Question:
Neurally Mediated Hypotenstion AKA Vasodepressor Syncope AKA Cardioneurogenic Relfex Syndrome AKA Neurocardiogenic Syncope AKA the Fainting Reflex AKA Vaso-Vagel Reflex AKA Autonomic Dysfunction Other than it having multiple apparently synonomous names, does anybody know anything about this syndrome. All I know is that it’s a drop in blood pressure from standing still for (relatively) long periods of time… Usually resulting in fainting or near-fainting. I’ve had this (phenomena – not diagnosis) for as long as I can remember, and I was wondering if it was a discrete syndrome, or perhaps related to another disease. Any info is appreciated. Sent via Deja.com http://www.deja.com/ Share what you know. Learn what you don’t.
Response:
AKA Dysautonomia, listed in the National Organization of Rare Diseases.(NORD) There is treatment for this, and there is a forum by Mass. General Hospital on it under "neurology". Can definitely be associated with Lupus or other collagen deficient diseases. You are not alone. Treatment options vary usually after testing on a tilt table. Something you can do for yourself is to push fluids and increase your blood volume, your pressure is less likely to fall as quickly or as much. Also, slow condition (walking) once your on the meds you need to take. Standing will cause discomfort as pooling of blood occurs in the abdomen and feet. Sit when you can, recline, and condition. Upper body movements with lifting are difficult, you can do strengthening exercises laying down. I walk on a treadmill and have done research in this field for many years. It is managing your body and you activities that matter. But know this, you must be seen by a physician who comprehends the disorder. Otherwise you are like a car that needs a tune-up really bad and you keep driving up the hill and things only get worse. Once you have the meds that help stabilize your disorder then you can start to condition (run the car) slowly, Good Luck, Susan RN
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