Question:
In article <3B3F58BE.8E4DD…@microconnect.net>, "John W. Johnston, Jr." <wes…@microconnect.net> writes: >he found another potentially dangerous problem that otherwise may >have gone unnoticed.
Sorta one of those good news/bad news things, huh? Hang in there, and have a great 4th! Tracy "if you’re on thin ice you may as well dance…"
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In article <P9H%6.10034$eL5.1128…@newsread1.prod.itd.earthlink.net>, "Candi Bowen" <reen…@earthlink.net> writes: >Dr. Askari at University Hospital. He’s >wonderful.
Hi, Candi….I went to a lecture given by him on Sjogren’s, and he was terrific! Who thought Sjogren’s could take up 6 hours? :-) I see Richard Stein. Are you from the Cleveland area? Tracy "if you’re on thin ice you may as well dance…"
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Dr. Deal is excellent…..I just wish he hadn’t left University Hospitals. Luckily, there are still top flight docs at University. Tracy "if you’re on thin ice you may as well dance…"
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You’re right, Tracy. I see Dr. Askari at University Hospital. He’s wonderful. ———- In article <20010701103245.29423.00001…@nso-fc.aol.com>, keept…@aol.com – Hide quoted text — Show quoted text -(Tracy Blumenthal Zelman) wrote: >Dr. Deal is excellent…..I just wish he hadn’t left University Hospitals. >Luckily, there are still top flight docs at University. >Tracy >"if you’re on thin ice you may as well dance…"
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Well, I head to Cleveland in the morning. I have a bone density study scheduled for 10:00 AM, and an appointment with the rheumatologist for 11:00. Leaving at 5:00 AM, because I know I’ll get lost at least once. Takes about three hours to get there from Pittsburgh, provided one knows where one is going. I’m anxious, but very glad to possibly get some answers. Wes
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Dear Wes, Just want to wish you good luck for tomorrow. I am directionaly challenged myself, so for me just finding the place would be considered a good outcome. BJ "John W. Johnston, Jr." <wes…@microconnect.net> wrote in message news:3B2E9788.8046D590@microconnect.net… – Hide quoted text — Show quoted text -> Well, I head to Cleveland in the morning. I have a bone density study > scheduled for 10:00 AM, and an appointment with the rheumatologist for > 11:00. Leaving at 5:00 AM, because I know I’ll get lost at least once. > Takes about three hours to get there from Pittsburgh, provided one knows > where one is going. I’m anxious, but very glad to possibly get some > answers. > Wes
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Wes, I’ll be praying for you as you are at Cleveland Clinic. I went there 10 years ago and was very pleased with the entire setup. I hope you get all the answers you are searching for, and more importantly, RELIEF. Kathy W.
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Wes, I will be thinking of you. They will help I just know it. Been there done that… good luck and hang loose. Watch all those tricky one way streets, and use the parking garage, it will cost a little but is the easiest way to get in there, then look to the left of the garage, and bingo…A building. Oh stop and grab a bite at the Mc Donald’s as well as all the other fast food places in the main building. You would think they all watched their cholesterol, but gee those heart docs have to have patients too. LOL Prayers are with you. janers
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"John W. Johnston, Jr." <wes…@microconnect.net> wrote in message news:3B2E9788.8046D590@microconnect.net… > Well, I head to Cleveland in the morning. I have a bone density study > scheduled for 10:00 AM, and an appointment with the rheumatologist for > 11:00. Leaving at 5:00 AM, because I know I’ll get lost at least once. > Takes about three hours to get there from Pittsburgh, provided one knows > where one is going. I’m anxious, but very glad to possibly get some > answers.
