Lupus FAQ » Lupus Rash » Purpura

Purpura

Question:

Alison wrote: >Does anyone have problems with purpura rashes – usually on the legs?  I have >Lupus, Sjogren’s Syndrome and hyperglobulinemic purpura and I haven’t been

able to find out much about the >purpura rash.  I just started on Prednisone >and my rash seems to have gotten worse. > It is painful and swollen.

Hi Alison, When my platelets were very low with thrombocytopenia I had purpura on my legs and arms.  Every time I shaved I had blood coming out of the tiny bumps and I’d have to wrap my legs in towels to stop the bleeding, which was bad because my platelets were so low, so I had to stop shaving for a while <ugh>. Now I have livedo reticularis on my legs and arms, but much more noticeable on my legs.  If you don’t know what that looks like, it has a red mottled appearance with a lace-like pattern.  On my legs it is dark purple and in the summer when I wear shorts I get asked a *lot* what is wrong with my legs. Have you tried a cortisone cream on your rash?  I know you’re taking prednisone and getting cortisone *internally* that way, but maybe a cream you apply topically would help.  You can get a hydrocortisone cream over the counter or ask your doc to prescribe one for you.  Elocon was a prescription steroid cream that always worked well for me. Hope you find some relief soon, and when you do let us know. Karena ke…@aol.com

Response:

Does anyone have problems with purpura rashes – usually on the legs?  I have Lupus, Sjogren’s Syndrome and hyperglobulinemic purpura and I haven’t been able to find out much about the purpura rash.  I just started on Prednisone and my rash seems to have gotten worse.  It is painful and swollen. Any suggestions would be greatly appreciated! Alison in Ohio

Response:

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