Question:
Am presently dealing with ascites probably related to the lupus caused primary biliary cirrhosis of my liver. Anybody else dealing with this? Any references on web? Most stuff I have found after hours looking and looking day after day is either too benign to be informative or to difficult to understand. My waist has gone up at least three inches in a week’s time. Pitted edema is not only in ankles but in lower abdomen. Needless to say, it’s time for bedrest and more doctor visits – already in progress, already new medicines have been added – UUGGGHHH!!! Man, this is the pits. Judith
Response:
Dear judith, > Am presently dealing with ascites probably related to the lupus caused > primary biliary cirrhosis of my liver. Anybody else dealing with this? > Any references on web? Most stuff I have found after hours looking and > looking day after day is either too benign to be informative or to > difficult to understand. My waist has gone up at least three inches in a > week’s time. Pitted edema is not only in ankles but in lower abdomen. > Needless to say, it’s time for bedrest and more doctor visits – already in > progress, already new medicines have been added – UUGGGHHH!!!
Ascites can be the result of liver involvement, but also due to nephritis and general inflammation. Do you know your plasma level of albumin? Hugs, Boaz http://www.acor.org/lupus/ http://www.zeta.org.au/~sioux/mira always consult your medical practitioner
Response:
Thanks Boaz, Yeah, we are watching the Albumin levels which are staying in the norm. Bun, creatinine……ya know there is some math formula involved there. Gawd, I am like a pin cushion. My report is promising. Liver doc increased diuretics now taking 3 different kinds and I have lost 15 pounds in five days of fluid and four inches off my waist. I can breathe easier and my abdomen isnt half as sore and painful as it was last week. I am pretty weak physically but who wouldnt be at this point. I started a new liver drug called Ursodiol which is a silver bullet I am told. Time will tell. Thanks for the encouragement. Judith Boaz Robinzon <Robin…@agri.huji.ac.il> wrote in article <36778309.2…@agri.huji.ac.il>… – Hide quoted text — Show quoted text -> Dear judith, > > Am presently dealing with ascites probably related to the lupus caused > > primary biliary cirrhosis of my liver. Anybody else dealing with this? > > Any references on web? Most stuff I have found after hours looking and > > looking day after day is either too benign to be informative or to > > difficult to understand. My waist has gone up at least three inches in a > > week’s time. Pitted edema is not only in ankles but in lower abdomen. > > Needless to say, it’s time for bedrest and more doctor visits – already in > > progress, already new medicines have been added – UUGGGHHH!!! > Ascites can be the result of liver involvement, but also due to > nephritis and general inflammation. > Do you know your plasma level of albumin? > Hugs, > Boaz > http://www.acor.org/lupus/ > http://www.zeta.org.au/~sioux/mira > always consult your medical practitioner
Response:
Dear Judith, I hope that the silver bullet will work. Hugs, Boaz http://www.acor.org/lupus/ http://www.zeta.org.au/~sioux/mira always consult your medical practitioner
Response:
If a silver bullet will kill a vampire, what will it do to a lupie? Ya’ll I made my friendly little Christmas holiday visit to our ER last night. My blood pressure is bouncing around like a yo-yo again. This time it bottomed out at 80/65 and boy was I swooning, not over my good looking hubby either. Poked and prodded, I got to go home before midnight when all the real vampires come out. So far, this season, I missed the praise and worship team Christmas party. I missed church last Sunday morning. I have been to bed for three weeks except for doctor visits and that ain’t bad compared to previous years. So, I would sing Jingle Bells except down here in La. we don’t get much snow to dash in and right now I ain’t doing too much dashing anywhere anyway. Maybe next week I’ll start my gift shopping. Sigh. Judith Yesterday was only yesterday. Today is just today. And tomorrow? Well, tomorrow will simply have to wait. Boaz Robinzon <Robin…@agri.huji.ac.il> wrote in article <36790AAC.2…@agri.huji.ac.il>… – Hide quoted text — Show quoted text -> Dear Judith, > I hope that the silver bullet will work. > Hugs, > Boaz > http://www.acor.org/lupus/ > http://www.zeta.org.au/~sioux/mira > always consult your medical practitioner
Response:
mwog wrote: > If a silver bullet will kill a vampire, what will it do to a lupie?
