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Bird Fancier's Lung Disease

Question:

Has anyone out there had any experience with this diagnosis? If so I would really like to hear from you. I was diagnosed with it in the spring of this year. Since then have been away from all of our birds and now they tell me that I have lupus but drs won’t rule out the birds re the lung shut down in the spring. Anyone elses experience would really help. I WANT my birds back!!! D M Cook

Response:

writes: Has anyone out there had any experience with this diagnosis? If so I would really like to hear from you. I was diagnosed with it in the spring of this year. Since then have been away from all of our birds and now they tell me that I have lupus but drs won’t rule out the birds re the lung shut down in the spring. Anyone elses experience would really help. I WANT my birds back!!! D M Cook

I’ve never even heard of it.  What is it? Pat

Response:

writes: Has anyone out there had any experience with this diagnosis? If so I would really like to hear from you. I was diagnosed with it in the spring of this year. Since then have been away from all of our birds and now they tell me that I have lupus but drs won’t rule out the birds re the lung shut down in the spring. Anyone elses experience would really help. I WANT my birds back!!! D M Cook

I was diagnosed with this disease about eight years ago. I got rid of the doctor instead of the birds and haven’t had problems since. My symptoms could not be cured with standard antibiotics, but since they were "cured" with a steriod, that’s how the doctor reached that conclusion. He claimed to be a lung expert, but also said he had never had a bird fancier’s lung disease patient before. Get a second opinion, if you haven’t already done so. If sensitivity to birds is a definitive diagnosis, there are still things you can do to keep your birds. If you live in a warm climate, keeping them outdoors will be the best "cure." If you don’t, keeping them in a separate room with its own ventilation system is a another option. The room has to be kept immaculately clean (by someone else, not you) and your visits have to be limited. I had heard of a situation where a man who owned a petshop had to shower before coming home to his wife, otherwise she became extremely ill. I know of another situation where a woman was hospitalized and was then on oxygen for a while. But she recovered and is back with the birds. Do some research on the internet and talk with your avian vet who can probably put you in touch with some medical doctors who have worked with cases such as this before. It’s not hopeless. Ellen

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