Did they tell you *why* the bone density test? I ask because my Doctor has ordered one for next Monday but only muttered something about an abnormal liver function reading. He slipped out of the room before I could ask why – and I’ve already made up my mind he will either tell me what/why or I’ll raise the roof at my follow up appointment. I understand that he is busy, but I swear – I’m gonna rope and hog-tie him if he pulls that again! Judith Feeling rode hard and put up wet
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Good luck tomorrow and drive safely. We will all be thinking aboout you and hoping that you get some answers. Sherry
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Judith I am corn fused right now as well. What in the world does a bone density have to do with abnormal liver readings??? Bone density is a test to determine whether the bone structure is dense or loosing it as I say LOL . It just tells whether or not you have strong bones. Cortisone plays with the bones and makes them brittle as well as other drugs too. Can’t think which one right now. any how, it is necessary since strike one you are a woman, and stike 2 you probably at some time or another have taken steroids. Osteoporosis is determined by a bone denstity, and if indeed it is there, then calcium or the new medications for bone health is available. Why would he put you at risk here. .Osteoporosis is more common in women, and hormones also play a role to help strenghthen bones. I would think maybe he just miss understood, but then again pffffffffffttttttt to that doc. Call you woman health center and get the low down on bone density and what you need to do to get one done so insurance pays for it. The right diagnosis put on that paper will do that. I know I am high risk due to medications that I have to use long term, I am sure that is Wes’s problem also, the use of steroids. A man has the good chance also to get osteo AKA brittle bones… good luck janers
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Wes, I wish you luck with your dr’s appointment. That’s a long ways to travel! Sandra
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Best of luck Wes. Keep us posted. catherine "John W. Johnston, Jr." <wes…@microconnect.net> wrote in message news:3B2E9788.8046D590@microconnect.net… – Hide quoted text — Show quoted text -> Well, I head to Cleveland in the morning. I have a bone density study > scheduled for 10:00 AM, and an appointment with the rheumatologist for > 11:00. Leaving at 5:00 AM, because I know I’ll get lost at least once. > Takes about three hours to get there from Pittsburgh, provided one knows > where one is going. I’m anxious, but very glad to possibly get some > answers. > Wes
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"Janers" <rojak…@bright.net> wrote in message
news:imHX6.12722$Bo2.359394@cletus.bright.net… > Judith > I am corn fused right now as well. What in the world does a bone density > have to do with abnormal liver readings???
When he left the room, I thought he was going to get a pamphlet for me, but he never returned. > Bone density is a test to determine whether the bone structure is dense or > loosing it as I say LOL . It just tells whether or not you have strong > bones. Cortisone plays with the bones and makes them brittle as well as > other drugs too. Can’t think which one right now. > any how, it is necessary since strike one you are a woman, and stike 2 you > probably at some time or another have taken steroids.
Yep – I get a shot (Kenalog) every four to six weeks, have been on prednizone many times, and (no doubt) other steroids. > Osteoporosis is > determined by a bone denstity, and if indeed it is there, then calcium or > the new medications for bone health is available. Why would he put you at > risk here.
RISK?!?!? *What* "risk"?!?!?! I thought this was like an Xray???? > .Osteoporosis is more common in women, and hormones also play a role to > help strenghthen bones. I would think maybe he just miss understood, but > then again pffffffffffttttttt to that doc.
