Question:
Susan McNaughton wrote: > I have MVP and so do my two daughters. I did research in this field > with the University of AL. @ B’ham several years ago and continue to be > followed there. It is true that medications may be indicated for your > condition at this point. When one drops their dosage of prednisone, your > circulating fluid volume may decrease and this can cause a rapid heart > rate, and all sorts of symptoms. We also did magnesium studies and found > many people do not have to take perscriptions medicines with MVP if > their magnesium level is maintained at a high normal level > intracellularly. This is measured with an RBC magnesium, not serum > level. "Slow-Mag" is the supplement recommended. Ask to have your level > checked, some physicians are still unaware of the benefit of magnesium > versus perscription drugs.
Thanks Susan for the information. I will ask about the magnesium. Mary
Response:
- Hide quoted text — Show quoted text -bla…@novagate.com wrote: > Mary.. I’ve had two occasions of atrial fibrillation where my bpm went to > 160 the first time, didn’t measure the second. In both cases I lay the > cause to excessive stress the day before. MVP I believe has occasionally > been attributed to be the cause of AF. In both cases, treatment with > calcium blockers caused the situation to revert to normal within about > ten minutes or even less. BP was 84/38 in the first incident. > AF is apparently only a problem if it lasts for a significant time > (hours? days?), as it can lead to coagulation and thrombosis or stroke. > Persons with relatively frequent AF are (I believe) sometimes put on > blood thinners. > I was told MVP was benign and required no treatment. However, my looing > around the web convinced me it is a condition to be taken seriously. > Take a look at: > http://www.americanheart.org/Scientific/statements/1997/079701.html > http://www.ada.org/prac/position/endoprop.html > http://www.swiftsite.com/mitralvalveprolapsesyndrome/ > http://www.quicklink.net/bham/mvps.html > http://www.medicinenet.com/Art.asp?li=MNI&ArticleKey=423 > I had to argue with my dentist to get amoxycyline (4 gm) 1 hour before > semi-annual teeth cleaning. But I was insistent and he relented when I > showed him the Amer. Dental Assoc. statement on the subject. > —
Thanks for the info. I have taken the amoxycyline ever since I was diagnosed. I used to have to take 6 500 MG before and 3 after. It made me sick every time. Recently they have found taking 4 500 MG before is sufficient. I am so thankful for that. My prim. care Dr. explained MVP to me when I was diagnosed. Sometimes it doesn’t cause a problem, but there are those with it who have problems and have needed surgery. They watch mine carefully due to the lupus. I don’t think I have any other problem with my heart, but couldn’t talk my rheumy out of sending me. I noticed last night, after getting 4 cortisone shots, that my heartbeat was irregular off and on. I think it was the from the cortisone combined with the prednisone I already take. I have a real low blood pressure and that was higher than usual when I was at the Dr’s. office yesterday. Thanks again for replying and sending me the sites. Take care. Mary
Response:
I have MVP and so do my two daughters. I did research in this field with the University of AL. @ B’ham several years ago and continue to be followed there. It is true that medications may be indicated for your condition at this point. When one drops their dosage of prednisone, your circulating fluid volume may decrease and this can cause a rapid heart rate, and all sorts of symptoms. We also did magnesium studies and found many people do not have to take perscriptions medicines with MVP if their magnesium level is maintained at a high normal level intracellularly. This is measured with an RBC magnesium, not serum level. "Slow-Mag" is the supplement recommended. Ask to have your level checked, some physicians are still unaware of the benefit of magnesium versus perscription drugs.
Response:
Has anyone ever experienced a rapid heart beat when prednisone is decreased? I’ve had the symptom even on a higher dose of prednisone, but it seems to be more frequent now that I am on a lower dose. My rheumy is sending me to a cardiologist for a stress test. I also have mitral valve prolapse and he thinks it may be getting to the point that I need medicine. Anyone else have this type of problem with MVP? Thanks. Mary
Response:
Mary.. I’ve had two occasions of atrial fibrillation where my bpm went to 160 the first time, didn’t measure the second. In both cases I lay the cause to excessive stress the day before. MVP I believe has occasionally been attributed to be the cause of AF. In both cases, treatment with calcium blockers caused the situation to revert to normal within about ten minutes or even less. BP was 84/38 in the first incident. AF is apparently only a problem if it lasts for a significant time (hours? days?), as it can lead to coagulation and thrombosis or stroke. Persons with relatively frequent AF are (I believe) sometimes put on blood thinners. I was told MVP was benign and required no treatment. However, my looing around the web convinced me it is a condition to be taken seriously. Take a look at: http://www.americanheart.org/Scientific/statements/1997/079701.html http://www.ada.org/prac/position/endoprop.html http://www.swiftsite.com/mitralvalveprolapsesyndrome/ http://www.quicklink.net/bham/mvps.html http://www.medicinenet.com/Art.asp?li=MNI&ArticleKey=423 I had to argue with my dentist to get amoxycyline (4 gm) 1 hour before semi-annual teeth cleaning. But I was insistent and he relented when I showed him the Amer. Dental Assoc. statement on the subject. —
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