Question:
On Tue, 02 Jan 2001 05:35:09 GMT, bassward <bassw…@flash.net> wrote: >KCat I’m so glad you found a little relief. I am so pi****d at the drs for ignoring you. I also find it interesting >,the whole valium thing. as my left leg from knee down has been like a raw nerve foot especially since lowering >Prednisone, bad no relief from all the pain meds so took one of my father in laws valium to get some rest and low >and behold my foot felt better it is interesting. Going to ask rheumy bout that. Good luck tomorrow >Love Cindy
cindy – do bring this up. There are two things valium does in terms of pain control (according to the urol yesterday). It is actually an "excellent" muscle relaxant and is prescribed for that purpose. He described how it is used when someone dislocates their shoulder – a shot directly to the shoulder of valium, the muscles can litterally be watched to "give way" and completely relax, then the shoulder can be popped easily (and *relatively* painlessly) back into the socket. the other thing it does is block the signal of the pain/spasm to the brain which though very helpful, doesn’t address the cause of the problem. It doesn’t work like an opiate in blocking pain but it’s similar in result. I think you should talk to your doc about it. the "raw nerve" feeling you’ve been having may actually be bad spasms from the muscle damage that pred does. doing okay today – the ditropan is *not* as affective as the valium in some ways but better in that I’m not rushing to the bathroom every 45 minutes. the pressure is much reduced and I’m kinda just burning at this point. it may be that some combination is necessary or it may be that I end up in outpatient on Friday after all. But at this point, I’m not sure I would mind that if I knew it would make life easier for a few months. *********************************** KCat – I am not a medical professional. The contents of this post are based soley on my experiences and opinions http://www.ghg.net/schwerpt/mypage.htm http://www.ghg.net/schwerpt/aslfaq20.htm ("`-”-/").___..–”"`-._ (`6_ 6 ) `-. ( ).`-.__.’`) (_Y_.)’ ._ ) `._ `. “-..-” _..`–’_..-_/ /–’_.’ ,’ (()),-” (()),’ (((.-’
Response:
In article <jm725tcuo6m89qbvg25sr9u9q77jebh…@4ax.com>, KCat <kcdoc…@ghg.net> wrote [...] >anyway – as you can see I’m doing well enough to babble.
Hallelujah! — Andy For Austrian philately <URL: http://www.kitzbuhel.demon.co.uk/austamps/> For Lupus <URL: http://www.kitzbuhel.demon.co.uk/lupus/> For my other interests <URL: http://www.kitzbuhel.demon.co.uk/>
Response:
On Mon, 1 Jan 2001 22:07:13 -0500, "Janers" <rojak…@bright.net> wrote: >Well thank good ness something is going to get done here. I got your note >and I am glad you are at least feeling a little better and tomorrow will >find the answers you need… >What is the Lupus-L did I miss a lupus support group here….’ >If and when you feel better please let us know and maybe give me some info >on the Lupus-L thing a ma gig…LOL >You take care and we’ll be waiting >Janers
Lupus-L is a mailing list available through Hamline University. Probably one of the best mailing lists out there (though I have to rate it and this group equal but different). If you’re interested let me know and I’ll show you how to get to it – it’s something you have to download as email vs. a usenet group so some people don’t like wading through the emails. I posted an update. love and hugs, *********************************** KCat – I am not a medical professional. The contents of this post are based soley on my experiences and opinions http://www.ghg.net/schwerpt/mypage.htm http://www.ghg.net/schwerpt/aslfaq20.htm ("`-”-/").___..–”"`-._ (`6_ 6 ) `-. ( ).`-.__.’`) (_Y_.)’ ._ ) `._ `. “-..-” _..`–’_..-_/ /–’_.’ ,’ (()),-” (()),’ (((.-’
Response:
