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Hi!

Question:

HI LUKAS! I’m confused, what is the scorpion type?  Is this an analogy of some kind? Margaret :)  PEACE…  :)

Response:

M B wrote in message <6evg78$4p…@newsd-111.bryant.webtv.net>…

HI LUKAS! I’m confused, what is the scorpion type?  Is this an analogy of some kind? Margaret :)  PEACE…  :) Let’s see if I can explain: It would be the archetype: Karl Jung used them from for exemple greek mythology, to help classify diferentes types of personalities. My treatement with my Junguian therapist included also a homeopatic doctor. They both worked in find out through my therapy sessions and ALL the symptoms I was having at the time and as long I could remember in my life . Not focusing only on the lupus or the flare itselves. So the homeopatic remedy I took was for, so to speak, my psychological type,   for me,not treating only the disease, but my own self. I konw it sounds weird, but it worked, and it’s been working .Acceptance of myself, not feeling so diferent from everybody else,knowing that I really have more energy at night and trying to make a balance between this and my everyday needs;recognizing things that can lead me to anger and frustation,preserve myself from these situations.I have a lot more to tell about it, I’m just kind of tired from a busy sunday.My life it’s quite a book!let’s talk more! good luck, LUKAS. we…@worldnet.att.net

Response:

>Margaret Blevins wrote in message ><6eg5an$e5…@newsd-113.bryant.webtv.net>… >Hi Everyone! >I’ve been evesdropping for the last few weeks, but I decided I might as >well join in.  Are they are other night owls out there?  It certainly >isn’t by choice, as most of you probably know.

I would be if it weren’t for trazadone.  :P    That and the hubby likes me in there with him when he crashes for the night. >So anyway, I’m really new to the internet, just got WebTV.  I actually >went to a demonstration and the door prize was a WebTV.  I never win >anything, but I think this was a message.

Neat…  I like that.  :)   >So, I’m new to the net, but not to Lupus.  I was diagnosed February 3, >1993, however, based upon my medical history, the doctor’s think I’ve >probably had it since a child.  

I’m hearing that so much lately.  I was reviewing my sister’s history (she has SLE and is currently flaring badly)  and recalling that she had recurring bouts with anemia when she was in her teens.  Wondering now if that was a sign of things to come for her.  I have only been dealing with "symptoms" for a little over 4 years (to my knowledge)… I am not officially a "lupie" but have many of the symptoms seen in SLE.   I have FM and undiagnosed connective tissue "problem". >I’ve had my ups and downs these last 5 >years, both mentally, physically, financially….as I’m sure you all >know.  My most recent episode is myocardial dysfunction (left ventrical >enlargement).  This appears to be quite common in Lupus patients, but it >get’s a little old because I’m to young for all this.  Will be 38 in >April.

Yup… that’s too young.  I’m sorry to hear about the myocardial problem.  That would be one of the most frightening aspects of this disease as far as I’m concerned.   >I attend a really great support group that has helped me more than I >ever expected, so I encourage everyone to find a group if you can.  I’m >very quiet and shy, so I did not think it would be a good environment >for me, but that first time I dragged my big brother with me and from >then on it’s history.

Are there folks in your support group that are undiagnosed.  My doc says I am do not "clinically have lupus" but still wants me to get my liver and kidney function tests run on a regular basis.  I assume that means that she is concerned that the "not clinically" thing has the potential to change.  I contribute when possible to the Hamline lupus mailing list and there are several folks in my neck o’ the woods that do as well… but I do wonder sometimes about getting involved in a support group.  Maybe even just for the FM.  I too am very shy (though you can’t tell it in email) and have trouble expressing myself emotionally among strangers.  It has made for some difficult times with docs as they see this little shrinking violet (cactus?) that just says "I’m hurting a lot."  or "I’m fine." rather than screaming the pain that I feel. >Well, it’s almost 3:00, so I guess I should end this.  If anyone wants >to ask questions or make comments, feel free. >Margaret, Norman, Oklahoma

