Question:
Well folks, this is getting to be NOT a nice "thing" here. My bp problems are not resolved at all. In fact my blood work came back with an even higher sed rate, than last month. A big old 63 now. Then to top that off, my hemoglobin and hematocrit and rbc’s are in the low readings. Dizzyness and fatigue were a fighting me, so rheumy upped my medrol again. DAMN..sorry people but I hate that. then she upped imuran to100 and I started to puke my guts out with each dose, on an off. What a lousy day yesterday. I did not take ANY medications for nothing, could barely get my butt out of bed, and barely able to eat soup late in the day. Ran a temp of 100.2 last night. So she wanted to see me OF course I got up this am feeling the same but thought I "will" take all these darn meds and let her see for herself. NOT!!!! my bp was 140/80 in the office. She said my lupus was Out of control and we need to get the inflammation down. Fatigue was from lupus, and most all the other stuff but she felt IMURAN does NOT cause the low bp. I disagree but she did say MY body will not take more than 50mg a day and that might be the way I have to stay at all the time. So we are holding imuran for a week then back on it again, slowly. I am reluctant but she hasn’t got many choices left here. I can not take MTX due to past liver problems in my history. And cell cept she says IS used only with nephritis. Cell cepts side effects are even worse for me especially with GI problems. DUH so it is fight this with medrol. Again, I do not like that since the bones are a big concern in my back now. DUH I am venting here LOL. What to do but follow her orders. MY sjorgrens is evident with eye problems she noted as well as myositis in my muscles. She wanted to shoot me with cortisone there but I said NO and she said ok. I do however have an option, that if I do NOT feel better, to go do that medrol dose pack. I am hoping that I won’t have to do that, on top of what I am on now DUH. so here we are. I am not liking this, and well for that matter, my mood to my dear hubby is very "SHORT"…he best go outside. LOL Now this is where the mental aspect of lupus is demanding for us all. We all go through this all the time with flares and it is very "taxing" to our ability to get along with people LOL. believe me it is true right? It is not damn wonder many of us are on anti depressants. I for one am not but boy sometimes I want one LOL Almost like a good shot of Jack Daniels" well time to lay down again, so I can get these eyes focusing again. thanks for letting me YELL janers
Response:
Hi Janers, I am sorry to hear that things have gone from back to worse. I guess you don’t have much choice, but to do what the rheumy suggests. Hopefully, things will improve rapidly. We all understand about the moods all of this brings about. That is one of the hardest parts, I think. Hang in there. Stop by to yell whenever you feel the need. I will be thinking about you. BJ-Sk. Canada "janers" <rojak…@bright.net> wrote in message
news:iMWdncuXUKhdIj_dRVn-vA@bright.net… – Hide quoted text — Show quoted text -> Well folks, this is getting to be NOT a nice "thing" here. > My bp problems are not resolved at all. In fact my blood work came back > with an even higher sed rate, than last month. A big old 63 now. Then to > top that off, my hemoglobin and hematocrit and rbc’s are in the low > readings. > Dizzyness and fatigue were a fighting me, so rheumy upped my medrol again. > DAMN..sorry people but I hate that. > then she upped imuran to100 and I started to puke my guts out with each > dose, on an off. What a lousy day yesterday. I did not take ANY > medications for nothing, could barely get my butt out of bed, and barely > able to eat soup late in the day. Ran a temp of 100.2 last night. So she > wanted to see me > OF course I got up this am feeling the same but thought I "will" take all > these darn meds and let her see for herself. > NOT!!!! my bp was 140/80 in the office. She said my lupus was Out of > control and we need to get the inflammation down. Fatigue was from lupus, > and most all the other stuff but she felt IMURAN does NOT cause the low bp. > I disagree but she did say MY body will not take more than 50mg a day and > that might be the way I have to stay at all the time. So we are holding > imuran for a week then back on it again, slowly. I am reluctant but she > hasn’t got many choices left here. I can not take MTX due to past liver > problems in my history. And cell cept she says IS used only with > nephritis. Cell cepts side effects are even worse for me especially with > GI problems. DUH > so it is fight this with medrol. Again, I