Question:
Okay, I have heard Lupus can be confirmed through biopsing mouth ulcers, is this true even if there is a negative ANA? I get them 1-2 times a month, and last a couple of days–it is pretty hard to get in to see my doctor, so I just made a call asking how I can get this checked out since I never seem to have one when I go in–I am waiting for the response. I have one coming on now, but I don’t know how long it will stay, so making an appointment is useless, if its still here in the morning I can go in, but there is no telling if a doctor will be available–AND my doc is an ob/gyn, lol, how is he to do this? OH, my, I have an aweful vision of a speculum-this isn’t reassuring-lmao. Thanks again, Michelle
Response:
Michelle, I am in the same situation right now. I have had this mouth sore for about 3 weeks, and tried everything. So I called rheumy who wanted to see me pronto. I got there and she told me that if indeed it was from the lupus, and I was getting a flair or in a flair, well she would have to up my medrol (cortisone). So she looked in the mouth and guess what… She told me it was a yeast infection, and she was so happy that I did not have to up my medrol. She also told me that anyone who is on oral cortisone, will indeed get yeast infections on and off, and the only way to cure it is to take medication. so since I am also on a lot of medication, she prescribed mycelex lozenges, 5 a day for a week to 14 days. I could of tried the liquid medication called nystatin swish, but she said it tasted awful so I and there is another one which begins with a Du something but it interacts with a lot of meds so that is a no no for a lot of people. I suggest you do like I did and let the doc see for them selves. Even an ob doc could tell cause he deals with a lot of vaginal yeast infections and they are treated the same, except use of suppositories. Hope I have helped cause it is helping me…don’t taste good but it does seems to help. good luck janers
Response:
I haven’t heard of doing a biopsy of mouth ulcers to confirm lupus. I have heard though of doing a skin biopsy for that purpose. This is done by a dermatologist. Usually they prefer to biopsy an area where there is a rash in a sun exposed area as well as a second biopsy in a non-sun exposed area. If there are no rashes, it’s possible too to biopsy normal appearing skin. If the individual has lupus, even normal appearing skin may be able to confirm it through the lupus band test. Perhaps what you’re thinking of regarding the mouth biopsy is a lip biopsy to test for Sjogrens. That can be done by a dentist, oral surgeon or ENT. Sandra
Response:
Janers- My mother just had surgery and had to use the nystatin swish because she was going to be intibated, the poor lady, they try to flavor that stuff like bananas, but it doesn’t work, she said it tastes like the vaginal yeast infection creams smell. I opt not to take that route if offered….lol. Thanks for your response, Michelle
Response:
Sandra, Thanks, my mind doesn’t remember things so well, I guess it was the Sjourns test I was remembering. Well, I tried atleast…lol. My doc atleast put it in the records, but I don’t fully agree with the treatment of Flonase–it’ll take care of the nose ulcers, but not the mouth, and its not caused by alergies-but it is a steroid and may reduce them, still, I don’t think even trying the Flonase is going to help any. Thanks, Michelle
Response:
I also have never heard of the mouth biopsy for Lupus. If it is sores causd by the lupus — usually Kenelog in Orabase will clear it up.
Response:
Michelle, Try taking L-Lysine. It seems to help and I doubt that it can hurt anything. I have seen others mention it on the group also. Sherry – Hide quoted text — Show quoted text –
Response:
Maybe you doctor suspects Sjogren’s Syndrome- dry mucous membranes- I had a biopsy done for this and I also have Lupus. Theresa
Response:
In article <26902-3AA829A5-…@storefull-628.iap.bryant.webtv.net>, Michelle <SabresGir…@webtv.net> wrote >Okay, I have heard Lupus can be confirmed through biopsing mouth ulcers,
I haven’t – are you thinking of Sjogrens? — Andy For Austrian philately <URL: http://www.kitzbuhel.demon.co.uk/austamps/> For Lupus <URL: http://www.kitzbuhel.demon.co.uk/lupus/> For my other interests <URL: http://www.kitzbuhel.demon.co.uk/>
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