Question:
On Tue, 17 Oct 2000 13:43:44 -0400 (EDT), you wrote: >w/meds–Has anyone tried something called "BOOST" a nutrition drink in >flavors and my Rheumy has said it was okay. Better than not eating >anything–Just an idea–Lar
Hi Lar, 
I drink Ensure – sometimes daily, sometimes that isn’t necessary. All depends on how the gut is doing for the day and my rollercoaster appetite. I can’t handle any of the flavors ‘cept vanilla but that’s my personal taste – Anyway… it’s sweet and syrupy but it seems to help when solids won’t go/stay down. My daughter prefers boost (she’s just trying to bulk up). Sometimes I mix one can of the vanilla ensure with one can of Sweet Success (kinda like "slim fast") to make it more palatable. It makes it more of a malt consistency instead of the syrup consistency. And though SS is low on calories it still adds to the dietary value of the combination. *********************************** KCat http://www.ghg.net/schwerpt/mypage.htm http://www.ghg.net/schwerpt/aslfaq20.htm ("`-”-/").___..–”"`-._ (`6_ 6 ) `-. ( ).`-.__.’`) (_Y_.)’ ._ ) `._ `. “-..-” _..`–’_..-_/ /–’_.’ ,’ (()),-” (()),’ (((.-’
Response:
Have you tried Zantac? It helps my 15 year old daughter that has had lupus for 2 1/2 years now.
Response:
Hi Kit Cat–me again–"pain in the neck"[LOL]—I drink the boost because I have to be very careful of "Fiber" it after many years of experimentation and trial works the best for me. The boost comes in Reg. Boost-Boost Plus[for bulking up] and Boost–High Protien. I need to eat w/meds but have to still be careful of not adding too much calories[sp]. I am taking pred and even on the small everyday maintenanc dosage I swear[can I say that>] all I have to do is look at food and suck in air and I gain weight. Plus w/water pills daily for Edema I look rounded and feel fat all the time. So I ran on again but just wanted to thank-you for you suggestions and taking time to care. Take Care—Lar
Response:
On Thu, 19 Oct 2000 15:31:17 -0400 (EDT), you wrote: >Hi Kit Cat–me again–"pain in the neck"[LOL]
hardly! >—I drink the boost >because I have to be very careful of "Fiber"
yeah… me too.. One of the things I don’t understand about my so-called IBS – I’m told I need more fiber in my diet to help with the symptoms but fibre sends me into horrible spasms… I can’t drink an entire "diet drink" like Sweet Success at one time because of the fibre content – hence mixing the two and toning down the sweetness of one and the fibre of the other. But sometimes Ensure alone is all I can handle. >feel fat all the time. So I ran on again but just wanted to thank-you >for you suggestions and taking time to care. Take >Care—Lar
Run on as much as you like. It’s good to have another new voice here best wishes, *********************************** KCat – I am not a medical professional. The contents of this post are based soley on my experiences and opinions http://www.ghg.net/schwerpt/mypage.htm http://www.ghg.net/schwerpt/aslfaq20.htm ("`-”-/").___..–”"`-._ (`6_ 6 ) `-. ( ).`-.__.’`) (_Y_.)’ ._ ) `._ `. “-..-” _..`–’_..-_/ /–’_.’ ,’ (()),-” (()),’ (((.-’
Response:
Kristin don’t know if you are on imuron or not . But if you are there is a med the dr. can call in for you to drink. They had to for me the min. you drink it there is relief. So try your dr. and tell him what you are doing the over the counter stuff just don’t get it. I used to feel green. So I feel for ya. But your Dr. will call in something for this. Talk at you later Kristi
Response:
kristin, I had been on prilosec 2 times a day and then tried prevacid, which for me made me bloated and more sick, and then a new one privinet, I think well that did not work either. so I am back on prilosec with the use of mylanta, or riopan, after meals and at bedtime…plus a drug called IMdur because of they think, LOL esophagus spasms…so who’s to tell. Every one is different…watch out if ;you use mylanta too much cause it causes diarrhea in some people…..alternagel does not but it is hard to find… good luck..Janers
