Lupus FAQ » Lupus Disease » was- wish me luck

was- wish me luck

Question:

>Hey everyone,….

Hey, I was just reading posts when I came across the one I wrote…I did not realize it was that long and if you are like me I like them short and to the point…just wanted to say sorry if you are like that too.  I just wanted to get my opionion in…hehe.  Goodnight and God Bless! Peanut  :-)

Response:

Tina~~one of the first things I found out about the process of ssdi was that our docs have nothing to do with the decision, it is our medical records that are reviewed.  But that is also a reason for being sure our records are current and up to date.  Baby steps, isn’t that what they used to say when times were rough, take baby steps.  Hoping you are feeling better emotionally and having an ‘ok’ day physically,  (((kim))))) * Sent from AltaVista http://www.altavista.com Where you can also find related Web Pages, Images, Audios, Videos, News, and Shopping.  Smart is Beautiful

Response:

Just wanted to let you know Tina/……… Loved your pics of the doggiess….. Makes me miss my Sammy aka Shetland Collie Looks Like you give em alot of Love…. So great to see ppl who actually care and love their babies…. I have a queen aka cat Named Zillah!!!!             Take Care Teri

Response:

Thank You, Yes my pup-kids are spoiled rotten, my only children :o ) >Just wanted to let you know Tina/……… >Loved your pics of the doggiess….. >Makes me miss my Sammy aka Shetland Collie >Looks Like you give em alot of Love…. >So great to see ppl who actually care and love their babies…. >I have a queen aka cat Named Zillah!!!! >            Take Care Teri

Tina/mookeysmom  "new photos added to photo album & slide show": http://community.webshots.com/album/1423111eQdinNWDrt  dont 4get to sign my guestbook :o )  

Response:

Hey everyone, I have been kind of skimming through the "wish me luck" posts.  I have noticed some meantion the GED and others meantion getting SS, but I never caught the original "wish me luck" post, so I am not really sure what everyone is answer to…but since I have gone through both the hassels of taking the GED and getting on SS I thought that I would speak up myself on opionion of the matters. Well, I am 20 years old with Lupus (SLE), since the age of 10.  I was on the Home Bound Program through out my 6th through 12th grade years in school.  This program is where I could go to school when I felt good, but on the days I was sick a tutor would bring me my school work and help me to it.  I could miss unlimited amount of days and I had 5 days after the day I returned to school to complete all work, no matter how long I was out.  This program was really helpful, no only because it was free of change, but also because in my 11th and 12 grade of school I was only able to attend a total of maybe 3 weeks.  Well, I failed my 12th grade year and decided to take the GED instead of trying to do it all over again.  If it was now, I would just do it over again, but then my health was too bad to worry about school.  Most people have to take their GED all in one day.  I think there are like 5 different parts to it.  We talked to the school about it and the Home Bound people and they were able to make it where I took one part each day.  Instead of stressing fot 3 hours straight they let me do what I could, go home, then come back the next day and do what I could.  Maybe if stress if a factor of taking the test, you could talk to the school or whoever about doing this same thing.  I was feeling pretty crummy when I took it, but I passed every part on my first try. Now, as far as getting on SS, not so easy.  About 6 months after I turned 18, I decided to try and get on SS, because I hated always having to be dependant of my parents and I wanted to help them out with bills and stuff.  Well, it took me about 15 months to get it.  Now you may think that is a long time…and it was…but if you really feel you need it, you have to keep on fightin to get what is yours.  I read up on it before I even started trying to get it and I read that most people are denied the first time in order to filter out the not really serious people.  So I was not surprised when I was denied the first time.  I was however surprised when I was the second time.   Okay, get this, the reason the were denying me was because I had *never* had to *quit* a job because of my illness…this made no sense to me or my parents because I had never had to quit one because I have never been able to have one because of my illness.  I mean, I am 20 years old with a disease that has effected every system in my body, I have surgeries, tests, and can barely walk sometimes…and what…? DO they think I do this for my health? (no pun intended). Well, before they denied the for the second time they want me to see this Dr. Some Dr that I have never seen or even heard of that knows nothing about my past history.  SS says I had to see him for him to a rutuine exam and ask me some stuff.  Well, I get there and this Dr did a crappy job … I do not even see how he was a Dr…but anyway, my lawyer was told about him… After being denied the second time I got a SS lawyer, which I wish I had done in the very begining.  I went to here, told her my case.  We had to go through all my past history.  ((Good reminder- when you go to the Dr, even for something little, keep a notebook or something with the dates, which Dr you saw, why, and what tests he did or meds me precribed)).  I also had to make a list of little things I cannot do that I never really thought about.  I mean, it was normal to me that sometimes my dad has to put my shoes on me, but it is not normal to the "healthy" world.  So I had to think of every little "disablity" I had and write it down.  This was kind of hard for me since before I never really thought about these things and now I realized how much I really could not do. Well, it was about three months and we had everything set and a court date ready.  It was just gonna be me, my lawyer, and the judge, which I was glad because I did not want it to be some open to the publis thing, which no SS cases are.  Well, the lawyer called me the day before my court date and told me that the judge reviewed the case and that there is no reason I should have ever been denied, case settled, I had my money the next week. