck and lower back hurt so bad, I can’t stand it. I took my breakthrough medication (and yesterday, my Rheumy told me I could take 2 as needed, but didn’t change the amount…I guess he forgot and with him upping the Duragesic for me, I didn’t want to push things), and it isn’t helping. I feel like such a failure…laying on the couch all day, and not being able to do much of anything. My house, though basically clean already, needs a lot of work, and Rich doesn’t want to do it, and I cant do it. It’s too damn frustrating. Rooms need to be painted, and walls need to be washed down. Also, the carpet needs steam-cleaning. Plus, we just can’t afford to do these things anyway…finances are *really* bad, and that’s also why I feel like a failure, because I can’t work, and can’t contribute. I need a haircut so bad right now, and can’t get one. My hair is a *mess* and I can’t hold my arms up long to shampoo it and brush it, so I need a couple of inches taken off, and also some thinning done (I have very thick hair). I am very sick of bad hair days now…LOL. I’m sorry…I am rambling. I just feel like crap. Have to go lay down. I wish I had a laptop…would be much easier to lay down and read all the posts. I will try to read some now, but I am almost to the breaking point here. Love to all, Nikki "… lost in the darkness of my own circumstance, criticizing echoes leaving me awake in the night… the barrier and blockades that keep me safe and in control while I pretend that I am okay… "
Response:
I’m sorry Nikki that things aren’t going too well for you. Hopefully the Duragesic at closer intervals will help. Can you ring the doctor and explain that he didn’t change a prescription that he said he would? I think if he said he would, it’s reasonable to ask him to follow through, without it seeming like it’s pushing. With regards to the computer – when I stopped working in an office about 4 years ago because of my back, my notebook was a life-saver, as I could use it lying down. I had one of those hospital-type tray tables at the side of the bed and rested the computer on that. They are more expensive than desktops, so I realise you couldn’t buy one, but would it be possible to set up your existing computer so that you can use it lying down? A couple of options include having it on a table next to the bed, with the monitor on a computer arm (if you can get hold of one) so it can swing out into the line of sight, or on a coffee table under which you slide so that you’re lying on the floor (or on a mattress on the floor). Hope that helps, I know how wonderful it is when you can’t manage much else to be able to use a computer without making things worse. — Katharine S. spamblock in action
I went to my Rheumy yesterday, who also does my pain management. I have been asking him since March if we could change my Duragesic from every 72 hours, to every 48 hours, as they don’t work for 3 days, and now that it’s warm, they don’t even stay put that long (even with the bioclusive patches). So, FINALLY, he wrote the prescription for #15 at every 48 hours. Whew! So, that’s the good news….
snipped
Response:
What’s the FCB? (forgivejme for top posting…in a ton of pain Nikki – Hide quoted text — Show quoted text – Nikki at least there a bit of good news in that he increased the frequency of your pain patch. I sure know that pain when you try to lift your arms to do your hair. Crushing chest pain. What causes that anyway? These days I’m glad the man hassled me to let my hair keep growing. There’s not as much pain to it if you can get it washed in the shower and just let it dry. Not like fooling around with trying to style short hair. A french braid and I’m ready for wine and candlelight…well dilaudid and candlelight at least:) I figure they’re going to find a cure for Lupus within 5 years and then we’ll be ok. Acourse I said that 5 years ago too. I hope things get better. Would you like to be an official member of the FCB? love, catherine I went to my Rheumy yesterday, who also does my pain management. I have been asking him since March if we could change my Duragesic from every 72 hours, to every 48 hours, as they don’t work for 3 days, and now that it’s warm, they don’t even stay put that long (even with the bioclusive patches). So, FINALLY, he wrote the prescription for #15 at every 48 hours. Whew! So, that’s the good news…. My thyroid is once again under attack by the lupus antibodies. I have been Hypothyroid for about 5 years, and now, all of a sudden, I am *severely* HYPERthyroid. My doc says that he has only seen about two others with levels as high as mine were. So, we are adjusting the Synthroid, with hopes that it will calm down, but my doc is hesitant to think it will because the Lupus just LOVES things like the thyroid, and it’s a lot harder to control hyperthyroidism than it is to control hypothyroidism. So, I might have to have a thyroid biopsy if my next labs come back screwed up. This could explain why I have been so shaky, and also why I lost 9lbs in the past 4 weeks (I am happy about this, but my doc says it’s probably because of the hyperthyroid…I sort of don’t want to go down on the medicine since I need to lose about 20 more pounds…I have lost 38lbs so far now…but with every visit in recent months, even without the hyperthyroid, I have been losing weight). Anyhow, my other labs came back not so good as well, and that explains why I feel so damn awful. Also, he put me on another Beta-Blocker because my heart beat is so erratic. Even doc was worried that this could cause a heart attack. I usually don’t see him this concerned. Sorry I haven’t been really posing a lot lately. I am just having a really hard time, with pain and just with not feeling well. Typing is getting to be impossible, and this computer can’t handle any voice software (not enough hard drive space, and computer is too old), and I can’t sit here anymore more than a few minutes. Right now, my neck and lower back hurt so bad, I can’t stand it. I took my breakthrough medication (and yesterday, my Rheumy told me I could take 2 as needed, but didn’t change the amount…I guess he forgot and with him upping the Duragesic for me, I didn’t want to push things), and it isn’t helping. I feel like such a failure…laying on the couch all day, and not being able to do much of anything. My house, though basically clean already, needs a lot of work, and Rich doesn’t want to do it, and I cant do it. It’s too damn frustrating. Rooms need to be painted, and walls need to be washed down. Also, the carpet needs steam-cleaning. Plus, we just can’t afford to do these things anyway…finances are *really* bad, and that’s also why I feel like a failure, because I can’t work, and can’t contribute. I need a haircut so bad right now, and can’t get one. My hair is a *mess* and I can’t hold my arms up long to shampoo it and brush it, so I need a couple of inches taken off, and also some thinning done (I have very thick hair). I am very sick of bad hair days now…LOL. I’m sorry…I am rambling. I just feel like crap. Have to go lay down. I wish I had a laptop…would be much easier to lay down and read all the posts. I will try to read some now, but I am almost to the breaking point here. Love to all, Nikki "… lost in the darkness of my own circumstance, criticizing echoes leaving me awake in the night… the barrier and blockades that keep me safe and in control while I pretend that I am okay… "
"… lost in the darkness of my own circumstance, criticizing echoes leaving me awake in the night… the barrier and blockades that keep me safe and in control while I pretend that I am okay… "
Response:
The FBC is the Fugn Crybabies Club…..taking names for membership now.
