Question:
Big hugs for each of you. PLEASE make the neuro take a more thorough history tomorrow, or ask him if he really wants you as patients. You may not have a lot to lose there. My GP washed his hands of my headaches the other day, and told me to ditch my neuro and get a new one, so I know how disconnected and unsupported you feel right now. Make sure that doctor hears you tomorrow; make him listen. You and your dh are articulate, intelligent medical consumers, and don’t deserve the casual treatment he gave the dh. And whine all you want – I was whining here last night. We’re the ones who understand WHY you’re whining. guys get some real help from the guy tomorrow. Ginnie and =^..^= Clooney – Hide quoted text — Show quoted text – This is that worst it’s been for Bernie in years. You know he’s a cluster head. he’s been on the lithium, the depokate, too for past two years, gained 50 or 60 pounds on that. Our GP has washed his hands of us, as we knew he would, been 7 years. This neuro I’m not pleased with, 2nd appt istomorrow. This neuro didn’t even ask for history, nor do any examination on the dh. Now I’m trying to get into Philly center (thomas Jefferson HA clinic) with the guys Dr. Goadsby recommended. I think I had 20 hours sleep last week and the dh about 15…I’m exhausted..he’s worried about my lupus and lack of sleep I’m worried about him in suicide mode (but I don’t think he’ll go there). He was to go to Spain this week on business, but thank the lord, his boss is understanding and said Okay, what can we do to help, that in itself is unique. I’m just venting…I’m so tired, so is he…both of us wanna jump off the roof, and now we have a 2 story roof and not just a rancher (one story)…sigh. I know we’ll get thru it we always have..but yes I’m whining…I have his son’s wedding coming up, a trip to hawaii (that dh says won’t go to, because of the clusters, that sucks big time), a contracter I’m dealing with at my fathers homem and a job that we’ve been give WARN notices on…I’m not sure who is gonna commit hari kari first!!! Just a few hugs you all…I need it big time…I’m tied of crying myself to sleep after his Cluster has sent him to bed. So much for the whine of the night, anyone got a good unused white burnguny from france? I don’t have the headaches but I can drink it…but it’s a small consulation…sigh. love and hugs wishing you pain free days and nights — Mary f. <No Kitty! it’s MY POT PIE! _ _ ( / ) | ) ) _,,,/ (,,_ /, . ‘`~ ~-. ;-;;,_ |,4) -,_. , ( `’-’ ’-~~’ (_/~~’ `-’_) It’s a widdle,widdle, widdle pud (When I wake up, I’m gonna get a CAT scan, "the santa clause")
Response:
With oodles of cat purrs, meatloaf meditations and prayers. Hang in there – you both *will* prevail and come through this. *hugs* helen s Waffles, Francis and Marble Get rid of the suckers before sending a reply! Any speliong mistakes aR the result of my cats sitting on the keyboaRRRDdd
Response:
This is that worst it’s been for Bernie in years. You know he’s a cluster head. he’s been on the lithium, the depokate, too for past two years, gained 50 or 60 pounds on that. Our GP has washed his hands of us, as we knew he would, been 7 years. This neuro I’m not pleased with, 2nd appt istomorrow. This neuro didn’t even ask for history, nor do any examination on the dh. Now I’m trying to get into Philly center (thomas Jefferson HA clinic) with the guys Dr. Goadsby recommended. I think I had 20 hours sleep last week and the dh about 15…I’m exhausted..he’s worried about my lupus and lack of sleep I’m worried about him in suicide mode (but I don’t think he’ll go there). He was to go to Spain this week on business, but thank the lord, his boss is understanding and said Okay, what can we do to help, that in itself is unique. I’m just venting…I’m so tired, so is he…both of us wanna jump off the roof, and now we have a 2 story roof and not just a rancher (one story)…sigh. I know we’ll get thru it we always have..but yes I’m whining…I have his son’s wedding coming up, a trip to hawaii (that dh says won’t go to, because of the clusters, that sucks big time), a contracter I’m dealing with at my fathers homem and a job that we’ve been give WARN notices on…I’m not sure who is gonna commit hari kari first!!! Just a few hugs you all…I need it big time…I’m tied of crying myself to sleep after his Cluster has sent him to bed. So much for the whine of the night, anyone got a good unused white burnguny from france? I don’t have the headaches but I can drink it…but it’s a small consulation…sigh. love and hugs wishing you pain free days and nights — Mary f. <No Kitty! it’s MY POT PIE! _ _ ( / ) | ) ) _,,,/ (,,_ /, . ‘`~ ~-. ;-;;,_ |,4) -,_. , ( `’-’ ’-~~’ (_/~~’ `-’_) It’s a widdle,widdle, widdle pud (When I wake up, I’m gonna get a CAT scan, "the santa clause")
Response:
I’m a newbie here, and don’t know you, Mary, but I still wish you and dh some sleep, first of all. Then you can try to deal with the headaches and the lupus. Or maybe, get rid of the headaches so sleep will come. My heart goes out to you both. Jenni
Response:
Mary.. I just hate to hear that you’re having such a bad time. I’ve already read Bob’s note to you and he has some great information — I hope it helps. Keep writing to us. We’ve got great big arms here and give nice warm hugs whenever they’re needed. ((((((((((((((((((((((((((Mary and DH)))))))))))))))))))))))))))) Liz
– Hide quoted text — Show quoted text – This is that worst it’s been for Bernie in years. You know he’s a cluster head. he’s been on the lithium, the depokate, too for past two years, gained 50 or 60 pounds on that. Our GP has washed his hands of us, as we knew he would, been 7 years. This neuro I’m not pleased with, 2nd appt istomorrow. This neuro didn’t even ask for history, nor do any examination on the dh. Now I’m trying to get into Philly center (thomas Jefferson HA clinic) with the guys Dr. Goadsby recommended. I think I had 20 hours sleep last week and the dh about 15…I’m exhausted..he’s worried about my lupus and lack of sleep I’m worried about him in suicide mode (but I don’t think he’ll go there). He was to go to Spain this week on business, but thank the lord, his boss is understanding and said Okay, what can we do to help, that in itself is unique. I’m just venting…I’m so tired, so is he…both of us wanna jump off the roof, and now we have a 2 story roof and not just a rancher (one story)…sigh. I know we’ll get thru it we always have..but yes I’m whining…I have his son’s wedding coming up, a trip to hawaii (that dh says won’t go to, because of the clusters, that sucks big time), a contracter I’m dealing with at my fathers homem and a job that we’ve been give WARN notices on…I’m not sure who is gonna commit hari kari first!!! Just a few hugs you all…I need it big time…I’m tied of crying myself to sleep after his Cluster has sent him to bed. So much for the whine of the night, anyone got a good unused white burnguny from france? I don’t have the headaches but I can drink it…but it’s a small consulation…sigh. love and hugs wishing you pain free days and nights — Mary f. <No Kitty! it’s MY POT PIE! _ _ ( / ) | ) ) _,,,/ (,,_ /, . ‘`~ ~-. ;-;;,_ |,4) -,_. , ( `’-’ ’-~~’ (_/~~’ `-’_) It’s a widdle,widdle, widdle pud (When I wake up, I’m gonna get a CAT scan, "the santa clause")
Response:
A big hug from me too! I know how it is to be so tired and not well yourself and on the same time fighting to make life better for your loved one(s). For me that part is over now but I remember how exausted and sometimes angry you could be. I do hope you can get some help now – I`ll pray for that – and if I had a big bottle of French burgundy I would send it somehow. Alas France is very far away for the moment. Love and Peace – Alexandra
– Hide quoted text — Show quoted text – This is that worst it’s been for Bernie in years.
