Question:
HELLO SYDONNA, FIRST THINGS FIRST LET YOUR MOTHER SOAK WHAT SHES LEARNED ABOUT SELF.I KNOW YOUR EXCITED AND THING THE WORST.I’VE HAD LUPUS FOR OVER 15 YEARS.AND ITS BEEN HARD THE PAIN THAT YOU GO THROUGH.THE CRYING,THE WHINEING.EMOTIONALLY ROLLIER COASTER SHE’LL BE GOING THRU.BE THERE FOR HER AND THE WORST THING ON THIS EARTH IS TO SAY MOM YOU LOOK FINE BECAUSE ITS IN HER BODY.SHE’LL NEED YOU MORE THEN EVER NOW.SO HANG TUFF BECAUSE YOU ALL HVE A BUMPY ROAD AHEAD OF YOU!!!SHE’LL NEED YOU MORE THEN SHE’LL EVERY LET ON MAY GOD BLESS THRU THESE TRYING TIMES,dont forget the brain fog ************ BEVERLY. – Hide quoted text — Show quoted text -SyDonna Harris wrote: > Hello, my mother was recently diagnosed with Lupus and we really have not > idea what this is. I have been researching on the internet and came accross > this site. IF any one can give some info please relpy to my regular email > at sydo…@email.com. Any help would be greatly appricated. Sy’Donna
Response:
Hello, my mother was recently diagnosed with Lupus and we really have not idea what this is. I have been researching on the internet and came accross this site. IF any one can give some info please relpy to my regular email at sydo…@email.com. Any help would be greatly appricated. Sy’Donna
Response:
Kcat recently posted FAQs. That’s probably an excellent place to start learning about lupus. You might also want to get in touch with the Lupus Foundation of America http://internet-plaza.net/lupus/. They can put you in touch with a local support group. They also have many books and pamplets available, as well as extensive, reliable information on the web. Speaking of books, I highly recommend THE LUPUS BOOK, 2nd ed., by Dr. Wallace. This book is probably the most extensive and informative book on lupus ever written for the layperson. It’s often been referred to as "the lupus bible." It’s also endorsed by the Lupus Foundation. There are other excellent books as well. Be careful though to stick with recent publications as over the years there have been changes in therapy. prognosis, and basis understanding of lupus. You might also check out these websites Lupus Around the World (ONE OF MY FAVORITES! Great search function, Ask a Doc, and support groups.) http://www.mtio.com/lupus About.com (Literally tons of information and links on many other topics as well.) http://lupus.about.com/health/lupus/ North East Lupus Group Homepage (Andy Taylor’s Page–one of the best lupus websites around.) http://www.kitzbuhel.demon.co.uk/lupus/index.htm Lupus Labs Explained http://www.mtio.com/lupus/lfalt1.htm There are many other good websites as well. However, these are some of my top picks for those new to lupus. I suggest you start with these before branching out. When you do branch out, keep in mind that personal websites are more likely to contain errors. The most reliable are usually those run by physicians, universities, major research institutions and national/international foundations or associations. There is a lot of helpful information you can glean here too, just be aware that none of the information offered here is guaranteed to be accurate nor is it a substitute for consulting with a physician. Sandra
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