– Hide quoted text — Show quoted text – What’s the FCB? (forgivejme for top posting…in a ton of pain Nikki Nikki at least there a bit of good news in that he increased the frequency of your pain patch. I sure know that pain when you try to lift your arms to do your hair. Crushing chest pain. What causes that anyway? These days I’m glad the man hassled me to let my hair keep growing. There’s not as much pain to it if you can get it washed in the shower and just let it dry. Not like fooling around with trying to style short hair. A french braid and I’m ready for wine and candlelight…well dilaudid and candlelight at least:) I figure they’re going to find a cure for Lupus within 5 years and then we’ll be ok. Acourse I said that 5 years ago too. I hope things get better. Would you like to be an official member of the FCB? love, catherine I went to my Rheumy yesterday, who also does my pain management. I have been asking him since March if we could change my Duragesic from every 72 hours, to every 48 hours, as they don’t work for 3 days, and now that it’s warm, they don’t even stay put that long (even with the bioclusive patches). So, FINALLY, he wrote the prescription for #15 at every 48 hours. Whew! So, that’s the good news…. My thyroid is once again under attack by the lupus antibodies. I have been Hypothyroid for about 5 years, and now, all of a sudden, I am *severely* HYPERthyroid. My doc says that he has only seen about two others with levels as high as mine were. So, we are adjusting the Synthroid, with hopes that it will calm down, but my doc is hesitant to think it will because the Lupus just LOVES things like the thyroid, and it’s a lot harder to control hyperthyroidism than it is to control hypothyroidism. So, I might have to have a thyroid biopsy if my next labs come back screwed up. This could explain why I have been so shaky, and also why I lost 9lbs in the past 4 weeks (I am happy about this, but my doc says it’s probably because of the hyperthyroid…I sort of don’t want to go down on the medicine since I need to lose about 20 more pounds…I have lost 38lbs so far now…but with every visit in recent months, even without the hyperthyroid, I have been losing weight). Anyhow, my other labs came back not so good as well, and that explains why I feel so damn awful. Also, he put me on another Beta-Blocker because my heart beat is so erratic. Even doc was worried that this could cause a heart attack. I usually don’t see him this concerned. Sorry I haven’t been really posing a lot lately. I am just having a really hard time, with pain and just with not feeling well. Typing is getting to be impossible, and this computer can’t handle any voice software (not enough hard drive space, and computer is too old), and I can’t sit here anymore more than a few minutes. Right now, my neck and lower back hurt so bad, I can’t stand it. I took my breakthrough medication (and yesterday, my Rheumy told me I could take 2 as needed, but didn’t change the amount…I guess he forgot and with him upping the Duragesic for me, I didn’t want to push things), and it isn’t helping. I feel like such a failure…laying on the couch all day, and not being able to do much of anything. My house, though basically clean already, needs a lot of work, and Rich doesn’t want to do it, and I cant do it. It’s too damn frustrating. Rooms need to be painted, and walls need to be washed down. Also, the carpet needs steam-cleaning. Plus, we just can’t afford to do these things anyway…finances are *really* bad, and that’s also why I feel like a failure, because I can’t work, and can’t contribute. I need a haircut so bad right now, and can’t get one. My hair is a *mess* and I can’t hold my arms up long to shampoo it and brush it, so I need a couple of inches taken off, and also some thinning done (I have very thick hair). I am very sick of bad hair days now…LOL. I’m sorry…I am rambling. I just feel like crap. Have to go lay down. I wish I had a laptop…would be much easier to lay down and read all the posts. I will try to read some now, but I am almost to the breaking point here. Love to all, Nikki "… lost in the darkness of my own circumstance, criticizing echoes leaving me awake in the night… the barrier and blockades that keep me safe and in control while I pretend that I am okay… " "… lost in the darkness of my own circumstance, criticizing echoes leaving me awake in the night… the barrier and blockades that keep me safe and in control while I pretend that I am okay… "
Response:
I have a giant butt with more wrinkles than Strom Thumond! I can also procure little boys for both Ziggy and Crafty. Meet me in chat and I will send pics!
Gee… We are all rolling on the floor laughing our wrinkly old asses off but I think you should take such honesty about yourselves to email. + I think that anyone who wants to shove stuff up their butt should be able to keep whatever it is they stuck up there. http://rackjite.com +
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