Unfortunately, he’s the only one in town who will even "manage" Lupus pts/ > Call you woman health center and get the low down on bone density and what > you need to do to get one done so insurance pays for it. The right > diagnosis put on that paper will do that. I know I am high risk due to > medications that I have to use long term,
*What* Woman’s health center? We live in the high-desert, over an hours drive from a mall, 7-11, or other "civilization". > I am sure that is Wes’s problem also, the use of steroids. A man has the > good chance also to get osteo AKA brittle bones… > good luck > janers
ArrrrggggH! Judith in HOT (and getting hotter) SoCal
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Judy hello Janers here. There is not risk getting a bone density. The risk I meant was from taking steroids all the time, the risk being bones get brittle. Maybe I did not make myself clear on that. Or maybe I am just reading your answer wrong who the H knows. so you live where the cactus grow LOL well get in the shade woman, it is hot out there. snickers….. I hope you don’t have to travel by camel to get to that 7-11 because if you do your slurpie will melt by the time you get home.. Ok, joke over, hope I did not offend with that, but a laugh makes you feel better and believe me feeling good sometimes is far and few between lately. have a great day and hope you get that bone density done, it is a must…. All you do is lay there and a machine goes over the body, some minor noise but nothing like an MRI. YOu just lay down, relax and think happy thoughts. Like where in the heck is Mel Gibson when you need him. LOL janers
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Whoops – I didn’t realize you’d both E’d and P’d this, so replied via E. "Janers" <rojak…@bright.net> wrote in message
news:JQNX6.13542$Bo2.363313@cletus.bright.net… – Hide quoted text — Show quoted text -> Judy > hello Janers here. > There is not risk getting a bone density. The risk I meant was from taking > steroids all the time, the risk being bones get brittle. Maybe I did not > make myself clear on that. Or maybe I am just reading your answer wrong > who the H knows. > so you live where the cactus grow LOL well get in the shade woman, it is > hot out there. snickers….. > I hope you don’t have to travel by camel to get to that 7-11 because if you > do your slurpie will melt by the time you get home.. > Ok, joke over, hope I did not offend with that, but a laugh makes you feel > better and believe me feeling good sometimes is far and few between lately. > have a great day and hope you get that bone density done, it is a must…. > All you do is lay there and a machine goes over the body, some minor noise > but nothing like an MRI. YOu just lay down, relax and think happy > thoughts. Like where in the heck is Mel Gibson when you need him. LOL > janers
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Hi–I just hadd bone denseititty test done first time last week because of prednizone all thesee years and stuff. This the one that is scan -mineral one-short one–not injection one w/die and you retuen 3 hour later. Am wzaiting for results noww. Here is site to see info on this test and when there you can also look at other tests and stuff if you want,–i hvlf it in my save folder–sorry address is long–I do not know how to do that thing where you can just make the address where peopleo. can just click it on–i have webb tv.–any-one tell me how to do that–i always wanted to know–thank-you in advanse. Well here goeze the address to get the info on bone scan—http://www.health.harvard.edu/fhgldiagnosticslosteoporosislosteoporos… you gett to page go down too numbur 12 and click on. Hope this helps some. HUGS—Lar Look how sweet she sleeps,how free must be her dreams. In another life time she must have owned the world,or been faithly wed To some righteous king who wrote psalms besides a moonlit stream
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Hi Wes, I have a good endocrinologist too. He is right on top of things. I see in a brief article I have here, that if the parathormone level is high,it can result in markedly high serum calcium levels. I noticed that you said yours was not. That sounds like a good sign. Do you have to wait long to see the gland man, or rather the gland lady, in this case? Keep us informed. BJ "John W. Johnston, Jr." <wes…@microconnect.net> wrote in message news:3B39069E.AE7070F3@microconnect.net… I just spoke with Dr. Deal from the Cleveland Clinic. The ANA was negative, which I expected, given the prednisone, etc. Based on that finding, he is not going to treat me for lupus. He is referring me to an endocrinologist here in Pittsburgh, because my parathyroid hormone level is high. Calcium and vitamin D levels are fine, however. I have been taking Caltrate with D for years now. I don’t recall the technical info, but there is a link between kidney function and parathyroid function. I have had nothing but positive experiences with endocrinologists in the past, and this particular doctor is a woman, which I view as a huge plus. I have been advised by the doctors here that, although it usually couldn’t hurt to just go ahead with treatment, plaquenil might be dangerous for me, since I have already had serious retinal problems. Having been without sight in one eye for a time, I tend to agree. Therefore, I am considering trying DHEA. It is supposed to help with bone loss, joint pain, and fatigue, and I already have a low testosterone level. That’s it for now I guess. Still waiting on the biopsy results. Thanks everyone, Wes
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