Lupus FAQ » Lupus Symptoms » Sjogrens anyone?

Sjogrens anyone?

Question:

Thanks for your input …  Your message was the icing on the cake for me to make my decision…. I am seeing my opth. and don’t plan to leave his office till I have a date on the OR slate for my punctal plugs!! — from Shelagh  <:)  valleylu…@telus.net Lupus – Invisible in Plain Sight   AT http://www3.telus.net/valleylupus/index.html "fiona" <orin…@idx.nospm.com.au> wrote in message

news:3d0689c0@news1.idx.com.au… – Hide quoted text — Show quoted text -> I have sjogrens and SLE and I know waht you’re talking about with dry eyes > in the night. I also work in an operating theatre where the air changes 15 > times a minute which makes it very drying. I tries all the tear gels and > drops, but I ended up getting the punctal plugs. I had the temporary ones > put it and it made such a difference, so now I have the permanent ones in > and they help a lot. I have had them in for about 3 years and it doesn’t > solve the problem completely but I only have to use the gel occasionally > now. Good luck fiona > Shelagh wrote in message … > >– > >Hi to whoever can help out. > >Sjogrens is really worsening as I get older and after trying everything > >from ‘tears, ‘liquigel’, ‘gel’, ‘ointments’;  antibacterial, antibiotic > >and steroidal drops; I am at a loss for something to get my ‘eyes’ > >through the night! > >It feels like sandpaper between my lids and orbs when I attempt to open > >them to see my way to the biffy or whatever during the night and the > >morning is just as bad … my optham. and doctor(s) are stumped at this > >point as well and I am now using all of the above on a rotating basis to > >see if one in particular will make the big difference .. so far no luck! > >Any takers for my assistance?? > >Shelagh > >http://www3.telus.net/valleylupus > >PS: > >My SS is secondary to SLE and has evolved to systemic involvement as > >well as all the ‘glands’ and mucosal areas! > >–

Response:

Hi Andy  > and NG readers> Am just in the process of being diagnosed with "Dry Eyes" <have had lupus 23 years> after a lot of eye lid infections. What amazed me about your comment was > in the tear-ducts in the inside corners of your eyes. This stops the > moisture draining away into the nose. It can be done temporarily with

For a few years now I have had attacks of tear-itis <my word for it> where suddenly my eyes start streaming, my *nose* starts streaming, and my eyes sting so acutely I have to shut them. As it usually happens when I am outside in the sun or wind,  it can be a problem. I have had 2 kinds of tear secretion test, apparently I have enough tears but they are poor quality. I am trying to get a referal to an eye specialist about it. Got the last test done at Eye Casyalty. Does anyone have any thoughts on this problem? The fact that I was having streaming eyes made me and my lupus consultant think maybe it wasnt  Sj

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