In article <3A5168A1.14BF3…@flash.net>, KCat~~~~You are in my prayers~~I know how horrible the bladder spasms, and retention, and the pain from my last 3 flares. I’m not at all surprised that the valium helped—it truly sounds like spasms were released as you took it. Sometimes I get the same relief from my Xanax in my right lower leg, just as Bassward was relating. The ER would have cathed you, probably left it in, and then had you see a urologist today—-you are one brave soul to have gotten through the night, and that effort will surely be rewarded today. The urologist that I saw was so wonderful, and I was so sick when we went to see him~~~I will pray that you are as fortunate with the urologist who sees you. It seems as though we’ve all been through our trials recently. Perhaps now you can understand why all of you are so important to me when I’m down. I haven’t even been to the computer that much this past two weeks–much to Janers’ despair!!! I am just gradually working back up from my last flare, and trying so hard to be "good", so that Kris doesn’t have the worry of me being down while he’s been plowing overtime the last 10 days. Now, rest, and Ron will be there to give you a hug and support. We all depend on you so much, now is the time for you to let us help you!!! When you’re able, and feel up to letting us know how you are, please post. (((((Kim)))) p.s.~~~I don’t blame you for not wanting to go to the ER, sometimes the thought of being put through the wringer is just too much, and you know who you need to see. Stay strong!!! Kimbassw…@flash.net wrote: > KCat I’m so glad you found a little relief. I am so pi****d at the
drs for ignoring you. I also find it interesting > ,the whole valium thing. as my left leg from knee down has been like
a raw nerve foot especially since lowering > Prednisone, bad no relief from all the pain meds so took one of my
father in laws valium to get some rest and low > and behold my foot felt better it is interesting. Going to ask
rheumy bout that. Good luck tomorrow – Hide quoted text — Show quoted text -> Love Cindy > KCat wrote: > > This will be posted to both Lupus-L and ASL. Both groups have been a > > godsend. > > I did not go to the ER. God only knows how I got through last night > > but I did. Actually – I suspect He got me through it. > > This a.m. I got desperate. Thought – well, at the very least I can > > take one of Ron’s valiums (From his surgery in Nov.) and sleep through > > the agony. Well, lo and behold if that didn’t nip this damn bladder > > pain in the … bud. The discomfort is still there but it negligible. > > The main reason I chose not to go to the ER was because I really think > > the only doctor that can even begin to formulate an idea about what is > > wrong is a urologist – The urologist. Our plan is to get up in the > > a.m. and show up at his office and demand to be worked in. I will be > > out of valium by then (taking 2.5 mgs – one 5 mg split). 5 mgs would > > probably put me into complete relief but I have only enough at 1/2 > > tablet to get me through to tomorrow mid-day. > > so… I suppose this gives us a clue as to what is happening – maybe > > some weird neurogenic thing? I am feeling better and I have hope > > again which is the first time in 6 days. I also was actually sorta > > hungry. I don’t know how I got on this slippery slope from last week > > but I am thankful I had you all to talk to and to offer advice and > > support. I know I didn’t *take* that advice in many cases, but just > > the fact that people cared and were trying so hard to help – made a > > huge difference in my ability to get through "just one more hour". > > This morning was looking like the end of my rope. I couldn’t stop > > crying and I told hubby I was ready to go to the ER. He talked me out > > of it – he is concerned I’ll get substandard care from people who know > > next to nothing about urology. I don’t know if we made the right > > decision – but there it is. > > I couldn’t reach any of my doctors for any kind of approval > > (technically if it’s not life-threatening you’re supposed to call and > > get them to call the ER to say "yes, you can treat her" (lovely HMOs). > > I tried to call the urologist but becuase I haven’t actually *seen* > > him for myself as yet, the answering service said they were not > > allowed under any circumstances to page him. I started sobbing over > > the phone and she was like "well, have a nice new years, ma’am." > > yeah… **** you too. I’m sure there are competent residents or the > > like out there on ER duty on NYDay. But I’m not sure I would have > > gotten one. And I’d tried the pain med route which just made me more > > nauseated. > > anyway – as you can see I’m doing well enough to babble. Now all I > > can do is pray that when I walk in to his office tomorrow they won’t > > call security on the crazy lady screaming for help. > > love you all. thank you all so much for helping. > > heh… now I have stomach cramps because I’ve eaten solid food this > > evening. I’ll take it!!!! > > kcat > > *********************************** > > KCat – I am not a medical professional. The contents of this post