Response:
Thankyou all for your help, very appreciated. =)
Response:
Sounds like you’ve got a similar problem to my daughter’s. She also has a very sensitive stomach, and tends to feel nauseated with very little provocation. Prednisone tends to affect her pretty strongly in more ways than one, so she’s pretty much only able to tolerate doses of 20 mg./day or less. We’ve found that the only way we were able to get her Prednisone any lower than 20 mg./day was by adding another medication. She did Cytoxan for about a year, but then quit when we were no longer able to treat her nausea effectively (she’s intolerant to virtually all anti-emetics). After that she was offered a choice of either Methotrexate, Imuran or Cellcept. She chose Methotrexate because she liked the idea of a weekly rather than daily dose. This, and her DHEA has allowed us to maintain her Prednisone at 10 mg./day. We’d like to get it lower, but that hasn’t been possible so far. BTW, a lot of my daughter’s problem with a sensitive stomach is related to her lupus. When she’s flaring, nausea and vomiting are always a big problem. She also commonly simply lacks an appetite, especially in the presence of chronic low grade fevers. It adds to the problem with medications bothering her stomach. I don’t know how much of this applies to you, but I’m hoping that something in my daughter’s experience will be helpful to your situation. Sandra
Response:
Sadra, If I know you, you researched the Imuran, methtrexate, and Cell- cept before you settled on methotrexate. I’m hopin she’s doing well with the methotrexate, and having less joint involvement. When you did consider Cell-cept, what made you for or against it? I’m not finding a lot of material to support its use in CNS lupus, even in conjunction with cytoxan. Maybe I’m looking for some information that just doesn’t exist yet. best of luck to you all~~~~the methotexate injections, I thought, were working well for me, until my labs just kept falling down. I hope your daughter spends a carefree holiday season, that’s not too far away, if the TV is right!!! KimIn article <20001014235402.21128.00002…@ng-ce1.aol.com>, scroyle…@aol.com (SCroyle909) wrote: – Hide quoted text — Show quoted text -> Sounds like you’ve got a similar problem to my daughter’s. She also has a very > sensitive stomach, and tends to feel nauseated with very little provocation. > Prednisone tends to affect her pretty strongly in more ways than one, so she’s > pretty much only able to tolerate doses of 20 mg./day or less. We’ve found > that the only way we were able to get her Prednisone any lower than 20 mg./day > was by adding another medication. She did Cytoxan for about a year, but then > quit when we were no longer able to treat her nausea effectively (she’s > intolerant to virtually all anti-emetics). After that she was offered a choice > of either Methotrexate, Imuran or Cellcept. She chose Methotrexate because she > liked the idea of a weekly rather than daily dose. This, and her DHEA has > allowed us to maintain her Prednisone at 10 mg./day. We’d like to get it > lower, but that hasn’t been possible so far. > BTW, a lot of my daughter’s problem with a sensitive stomach is related to her > lupus. When she’s flaring, nausea and vomiting are always a big problem. She > also commonly simply lacks an appetite, especially in the presence of chronic > low grade fevers. It adds to the problem with medications bothering her > stomach. > I don’t know how much of this applies to you, but I’m hoping that something in > my daughter’s experience will be helpful to your situation. > Sandra
Sent via Deja.com http://www.deja.com/ Before you buy.
