Question:
Hi Julia, so sorry you are having problems with the Plaquinel. I was on quinicrine for a while, and went off because I turned yellow/orange. It can look good on some people, but not on me. It felt OK but I had a better response with Plaquinel. The others know more about it, but I didn’t notice any real bad effects. I really hope you don’t either. Good Luck, Ginger
Response:
Hi… Jumping in too. I get the rash on my scalp because have heard it is from the sun… so i wear a hat outside… but then I also get overheated in the Florida sun and the itching can be intense on my scalp or just when I start to sweat and I sweat like a wet mop in a matter or momment. Then it looks like little artillary has gone off on my scalp and the doctor game me some steroid stuff to put on my scalp when it gets like that and it does help. I use an 70spf sunblock at times and that helps too but not when the heat gets so profuse and when I am overheated and sweating. I have heard long ago that the plaquenil can cause this but I had this before the plaquenil so I think it is just the lupus think that causes it or auto-immunity in general. I also get or had psoriasis, dermatitis, ecsema so it is not contained to one skin problem either. Those hive like patches and the little cluster pimple patches are familiar with also petechie and white zits. What a party huh!? I think i am very prone to a heat rash too which is the little pimple patches. Has anyone developed wart like things that peel off the top like dry skin and is flat but can be odd shaped… i got them too. I am thinking about a role in the new "Creature of The Black Lagoon." Fortuanately, I do not have everything at one time BUT i also stay in a whole lot! Always, cloud
Response:
argh! that’s really the only appropriate way to begin this post. For the past 2.5 years I’ve been on plaquenil – throw in a some NSAIDs that didn’t work, an intolerance to steroids (yes, it’s strange, but everytime we try there are problems) and a weekly MTX shot…it’s all fine…but on Friday my ophthamologist said that she was concerned about the plaquenil because I’ve developed maculopathy. Called my rheumy who said that I must immediately stop the meds. He said that if it gets bad in the next month (since I won’t see him until then) I can go on quinacrine. anyone on it? what are the dangers? I know that my eye sight will be spared, but what about other stuff? I’m a wreck…I feel like my list of options is getting smaller and smaller and all I want to do is cry. ok…I got that out of my system…sorry you had to witness that. but seriously, quinacrine seems to be the only choice I have if I need something. What’s the deal with it being used in female sterilization? and what’s all the stuff about Sanofi stopping it’s production of Atabrine (name brand version)? I’m confused, and honestly a little frightened about the choices I’m going to have to be making in the near future. Anyone’s experience or knowledge would be GREATLY appreciated. I hope that you are all doing well. take care…and thanks for listening. -julia
Response:
Hi Julia, There have been a lot of questions about plaquenil lately. I am not on it, so unfortunately I can’t help. Would Imuran be an option? I am on 150mgs per day and have been okay as far as side effects. I am answering you, not because I have any great insights, but because I do have a sympathic ear and understand your desire to cry. " Tears lubricate the soul." Regards, BJ "julia" <julia_fridmanNOS…@hotmail.com> wrote in message
news:SSqw7.41831$Xk4.3096855@news1.rdc1.sdca.home.com… – Hide quoted text — Show quoted text -> argh! > that’s really the only appropriate way to begin this post. > For the past 2.5 years I’ve been on plaquenil – throw in a some NSAIDs that > didn’t work, an intolerance to steroids (yes, it’s strange, but everytime we > try there are problems) and a weekly MTX shot…it’s all fine…but on > Friday my ophthamologist said that she was concerned about the plaquenil > because I’ve developed maculopathy. Called my rheumy who said that I must > immediately stop the meds. He said that if it gets bad in the next month > (since I won’t see him until then) I can go on quinacrine. anyone on it? > what are the dangers? I know that my eye sight will be spared, but what > about other stuff? I’m a wreck…I feel like my list of options is getting > smaller and smaller and all I want to do is cry. > ok…I got that out of my system…sorry you had to witness that. but > seriously, quinacrine seems to be the only choice I have if I need > something. What’s the deal with it being used in female sterilization? and > what’s all the stuff about Sanofi stopping it’s production of Atabrine (name > brand version)? I’m confused, and honestly a little frightened about the > choices I’m going to have to be making in the near future. Anyone’s > experience or knowledge would be GREATLY appreciated. > I hope that you are all doing well. > take care…and thanks for listening. > -julia
Response:
In article <SSqw7.41831$Xk4.3096…@news1.rdc1.sdca.home.com>, julia <julia_fridmanNOS…@hotmail.com> wrote:
[...] >what’s all the stuff about Sanofi stopping it’s production of Atabrine (name >brand version)? I’m confused, and honestly a little frightened about the >choices I’m going to have to be making in the near future. Anyone’s >experience or knowledge would be GREATLY appreciated.
You know, I tried to look up Atabrine in my 1998 PDR, and it’s not listed. Sanofi’s other antimalerial, Aralen is. For the record, Aralen is more toxic than Plaquenil, so run if someone suggests that. Quinicrine is suggested in the Merck Manual, but it may have orphan drug status at this point (the patent has run out and no one owns it). I’d suggest reposting your question to sci.med.pharmacy where a real pharmacist can look up the drug’s current status. Among other things, a lot of drug companies have been merging and/or closing down and selling off their patents to other companies. The pharmacy guys complained that _their_ references were often useless, there’s been so much buying and selling. But if anyone could tell you who’s manufacturing Atabrine, what the drug’s status is, and what the most common side effects people really have are, it’d be the guys in sci.med.pharmacy. — Lee M.Thompson-Herbert l…@retro.com KoX 1995, SP4 Head Muso, White Rats Morris Member, Knights of Xenu (1995). Chaos Monger and Jill of All Trades. "A head-on collision between Morticia Adams and Martha Stewart"
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