Response:
((((((((((((((Mary & Bernie)))))))))))))))) Mary, i dunno if admiration goes anywhere with you, but i admire you greatly….always have. It’s gotta be tiring….being someone on whom people trust, look to for advice, look to for getting "everything" done…that is one tiring job. Even Superman can’t handle all that….but then again, Superman doesn’t have a newsgroup! The days are tiring. The weeks, the months, the hours…..all seem to drudge on occasion. You are loved. You are warmly regarded. Sleep in peace, and we can gab later…. Deep peace on you & Bernie, Lavon – Hide quoted text — Show quoted text – This is that worst it’s been for Bernie in years. You know he’s a cluster head. he’s been on the lithium, the depokate, too for past two years, gained 50 or 60 pounds on that. Our GP has washed his hands of us, as we knew he would, been 7 years. This neuro I’m not pleased with, 2nd appt istomorrow. This neuro didn’t even ask for history, nor do any examination on the dh. Now I’m trying to get into Philly center (thomas Jefferson HA clinic) with the guys Dr. Goadsby recommended. I think I had 20 hours sleep last week and the dh about 15…I’m exhausted..he’s worried about my lupus and lack of sleep I’m worried about him in suicide mode (but I don’t think he’ll go there). He was to go to Spain this week on business, but thank the lord, his boss is understanding and said Okay, what can we do to help, that in itself is unique. I’m just venting…I’m so tired, so is he…both of us wanna jump off the roof, and now we have a 2 story roof and not just a rancher (one story)…sigh. I know we’ll get thru it we always have..but yes I’m whining…I have his son’s wedding coming up, a trip to hawaii (that dh says won’t go to, because of the clusters, that sucks big time), a contracter I’m dealing with at my fathers homem and a job that we’ve been give WARN notices on…I’m not sure who is gonna commit hari kari first!!! Just a few hugs you all…I need it big time…I’m tied of crying myself to sleep after his Cluster has sent him to bed. So much for the whine of the night, anyone got a good unused white burnguny from france? I don’t have the headaches but I can drink it…but it’s a small consulation…sigh. love and hugs wishing you pain free days and nights — Mary f. <No Kitty! it’s MY POT PIE! _ _ ( / ) | ) ) _,,,/ (,,_ /, . ‘`~ ~-. ;-;;,_ |,4) -,_. , ( `’-’ ’-~~’ (_/~~’ `-’_) It’s a widdle,widdle, widdle pud (When I wake up, I’m gonna get a CAT scan, "the santa clause")
Response:
Thank you all so very much for the love and support. You have no idea how wonderful it feels to read your response (even if it makes me cry, it gets out a bit of pent up stress 
. And to all of you who sent personal emails thank you so much. I’m gonna keep them and then research all the information you have sent and make sure the dh reads it as well! I’ll try to reply soon! He appreciates your support. We did see the neuro today and we’re going to keep him on the meds he was on (going of the lithium was NOT a good thing for bernie), plus up the topamax to 200 mgs day. And Bernie said, "GOD FORBID, lets try the prednisone again!" He really hates that stuff but is gonna do it anyway (that’s desperation). We decided to stick with the imitrex as the Axert Formulary with our insurance only allows 6 pills a month and we still have to pay $30 for those…and bernie didn’t notice much difference. So the doctor did give us 100 mgs imitrex tabs (dh usually has 50 mgs), he wrote 9 and I said no insurance will give us 18, so doc changed the script. Bernie has decided the stadol goes down the toilet (literally), he really doesn’t like that stuff, really made him ill and too funky feeling. Any Inhalent is wrong as his nose gets very stuffed. And the DH is really against any narcotic drug (that’s just him), especially after the stadol experience LOL. It’s not fun gurking when you are at a kip 10. I told him if he banged bowl with his head that wasn’t a good Idea, if he broke it he’d have to replace it LOL (we do try to keep sense of humor rather than yelling at each other). And yes we have 02 tanks in this house out the kazoo, and bernie carries 2 E tanks in his car, that’s his first line of defense as an abortive and usually the most constant in results with imitrex in tow. So basically the neuro is going the standard routes, and bernie’s not into experimental right now. But he definitely wants to try the Jefferson Clinic. So we are trying to get into the Jefferson clinic, I have one ASHMer trying to help, and I’ll see what I can do myself and grab others for help as well. Dr. Young seems to be the one to see, but Young or Silberstein. As they are partners I’m sure consult each other. Again thank you all for your great love and support I can’t tell you how much it means! And I’ll keep you informed as we progress on a new journey! hugs, wishing you all pain free days and nights! — Mary f. <No Kitty! it’s MY POT PIE! _ _ ( / ) | ) ) _,,,/ (,,_ /, . ‘`~ ~-. ;-;;,_ |,4) -,_. , ( `’-’ ’-~~’ (_/~~’ `-’_) It’s a widdle,widdle, widdle pud (When I wake up, I’m gonna get a CAT scan, "the santa clause")