Depending on where the lupie’s hit, anything from mild indigestion, to curing hemmorhoids. ;-)))) > Ya’ll I made my friendly little Christmas holiday visit to our ER last > night. My blood pressure is bouncing around like a yo-yo again. This time > it bottomed out at 80/65 and boy was I swooning, not over my good looking > hubby either. Poked and prodded, I got to go home before midnight when all > the real vampires come out. So far, this season, I missed the praise and > worship team Christmas party. I missed church last Sunday morning. I have > been to bed for three weeks except for doctor visits and that ain’t bad > compared to previous years. So, I would sing Jingle Bells except down here > in La. we don’t get much snow to dash in and right now I ain’t doing too > much dashing anywhere anyway. Maybe next week I’ll start my gift shopping. > Sigh. Judith
Sounds like we’re having the same experience up here in Oklahoma, except that last night we finally got fed up with it all, and went to Wally-World, where we took seperate carts and got things out of the way. Now all we need to do is wrap them! Ummmmmm, btw. I seem to recall a few years ago, there was something on the radio (we went to my aunt and uncle’s, in Covington) about a "Cajun Santa Claus"…okay, so you’re not "dashing through the snow" – how about "dashing tru de bayou in a pirogue pulled by ‘gators"??? ;-)))) Wolf ~^,,^~ – Hide quoted text — Show quoted text -> Yesterday was only yesterday. Today is just today. And tomorrow? Well, > tomorrow will simply have to wait. > Boaz Robinzon <Robin…@agri.huji.ac.il> wrote in article > <36790AAC.2…@agri.huji.ac.il>… > > Dear Judith, > > I hope that the silver bullet will work. > > Hugs, > > Boaz > > http://www.acor.org/lupus/ > > http://www.zeta.org.au/~sioux/mira > > always consult your medical practitioner
Response:
Dear Wes, I know that things always seem the darkest at night. I think that we have talked of this before. When everyone else is sleeping and you are up alone, a kind of emptiness sets in that makes us question the value of our existance. So much has changed for me physically that I sometimes have trouble remembering that I still have worth as a person. I can still love and be loved. I still have wisdom to share with my children. I still have friends who understand why I can’t always join them in outings. I think I am even more compassionate with others. I have a cousin by marriage who had a kidney transplant that failed. She was back on dialysis for a while,but got a second kidney. She had small children at the time and she said that is taken into consideration on the list. Her children are grown now and on their own. She still has that second kidney and is fine. Keep the faith. I will be praying for you too. A friend who cares, BJ "John W. Johnston, Jr." <wes…@microconnect.net> wrote in message news:3B869F33.79D1382F@microconnect.net… – Hide quoted text — Show quoted text -> Thanks everyone. What can I say. You are wonderful! True friends, > though we never met. > I just want to clarify, now that it is day and the sun is shining, I do > not wish to die. I have so many reasons to live. It is just a feeling > that comes over me, and I can’t shake it off. When it does happen, I > pull out my bible and read a few chapters to remind me of who really is > in charge. It helps, but a few days later, there it is again. > I’m being weaned off Prozac and being switched to Wellbutrin. Perhaps > that will help as well. > I saw the nephrologist today, not Dr. Johnston, but one of his > associates. He did not think that ascites was the problem, so the > endoscopy will be scheduled for next week. The results of the 24 hour > collection are not back yet, and no one has any results from Cleveland > yet. It has been a month now since we were there. I can’t understand > the hold up. > If I do lose this kidney, I will go back on dialysis. I will get a > chance to be worked up for another kidney, but there is no guarantee > that I will qualify. They say that to everyone though, and most > patients do get back on the list. > I’ll keep you posted as I hear anything. Again, thank you. > Wes
Response:
Wes, what a wonderful patient man you are? No I am not making a pass LOL YOu do have a good attitude though. Now about the Cleveland blood tests. There must be a mix up somewhere along the line of the rheumy dept there. I got my blood tests in 24hours some of them. NOW, My suggestion to you is this. Email them or call them ASAP, I know that is putting you to work again, but those idiots should of let your doctors know the results. I think someone goofed up big time here. Call them, tell them you want copies sent to YOU personally, and to the list of doctors you give them. YOUR treatment depends on these tests, lie if you have to. And you should not have to but hey someone needs a stick of dynomite where the sun don’t shine. Gee did I say that? Yep but that is how I feel. Incompetency is NOT tolerated here,. or for that matter anywhere you have medical treatment or care. I say if you have to have a work up that you will qualify for a transplant, just have faith it will work out, and from what I gather on your posts, faith is what you do indeed have. so hang in there big guy, and I am pulling for you. If for some reason you need a bitchy red head to help you out, NO KCAT not you, well I will be there big time. Just let me know what you want me to do. I love to get under people’s skin when it comes to someone not helping a person in need. Boy good thing hubby is mild mannered and we still get along. LOL You take care and let me know what you need me to do for you..Just ask. janers
Response:
I’m so glad to hear that there is the possibility of another kidney. If that does come to pass, if a kidney biopsy hasn’t been done by then, I guess that would be a good time to do one and find out definitively what’s going on. Hang in there and keep up the faith. We’re all praying for you that you get some answers and that things improve. Sandra
Response:
Hmmmmmpht! You act as if you’re the only "bitchy red head" in the group" Sheesh! Judith member in good standing of the BRH gang! "Janers" <rojak…@bright.net> wrote in message