Thanks for writing Margaret.  I’m sorry I’m a little late in responding but it’s good to see folks contributing to this group. Take care, KC

Response:

Hi Everyone! I’ve been evesdropping for the last few weeks, but I decided I might as well join in.  Are they are other night owls out there?  It certainly isn’t by choice, as most of you probably know. So anyway, I’m really new to the internet, just got WebTV.  I actually went to a demonstration and the door prize was a WebTV.  I never win anything, but I think this was a message. So, I’m new to the net, but not to Lupus.  I was diagnosed February 3, 1993, however, based upon my medical history, the doctor’s think I’ve probably had it since a child.  I’ve had my ups and downs these last 5 years, both mentally, physically, financially….as I’m sure you all know.  My most recent episode is myocardial dysfunction (left ventrical enlargement).  This appears to be quite common in Lupus patients, but it get’s a little old because I’m to young for all this.  Will be 38 in April. I attend a really great support group that has helped me more than I ever expected, so I encourage everyone to find a group if you can.  I’m very quiet and shy, so I did not think it would be a good environment for me, but that first time I dragged my big brother with me and from then on it’s history. Well, it’s almost 3:00, so I guess I should end this.  If anyone wants to ask questions or make comments, feel free.   Margaret, Norman, Oklahoma :)  Peace!!  :)

Response:

Margaret Blevins wrote in message

<6eg5an$e5…@newsd-113.bryant.webtv.net>… Hi Everyone! I’ve been evesdropping for the last few weeks, but I decided I might as well join in.  Are they are other night owls out there?  It certainly isn’t by choice, as most of you probably know. So anyway, I’m really new to the internet, just got WebTV.  I actually went to a demonstration and the door prize was a WebTV.  I never win anything, but I think this was a message. So, I’m new to the net, but not to Lupus.  I was diagnosed February 3, 1993, however, based upon my medical history, the doctor’s think I’ve probably had it since a child.  I’ve had my ups and downs these last 5 years, both mentally, physically, financially….as I’m sure you all know.  My most recent episode is myocardial dysfunction (left ventrical enlargement).  This appears to be quite common in Lupus patients, but it get’s a little old because I’m to young for all this.  Will be 38 in April. I attend a really great support group that has helped me more than I ever expected, so I encourage everyone to find a group if you can.  I’m very quiet and shy, so I did not think it would be a good environment for me, but that first time I dragged my big brother with me and from then on it’s history. Well, it’s almost 3:00, so I guess I should end this.  If anyone wants to ask questions or make comments, feel free. Margaret, Norman, Oklahoma :)  Peace!!  :) Hi, Margaret I’m sure  a night owl, but between my baby daughter (a year old) my husband I still have to figure out how this whole computer stuff works.I would like to spend my insommiac nights chatting, but I just can’t get to it yet. I have always been more comfortable after 6pm: my homeopatic doctor and my alternative psychologist had told me that I have the scorpion type wich is prone to selfinflicted health problems and also its an nocturnal animal.It’s also bad to wake up in the morning and not be able to enjoy the sunlight. SO, I figure if I sleep later I will have more time to BE without worry or feel weird because everybody is happy if sunny, but I feel better if it’s cloudy!

Response:

Margaret Blevins wrote in message

<6eg5an$e5…@newsd-113.bryant.webtv.net>… Hi Everyone! I’ve been evesdropping for the last few weeks, but I decided I might as well join in.  Are they are other night owls out there?  It certainly isn’t by choice, as most of you probably know. So anyway, I’m really new to the internet, just got WebTV.  I actually went to a demonstration and the door prize was a WebTV.  I never win anything, but I think this was a message. So, I’m new to the net, but not to Lupus.  I was diagnosed February 3, 1993, however, based upon my medical history, the doctor’s think I’ve probably had it since a child.  I’ve had my ups and downs these last 5 years, both mentally, physically, financially….as I’m sure you all know.  My most recent episode is myocardial dysfunction (left ventrical enlargement).  This appears to be quite common in Lupus patients, but it get’s a little old because I’m to young for all this.  Will be 38 in April. I attend a really great support group that has helped me more than I ever expected, so I encourage everyone to find a group if you can.  I’m very quiet and shy, so I did not think it would be a good environment for me, but that first time I dragged my big brother with me and from then on it’s history. Well, it’s almost 3:00, so I guess I should end this.  If anyone wants to ask questions or make comments, feel free. Margaret, Norman, Oklahoma :)  Peace!!  :) Sorry I could’nt finish I’m LUKAS wemcl….@worldnet.att.net. Nice to meet you , Margaret