Response:
Mary/Bernie, Sounds like a plan to me. I know how the Stadol can be. It did help me so I continued to use it, even though it always made me VERY cranky. So, whether i had the cluster or the stadol, everyone wanted to stay away from me and leave me alone. There really isn’t a *good* narcotic for clusters, as they come and go usually within an hour. I had the best luck with methadone so maybe the long acting ones are the best. The problem there is that it takes such a large dose to even touch the pain, you then need to decide if you want to be heavily drugged 24 hours a day. In between the pain, the narcotics will effect you more, but when I was getting 12 attacks a day, there wasn’t much *down time*! I always hated the prednisone too! After about three days, I felt like I was a tuna, packed in oil. The large doses that are required for relief aren’t fun at all. Just looking at the family photo albums, we can always tell when I was on prednisone. I’m the one that looks like a chipmunk. It would allow me to catch my breath and get a few days of sleep. Best of luck at jefferson! When you have questions about the different types of surgery, rattle my cage. BobW
– Hide quoted text — Show quoted text – Thank you all so very much for the love and support. You have no idea how wonderful it feels to read your response (even if it makes me cry, it gets out a bit of pent up stress . And to all of you who sent personal emails thank you so much. I’m gonna keep them and then research all the information you have sent and make sure the dh reads it as well! I’ll try to reply soon! He appreciates your support. We did see the neuro today and we’re going to keep him on the meds he was on (going of the lithium was NOT a good thing for bernie), plus up the topamax to 200 mgs day. And Bernie said, "GOD FORBID, lets try the prednisone again!" He really hates that stuff but is gonna do it anyway (that’s desperation). We decided to stick with the imitrex as the Axert Formulary with our insurance only allows 6 pills a month and we still have to pay $30 for those…and bernie didn’t notice much difference. So the doctor did give us 100 mgs imitrex tabs (dh usually has 50 mgs), he wrote 9 and I said no insurance will give us 18, so doc changed the script. Bernie has decided the stadol goes down the toilet (literally), he really doesn’t like that stuff, really made him ill and too funky feeling. Any Inhalent is wrong as his nose gets very stuffed. And the DH is really against any narcotic drug (that’s just him), especially after the stadol experience LOL. It’s not fun gurking when you are at a kip 10. I told him if he banged bowl with his head that wasn’t a good Idea, if he broke it he’d have to replace it LOL (we do try to keep sense of humor rather than yelling at each other). And yes we have 02 tanks in this house out the kazoo, and bernie carries 2 E tanks in his car, that’s his first line of defense as an abortive and usually the most constant in results with imitrex in tow. So basically the neuro is going the standard routes, and bernie’s not into experimental right now. But he definitely wants to try the Jefferson Clinic. So we are trying to get into the Jefferson clinic, I have one ASHMer trying to help, and I’ll see what I can do myself and grab others for help as well. Dr. Young seems to be the one to see, but Young or Silberstein. As they are partners I’m sure consult each other. Again thank you all for your great love and support I can’t tell you how much it means! And I’ll keep you informed as we progress on a new journey! hugs, wishing you all pain free days and nights! — Mary f. <No Kitty! it’s MY POT PIE! _ _ ( / ) | ) ) _,,,/ (,,_ /, . ‘`~ ~-. ;-;;,_ |,4) -,_. , ( `’-’ ’-~~’ (_/~~’ `-’_) It’s a widdle,widdle, widdle pud (When I wake up, I’m gonna get a CAT scan, "the santa clause")
Response:
Mary and Bernie….. I know exactly where your family is right now. We were in the same position last year at this time. The winter clusters are the worst IMHO. Add the winter doldrums, lack of light, fewer things to enjoy during those brief moments you do have, when you’re actually feeling up to it. It seems that life consists only of pain and working to try to catch up on what you’re not been able to do. A feeling of falling deeper into the abyss with each waking moment. The feeling of complete exhaustion but the fear of knowing what hell, sleep will bring. Yes, I think that Dr. Young is the guy to see if you’re out on the east coast. I would try to make him aware of the emergency situation. I would be sure to mention that Dr. Goadsby sent you to him. I don’t know of his email addy, if he even has one, but several people here have seen Young and may be able to supply that for you. If not, maybe you could locate it online or get it from his office. I know Bernie isn’t up to trying the shroom treatment. It isn’t the easiest thing to try, even if you want to, when you are in such a terrible cluster cycle. You need to be med free except for O2 and a few others for 5 days to clear the receptors. Opiods *may* be only needed to be stopped for 2-3 days. The jury is still out on that…..I only mention this because if he *is* up for it…let me know. There is a Great pain doc here in the chicago area that was a great deal of help to me. If it looks like it’ll be a while before you see Dr. Young, and would consider seeing him…let me know and I’ll do the prep work for you. There are only two other options that I know of that *may* break a cycle prematurely……DHE IV (3 to 5 days depending on the doc…). I think Dr. Young and his associates offer this but am not sure. (you might want to ask when you speak to his office) I know Dr. Ninan Matthew in Houston does this and has good success with it. The cycle returns after a while for a good percentage (depends who you get the stats from) of people, but at the very least, it should give a much needed break that might allow Bernie to sleep for a while and for all of you to regain some strength. The other, which has worked well for me in the past, is the IV-histamne treatment at the Diamond Headache Clinic. It broke my cycle 3 out of 4 times. I’ve seen it work on many many people. Of course, there are some people that it doesn’t work for, but they are usually at least made, better off than before, allowing the meds to work better. However, this is a 13 day hospital stay. As it is still winter in some places ( I can’t believe we had another near blizzard here today) it might do some good for Bernie to do his "pacing" outside in the cold air. (below 55 degrees for best results). It does abort clusters for many people in shorter than usual times…scares the neighbors sometimes, but what the hell are neighbors for, anyway! I’ll do whatever I can. If you’d like me to speak to Bernie, or you, or both, email your phone #. I’d be happy to discuss any and all options or just lend an ear and shoulder. There is also new research being done, primarily by a doctor in Italy, with a drug called Aricept that is showing good promise. Some doctors here have been willing to discuss the treatment with the Doc in Italy to determine how the treatment is best used and willing to follow the clinical trial regimen. You may want to mention the word Aricept to both Dr. Young and/or the neuro you’re going to see. {{{hugs}}} to you both as I know this is a family affair and please let me know what more I can do. BobW
– Hide quoted text — Show quoted text – This is that worst it’s been for Bernie in years. You know he’s a cluster head. he’s been on the lithium, the depokate, too for past two years, gained 50 or 60 pounds on that. Our GP has washed his hands of us, as we knew he would, been 7 years. This neuro I’m not pleased with, 2nd appt istomorrow. This neuro didn’t even ask for history, nor do any examination on the dh. Now I’m trying to get into Philly center (thomas Jefferson HA clinic) with the guys Dr. Goadsby recommended. I think I had 20 hours sleep last week and the dh about 15…I’m exhausted..he’s worried about my lupus and lack of sleep I’m worried about him in suicide mode (but I don’t think he’ll go there). He was to go to Spain this week on business, but thank the lord, his boss is understanding and said Okay, what can we do to help, that in itself is unique. I’m just venting…I’m so tired, so is he…both of us wanna jump off the roof, and now we have a 2 story roof and not just a rancher (one story)…sigh. I know we’ll get thru it we always have..but yes I’m whining…I have his son’s wedding coming up, a trip to hawaii (that dh says won’t go to, because of the clusters, that sucks big time), a contracter I’m dealing with at my fathers homem and a job that we’ve been give WARN notices on…I’m not sure who is gonna commit hari kari first!!! Just a few hugs you all…I need it big time…I’m tied of crying myself to sleep after his Cluster has sent him to bed. So much for the whine of the night, anyone got a good unused white burnguny from france? I don’t have the headaches but I can drink it…but it’s a small consulation…sigh. love and hugs wishing you pain free days and nights — Mary f. <No Kitty! it’s MY POT PIE! _ _ ( / ) | ) ) _,,,/ (,,_ /, . ‘`~ ~-. ;-;;,_ |,4) -,_. , ( `’-’ ’-~~’ (_/~~’ `-’_) It’s a widdle,widdle, widdle pud (When I wake up, I’m gonna get a CAT scan, "the santa clause")
