Question:
Thanks Donna for peeking at them for me. I just looked myself and don’t see anything like that but I am still interested in what he has to say. So next time you are in, pump him for more info. Caroline – Hide quoted text — Show quoted text – Caroline, I don’t have another appointment as yet. He or his PA will call in about a week to give me lab reports and then we can plan from there. It is over a two hour drive one way for me to see him. Since I’m on oxygen for my pulmonary hypertension and heart failure, I’m as bad as a baby to take somewhere! Anyway, he said he wouldn’t make me come back for just lab results. I will get an explanation as to exactly what he was talking about and you are right – someone needs to get it documented for the sake of others since so many things are focusing on genetics. I did make a discovery today though . . . on the bottom of the heel on that foot it almost looks like a bruise in the center of the heel and then throughout the rest of the heal there are brighter, smaller looking bruised areas maybe the size of a pencil eraser. Only a guess if this is what he was talking about. I hadn’t examined my heels so closely before! Donna Rae
Response:
Very interesting. When do you see this man again? Do you think you could get him to post that info here? A doctor with visual who-done-its under his belt is worth his weight in gold. LOL This Navajo rash may not exist in writings but only in the memories of those that treat the Indian. It would be nice to get the information down in writing for others to see. I have a pair of Naots clogs which I wear on and off in the winter. There is no strap at the back but the angle of the heel is a bit odd and the other day I wore them without socks and developed a nickel size blister on the ball of each foot. I am still looking for the perfect shoe. Caroline – Hide quoted text — Show quoted text – Caroline, Yes, you have the right site. It’s just below the ankle bone.
Response:
Caroline, I don’t have another appointment as yet. He or his PA will call in about a week to give me lab reports and then we can plan from there. It is over a two hour drive one way for me to see him. Since I’m on oxygen for my pulmonary hypertension and heart failure, I’m as bad as a baby to take somewhere! Anyway, he said he wouldn’t make me come back for just lab results. I will get an explanation as to exactly what he was talking about and you are right – someone needs to get it documented for the sake of others since so many things are focusing on genetics. I did make a discovery today though . . . on the bottom of the heel on that foot it almost looks like a bruise in the center of the heel and then throughout the rest of the heal there are brighter, smaller looking bruised areas maybe the size of a pencil eraser. Only a guess if this is what he was talking about. I hadn’t examined my heels so closely before! Donna Rae – Hide quoted text — Show quoted text – Very interesting. When do you see this man again? Do you think you could get him to post that info here? A doctor with visual who-done-its under his belt is worth his weight in gold. LOL This Navajo rash may not exist in writings but only in the memories of those that treat the Indian. It would be nice to get the information down in writing for others to see. Caroline
Response:
Caroline, Yes, you have the right site. It’s just below the ankle bone. My swelling going from the front of the ankle bone to the back of the heel and around to the back. Having shoes on is a killer and sandals the most comfortable, but they are still agony to remove since it is swelling above and below where the strap hits. I have a pair of Naots (similar to Birkies) but they just don’t get it for me. I don’t have arch pain at all, but I have worn orthotics for years. Might also be worth mentioning that I do have large heel spurs, but I am being told by neurologist and rheumy that has nothing to do with this other pain. Actually, it is rare that I have pain in the bottom of the heel except for the searing, burning type of pain when nonweight bearing. My pain initially started in the lateral lower leg and that was of a searing nature and still is. From there it went to the left foot and eventually the right. The right foot and lower leg is where I have numbness and tingling. There is nothing that goes up the back of the leg at all. My searches for Navajo rash have been fruitless and apparently it was something the rheumy had seen by treating a lot of Indians in the four corners region. How they ever tracked it down to a gene, he didn’t explain. Your comment about stirrup pants rings true for me, too, to an extent. The stirrup wouldn’t fall right on the bottom of the heel but between the arch and the heel. A neurologist had ruled out peripheral neuropathy which I had been under care for that for at least a year and a half. My cardiologist is adamant that I have peripheral neuropathy and then the rheumy said the other day that one of the diagnoses he threw out (lupus or AS) actually causes a different form of peripheral neuropathy. He said he wanted to keep me on the Neurontin for the pain. I have found that to be tremendously helpful with the pain. Right now I am on 500 mg. at bedtime and 300 mg. in the mornings. I am due to increase another 100 mg. at bedtime now. Warning though, Neurontin does make you so groggy it’s that "fall in your soup with your face" type of sleepiness. It takes right at two hours for that to hit me with the bedtime dose. Other interesting thing was that I have had chronic urticaria since age 17 (now 51 – wow, where did all those years go???
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