Response:

Hello! How the heck is everybody?  Happy Thanksgiving to all the Yanks.  I’m fine.  The kidney is still working very well.  I don’t really have a lot to say, but I missed everyone. Blessings to all. Wes

Response:

HI Wesley,, It sure has been a long time.  I hope you are feeling better! RhondaM "Wesley" <johnjohnston2…@msn.com> wrote in message

news:112adbed.0411232237.6038d87a@posting.google.com… – Hide quoted text — Show quoted text -> Hello! > How the heck is everybody?  Happy Thanksgiving to all the Yanks.  I’m > fine.  The kidney is still working very well.  I don’t really have a > lot to say, but I missed everyone. > Blessings to all. > Wes

Response:

How wonderful to see you Wes! Great to hear that you are fine. Do you know how much you have been missed? Have a wonderful Thanksgiving with that family of yours. BJ-Sk. Canada "Wesley" <johnjohnston2…@msn.com> wrote in message

news:112adbed.0411232237.6038d87a@posting.google.com… – Hide quoted text — Show quoted text -> Hello! > How the heck is everybody?  Happy Thanksgiving to all the Yanks.  I’m > fine.  The kidney is still working very well.  I don’t really have a > lot to say, but I missed everyone. > Blessings to all. > Wes

Response:

"Wesley" <johnjohnston2…@msn.com> wrote in message

news:112adbed.0411232237.6038d87a@posting.google.com… > Hello! > How the heck is everybody?  Happy Thanksgiving to all the Yanks.  I’m > fine.  The kidney is still working very well.  I don’t really have a > lot to say, but I missed everyone. > Blessings to all. > Wes

Morning Wes :) )) nice to see life is treating you better. We will still be here when needed . Bruce On. " happy to see your mini swimming pool is working well."

Response:

Hot Dang Wes, so nice to hear from you.  And you woke up some of us sleeping loopies LOL. Good to know that your kidneys are doing well.  I am sure that you are very Thankful for a lot of things this year, as we all are. Happy Thanksgiving to you and your family janers

Response:

Wonderful news Wes! It can’t get much better than that I think hey? Really good to hear from you and especially good to hear that news! The group misses you too btw, and remember we are always here for you ‘if and when’! hugs to you and your family! from Shelagh Oh, Happy Thanksgiving too!! to all you ‘Americans’!! – Hide quoted text — Show quoted text -"Wesley"  wrote in message > Hello! > How the heck is everybody?  Happy Thanksgiving to all the Yanks.  I’m > fine.  The kidney is still working very well.  I don’t really have a > lot to say, but I missed everyone. > Blessings to all. > Wes

Response:

Wesle-mania! It is so good to hear from you and that you are doing well… at least on the kidney front.  We would love to hear more from you, and about Kip and all the little Kippykins… Love to you Mair "Wesley" <johnjohnston2…@msn.com> wrote in message

news:112adbed.0411232237.6038d87a@posting.google.com… – Hide quoted text — Show quoted text -> Hello! > How the heck is everybody?  Happy Thanksgiving to all the Yanks.  I’m > fine.  The kidney is still working very well.  I don’t really have a > lot to say, but I missed everyone. > Blessings to all. > Wes

Response:

Wesley wrote: > How the heck is everybody?  Happy Thanksgiving to all the Yanks.  I’m > fine.  The kidney is still working very well.  I don’t really have a > lot to say, but I missed everyone.