Response:
Hi Kristin, You’ve already gotten excellent responses so this is just a "me too" basically. I am not on prednisone but my gut has been in trouble for a couple of years now. I have found very little that helps it other than Librax (smooth muscle relaxant & benzodiazapine). But that does nothing for nausea (or very little). Most of my gut problems are lower down though I do get pretty good nausea several times a week. Have no clue what is causing it though as with many things in my life we just shrug and say "must be the lupus". since none of my docs seem to have an answer that works as well as anything at this point. Prevacid might work better for you – it’s another YMMV sort of thing. Also, I find a glucose tablet or a peppermint helps a lot of times (though obviously these might not be appropriate if you have diabetes). Mostly it’s the sugar that calms the gut though I have no idea *why* – but peppermint is a good, natural anti-nausea herb. On 14 Oct 2000 05:04:49 GMT, you wrote: >My stomach has been upset for months now from the prednisone and my doctor >prescribed 40 mg of pepcid. this didnt help and has gotton worse over the >passed three weeks to where I can’t eat and feel like I’m going to throw up all >the time. Does anybody know of other alternatives? Does anyone else have the >same problem? Thanks =) >kristin
*********************************** KCat http://www.ghg.net/schwerpt/mypage.htm http://www.ghg.net/schwerpt/aslfaq20.htm ("`-”-/").___..–”"`-._ (`6_ 6 ) `-. ( ).`-.__.’`) (_Y_.)’ ._ ) `._ `. “-..-” _..`–’_..-_/ /–’_.’ ,’ (()),-” (()),’ (((.-’
Response:
You’re right…I did research all three medications my daughter was offered (Imuran, Methotrexate and Cellcept). My daughter very strongly wanted to try Methotrexate because of the once-a-week dosing. I didn’t have a very strong preference at the time one way or the other. I hadn’t heard much about Cellcept for CNS lupus. If I had heard it was being used a lot for this type of lupus, I might have pushed for it over the others. I might also have pushed harder for Imuran, except that we were doubtful that my daughter’s stomach would tolerate daily dosing with it. We felt that since she has so many joint and muscle symptoms and because of the once-a-week dosing with Methotrexate, we might have good results. Also, as I said, my daughter had very strong feelings about wanting to try Methotrexate. Since she’s 15, intelligent and pretty well informed about her lupus, I decided to let her decide. Her doctor thought her choice was perfectly fine, and I also approved it. It’s worked out pretty well. Methotrexate hasn’t eliminated all her symptoms, but then that wasn’t necessarily the goal. The main goal was to maintain the improvement she achieved with Cytoxan chemotherapy and also to reduce her joint symptoms. For the most part, we’ve succeeded at this. Still, I’m keeping a close eye on the current research being done. If and when it becomes clear that Methotrexate isn’t working well for her, then we’ll explore other options. Sandra
Response:
Dear Kristen–I started out along time ago with this problem and the first one I was gien was the dreaded Propulsid which now has been taken off the market because of heart problems. Then moved to Prevacid–notta a solution. Then I was given Prilosec 40mg one time dose and found that that was not holding me so Rheumy suggested Prilosec 20mg twice a day instead of the WHAM 40 mg dose and that has been doing pretty good. I should also say that I have Esophigilitis from the Hyanial Hernia and letting the Acid Reflux go to long in the beggining[this is for those that do not know holes up and down my Esophigus from the acid eating through it -also now makes me more susseptible[sp] to throat cancer] t
Response:
Hi–this the end to my first letter–my computer keeps locking up my key-board-@#$$%^&*(*( any-who I wrote what I did before not to scare anyone just to let you all know to keep an eye on this as this can lead to more serious problems!! I also have to take Carafate Suspension and an antacid because things have gotten that bad. Good Luck tou you and all. Oh the not hungry thing but still have to take something w/meds–Has anyone tried something called "BOOST" a nutrition drink in flavors and my Rheumy has said it was okay. Better than not eating anything–Just an idea–Lar
Response:
My stomach has been upset for months now from the prednisone and my doctor prescribed 40 mg of pepcid. this didnt help and has gotton worse over the passed three weeks to where I can’t eat and feel like I’m going to throw up all the time. Does anybody know of other alternatives? Does anyone else have the same problem? Thanks =) kristin
Response:
Hi! . my nakeis Kim, and it sounds like you’re having a lot of acid reflux, plus prednisone can invade the stomach lining. I use every niht Prevacid 30 mg, I have also gotten relief from the Mylanta supreme, but you have so watch when you take the two, as they inhibit the others absorbtion. My appetite is nothing, and has been since I’ve been on the prednisone, I’m starting my third year of it. Of all the good wisdom, one doc taught me this, try to ear solids, before you dring liquids to fill your stomach if you do feel hungry. (My husband and I were addicts to iced tea, always had it our hands–Hve a glass next to me right now, but I’ve already have cereal. And when I just can’t eat, I don’t. At first my husband tried everything, but when you don’t want food, you don’t want food..didn’t mean to ramble, wish you the best, Kim In article <20001014010449.03749.00001…@ng-cd1.aol.com>, hg2fr…@aol.com (Hg2FrEak) wrote: > My stomach has been upset for months now from the prednisone and my doctor > prescribed 40 mg of pepcid. this didnt help and has gotton worse over the > passed three weeks to where I can’t eat and feel like I’m going to throw up all > the time. Does anybody know of other alternatives? Does anyone else have the > same problem? Thanks =) > kristin
Sent via Deja.com http://www.deja.com/ Before you buy.
If you like this post and would like to receive updates from this blog, please subscribe our feed.