Lupus FAQ » Lupus » anticardiolipin antibody & update on me

anticardiolipin antibody & update on me

Question:

LM, I sure do appreciate your comments on this.  I am just trying to let them sink in once in for all so I can get on with my life. Mary

– Hide quoted text — Show quoted text – LM you are such a comfort ya know? then a hospital visit and checked stem to stern. sorry about short post my hand slipped whoops did they do a barium enema? or a stool culture? They did a NG tube and filled it up and sucked it out and did it 3 times in the ER.  (I strongly advise anyone against having this procedure)  They did chest x ray, EKG, stool culture and did NOT do a barium enema.  I had a regular enema (if you can call the hospital type regular) to prep for colonoscopy which they had a hard time doing – ever heard of paradoxical diarreah?  Well, I think something was stuck up in there and caused the bleeding because of the way the enema went and what came out with it. (gosh this is gross and I’m broadcasting to the world) d ischemic colitis caused by birth control pills. I they don’t cause this I didn’t think so, which is what I believe triggered my anxiety in the first place.  I’m thinking, so there the old culprit is Oral contraceptives , translation…  ’we have no clue what made that happen, but luckily you fixed yourself and our butts don’t have to figure it out.’     So, then I went into my anxiety and PA over what caused it to begin with.  Everyone who knows me (non medical people ofcourse) just chalked it up to being so sick so long and me letting my original illness go on too long and / or the antibiotics and OTC meds. ad only one incident and bleeding stopped on it’s own and it wasn’t very much. at this time was a cbc blood test done if so what were the counts did they indicate an infection or low red cells? was a sedimentation rate done? do you have joint pains at all? CBC yes, white cells were slightly elevated (I was sick!)  I don’t know about sedimentation rate.  No I do not have joint pains.  Just one spot in my old broken wrist I broke 12 years ago is rather handy it predicts the weather. anticardiolipin antibody test there are false positives to this so unless it shows positive a few times it may not be a real problem for you-also as you indicated it can wax and wane just beacuse this is positive doesn’t ammount to a hill of beans unless you show demonstratable symptoms with correlations to it and as far as I can see you don’t-What kind of a doc is handling your general issues-hopefuly an internist I have been seeing a family doctor but agree I should get to know a good internist.  By the way, as a practical matter, how does one find a GOOD doctor of any specialty? don’t make this rare and usually benign condition a death sentence you may not have it and even if you do it doesn’t mean anything without arthritic symptoms with other seropositive tests-and even with all being positive this problem is treatable-don’t allow your anxiety to rule your objectivity-you feel good so let it go-your blood may show many abnormalities from time to time-I hada patient have weird liver enzymes for a few weeks and his docs were sending him for scans ultrasounds and ready to do a liver biopsy-I asked if he had taken any erythromycin in the past 6 months-he had I told him to tell his doc and bingo a few weeks later his enzymes were normal —relax this is not a serious condition under most circumstances and if you decide to get pregnant and these values are still high-you take prednisone or heparin and your right as rain LM Thank you LM. Mary based upon what you have told me and the drugs you were taking I would guess and it is a guess but most likely a good one–the cephlosporin antibiotic and the ibuprophen caused the bleeding-dificile bacillis sometimes has an intermediarystage that cannot be cultured and by the time it stats to multiply your own bacteria colonizes and wacks it out-so you may have had a mild transitory case of antibiotic related colitis and ruptured blood vessels intracolonically-the nsaid was the icing on the cake and created irritation and weakness in the mucosal lining of the gut–this could be proven in some way by repeating using the meds which you don’t want to do–incidently some have dificile colonies all the time and when they go on an antibiotic they multiply as the normal flora dies and they get the dreaded shits often with bleeding-you may be one of these whereby the colony wasn’t in a high enough number to culture to find a good doc–call the director or chief of that specialties office in a large reputable teaching hospital and ask the boss or better yet his secretary they know more about the personalities-or ask the head floor nurse in that dept-they see it all-ask a nurse or a doc who they use and then if you want check him out with the state medical board-any specialist had best be board certified or tested and rated as well as monitored by his peers- LM

Response:

– Hide quoted text — Show quoted text – Hey Everyone, I did update under my "meds or am I better" heading but wanted to see if any of you had any experience with this anticardiolipin antibody?  LM was very helpful and I do understand it could be one of a hundred different things. I also suspect I could have picked this up as a result of a virus or drug while I was sick, which kicked off everything I have experienced anxiety wise to date.  To recap, I was sick with upper respiratory, sinus, then had some bloody "D", then a hospital visit and checked stem to stern…  At the time they thought I had ischemic colitis caused by birth control pills. I had only one incident and bleeding stopped on it’s own and it wasn’t very much.  Then panic began, I came here.  I got that stopped with Paxil (up to 20 mgs now) and Xanax.  I thought I was "cured"., until I just got this anticardiolipin antibody test result back and now I am being referred to a hematologist.  If it were something simple why doesn’t my general doc or my gastro doc handle it?  I have felt FINE physically, and now the damn anxiety started back up again.  All with one phone call from a docs office.  Stupid me, I get on the net and look it up and it can relate to Lupus and cause all kinds of problems.  And again, if I dare think positively, they could test me tomorrow and the antigen will be completely gone.  I just don’t know and the time I will be waiting for the hematologist appointment is going to be a 2 week eternity.  I go for my first PDOC appointment next Tuesday.  Thanks for listening. Mary

I’m sorry about this Mary!  I hope you feel better today.  I hate waiting for appts., tests, etc., too.  The waiting is what really gets me.  Please hang in there! Hugs, Di

Response:

- Hide quoted text — Show quoted text – LM you are such a comfort ya know? then a hospital visit and checked stem to stern. sorry about short post my hand slipped whoops did they do a barium enema? or a stool culture? They did a NG tube and filled it up and sucked it out and did it 3 times in the ER.  (I strongly advise anyone against having this procedure)  They did chest x ray, EKG, stool culture and did NOT do a barium enema.  I had a regular enema (if you can call the hospital type regular) to prep for colonoscopy which they had a hard time doing – ever heard of paradoxical diarreah?  Well, I think something was stuck up in there and caused the bleeding because of the way the enema went and what came out with it.  (gosh this is gross and I’m broadcasting to the world) d ischemic colitis caused by birth control pills. I they don’t cause this I didn’t think so, which is what I believe triggered my anxiety in the first place.  I’m thinking, so there the old culprit is Oral contraceptives , translation…  ’we have no clue what made that happen, but luckily you fixed yourself and our butts don’t have to figure it out.’     So, then I went into my anxiety and PA over what caused it to begin with.  Everyone who knows me (non medical people ofcourse) just chalked it up to being so sick so long and me letting my original illness go on too long and / or the antibiotics and OTC meds. ad only one incident and bleeding stopped on it’s own and it wasn’t very much. at this time was a cbc blood test done if so what were the counts did they indicate an infection or low red cells? was a sedimentation rate done? do you have joint pains at all? CBC yes, white cells were slightly elevated (I was sick!)  I don’t know about sedimentation rate.  No I do not have joint pains.  Just one spot in my old broken wrist I broke 12 years ago is rather handy it predicts the weather. anticardiolipin antibody test there are false positives to this so unless it shows positive a few times it may not be a real problem for you-also as you indicated it can wax and wane just beacuse this is positive doesn’t ammount to a hill of beans unless you show demonstratable symptoms with correlations to it and as far as I can see you don’t-What kind of a doc is handling your general issues-hopefuly an internist I have been seeing a family doctor but agree I should get to know a good internist.  By the way, as a practical matter, how does one find a GOOD doctor of any specialty? don’t make this rare and usually benign condition a death sentence you may not have it and even if you do it doesn’t mean anything without arthritic symptoms with other seropositive tests-and even with all being positive this problem is treatable-don’t allow your anxiety to rule your objectivity-you feel good so let it go-your blood may show many abnormalities from time to time-I hada patient have weird liver enzymes for a few weeks and his docs were sending him for scans ultrasounds and ready to do a liver biopsy-I asked if he had taken any erythromycin in the past 6 months-he had I told him to tell his doc and bingo a few weeks later his enzymes were normal —relax this is not a serious condition under most circumstances and if you decide to get pregnant and these values are still high-you take prednisone or heparin and your right as rain LM Thank you LM. Mary