Good to hear from you, Wes, Are you back reading the newsgroup? or just popped in to say "hi"? Hugs J

Response:

I’ll say it again – Wes is an inspiration and a hero! "Beverley" <pottings…@sybercom.net> wrote in message

news:ubndgmi32s3944@corp.supernews.com… – Hide quoted text — Show quoted text -> So glad you are back with us! > A port sound ucky but I guess it is better? Anyway it just seems like a big > thing to have a "port" in the abdomen. You are such a rock! You just go > through all this stuff like it was just some normal everyday sort of thing > akin to brushing your teeth. Lots of hugs and love to you and your family > because I’m sending you enough to share!! > Bev > "Wes Johnston" <wesle…@msn.com> wrote in message > news:n50nbugel7ogq4v0u2bhtrrv64vr678kjd@4ax.com… > > Hi Everyone, > > I’m back.  Had another treatment today.  I hate them.  I am going to > > start CAPD as soon as I can get a port placed into my abdomen, then I > > can dialyze at home. > > Thanks for all your prayers. > > Wes

Response:

"Andy" <a…@kitzbuhel.demon.co.uk> wrote in message

news:vaQVjjBcJ$u8EwsX@kitzbuhel.demon.co.uk… > In article <n50nbugel7ogq4v0u2bhtrrv64vr678…@4ax.com>, Wes Johnston > <wesle…@msn.com> wrote > >Hi Everyone, > Hi Wes! > — > Andy [Editor, Austrian Philatelic Society] > For Austrian philately <URL:http://www.kitzbuhel.demon.co.uk/austamps> > For Lupus <URL:http://www.kitzbuhel.demon.co.uk/lupus>>

Hey Wes, really glad you are home. Hope you are feeling better really soon. Wende

Response:

Hi Wes, Things just weren’t the same around here without you. You should have said " Honey, I’m home."  All your girls are so pleased to have you back. Take care of yourself now, or we will all be nagging at you. BJ-happy in Sk. "Wes Johnston" <wesle…@msn.com> wrote in message

news:n50nbugel7ogq4v0u2bhtrrv64vr678kjd@4ax.com… – Hide quoted text — Show quoted text -> Hi Everyone, > I’m back.  Had another treatment today.  I hate them.  I am going to > start CAPD as soon as I can get a port placed into my abdomen, then I > can dialyze at home. > Thanks for all your prayers. > Wes

Response:

Hi Wes it is so good to see your post. I am sorry things have been so difficult. It is hard enough when treatments go well let alone when complications arise. Our bodies fight such a battle on an everyday basis anyway. I am having one more Gamma wednesday, then we are going to reevaluate as I had a really bad weekend, trouble from muscle weakness and cramping and the aseptic meningitis side effect. Just want you to know I understand the frustration you feel. Take care and we are all so glad to see you Hugs and prayers Cindy – Hide quoted text — Show quoted text -Wes Johnston wrote: > Hi Everyone, > I’m back.  Had another treatment today.  I hate them.  I am going to > start CAPD as soon as I can get a port placed into my abdomen, then I > can dialyze at home. > Thanks for all your prayers. > Wes

Response:

Hi Wes, Thanks for keeping us updated. You know we worry when we don’t have from you. Best, J – Hide quoted text — Show quoted text -Wes Johnston wrote: > Hi Everyone, > I’m back.  Had another treatment today.  I hate them.  I am going to > start CAPD as soon as I can get a port placed into my abdomen, then I > can dialyze at home. > Thanks for all your prayers. > Wes

Response:

In article <n50nbugel7ogq4v0u2bhtrrv64vr678…@4ax.com>, Wes Johnston <wesle…@msn.com> wrote >Hi Everyone,

Hi Wes! — Andy [Editor, Austrian Philatelic Society] For Austrian philately <URL:http://www.kitzbuhel.demon.co.uk/austamps> For Lupus <URL:http://www.kitzbuhel.demon.co.uk/lupus> For my other interests <URL:http://www.kitzbuhel.demon.co.uk>