do not like that since the bones > are a big concern in my back now. DUH > I am venting here LOL. > What to do but follow her orders. MY sjorgrens is evident with eye > problems she noted as well as myositis in my muscles. She wanted to shoot > me with cortisone there but I said NO and she said ok. > I do however have an option, that if I do NOT feel better, to go do that > medrol dose pack. I am hoping that I won’t have to do that, on top of > what I am on now DUH. > so here we are. I am not liking this, and well for that matter, my mood to > my dear hubby is very "SHORT"…he best go outside. LOL > Now this is where the mental aspect of lupus is demanding for us all. We > all go through this all the time with flares and it is very "taxing" to our > ability to get along with people LOL. believe me it is true right? > It is not damn wonder many of us are on anti depressants. I for one am not > but boy sometimes I want one LOL Almost like a good shot of Jack Daniels" > well time to lay down again, so I can get these eyes focusing again. > thanks for letting me YELL > janers
Response:
Janers, I hate that you have had such crappy days, but I hear you loud and clear and you yell – Yell all you want! Leslie "BJ" <B…@sk.nojunk.ca> wrote in message
news:10a5odjnuoiun9a@corp.supernews.com… – Hide quoted text — Show quoted text -> Hi Janers, > I am sorry to hear that things have gone from back to worse. I guess you > don’t have much choice, but to do what the rheumy suggests. Hopefully, > things will improve rapidly. We all understand about the moods all of this > brings about. That is one of the hardest parts, I think. Hang in there. Stop > by to yell whenever you feel the need. I will be thinking about you. > BJ-Sk. Canada > "janers" <rojak…@bright.net> wrote in message > news:iMWdncuXUKhdIj_dRVn-vA@bright.net… > > Well folks, this is getting to be NOT a nice "thing" here. > > My bp problems are not resolved at all. In fact my blood work came back > > with an even higher sed rate, than last month. A big old 63 now. Then to > > top that off, my hemoglobin and hematocrit and rbc’s are in the low > > readings. > > Dizzyness and fatigue were a fighting me, so rheumy upped my medrol again. > > DAMN..sorry people but I hate that. > > then she upped imuran to100 and I started to puke my guts out with each > > dose, on an off. What a lousy day yesterday. I did not take ANY > > medications for nothing, could barely get my butt out of bed, and barely > > able to eat soup late in the day. Ran a temp of 100.2 last night. So she > > wanted to see me > > OF course I got up this am feeling the same but thought I "will" take all > > these darn meds and let her see for herself. > > NOT!!!! my bp was 140/80 in the office. She said my lupus was Out of > > control and we need to get the inflammation down. Fatigue was from lupus, > > and most all the other stuff but she felt IMURAN does NOT cause the low > bp. > > I disagree but she did say MY body will not take more than 50mg a day and > > that might be the way I have to stay at all the time. So we are holding > > imuran for a week then back on it again, slowly. I am reluctant but she > > hasn’t got many choices left here. I can not take MTX due to past liver > > problems in my history. And cell cept she says IS used only with > > nephritis. Cell cepts side effects are even worse for me especially with > > GI problems. DUH > > so it is fight this with medrol. Again, I do not like that since the > bones > > are a big concern in my back now. DUH > > I am venting here LOL. > > What to do but follow her orders. MY sjorgrens is evident with eye > > problems she noted as well as myositis in my muscles. She wanted to shoot > > me with cortisone there but I said NO and she said ok. > > I do however have an option, that if I do NOT feel better, to go do that > > medrol dose pack. I am hoping that I won’t have to do that, on top of > > what I am on now DUH. > > so here we are. I am not liking this, and well for that matter, my mood > to > > my dear hubby is very "SHORT"…he best go outside. LOL > > Now this is where the mental aspect of lupus is demanding for us all. We > > all go through this all the time with flares and it is very "taxing" to > our > > ability to get along with people LOL. believe me it is true right? > > It is not damn wonder many of us are on anti depressants. I for one am > not > > but boy sometimes I want one LOL Almost like a good shot of Jack Daniels" > > well time to lay down again, so I can get these eyes focusing again. > > thanks for letting me YELL > > janers
Response:
Hi Janers, you are in my thoughts!! and yeah, yell all you want!! scream!!