based upon what you have told me and the drugs you were taking I would guess and it is a guess but most likely a good one–the cephlosporin antibiotic and the ibuprophen caused the bleeding-dificile bacillis sometimes has an intermediarystage that cannot be cultured and by the time it stats to multiply your own bacteria colonizes and wacks it out-so you may have had a mild transitory case of antibiotic related colitis and ruptured blood vessels intracolonically-the nsaid was the icing on the cake and created irritation and weakness in the mucosal lining of the gut–this could be proven in some way by repeating using the meds which you don’t want to do–incidently some have dificile colonies all the time and when they go on an antibiotic they multiply as the normal flora dies and they get the dreaded shits often with bleeding-you may be one of these whereby the colony wasn’t in a high enough number to culture to find a good doc–call the director or chief of that specialties office in a large reputable teaching hospital and ask the boss or better yet his secretary they know more about the personalities-or ask the head floor nurse in that dept-they see it all-ask a nurse or a doc who they use and then if you want check him out with the state medical board-any specialist had best be board certified or tested and rated as well as monitored by his peers- LM

Response:

LM you are such a comfort ya know?

then a hospital visit and checked stem to stern. sorry about short post my hand slipped whoops did they do a barium enema? or a stool culture?

They did a NG tube and filled it up and sucked it out and did it 3 times in the ER.  (I strongly advise anyone against having this procedure)  They did chest x ray, EKG, stool culture and did NOT do a barium enema.  I had a regular enema (if you can call the hospital type regular) to prep for colonoscopy which they had a hard time doing – ever heard of paradoxical diarreah?  Well, I think something was stuck up in there and caused the bleeding because of the way the enema went and what came out with it.  (gosh this is gross and I’m broadcasting to the world) d ischemic colitis caused by birth control pills. I they don’t cause this

I didn’t think so, which is what I believe triggered my anxiety in the first place.  I’m thinking, so there the old culprit is Oral contraceptives , translation…  ’we have no clue what made that happen, but luckily you fixed yourself and our butts don’t have to figure it out.’     So, then I went into my anxiety and PA over what caused it to begin with.  Everyone who knows me (non medical people ofcourse) just chalked it up to being so sick so long and me letting my original illness go on too long and / or the antibiotics and OTC meds. ad only one incident and bleeding stopped on it’s own and it wasn’t very much. at this time was a cbc blood test done if so what were the counts did they indicate an infection or low red cells? was a sedimentation rate done? do you have joint pains at all?

CBC yes, white cells were slightly elevated (I was sick!)  I don’t know about sedimentation rate.  No I do not have joint pains.  Just one spot in my old broken wrist I broke 12 years ago is rather handy it predicts the weather. anticardiolipin antibody test there are false positives to this so unless it shows positive a few times it may not be a real problem for you-also as you indicated it can wax and wane just beacuse this is positive doesn’t ammount to a hill of beans unless you show demonstratable symptoms with correlations to it and as far as I can see you don’t-What kind of a doc is handling your general issues-hopefuly an internist

I have been seeing a family doctor but agree I should get to know a good internist.  By the way, as a practical matter, how does one find a GOOD doctor of any specialty? – Hide quoted text — Show quoted text – don’t make this rare and usually benign condition a death sentence you may not have it and even if you do it doesn’t mean anything without arthritic symptoms with other seropositive tests-and even with all being positive this problem is treatable-don’t allow your anxiety to rule your objectivity-you feel good so let it go-your blood may show many abnormalities from time to time-I hada patient have weird liver enzymes for a few weeks and his docs were sending him for scans ultrasounds and ready to do a liver biopsy-I asked if he had taken any erythromycin in the past 6 months-he had I told him to tell his doc and bingo a few weeks later his enzymes were normal —relax this is not a serious condition under most circumstances and if you decide to get pregnant and these values are still high-you take prednisone or heparin and your right as rain LM

Thank you LM. Mary

Response:

- Hide quoted text — Show quoted text – Hey Everyone, I did update under my "meds or am I better" heading but wanted to see if any of you had any experience with this anticardiolipin antibody?  LM was very helpful and I do understand it could be one of a hundred different things. I also suspect I could have picked this up as a result of a virus or drug while I was sick, which kicked off everything I have experienced anxiety wise to date.  To recap, I was sick with upper respiratory, sinus, then had some bloody "D", then a hospital visit and checked stem to stern…  At the time they thought I had ischemic colitis caused by birth control pills. I had only one incident and bleeding stopped on it’s own and it wasn’t very much.  Then panic began, I came here.  I got that stopped with Paxil (up to 20 mgs now) and Xanax.  I thought I was "cured"., until I just got this anticardiolipin antibody test result back and now I am being referred to a hematologist.  If it were something simple why doesn’t my general doc or my gastro doc handle it?  I have felt FINE physically, and now the damn anxiety started back up again.  All with one phone call from a docs office.  Stupid me, I get on the net and look it up and it can relate to Lupus and cause all kinds of problems.  And again, if I dare think positively, they could test me tomorrow and the antigen will be completely gone.  I just don’t know and the time I will be waiting for the hematologist appointment is going to be a 2 week eternity.  I go for my first PDOC appointment next Tuesday.  Thanks for listening. Mary

Dear Mary, I have never had experience with anticardiolipin, but I do not what it is like to worry about ones health. I just wanted to let you know that I care and I hope that everything turns out okay which I am sure it will!!!!! {{{{{Mary}}}}} Jackie

Response:

then a hospital visit and checked stem to stern.

sorry about short post my hand slipped whoops did they do a barium enema? or a stool culture? d ischemic colitis caused by birth control pills. I

they don’t cause this ad only one incident and bleeding stopped on it’s own and it wasn’t very much.

at this time was a cbc blood test done if so what were the counts did they indicate an infection or low red cells? was a sedimentation rate done? do you have joint pains at all? anticardiolipin antibody test

there are false positives to this so unless it shows positive a few times it may not be a real problem for you-also as you indicated it can wax and wane just beacuse this is positive doesn’t ammount to a hill of beans unless you show demonstratable symptoms with correlations to it and as far as I can see you don’t-What kind of a doc is handling your general issues-hopefuly an internist don’t make this rare and usually benign condition a death sentence you may not have it and even if you do it doesn’t mean anything without arthritic symptoms with other seropositive tests-and even with all being positive this problem is treatable-don’t allow your anxiety to rule your objectivity-you feel good so let it go-your blood may show many abnormalities from time to time-I hada patient have weird liver enzymes for a few weeks and his docs were sending him for scans ultrasounds and ready to do a liver biopsy-I asked if he had taken any erythromycin in the past 6 months-he had I told him to tell his doc and bingo a few weeks later his enzymes were normal —relax this is not a serious condition under most circumstances and if you decide to get pregnant and these values are still high-you take prednisone or heparin and your right as rain LM

Response:

Hey Everyone, I did update under my "meds or am I better" heading but wanted to see if any of you had any experience with this anticardiolipin antibody?  LM was very helpful and I do understand it could be one of a hundred different things. I also suspect I could have picked this up as a result of a virus or drug while I was sick, which kicked off everything I have experienced anxiety wise to date.  To recap, I was sick with upper respiratory, sinus, then had some bloody "D", then a hospital visit and checked stem to stern…  At the time they thought I had ischemic colitis caused by birth control pills. I had only one incident and bleeding stopped on it’s own and it wasn’t very much.  Then panic began, I came here.  I got that stopped with Paxil (up to 20 mgs now) and Xanax.  I thought I was "cured"., until I just got this anticardiolipin antibody test result back and now I am being referred to a hematologist.  If it were something simple why doesn’t my general doc or my gastro doc handle it?  I have felt FINE physically, and now the damn anxiety started back up again.  All with one phone call from a docs office.  Stupid me, I get on the net and look it up and it can relate to Lupus and cause all kinds of problems.  And again, if I dare think positively, they could test me tomorrow and the antigen will be completely gone.  I just don’t know and the time I will be waiting for the hematologist appointment is going to be a 2 week eternity.  I go for my first PDOC appointment next Tuesday.  Thanks for listening. Mary

Response:

To recap, I was sick with upper respiratory, sinus, then had some bloody "D",

were you on an antibiotic at this time?

Response:

yes LM, I was on Ceftin 500 mg 2x a day.  Plus taking anything and everything just to be able to breath…  ibuprofin, benadryl, nyquil, oral Rx decongestant, dayquil…..   I had avoided going to the doc until it hit my sinus.  They tested for c. dificile and it was negative.  also e coli 0157 and all the camphobylactor, etc. Mary

– Hide quoted text — Show quoted text – To recap, I was sick with upper respiratory, sinus, then had some bloody "D", were you on an antibiotic at this time?

Response:

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