Question:
I started taking 100mg of DHEA close to three months ago. I saw an AMAZING (within days) improvement in my skin (I have horrible inflamation on my hands and fingers) as well as a decrease in joint pain. I also take prednisone.I have been trying to wean me off it for over a year now). The DHEA allowed me to lower my dose AND feel better. However, the skin on my face became extremely oily and I ended up with moderate acne. I also noticed an increae in facial hair. I stopped the DHEA and have noticed all my face problems have gone away, but the joint pain is back again. Trying to figure out which I want to live with less. Janet
Response:
Sounds like the DHEA was very helpful. Maybe you’d be able to get around the oily skin side effect by using some skin care products to control it. That’s what my daughter does. She also takes 100 mg. of DHEA per day and has the same side effect which she keeps under good control in the way I suggested above. We feel though that benefits she’s getting are worth it. Sandra
Response:
Hi I had a similar reaction as tg but at home vomiting and feeling very bad and all I took was 25 mg for a couple days. I did try again bout a month later with the same results so gave up. It always amazes me how differently we all react to things Our bodies and Lupus are amazing things. Cindy – Hide quoted text — Show quoted text -tg wrote: > I started at 25mg daily for 3 days. On the fourth day I kicked it up to > 50mg and I was so sick and practically having convulsions. I went to the > emergency room. I was hyperventilating and it was terrible. I finally > vomited and started feeling better. > I’ve heard of a similar story to mine with DHEA, so although it might be > perfect for some, use with caution. Besides, you should be careful with > anything in this category and consider it’s long-term effects, seeing as > though you wouldn’t want it for a quick short term fix anyway. > Good luck. Personally, I’ve been looking into all the adaptogenic herbs > for my autoimmune disorder (not quite lupus but this is a good general group > here). Check out alt.folklore.herbs for a recent anti-inflammatory post of > mine. > "MADKELLY" <madke…@aol.com> wrote in message > news:20001116191657.06100.00000187@ng-ck1.aol.com… > > Just wondering if anyone with this ng has had personal experience with > DHEA as > > the major treatment for lupus. Since plaquenil is not an option (sight > loss), > > and quinacrine is slowly become a non-option as well (long story), I have > to > > decide whether to finally go on prednisone or try DHEA. I look at pred as > a > > last resort because of the damage it inflicts. [Now, don't get all > offended if > > you're on pred and happy. I'm basing my opinion on personal experience > and do > > not wish to challenge your treatment!] Soooooooooo, I’ve been researching > DHEA > > (dehydroepiandrosterone) and following Genelabs Aslera trials. I > appreciate > > any input you might have. > > to our health > > kelly
Response:
Kelly, I have been taking DHEA for about 6 months. I definitely think it has helped me in more ways than one. I strongly recommend it, especially for men. George – Hide quoted text — Show quoted text -MADKELLY wrote: > Just wondering if anyone with this ng has had personal experience with DHEA as > the major treatment for lupus. Since plaquenil is not an option (sight loss), > and quinacrine is slowly become a non-option as well (long story), I have to > decide whether to finally go on prednisone or try DHEA. I look at pred as a > last resort because of the damage it inflicts. [Now, don't get all offended if > you're on pred and happy. I'm basing my opinion on personal experience and do > not wish to challenge your treatment!] Soooooooooo, I’ve been researching DHEA > (dehydroepiandrosterone) and following Genelabs Aslera trials. I appreciate > any input you might have. > to our health > kelly
Response:
I started at 25mg daily for 3 days. On the fourth day I kicked it up to 50mg and I was so sick and practically having convulsions. I went to the emergency room. I was hyperventilating and it was terrible. I finally vomited and started feeling better. I’ve heard of a similar story to mine with DHEA, so although it might be perfect for some, use with caution. Besides, you should be careful with anything in this category and consider it’s long-term effects, seeing as though you wouldn’t want it for a quick short term fix anyway. Good luck. Personally, I’ve been looking into all the adaptogenic herbs for my autoimmune disorder (not quite lupus but this is a good general group here). Check out alt.folklore.herbs for a recent anti-inflammatory post of mine. "MADKELLY" <madke…@aol.com> wrote in message
news:20001116191657.06100.00000187@ng-ck1.aol.com… – Hide quoted text — Show quoted text -> Just wondering if anyone with this ng has had personal experience with DHEA as > the major treatment for lupus. Since plaquenil is not an option (sight loss), > and quinacrine is slowly become a non-option as well (long story), I have to > decide whether to finally go on prednisone or try DHEA. I look at pred as a > last resort because of the damage it inflicts. [Now, don't get all offended if > you're on pred and happy. I'm basing my opinion on personal experience and do > not wish to challenge your treatment!] Soooooooooo, I’ve been researching DHEA > (dehydroepiandrosterone) and following Genelabs Aslera trials. I appreciate > any input you might have. > to our health > kelly
Response:
My daughter takes 100 mg. of DHEA per day as prescribed by her rheumatologist. Based on our personal experience as well as studies I’ve read, it appears to help with decreasing some of the symptoms of lupus. However, it’s not a stand alone medication. It’s actually more supplemental. Therefore, while I personally think taking DHEA is not a bad idea, it’s not something you can take instead of other lupus medication. I believe this is also the case with GL701, the new DHEA derivative approved for lupus treatment. Sandra
Response:
Yes, DHEA is very useful. I used for over a year with good results. There’s a new book out, however, that I think you’ll be wanting to pick up. Its called "Lupus: Alternative Therapies that Work" by Sharon Moore. Check it out. I think it will help a lot. Good luck, Katie "MADKELLY" <madke…@aol.com> wrote in message
news:20001116191657.06100.00000187@ng-ck1.aol.com… – Hide quoted text — Show quoted text -> Just wondering if anyone with this ng has had personal experience with DHEA as > the major treatment for lupus. Since plaquenil is not an option (sight loss), > and quinacrine is slowly become a non-option as well (long story), I have to > decide whether to finally go on prednisone or try DHEA. I look at pred as a > last resort because of the damage it inflicts. [Now, don't get all offended if > you're on pred and happy. I'm basing my opinion on personal experience and do > not wish to challenge your treatment!] Soooooooooo, I’ve been researching DHEA > (dehydroepiandrosterone) and following Genelabs Aslera trials. I appreciate > any input you might have. > to our health > kelly
Response:
Just wondering if anyone with this ng has had personal experience with DHEA as the major treatment for lupus. Since plaquenil is not an option (sight loss), and quinacrine is slowly become a non-option as well (long story), I have to decide whether to finally go on prednisone or try DHEA. I look at pred as a last resort because of the damage it inflicts. [Now, don't get all offended if you're on pred and happy. I'm basing my opinion on personal experience and do not wish to challenge your treatment!] Soooooooooo, I’ve been researching DHEA (dehydroepiandrosterone) and following Genelabs Aslera trials. I appreciate any input you might have. to our health kelly
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