Response:

So glad you are back with us! A port sound ucky but I guess it is better? Anyway it just seems like a big thing to have a "port" in the abdomen. You are such a rock! You just go through all this stuff like it was just some normal everyday sort of thing akin to brushing your teeth. Lots of hugs and love to you and your family because I’m sending you enough to share!! Bev "Wes Johnston" <wesle…@msn.com> wrote in message

news:n50nbugel7ogq4v0u2bhtrrv64vr678kjd@4ax.com… – Hide quoted text — Show quoted text -> Hi Everyone, > I’m back.  Had another treatment today.  I hate them.  I am going to > start CAPD as soon as I can get a port placed into my abdomen, then I > can dialyze at home. > Thanks for all your prayers. > Wes

Response:

Oh Wes, so happy you are home and hopeing you feel better every day. Have you done dialysis at home before this?  I think you said something about it one time.   Can remember what you called it, but I remember helping a lady who was my patient do hers.  Boy that was a long time ago.. good luck janers

Response:

Wow, I didn’t get this one (at least not yet) – I’m *thrilled* Wes is up to communicating with us once again. Judith, who reads every post on here "Sherry" <sstof…@inreach.com> wrote in message

news:qrLu8.2657$UY6.305228860@news.inreach.com… – Hide quoted text — Show quoted text -> Welcome back!!!  We always miss you and worry about you.  Hope that you can > get on the home routine soon!  That should make you feel much better. > Hugs, > Sherry > "Wes Johnston" <wesle…@msn.com> wrote in message > news:n50nbugel7ogq4v0u2bhtrrv64vr678kjd@4ax.com… > > Hi Everyone, > > I’m back.  Had another treatment today.  I hate them.  I am going to > > start CAPD as soon as I can get a port placed into my abdomen, then I > > can dialyze at home. > > Thanks for all your prayers. > > Wes

Response:

Glad to see you back dude! :-)  I can’t even imagine what you’re going through, but rest assured you are definitely not alone.  Hang in there, we’re all pulling for ya. :-) "Wes Johnston" <wesle…@msn.com> wrote in message

news:n50nbugel7ogq4v0u2bhtrrv64vr678kjd@4ax.com… – Hide quoted text — Show quoted text -> Hi Everyone, > I’m back.  Had another treatment today.  I hate them.  I am going to > start CAPD as soon as I can get a port placed into my abdomen, then I > can dialyze at home. > Thanks for all your prayers. > Wes

Response:

Hi Wes:)) Bruce On. here ; Tis so nice to see you up and about . With a port in it will make it much better on your daily outlook to be at home. How often a week , does it take still about 6hr.? "Wes Johnston" <wesle…@msn.com> wrote in message

news:n50nbugel7ogq4v0u2bhtrrv64vr678kjd@4ax.com… – Hide quoted text — Show quoted text -> Hi Everyone, > I’m back.  Had another treatment today.  I hate them.  I am going to > start CAPD as soon as I can get a port placed into my abdomen, then I > can dialyze at home. > Thanks for all your prayers. > Wes

Response:

Hi Everyone, I’m back.  Had another treatment today.  I hate them.  I am going to start CAPD as soon as I can get a port placed into my abdomen, then I can dialyze at home. Thanks for all your prayers. Wes

Response:

Welcome back!!!  We always miss you and worry about you.  Hope that you can get on the home routine soon!  That should make you feel much better. Hugs, Sherry "Wes Johnston" <wesle…@msn.com> wrote in message

news:n50nbugel7ogq4v0u2bhtrrv64vr678kjd@4ax.com… – Hide quoted text — Show quoted text -> Hi Everyone, > I’m back.  Had another treatment today.  I hate them.  I am going to > start CAPD as soon as I can get a port placed into my abdomen, then I > can dialyze at home. > Thanks for all your prayers. > Wes

Response:

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