Response:
Big hugs and good thoughts winging their way across the miles. Suzie
Response:
Mary, Dr. Young is great. He is understanding and does not talk down to you. It took me months to get in for my first appt 3 years ago. I haven’t been in 17 months (need to take a vacation day to go) but go in on 4/18. Bad cluster cycle here, too. It is worth the time it takes to get into Jefferson. They do a psychological test/exam the first appt. They told me I wasn’t crazy, imagining it, or just making things worse than they were. I left my neuro in tears when he pretty much told me off about my headaches and made me feel like I was looking for attention a few years ago. Dawn H. from this group kept telling me to go to Dr. Young, and I finally did. It was the best thing I did for myself- physically and mentally. I am sure I would do better if I could get there more often, but it is not that easy. My husband and I both take a vacation day when I go, so I don’t have to drive. (I thank God every day for having the wonderful family I have!) Good luck! -Jo in PA
– Hide quoted text — Show quoted text – Thank you all so very much for the love and support. You have no idea how wonderful it feels to read your response (even if it makes me cry, it gets out a bit of pent up stress . And to all of you who sent personal emails thank you so much. I’m gonna keep them and then research all the information you have sent and make sure the dh reads it as well! I’ll try to reply soon! He appreciates your support. We did see the neuro today and we’re going to keep him on the meds he was on (going of the lithium was NOT a good thing for bernie), plus up the topamax to 200 mgs day. And Bernie said, "GOD FORBID, lets try the prednisone again!" He really hates that stuff but is gonna do it anyway (that’s desperation). We decided to stick with the imitrex as the Axert Formulary with our insurance only allows 6 pills a month and we still have to pay $30 for those…and bernie didn’t notice much difference. So the doctor did give us 100 mgs imitrex tabs (dh usually has 50 mgs), he wrote 9 and I said no insurance will give us 18, so doc changed the script. Bernie has decided the stadol goes down the toilet (literally), he really doesn’t like that stuff, really made him ill and too funky feeling. Any Inhalent is wrong as his nose gets very stuffed. And the DH is really against any narcotic drug (that’s just him), especially after the stadol experience LOL. It’s not fun gurking when you are at a kip 10. I told him if he banged bowl with his head that wasn’t a good Idea, if he broke it he’d have to replace it LOL (we do try to keep sense of humor rather than yelling at each other). And yes we have 02 tanks in this house out the kazoo, and bernie carries 2 E tanks in his car, that’s his first line of defense as an abortive and usually the most constant in results with imitrex in tow. So basically the neuro is going the standard routes, and bernie’s not into experimental right now. But he definitely wants to try the Jefferson Clinic. So we are trying to get into the Jefferson clinic, I have one ASHMer trying to help, and I’ll see what I can do myself and grab others for help as well. Dr. Young seems to be the one to see, but Young or Silberstein. As they are partners I’m sure consult each other. Again thank you all for your great love and support I can’t tell you how much it means! And I’ll keep you informed as we progress on a new journey! hugs, wishing you all pain free days and nights! — Mary f. <No Kitty! it’s MY POT PIE! _ _ ( / ) | ) ) _,,,/ (,,_ /, . ‘`~ ~-. ;-;;,_ |,4) -,_. , ( `’-’ ’-~~’ (_/~~’ `-’_) It’s a widdle,widdle, widdle pud (When I wake up, I’m gonna get a CAT scan, "the santa clause")
Response:
the good die young…. and lady I know you and Bernie ain’t been good. <HUGE WINK ((((((((((((((((Mary & Bernie))))))))))))))) Ronnie
HEY….HEY…..HEEEEEEY!!!!! Us cluster people start out good A wink is as good as a nod to a blind man! BobW
Response:
Bob Boo Mary will know what the wink is for…. They both have a thing for back yards :-) Ronnie