Response:
((((((HUGS)))))))))) Bev "janers" <rojak…@bright.net> wrote in message
news:iMWdncuXUKhdIj_dRVn-vA@bright.net… – Hide quoted text — Show quoted text -> Well folks, this is getting to be NOT a nice "thing" here. > My bp problems are not resolved at all. In fact my blood work came back > with an even higher sed rate, than last month. A big old 63 now. Then to > top that off, my hemoglobin and hematocrit and rbc’s are in the low > readings. > Dizzyness and fatigue were a fighting me, so rheumy upped my medrol again. > DAMN..sorry people but I hate that. > then she upped imuran to100 and I started to puke my guts out with each > dose, on an off. What a lousy day yesterday. I did not take ANY > medications for nothing, could barely get my butt out of bed, and barely > able to eat soup late in the day. Ran a temp of 100.2 last night. So she > wanted to see me > OF course I got up this am feeling the same but thought I "will" take all > these darn meds and let her see for herself. > NOT!!!! my bp was 140/80 in the office. She said my lupus was Out of > control and we need to get the inflammation down. Fatigue was from lupus, > and most all the other stuff but she felt IMURAN does NOT cause the low bp. > I disagree but she did say MY body will not take more than 50mg a day and > that might be the way I have to stay at all the time. So we are holding > imuran for a week then back on it again, slowly. I am reluctant but she > hasn’t got many choices left here. I can not take MTX due to past liver > problems in my history. And cell cept she says IS used only with > nephritis. Cell cepts side effects are even worse for me especially with > GI problems. DUH > so it is fight this with medrol. Again, I do not like that since the bones > are a big concern in my back now. DUH > I am venting here LOL. > What to do but follow her orders. MY sjorgrens is evident with eye > problems she noted as well as myositis in my muscles. She wanted to shoot > me with cortisone there but I said NO and she said ok. > I do however have an option, that if I do NOT feel better, to go do that > medrol dose pack. I am hoping that I won’t have to do that, on top of > what I am on now DUH. > so here we are. I am not liking this, and well for that matter, my mood to > my dear hubby is very "SHORT"…he best go outside. LOL > Now this is where the mental aspect of lupus is demanding for us all. We > all go through this all the time with flares and it is very "taxing" to our > ability to get along with people LOL. believe me it is true right? > It is not damn wonder many of us are on anti depressants. I for one am not > but boy sometimes I want one LOL Almost like a good shot of Jack Daniels" > well time to lay down again, so I can get these eyes focusing again. > thanks for letting me YELL > janers
Response:
Wow you sound like you are feeling absolutely rock bottom ugly!! My well wishes and hopes for a turn around are coming your way asap! Take care of you and don’t worry about anyone else till you are back on top. Hugs from Shelagh "janers" <rojak…@bright.net> wrote in message
news:iMWdncuXUKhdIj_dRVn-vA@bright.net… – Hide quoted text — Show quoted text -> Well folks, this is getting to be NOT a nice "thing" here. > My bp problems are not resolved at all. In fact my blood work came back > with an even higher sed rate, than last month. A big old 63 now. Then to > top that off, my hemoglobin and hematocrit and rbc’s are in the low > readings. > Dizzyness and fatigue were a fighting me, so rheumy upped my medrol again. > DAMN..sorry people but I hate that. > then she upped imuran to100 and I started to puke my guts out with each > dose, on an off. What a lousy day yesterday. I did not take ANY > medications for nothing, could barely get my butt out of bed, and barely > able to eat soup late in the day. Ran a temp of 100.2 last night. So she > wanted to see me > OF course I got up this am feeling the same but thought I "will" take all > these darn meds and let her see for herself. > NOT!!!! my bp was 140/80 in the office. She said my lupus was Out of > control and we need to get the inflammation down. Fatigue was from lupus, > and most all the other stuff but she felt IMURAN does NOT cause
the low bp. > I disagree but she did say MY body will not take more than 50mg a day and > that might be the way I have to stay at all the time. So we are holding > imuran for a week then back on it again, slowly. I am reluctant but she > hasn’t got many choices left here. I can not take MTX due to past liver > problems in my history. And cell cept she says IS used only with > nephritis. Cell cepts side effects are even worse for me especially with > GI problems. DUH > so it is fight this with medrol. Again, I do not like that
since the bones > are a big concern in my back now. DUH > I am venting here LOL. > What to do but follow her orders. MY sjorgrens is evident with eye > problems she noted as well as myositis in my muscles. She wanted to shoot > me with cortisone there but I said NO and she said ok. > I do however have an option, that if I do NOT feel better, to go do that > medrol dose pack. I am hoping that I won’t have to do that, on top of > what I am on now DUH. > so here we are. I am not liking this, and well for that
matter, my mood to > my dear hubby is very "SHORT"…he best go outside. LOL > Now this is where the mental aspect of lupus is demanding for us all. We > all go through this all the time with flares and it is very
"taxing" to our > ability to get along with people LOL. believe me it is true right? > It is not damn wonder many of us are on anti depressants. I
for one am not – Hide quoted text — Show quoted text -> but boy sometimes I want one LOL Almost like a good shot of Jack Daniels" > well time to lay down again, so I can get these eyes focusing again. > thanks for letting me YELL > janers
Response:
OH my gosh Janers… I would be swearing too. Man you have bee handed allot to deal with lately. ((((((((((HUgs))))))))))))) RhondaM "janers" <rojak…@bright.net> wrote in message
