Question:
If nothing else, your decision gives you time to see how well the treatment is working for other people before you attempt it yourself. Also, finances are a pretty important consideration. Perhaps in the future it’ll work out yet…or something better will come along and you’ll be glad you waited. Sandra
Response:
Hi Mel, I have to look at this in a similar way. I *could* have had a cystoscopy under anesthesia on Jan 5. We were set to do it but I *thought* the medication was sufficient so I didn’t pursue it. In some ways I felt like I’d made a big mistake. But given yesterday’s long talk at the medical center urology clinic I think it has turned out for the best. I have to tell myself these things work out the way God plans. Maybe there was some reason that I wouldn’t have been able to tolerate anesthesia (the new uro does not use it for this procedure). who knows. I might have gotten earlier relief – or I might have had complications? I think you’re making the best decision your heart, mind and pocketbook can handle at this time and as Sandra said, this may give you an opportunity to see how others handle the procedure. you are in my thoughts and prayers. hugs, *********************************** KCat – I am not a medical professional. The contents of this post are based soley on my experiences and opinions http://www.ghg.net/schwerpt/mypage.htm http://www.ghg.net/schwerpt/aslfaq20.htm ("`-”-/").___..–”"`-._ (`6_ 6 ) `-. ( ).`-.__.’`) (_Y_.)’ ._ ) `._ `. “-..-” _..`–’_..-_/ /–’_.’ ,’ (()),-” (()),’ (((.-’
Response:
>I really feel like an ass right now.
Melanie – We all have them, have behaved like them, have argued with them and have just sat down on them and refused to budge. You’re a wise person to seek counsel and make a thoughtful decision. Just do the best you can. to our health kelly
Response:
I just love your answer, Kelly !! And Mel – your not a kid anymore. Don’t try to second guess yourself. You are a mature woman who has made an educated decision as to what is best for your life right now. Bev – Hide quoted text — Show quoted text -MADKELLY wrote in message <20010118200336.10098.00000…@ng-cr1.aol.com>… >>I really feel like an ass right now. >Melanie – We all have them, have behaved like them, have argued with them and >have just sat down on them and refused to budge. You’re a wise person to seek >counsel and make a thoughtful decision. Just do the best you can. >to our health >kelly
Response:
Melanie, This may be correct decision, cytotoxic drugs are use to be for very advanced lupus with kidney involvement. Check the net for more information. Gary. "Melanie Kopfinger" <kfin…@mindspring.com> wrote in message
news:942vbq$2ie$1@slb6.atl.mindspring.net… – Hide quoted text — Show quoted text -> Hello all, > As I had posted earlier, I was invited to join in on a study at Johns > Hopkins to undergo four days of high dosage Cytoxan. However, I have been > pouring over my finances and have decided (against all good reasoning) that > I cannot go through with this at this time. I am hoping that this doesn’t > cause my lupus to flare up again since I have to attend school this > semester. I simply wanted to let everyone know what decision I had made on > this, and I hope that I will be able to do this in the future (because it > seems to be the best treatment for me). > I really feel like an ass right now. I am not sure if this is the right > decision at all. I do know that if I go with my original plan to skip the > semester and go to JH for this treatment, I would most likely end up > bankrupt at the age of 22. This is the hardest decision of my life and I > hope to God that I made the correct choice. > Mel
Response:
Hello all, As I had posted earlier, I was invited to join in on a study at Johns Hopkins to undergo four days of high dosage Cytoxan. However, I have been pouring over my finances and have decided (against all good reasoning) that I cannot go through with this at this time. I am hoping that this doesn’t cause my lupus to flare up again since I have to attend school this semester. I simply wanted to let everyone know what decision I had made on this, and I hope that I will be able to do this in the future (because it seems to be the best treatment for me). I really feel like an ass right now. I am not sure if this is the right decision at all. I do know that if I go with my original plan to skip the semester and go to JH for this treatment, I would most likely end up bankrupt at the age of 22. This is the hardest decision of my life and I hope to God that I made the correct choice. Mel
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