Question:
I agree, it helped me when I was first dx and I go there often when I have questions. I found Paul’s site the day I was told MS and am forever grateful for it On 5 Jun 2002 10:32:19 -0700, debbi…@earthlink.net (Debbie R) wrote: |>> Your neuro should direct you……and do read Paul’s web site. He had |> the best one out there, in my opinion. | |Thank you Susan! |Probably THE most understandable, easy to navigate INFORMATIVE site I have found. |It has been a great asset for my husband and I!! | |Paul! Thank you so much for the site….great job! I feel much more empowered! | |Deb R — Susan If we weren’t all crazy we would all go insane…… Jimmy Buffet
Response:
>> Your neuro should direct you……and do read Paul’s web site. He had > the best one out there, in my opinion.
Thank you Susan! Probably THE most understandable, easy to navigate INFORMATIVE site I have found. It has been a great asset for my husband and I!! Paul! Thank you so much for the site….great job! I feel much more empowered! Deb R
Response:
Debbie, I know you are confused. After lots of reading and talking to folxs, I have came to realize that dx MS, in it’s early stages, is an elimination of other things. I feel a MRI is a must…..a spinal tap can be painful (it was very bad for me) and will not show much ubnless you are having a relapse at the moment. I am not sure it is necessary, but it is up to you. If your MRI comes out negative, most people have to wait and see if problems show up again or other symptoms show to know where to go next. If your symptoms are similar to what is common to MS – it’s a wait and see game. If you have symptoms that are uncommon to MS, it will require other tests to determine it. Remember, IF you have MS, you may go many, many years and never experience another thing! If you have some leisons on your MRI – it is good to have a blood test done to try to find out if it is or isn’t other things – like lupus for one. Your neuro should direct you……and do read Paul’s web site. He had the best one out there, in my opinion. On Tue, 04 Jun 2002 00:42:08 +0100, Paul Jones <jones.p…@btconnect.com> wrote:
|I’ve got a piece on diagnosing MS on my site ate: | |http://www.mult-sclerosis.org/diagnosingms.html | |Hope it helps. | |Take care, |Paul |All About MS – the latest MS News and Views |http://www.mult-sclerosis.org/ | |Debbie R wrote:
|> |> Hi all, |> Me again, getting anxious about my first appointment, and reading |> probably the whole list! |> |> I see some saying "wish they would have" or "why didn’t they do |> this test" or "that was usless" |> |> I’m having a hard time finding any guidlines (looks like there aren’t |> any!!)Geeeze all this stuff is confusing and I thought I was a pretty |> well rounded educated adult! |> So…hmmm, Diagnostic questions for the veterens of tests out |> there…. |> What pokes and prods are completly a waste of time? |> What most valuable tests are not routines recommended? |> What should I PUSH for? (had a dream the doc said CAT scan and I |> yelled what about the MRI!!) |> What should I refuse? |> |> I know this is a BROAD subject….just give me some clues? Point me to |> the references? |> |> Before I was Lost, but now I’m just clueless 
They sent me all |> sorts of forms for tests and yanno, I’m about just ready to keep going |> the way I am 
|> |> Thanks all again, |> Deb — Susan If we weren’t all crazy we would all go insane…… Jimmy Buffet
Response:
I’ve got a piece on diagnosing MS on my site ate: http://www.mult-sclerosis.org/diagnosingms.html Hope it helps. Take care, Paul All About MS – the latest MS News and Views http://www.mult-sclerosis.org/ – Hide quoted text — Show quoted text -Debbie R wrote: > Hi all, > Me again, getting anxious about my first appointment, and reading > probably the whole list! > I see some saying "wish they would have" or "why didn’t they do > this test" or "that was usless" > I’m having a hard time finding any guidlines (looks like there aren’t > any!!)Geeeze all this stuff is confusing and I thought I was a pretty > well rounded educated adult! > So…hmmm, Diagnostic questions for the veterens of tests out > there…. > What pokes and prods are completly a waste of time? > What most valuable tests are not routines recommended? > What should I PUSH for? (had a dream the doc said CAT scan and I > yelled what about the MRI!!) > What should I refuse? > I know this is a BROAD subject….just give me some clues? Point me to > the references? > Before I was Lost, but now I’m just clueless They sent me all > sorts of forms for tests and yanno, I’m about just ready to keep going > the way I am > Thanks all again, > Deb
Response:
Hi all, Me again, getting anxious about my first appointment, and reading probably the whole list! I see some saying "wish they would have" or "why didn’t they do this test" or "that was usless" I’m having a hard time finding any guidlines (looks like there aren’t any!!)Geeeze all this stuff is confusing and I thought I was a pretty well rounded educated adult! So…hmmm, Diagnostic questions for the veterens of tests out there…. What pokes and prods are completly a waste of time? What most valuable tests are not routines recommended? What should I PUSH for? (had a dream the doc said CAT scan and I yelled what about the MRI!!) What should I refuse? I know this is a BROAD subject….just give me some clues? Point me to the references? Before I was Lost, but now I’m just clueless They sent me all sorts of forms for tests and yanno, I’m about just ready to keep going the way I am Thanks all again, Deb
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