are based soley on my experiences and opinions > > http://www.ghg.net/schwerpt/mypage.htm > > http://www.ghg.net/schwerpt/aslfaq20.htm > > ("`-”-/").___..–”"`-._ > > (`6_ 6 ) `-. ( ).`-.__.’`) > > (_Y_.)’ ._ ) `._ `. “-..-” > > _..`–’_..-_/ /–’_.’ ,’ > > (()),-” (()),’ (((.-’
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Response:
"Sherry" <sstof…@inreach.com> wrote in message
news:7Nc46.4819$9U1.151392@news.inreach.com… > KC, glad that you have found a bit of relief and I hope that the urologist > will see you immediately. As we know if it were them or a member of their > family they would be just as insistant on treatment. > Keep getting better! You are in my thoughts and prayers.
And mine! I’m sure you’ll mention the fact that a sedative helped. You might have been having spasms that nothing else touched. HAPPY 2001! Judith in SoCal
Response:
Well thank good ness something is going to get done here. I got your note and I am glad you are at least feeling a little better and tomorrow will find the answers you need… What is the Lupus-L did I miss a lupus support group here….’ If and when you feel better please let us know and maybe give me some info on the Lupus-L thing a ma gig…LOL You take care and we’ll be waiting Janers
Response:
KC, glad that you have found a bit of relief and I hope that the urologist will see you immediately. As we know if it were them or a member of their family they would be just as insistant on treatment. Keep getting better! You are in my thoughts and prayers. Sherry
Response:
KCat I’m so glad you found a little relief. I am so pi****d at the drs for ignoring you. I also find it interesting ,the whole valium thing. as my left leg from knee down has been like a raw nerve foot especially since lowering Prednisone, bad no relief from all the pain meds so took one of my father in laws valium to get some rest and low and behold my foot felt better it is interesting. Going to ask rheumy bout that. Good luck tomorrow Love Cindy – Hide quoted text — Show quoted text -KCat wrote: > This will be posted to both Lupus-L and ASL. Both groups have been a > godsend. > I did not go to the ER. God only knows how I got through last night > but I did. Actually – I suspect He got me through it. > This a.m. I got desperate. Thought – well, at the very least I can > take one of Ron’s valiums (From his surgery in Nov.) and sleep through > the agony. Well, lo and behold if that didn’t nip this damn bladder > pain in the … bud. The discomfort is still there but it negligible. > The main reason I chose not to go to the ER was because I really think > the only doctor that can even begin to formulate an idea about what is > wrong is a urologist – The urologist. Our plan is to get up in the > a.m. and show up at his office and demand to be worked in. I will be > out of valium by then (taking 2.5 mgs – one 5 mg split). 5 mgs would > probably put me into complete relief but I have only enough at 1/2 > tablet to get me through to tomorrow mid-day. > so… I suppose this gives us a clue as to what is happening – maybe > some weird neurogenic thing? I am feeling better and I have hope > again which is the first time in 6 days. I also was actually sorta > hungry. I don’t know how I got on this slippery slope from last week > but I am thankful I had you all to talk to and to offer advice and > support. I know I didn’t *take* that advice in many cases, but just > the fact that people cared and were trying so hard to help – made a > huge difference in my ability to get through "just one more hour". > This morning was looking like the end of my rope. I couldn’t stop > crying and I told hubby I was ready to go to the ER. He talked me out > of it – he is concerned I’ll get substandard care from people who know > next to nothing