Question:
I just wanted to thank you for answering me. That was the first time I ever wrote anything on the computer. Any idea where my original posting went?? Susan
Response:
Once you read a post-if you don’t mark unread at bottom of screen it will not come up next time you log on-it see’s itself as being read, so make sure you mark unread on what you want to keep each time. Cindy
Response:
Firstly, if you don’t give your doc all the information – he can only see the three complaints and the negative test and assume you do not have active autoimmune disease. I recommend you find out what tests were done, get copies, and request a referral for a rheumatologist. Write up the symptoms you’ve had, whether they’ve been documented (sounds like many of them haven’t) and don’t be afraid to present that to either your gp or to the rheumatologist. They can’t make educated guesses or dx with partial information. And a negative test doest not mean you are disease free, however you might not have Lupus but some other autoimmune disease that has similar symptoms. Or you may be of the small (really how small I don’t know – some say 2% – I believe it’s a larger number) percentage that is ANA negative. But find out what your tests really were. If you have a positive ANA but a low one then you may be in the early stages of autoimmune disease. MHO only kc cat ******************** kc cat kcdoc…@ghg.net http://www.ghg.net/schwerpt/mypage.htm ()() ().–.() (__) ()() ().–.() (__)
Response:
Sfos331 wrote: > I just went to a new doctor with the main complaint of my hands always shaking > and a rash along the sides of my nose (which I’ve had for years), and a very > bad low back ache. He told me he wanted to rule out lupus. I really didn’t > think I had lupus until I got a book on it. Everything was there, my elbows > and wrists always hurting, tmj, sores on the insides of my mouth, rashes on my > arms, bad memory, trouble concentrating, trouble going up steps (muscles in my > legs) and so on. Things I didn’t even tell him because I didn’t want to sound > like a big complainer. I have to say I thought he was really on top of > things. I was also really frightened. > I called for my blood work and was told by the nurse that it was normal. Am I > really lupus free?
I would suggest that you find out which tests your Dr.had performed. Then post those test results for the more informed on this newsgroup to check out. You’ll get better answers with better information. God bless, George
Response:
I just went to a new doctor with the main complaint of my hands always shaking and a rash along the sides of my nose (which I’ve had for years), and a very bad low back ache. He told me he wanted to rule out lupus. I really didn’t think I had lupus until I got a book on it. Everything was there, my elbows and wrists always hurting, tmj, sores on the insides of my mouth, rashes on my arms, bad memory, trouble concentrating, trouble going up steps (muscles in my legs) and so on. Things I didn’t even tell him because I didn’t want to sound like a big complainer. I have to say I thought he was really on top of things. I was also really frightened. I called for my blood work and was told by the nurse that it was normal. Am I really lupus free?
If you like this post and would like to receive updates from this blog, please subscribe our feed.