Question:
that’s great news, walt. aren’t you glad you moved east? diane, in virginia
Response:
Walt so happy for you…I have found women rheumy seem more concerned than men…I dont know why that is, but it works for me…gee maybe it is because women listen better…LOL
The male resident was a good listener too – no sexism please. <g Really I am happy for you. I just wonder what they will diagnose you with..the rash on your foot, where is it on the insole or top of the foot..only reason is I had one on the inside bottom of my foot the arch area, and it was wild when my lupus went haywire, and left when I got controlled with cortisone…
The rash is on the top of my foot and toes, going up my ankle. It is hard to describe, but I guess the best way to explain it is a lot of raised pinpoints that itch and hurt like mad. It responds to cortisone creams, but she wants me to try to not use one until I see the dermatologist. She said that a rash on the bottom of my foot would have been "diagnostically definitive," but she didn’t say of what. Walt
Response:
that’s great news, walt. aren’t you glad you moved east? diane, in virginia
It’s coming Diane, it’s coming. Going to take a little while longer though. Walt
Response:
Well my friends, I think I just had the best RD visit ever. Thank you Dr. Susan for suggesting Dr. Zaminsky.
I’m glad that the new RD is a winner. Hopefully the tide is turning for you.
Response:
Sounds like you have a keeper with the new RD. I’m glad to hear it. Sarah L "Friends are those people who know the words to the song in your heart and sing them back to you when you have forgotten the words." (unattributed)
Response:
Walt When you find out what that rash is let me know… also could you maybe ask her what she meant by saying if it was on the bottom of the foot, it would hve been "diagnostically definitive" ask her definite for what…. I went to 2 foot docs and they treated it as athletes foot and then used a combination of athlete’s ft cream and a cortisone cream and it never got better. then when they put me back on medrol bingo, it went away…so I just thought it was a lupus type skin rash…I get them other places. but I won’t go into that.. Just let me know what she says, Ok, will be interesting for her opinion.. But the red raised pinpoint itch and hurt sounds very familiar…. Good luck Janers
Response:
Walt so happy for you…I have found women rheumy seem more concerned than men…I dont know why that is, but it works for me…gee maybe it is because women listen better…LOL Really I am happy for you. I just wonder what they will diagnose you with..the rash on your foot, where is it on the insole or top of the foot..only reason is I had one on the inside bottom of my foot the arch area, and it was wild when my lupus went haywire, and left when I got controlled with cortisone… I think too that maybe you are on the right track when you got this doc… Good luck to you and hope you have some good Holidays and less damn pain Janers
Response:
Good news , Walt. Have a happy Christmas. Ally – Hide quoted text — Show quoted text – Well my friends, I think I just had the best RD visit ever. Thank you Dr. Susan for suggesting Dr. Zaminsky. The first thing to go right was that I actually managed to have a little flare going on the same day I had an RD visit. That hasn’t happened in a long time. Next, believe it or not, both Dr. Z and her resident actually listened to me. Imagine that! You know, after having been ignored for so long, it was so reassuring to hear them chatting to each other as they examined me. "Here, can you appreciate the capsule in this MIP? There is also a boney prominence but the capsule is definitely inflamed? And can you feel the heat from his left hand. It’s definitely hotter than the right, but it is very subtle." I actually almost cried – for joy. She also said that I had "prominent MT heads" on my right foot now, something new even from last June. And she even had an explanation for what happens with my hip – sometimes is just collapses on me while I am walking. As I described it to her she said, "Oh yes, that’s a muscle spasm." Like duh, didn’t anyone else tell you that? So, here’s where we stand. The azulfidine is history. Neither of us thought it was doing anything now. I am having a bunch of x-rays tomorrow, and she is reviewing the new films and comparing them with the old films that I brought in. She also wants a report from the dermatologist I am seeing next week (I have this weird rash going on my foot, just my left one). She also mentioned that it would be nice for her to see the rash I get when I take prednisone. We will get back together on January 4th and talk about the next step. She said that she will probably recommend MTX, but wants to see what happens without the azulfidine and see the films before she decides. She did say that she doesn’t think I have RA – my presentation is too atypical. But I could tell that she is thinking something. She wouldn’t say what, except to say that I didn’t fit any classic profiles, but she did say that she would have a better idea by the time we next met. So I am a happy camper – a sore, hurting happy camper, but still happy. Finally – VALIDATION! Walt
Response:
Great Walt, Sorry you have to have a flare to show them but this doctor sounds to be made for you. Moving, changing doctors, changing jobs, life itself can be very stressful and all things considered you have my permission to have a wonderful Christmas season while looking forward to Jan. 4 and further help from your new RD. Harv – Hide quoted text — Show quoted text – Well my friends, I think I just had the best RD visit ever. Thank you Dr. Susan for suggesting Dr. Zaminsky. The first thing to go right was that I actually managed to have a little flare going on the same day I had an RD visit. That hasn’t happened in a long time. Next, believe it or not, both Dr. Z and her resident actually listened to me. Imagine that! You know, after having been ignored for so long, it was so reassuring to hear them chatting to each other as they examined me. "Here, can you appreciate the capsule in this MIP? There is also a boney prominence but the capsule is definitely inflamed? And can you feel the heat from his left hand. It’s definitely hotter than the right, but it is very subtle." I actually almost cried – for joy. She also said that I had "prominent MT heads" on my right foot now, something new even from last June. And she even had an explanation for what happens with my hip – sometimes is just collapses on me while I am walking. As I described it to her she said, "Oh yes, that’s a muscle spasm." Like duh, didn’t anyone else tell you that? So, here’s where we stand. The azulfidine is history. Neither of us thought it was doing anything now. I am having a bunch of x-rays tomorrow, and she is reviewing the new films and comparing them with the old films that I brought in. She also wants a report from the dermatologist I am seeing next week (I have this weird rash going on my foot, just my left one). She also mentioned that it would be nice for her to see the rash I get when I take prednisone. We will get back together on January 4th and talk about the next step. She said that she will probably recommend MTX, but wants to see what happens without the azulfidine and see the films before she decides. She did say that she doesn’t think I have RA – my presentation is too atypical. But I could tell that she is thinking something. She wouldn’t say what, except to say that I didn’t fit any classic profiles, but she did say that she would have a better idea by the time we next met. So I am a happy camper – a sore, hurting happy camper, but still happy. Finally – VALIDATION! Walt
Response:
Wow Walt! It sounds like it went really well! She also wants a report from the dermatologist I am seeing next week (I have this weird rash going on my foot, just my left one). She also mentioned that it would be nice for her to see the rash I get when I take prednisone.
Do you suppose she is thinking PA? But whatever it is, at least she is listening to you. I know what a relief that is!!! Char "Remember, I’m pulling for ya’. We’re all in this together." Red Green
Response:
Yeah, Walt!! So happy to hear your good news. Well, it’s all relative, right?;o) What I mean is, sorry about flare but so glad about the good Dr. I hope this means some real progress for you. Best wishes, Kelly;o) – Hide quoted text — Show quoted text – Well my friends, I think I just had the best RD visit ever. Thank you Dr. Susan for suggesting Dr. Zaminsky. The first thing to go right was that I actually managed to have a little flare going on the same day I had an RD visit. That hasn’t happened in a long time. Next, believe it or not, both Dr. Z and her resident actually listened to me. Imagine that! You know, after having been ignored for so long, it was so reassuring to hear them chatting to each other as they examined me. "Here, can you appreciate the capsule in this MIP? There is also a boney prominence but the capsule is definitely inflamed? And can you feel the heat from his left hand. It’s definitely hotter than the right, but it is very subtle." I actually almost cried – for joy. She also said that I had "prominent MT heads" on my right foot now, something new even from last June. And she even had an explanation for what happens with my hip – sometimes is just collapses on me while I am walking. As I described it to her she said, "Oh yes, that’s a muscle spasm." Like duh, didn’t anyone else tell you that? So, here’s where we stand. The azulfidine is history. Neither of us thought it was doing anything now. I am having a bunch of x-rays tomorrow, and she is reviewing the new films and comparing them with the old films that I brought in. She also wants a report from the dermatologist I am seeing next week (I have this weird rash going on my foot, just my left one). She also mentioned that it would be nice for her to see the rash I get when I take prednisone. We will get back together on January 4th and talk about the next step. She said that she will probably recommend MTX, but wants to see what happens without the azulfidine and see the films before she decides. She did say that she doesn’t think I have RA – my presentation is too atypical. But I could tell that she is thinking something. She wouldn’t say what, except to say that I didn’t fit any classic profiles, but she did say that she would have a better idea by the time we next met. So I am a happy camper – a sore, hurting happy camper, but still happy. Finally – VALIDATION! Walt
Response:
– Hide quoted text — Show quoted text – Well my friends, I think I just had the best RD visit ever. Thank you Dr. Susan for suggesting Dr. Zaminsky. The first thing to go right was that I actually managed to have a little flare going on the same day I had an RD visit. That hasn’t happened in a long time. Next, believe it or not, both Dr. Z and her resident actually listened to me. Imagine that! You know, after having been ignored for so long, it was so reassuring to hear them chatting to each other as they examined me. "Here, can you appreciate the capsule in this MIP? There is also a boney prominence but the capsule is definitely inflamed? And can you feel the heat from his left hand. It’s definitely hotter than the right, but it is very subtle." I actually almost cried – for joy. She also said that I had "prominent MT heads" on my right foot now, something new even from last June. And she even had an explanation for what happens with my hip – sometimes is just collapses on me while I am walking. As I described it to her she said, "Oh yes, that’s a muscle spasm." Like duh, didn’t anyone else tell you that? So, here’s where we stand. The azulfidine is history. Neither of us thought it was doing anything now. I am having a bunch of x-rays tomorrow, and she is reviewing the new films and comparing them with the old films that I brought in. She also wants a report from the dermatologist I am seeing next week (I have this weird rash going on my foot, just my left one). She also mentioned that it would be nice for her to see the rash I get when I take prednisone. We will get back together on January 4th and talk about the next step. She said that she will probably recommend MTX, but wants to see what happens without the azulfidine and see the films before she decides. She did say that she doesn’t think I have RA – my presentation is too atypical. But I could tell that she is thinking something. She wouldn’t say what, except to say that I didn’t fit any classic profiles, but she did say that she would have a better idea by the time we next met. So I am a happy camper – a sore, hurting happy camper, but still happy. Finally – VALIDATION! Walt
Walt, congradulations on the validation–what an early Christmas gift! God bless you,my friend. Blessings, Donna Before you buy.
Response:
Walt, good for you. Isnt it amazing when you find an RD that really invests in your problems. I felt exactly the same way last year when I finally found one. I am curious now what your DX will be. I know you will let us know. johnie
Response:
Walt writes:
Well my friends, I think I just had the best RD visit ever. Thank you Dr. Susan for suggesting Dr. Zaminsky. So I am a happy camper – a sore, hurting happy camper, but still happy. Finally – VALIDATION! That is certain a great Christmas gift for you Walt. I’m glad you finally found the right doctor. … Balanced diet: Chocolate bar in left hand weighs same as one in right. ___ Blue Wave/QWK v2.12
Response:
Merry Christmas Walt! ~Krissy See my pond: http://members.aol.com/KrissyJo/ponds.html Akron, Ohio http://arthritisinsight.com Knowledge is power…support is essential.
Response:
Now that IS a great early Christmas present, Walt! Glad to hear your appt. went so well. (I just realized I sound like the other posted responses thus far) lol It’s just so uplifting to read when someone has a good experience with a new RD, and is on the road to the right diagnosis and treatment. Here’s wishing you and yours the best of luck and health for the new Year, you certainly deserve it! Blondie — Friendship is not created by what we give, but more by what we share, it makes a whole world of things easier to bear ~ unknown
Response:
Good for you Walt. I’m happy to hear about your positive experience. Keep us posted about your diagnosis. I am curious about this (an RA diagnosis which later turns out to be something else). Rose
Response:
Well my friends, I think I just had the best RD visit ever. Thank you Dr. Susan for suggesting Dr. Zaminsky. The first thing to go right was that I actually managed to have a little flare going on the same day I had an RD visit. That hasn’t happened in a long time. Next, believe it or not, both Dr. Z and her resident actually listened to me. Imagine that! You know, after having been ignored for so long, it was so reassuring to hear them chatting to each other as they examined me. "Here, can you appreciate the capsule in this MIP? There is also a boney prominence but the capsule is definitely inflamed? And can you feel the heat from his left hand. It’s definitely hotter than the right, but it is very subtle." I actually almost cried – for joy. She also said that I had "prominent MT heads" on my right foot now, something new even from last June. And she even had an explanation for what happens with my hip – sometimes is just collapses on me while I am walking. As I described it to her she said, "Oh yes, that’s a muscle spasm." Like duh, didn’t anyone else tell you that? So, here’s where we stand. The azulfidine is history. Neither of us thought it was doing anything now. I am having a bunch of x-rays tomorrow, and she is reviewing the new films and comparing them with the old films that I brought in. She also wants a report from the dermatologist I am seeing next week (I have this weird rash going on my foot, just my left one). She also mentioned that it would be nice for her to see the rash I get when I take prednisone. We will get back together on January 4th and talk about the next step. She said that she will probably recommend MTX, but wants to see what happens without the azulfidine and see the films before she decides. She did say that she doesn’t think I have RA – my presentation is too atypical. But I could tell that she is thinking something. She wouldn’t say what, except to say that I didn’t fit any classic profiles, but she did say that she would have a better idea by the time we next met. So I am a happy camper – a sore, hurting happy camper, but still happy. Finally – VALIDATION! Walt
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