news:RXDh7.28752$ga2.1086656@cletus.bright.net… – Hide quoted text — Show quoted text -> Wes, what a wonderful patient man you are? No I am not making a pass LOL > YOu do have a good attitude though. > Now about the Cleveland blood tests. There must be a mix up somewhere > along the line of the rheumy dept there. I got my blood tests in 24hours > some of them. NOW, My suggestion to you is this. Email them or call them > ASAP, I know that is putting you to work again, but those idiots should of > let your doctors know the results. I think someone goofed up big time > here. > Call them, tell them you want copies sent to YOU personally, and to the > list of doctors you give them. YOUR treatment depends on these tests, lie > if you have to. And you should not have to but hey someone needs a stick > of dynomite where the sun don’t shine. Gee did I say that? Yep but that > is how I feel. Incompetency is NOT tolerated here,. or for that matter > anywhere you have medical treatment or care. > I say if you have to have a work up that you will qualify for a transplant, > just have faith it will work out, and from what I gather on your posts, > faith is what you do indeed have. > so hang in there big guy, and I am pulling for you. If for some reason you > need a bitchy red head to help you out, NO KCAT not you, well I will be > there big time. Just let me know what you want me to do. > I love to get under people’s skin when it comes to someone not helping a > person in need. Boy good thing hubby is mild mannered and we still get > along. LOL > You take care and let me know what you need me to do for you..Just ask. > janers
Response:
Gee Judith, didn’t mean to exclude you on the bitchy part. LOL But red heads at least some I know don’t like that label. So I was trying to be nice. OH well I guess you are right with the IN crowd. haha Now lets set up a red head festival and I am sure we will all show up with our tee shirts labeled. The Bitchy Gang. haha I usually am not always that way but hey you gotta have a say so sometime right??? Have a good day, and HOT here in OHIO too. ugh janers
Response:
On Fri, 24 Aug 2001 23:14:00 -0400, "John W. Johnston, Jr." <wes…@microconnect.net> wrote: >By the way, I’m nuts about red heads. My wife is one too!
So *thats* what it is. redhead, here. I swear I was a nice, easy going person until several years of "you’re a redhead so you must have a bad temper" pushed me to my limit and I became a bad-tempered redhead! *********************************** KCat – I am not a medical professional. The contents of this post are based soley on my experiences and opinions http://www.ghg.net/schwerpt/mypage.htm http://www.ghg.net/schwerpt/aslfaq20.htm ("`-”-/").___..–”"`-._ (`6_ 6 ) `-. ( ).`-.__.’`) (_Y_.)’ ._ ) `._ `. “-..-” _..`–’_..-_/ /–’_.’ ,’ (()),-” (()),’ (((.-’
Response:
Thanks everyone. What can I say. You are wonderful! True friends, though we never met. I just want to clarify, now that it is day and the sun is shining, I do not wish to die. I have so many reasons to live. It is just a feeling that comes over me, and I can’t shake it off. When it does happen, I pull out my bible and read a few chapters to remind me of who really is in charge. It helps, but a few days later, there it is again. I’m being weaned off Prozac and being switched to Wellbutrin. Perhaps that will help as well. I saw the nephrologist today, not Dr. Johnston, but one of his associates. He did not think that ascites was the problem, so the endoscopy will be scheduled for next week. The results of the 24 hour collection are not back yet, and no one has any results from Cleveland yet. It has been a month now since we were there. I can’t understand the hold up. If I do lose this kidney, I will go back on dialysis. I will get a chance to be worked up for another kidney, but there is no guarantee that I will qualify. They say that to everyone though, and most patients do get back on the list. I’ll keep you posted as I hear anything. Again, thank you. Wes
Response:
Thank you Janers. Maybe I will sic you on those folks up in Cleveland. I called last week,and spoke with someone in Dr. Scheetz office. She was very nice. She called back after talking to Dr. Scheetz, and said that a report was on its way to my PCP, and a copy was on the way to me. So far, nothing. I’ll call again Monday morning. By the way, I’m nuts about red heads. My wife is one too! She is ready to start sending letters to all the doctors, and they won’t be nice ones. I still want to try the polite route one more time though. You sound so upbeat in your posts now. I’m so glad your pain is finally gone. Take care of yourself. Wes – Hide quoted text — Show quoted text -Janers wrote: > Wes, what a wonderful patient man you are? No I am not making a pass LOL > YOu do have a good attitude though. > Now about the Cleveland blood tests. There must be a mix up somewhere > along the line of the rheumy dept there. I got my blood tests in 24hours > some of them. NOW, My suggestion to you is this. Email them or call them > ASAP, I know that is putting you to work again, but those idiots should of > let your doctors know the results. I think someone goofed up big time > here. > Call them, tell them you want copies sent to YOU personally, and to the > list of doctors you give them. YOUR treatment depends on these tests, lie > if you have to. And you should not have to but hey someone needs a stick > of dynomite where the sun don’t shine. Gee did I say that? Yep but that > is how I feel. Incompetency is NOT tolerated here,. or for that matter > anywhere you have medical treatment or care. > I say if you have to have a work up that you will qualify for a transplant, > just have faith it will work out, and from what I gather on your posts, > faith is what you do indeed have. > so hang in there big guy, and I am pulling for you. If for some reason you > need a bitchy red head to help you out, NO KCAT not you, well I will be > there big time. Just let me know what you want me to do. > I love to get under people’s skin when it comes to someone not helping a > person in need. Boy good thing hubby is mild mannered and we still get > along. LOL > You take care and let me know what you need me to do for you..Just ask. > janers
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