Question:
Hi Carol, I looked for some info on panniculitis, but could not find much. I am glad to know that there is treatment for it. Gad, it is so hard when our appearance is changed too. I know I struggle with that part a lot. I think you said you were going to see Dr.Pollack. How did you like him/her ? Why is it that we seem to have to fight to get a diagnosis of lupus? This hormones/age/hysteria stuff is heard all too commonly. It is so much easier once we know what we are facing and get treatment. I hope things will be better for you now. BJ-Sk. Canada "saskie" <saskiehometow…@hotmail.com> wrote in message
news:10nt42o57hc1d49@corp.supernews.com… – Hide quoted text — Show quoted text -> Just home from the Dr. ; I have a lot of subcutaneous wasting, on my face, > top of both arms; this has been gradual and all Dr.s have said it is nerve > involvement of some sort?? Now I find out it is lupus profundus ; at least > now I know what it is and there is treatment; however what has been lost > will never recover. Hopefully it will spare the rest of my face so I do not > look too freakish. > What a nightmare it is to get a diagnosis rather than an opinion; as in , > hormones, age, hysteria blah , blah. Also have the antiphosphoid deal going > on and will start Coumadin tomorrow. > My husband has Non Hodgkin’s Lymphoma so I have been sort of ignoring my > symptoms until I developed small flat lumps in the subcutaneous area that > are very painful. Hubby offered me some of his chemo pills but I took a > pass. > Saskie/Carol
Response:
Just home from the Dr. ; I have a lot of subcutaneous wasting, on my face, top of both arms; this has been gradual and all Dr.s have said it is nerve involvement of some sort?? Now I find out it is lupus profundus ; at least now I know what it is and there is treatment; however what has been lost will never recover. Hopefully it will spare the rest of my face so I do not look too freakish. What a nightmare it is to get a diagnosis rather than an opinion; as in , hormones, age, hysteria blah , blah. Also have the antiphosphoid deal going on and will start Coumadin tomorrow. My husband has Non Hodgkin’s Lymphoma so I have been sort of ignoring my symptoms until I developed small flat lumps in the subcutaneous area that are very painful. Hubby offered me some of his chemo pills but I took a pass. Saskie/Carol
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