– Hide quoted text — Show quoted text – the good die young…. and lady I know you and Bernie ain’t been good. <HUGE WINK ((((((((((((((((Mary & Bernie))))))))))))))) Ronnie HEY….HEY…..HEEEEEEY!!!!! Us cluster people start out good A wink is as good as a nod to a blind man! BobW
Response:
I have to tell you this one was hard to read. I feel so bad that things are going South on both of you. Has Bernie ever tried the Wold method? I have heard of so many ppl being let go (so to say) because the doctor can’t fix or find out where ppl’s *pain* comes from. There is a train coming at you full speed, best thing to do is lay down in the middle of the track, have it go over you and then grab on to the back and ride that sucker into a better time and place. (hope you can figure out what I said) They say only the good die young…. and lady I know you and Bernie ain’t been good. <HUGE WINK ((((((((((((((((Mary & Bernie))))))))))))))) Ronnie
– Hide quoted text — Show quoted text – This is that worst it’s been for Bernie in years. You know he’s a cluster head. he’s been on the lithium, the depokate, too for past two years, gained 50 or 60 pounds on that. Our GP has washed his hands of us, as we knew he would, been 7 years. This neuro I’m not pleased with, 2nd appt istomorrow. This neuro didn’t even ask for history, nor do any examination on the dh. Now I’m trying to get into Philly center (thomas Jefferson HA clinic) with the guys Dr. Goadsby recommended. I think I had 20 hours sleep last week and the dh about 15…I’m exhausted..he’s worried about my lupus and lack of sleep I’m worried about him in suicide mode (but I don’t think he’ll go there). He was to go to Spain this week on business, but thank the lord, his boss is understanding and said Okay, what can we do to help, that in itself is unique. I’m just venting…I’m so tired, so is he…both of us wanna jump off the roof, and now we have a 2 story roof and not just a rancher (one story)…sigh. I know we’ll get thru it we always have..but yes I’m whining…I have his son’s wedding coming up, a trip to hawaii (that dh says won’t go to, because of the clusters, that sucks big time), a contracter I’m dealing with at my fathers homem and a job that we’ve been give WARN notices on…I’m not sure who is gonna commit hari kari first!!! Just a few hugs you all…I need it big time…I’m tied of crying myself to sleep after his Cluster has sent him to bed. So much for the whine of the night, anyone got a good unused white burnguny from france? I don’t have the headaches but I can drink it…but it’s a small consulation…sigh. love and hugs wishing you pain free days and nights — Mary f. <No Kitty! it’s MY POT PIE! _ _ ( / ) | ) ) _,,,/ (,,_ /, . ‘`~ ~-. ;-;;,_ |,4) -,_. , ( `’-’ ’-~~’ (_/~~’ `-’_) It’s a widdle,widdle, widdle pud (When I wake up, I’m gonna get a CAT scan, "the santa clause")
Response:
Mary we are moving Monday from right here on the water (think fog) to inland with 6 acres of yards, fields and woods. We are keeping the boat over at the Marina so we will be able to fog-it again <wink It will be interesting to see if higher elevation and no humidity has any effect on my head. Hoping for the best for you and Bernie.. Ronnie
– Hide quoted text — Show quoted text – ROTFLMAO. Well now we are in a neighborhood where back yard is visable to all the neighbors! heheheheh…or maybe sigh…he has a headache (no nookie!) love and hugs Bob Boo Mary will know what the wink is for…. They both have a thing for back yards :-) Ronnie the good die young…. and lady I know you and Bernie ain’t been good. <HUGE WINK ((((((((((((((((Mary & Bernie))))))))))))))) Ronnie HEY….HEY…..HEEEEEEY!!!!! Us cluster people start out good A wink is as good as a nod to a blind man! BobW — Mary f. <No Kitty! it’s MY POT PIE! _ _ ( / ) | ) ) _,,,/ (,,_ /, . ‘`~ ~-. ;-;;,_ |,4) -,_. , ( `’-’ ’-~~’ (_/~~’ `-’_) It’s a widdle,widdle, widdle pud (When I wake up, I’m gonna get a CAT scan, "the santa clause")
Response:
ROTFLMAO. Well now we are in a neighborhood where back yard is visable to all the neighbors! heheheheh…or maybe sigh…he has a headache (no nookie!) love and hugs – Hide quoted text — Show quoted text – Bob Boo Mary will know what the wink is for…. They both have a thing for back yards :-) Ronnie the good die young…. and lady I know you and Bernie ain’t been good. <HUGE WINK ((((((((((((((((Mary & Bernie))))))))))))))) Ronnie HEY….HEY…..HEEEEEEY!!!!! Us cluster people start out good A wink is as good as a nod to a blind man! BobW
– Mary f. <No Kitty! it’s MY POT PIE! _ _ ( / ) | ) ) _,,,/ (,,_ /, . ‘`~ ~-. ;-;;,_ |,4) -,_. , ( `’-’ ’-~~’ (_/~~’ `-’_) It’s a widdle,widdle, widdle pud (When I wake up, I’m gonna get a CAT scan, "the santa clause")
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