news:iMWdncuXUKhdIj_dRVn-vA@bright.net… – Hide quoted text — Show quoted text -> Well folks, this is getting to be NOT a nice "thing" here. > My bp problems are not resolved at all. In fact my blood work came back > with an even higher sed rate, than last month. A big old 63 now. Then to > top that off, my hemoglobin and hematocrit and rbc’s are in the low > readings. > Dizzyness and fatigue were a fighting me, so rheumy upped my medrol again. > DAMN..sorry people but I hate that. > then she upped imuran to100 and I started to puke my guts out with each > dose, on an off. What a lousy day yesterday. I did not take ANY > medications for nothing, could barely get my butt out of bed, and barely > able to eat soup late in the day. Ran a temp of 100.2 last night. So she > wanted to see me > OF course I got up this am feeling the same but thought I "will" take all > these darn meds and let her see for herself. > NOT!!!! my bp was 140/80 in the office. She said my lupus was Out of > control and we need to get the inflammation down. Fatigue was from lupus, > and most all the other stuff but she felt IMURAN does NOT cause the low bp. > I disagree but she did say MY body will not take more than 50mg a day and > that might be the way I have to stay at all the time. So we are holding > imuran for a week then back on it again, slowly. I am reluctant but she > hasn’t got many choices left here. I can not take MTX due to past liver > problems in my history. And cell cept she says IS used only with > nephritis. Cell cepts side effects are even worse for me especially with > GI problems. DUH > so it is fight this with medrol. Again, I do not like that since the bones > are a big concern in my back now. DUH > I am venting here LOL. > What to do but follow her orders. MY sjorgrens is evident with eye > problems she noted as well as myositis in my muscles. She wanted to shoot > me with cortisone there but I said NO and she said ok. > I do however have an option, that if I do NOT feel better, to go do that > medrol dose pack. I am hoping that I won’t have to do that, on top of > what I am on now DUH. > so here we are. I am not liking this, and well for that matter, my mood to > my dear hubby is very "SHORT"…he best go outside. LOL > Now this is where the mental aspect of lupus is demanding for us all. We > all go through this all the time with flares and it is very "taxing" to our > ability to get along with people LOL. believe me it is true right? > It is not damn wonder many of us are on anti depressants. I for one am not > but boy sometimes I want one LOL Almost like a good shot of Jack Daniels" > well time to lay down again, so I can get these eyes focusing again. > thanks for letting me YELL > janers
Response:
Geez, Janers, you sure did get the short end of the stick this time. I’m so sorry that you are feeling so terrible and your blood work is showing so much inflammation. Keep communicating with your doctor and following orders and we’ll pray for a turn-around real soon. You are fortunate to have a doctor that is so responsive and will get you in right away. Gretchen
Response:
Well crap Janers!!!!! You know what I mean. (((((((((((((((((((((Janers))))))))))))))))))wende (still lurking) "janers" <rojak…@bright.net> wrote in message
news:iMWdncuXUKhdIj_dRVn-vA@bright.net… – Hide quoted text — Show quoted text -> Well folks, this is getting to be NOT a nice "thing" here. > My bp problems are not resolved at all. In fact my blood work came back > with an even higher sed rate, than last month. A big old 63 now. Then to > top that off, my hemoglobin and hematocrit and rbc’s are in the low > readings. > Dizzyness and fatigue were a fighting me, so rheumy upped my medrol again. > DAMN..sorry people but I hate that. > then she upped imuran to100 and I started to puke my guts out with each > dose, on an off. What a lousy day yesterday. I did not take ANY > medications for nothing, could barely get my butt out of bed, and barely > able to eat soup late in the day. Ran a temp of 100.2 last night. So she > wanted to see me > OF course I got up this am feeling the same but thought I "will" take all > these darn meds and let her see for herself. > NOT!!!! my bp was 140/80 in the office. She said my lupus was Out of > control and we need to get the inflammation down. Fatigue was from lupus, > and most all the other stuff but she felt IMURAN does NOT cause the low bp. > I disagree but she did say MY body will not take more than 50mg a day and > that might be the way I have to stay at all the time. So we are holding > imuran for a week then back on it again, slowly. I am reluctant but she > hasn’t got many choices left here. I can not take MTX due to past liver > problems in my history. And cell cept she says IS used only with > nephritis. Cell cepts side effects are even worse for me especially with > GI problems. DUH > so it is fight this with medrol. Again, I do not like that since the bones > are a big concern in my back now. DUH > I am venting here LOL. > What to do but follow her orders. MY sjorgrens is evident with eye > problems she noted as well as myositis in my muscles. She wanted to shoot > me with cortisone there but I said NO and she said ok. > I do however have an option, that if I do NOT feel better, to go do that > medrol dose pack. I am hoping that I won’t have to do that, on top of > what I am on now DUH. > so here we are. I am not liking this, and well for that matter, my mood to > my dear hubby is very "SHORT"…he best go outside. LOL > Now this is where the mental aspect of lupus is demanding for us all. We > all go through this all the time with flares and it is very "taxing" to our > ability to get along with people LOL. believe me it is true right? > It is not damn wonder many of us are on anti depressants. I for one am not > but boy sometimes I want one LOL Almost like a good shot of Jack Daniels" > well time to lay down again, so I can get these eyes focusing again. > thanks for letting me YELL > janers
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