about urology. I don’t know if we made the right > decision – but there it is. > I couldn’t reach any of my doctors for any kind of approval > (technically if it’s not life-threatening you’re supposed to call and > get them to call the ER to say "yes, you can treat her" (lovely HMOs). > I tried to call the urologist but becuase I haven’t actually *seen* > him for myself as yet, the answering service said they were not > allowed under any circumstances to page him. I started sobbing over > the phone and she was like "well, have a nice new years, ma’am." > yeah… **** you too. I’m sure there are competent residents or the > like out there on ER duty on NYDay. But I’m not sure I would have > gotten one. And I’d tried the pain med route which just made me more > nauseated. > anyway – as you can see I’m doing well enough to babble. Now all I > can do is pray that when I walk in to his office tomorrow they won’t > call security on the crazy lady screaming for help. > love you all. thank you all so much for helping. > heh… now I have stomach cramps because I’ve eaten solid food this > evening. I’ll take it!!!! > kcat > *********************************** > KCat – I am not a medical professional. The contents of this post are based soley on my experiences and opinions > http://www.ghg.net/schwerpt/mypage.htm > http://www.ghg.net/schwerpt/aslfaq20.htm > ("`-”-/").___..–”"`-._ > (`6_ 6 ) `-. ( ).`-.__.’`) > (_Y_.)’ ._ ) `._ `. “-..-” > _..`–’_..-_/ /–’_.’ ,’ > (()),-” (()),’ (((.-’
Response:
This will be posted to both Lupus-L and ASL. Both groups have been a godsend. I did not go to the ER. God only knows how I got through last night but I did. Actually – I suspect He got me through it. This a.m. I got desperate. Thought – well, at the very least I can take one of Ron’s valiums (From his surgery in Nov.) and sleep through the agony. Well, lo and behold if that didn’t nip this damn bladder pain in the … bud. The discomfort is still there but it negligible. The main reason I chose not to go to the ER was because I really think the only doctor that can even begin to formulate an idea about what is wrong is a urologist – The urologist. Our plan is to get up in the a.m. and show up at his office and demand to be worked in. I will be out of valium by then (taking 2.5 mgs – one 5 mg split). 5 mgs would probably put me into complete relief but I have only enough at 1/2 tablet to get me through to tomorrow mid-day. so… I suppose this gives us a clue as to what is happening – maybe some weird neurogenic thing? I am feeling better and I have hope again which is the first time in 6 days. I also was actually sorta hungry. I don’t know how I got on this slippery slope from last week but I am thankful I had you all to talk to and to offer advice and support. I know I didn’t *take* that advice in many cases, but just the fact that people cared and were trying so hard to help – made a huge difference in my ability to get through "just one more hour". This morning was looking like the end of my rope. I couldn’t stop crying and I told hubby I was ready to go to the ER. He talked me out of it – he is concerned I’ll get substandard care from people who know next to nothing about urology. I don’t know if we made the right decision – but there it is. I couldn’t reach any of my doctors for any kind of approval (technically if it’s not life-threatening you’re supposed to call and get them to call the ER to say "yes, you can treat her" (lovely HMOs). I tried to call the urologist but becuase I haven’t actually *seen* him for myself as yet, the answering service said they were not allowed under any circumstances to page him. I started sobbing over the phone and she was like "well, have a nice new years, ma’am." yeah… **** you too. I’m sure there are competent residents or the like out there on ER duty on NYDay. But I’m not sure I would have gotten one. And I’d tried the pain med route which just made me more nauseated. anyway – as you can see I’m doing well enough to babble. Now all I can do is pray that when I walk in to his office tomorrow they won’t call security on the crazy lady screaming for help. love you all. thank you all so much for helping. heh… now I have stomach cramps because I’ve eaten solid food this evening. I’ll take it!!!! kcat *********************************** KCat – I am not a medical professional. The contents of this post are based soley on my experiences and opinions http://www.ghg.net/schwerpt/mypage.htm http://www.ghg.net/schwerpt/aslfaq20.htm ("`-”-/").___..–”"`-._ (`6_ 6 ) `-. ( ).`-.__.’`) (_Y_.)’ ._ ) `._ `. “-..-” _..`–’_..-_/ /–’_.’ ,’ (()),-” (()),’ (((.-’
Response:
I’m so glad to hear you’ve found some relief. I was worried about you; been hoping you’d find something to help. I hope you can get a hold of the urologist and convince him that you need to be seen. I too have been feeling better, but I am going to call my docs in the morning to inform them of my pain and misery this weekend. Happy New Year! And good luck with the doctors. Mel "KCat" <kcdoc…@ghg.net> wrote in message
news:jm725tcuo6m89qbvg25sr9u9q77jebhk9m@4ax.com… – Hide quoted text — Show quoted text -> This will be posted to both Lupus-L and ASL. Both groups have been a > godsend. > I did not go to the ER. God only knows how I got through last night > but I did. Actually – I suspect He got me through it. > This a.m. I got desperate. Thought – well, at the very least I can > take one of Ron’s valiums (From his surgery in Nov.) and sleep through > the agony. Well, lo and behold if that didn’t nip this damn bladder > pain in the … bud. The discomfort is still there but it negligible. > The main reason I chose not to go to the ER was because I really think > the only doctor that can even begin to formulate an idea about what is > wrong is a urologist – The urologist. Our plan is to get up in the > a.m. and show up at his office and demand to be worked in. I will be > out of valium by then (taking 2.5 mgs – one 5 mg split). 5 mgs would > probably put me into complete relief but I have only enough at 1/2 > tablet to get me through to tomorrow mid-day. > so… I suppose this gives us a clue as to what is happening – maybe > some weird neurogenic thing? I am feeling better and I have hope > again which is the first time in 6 days. I also was actually sorta > hungry. I don’t know how I got on this slippery slope from last week > but I am thankful I had you all to talk to and to offer advice and > support. I know I didn’t *take* that advice in many cases, but just > the fact that people cared and were trying so hard to help – made a > huge difference in my ability to get through "just one more hour". > This morning was looking like the end of my rope. I couldn’t stop > crying and I told hubby I was ready to go to the ER. He talked me out > of it – he is concerned I’ll get substandard care from people who know > next to nothing about urology. I don’t know if we made the right > decision – but there it is. > I couldn’t reach any of my doctors for any kind of approval > (technically if it’s not life-threatening you’re supposed to call and > get them to call the ER to say "yes, you can treat her" (lovely HMOs). > I tried to call the urologist but becuase I haven’t actually *seen* > him for myself as yet, the answering service said they were not > allowed under any circumstances to page him. I started sobbing over > the phone and she was like "well, have a nice new years, ma’am." > yeah… **** you too. I’m sure there are competent residents or the > like out there on ER duty on NYDay. But I’m not sure I would have > gotten one. And I’d tried the pain med route which just made me more > nauseated. > anyway – as you can see I’m doing well enough to babble. Now all I > can do is pray that when I walk in to his office tomorrow they won’t > call security on the crazy lady screaming for help. > love you all. thank you all so much for helping. > heh… now I have stomach cramps because I’ve eaten solid food this > evening. I’ll take it!!!! > kcat > *********************************** > KCat – I am not a medical professional. The contents of this post are
based soley on my experiences and opinions – Hide quoted text — Show quoted text -> http://www.ghg.net/schwerpt/mypage.htm > http://www.ghg.net/schwerpt/aslfaq20.htm > ("`-”-/").___..–”"`-._ > (`6_ 6 ) `-. ( ).`-.__.’`) > (_Y_.)’ ._ ) `._ `. “-..-” > _..`–’_..-_/ /–’_.’ ,’ > (()),-” (()),’ (((.-’
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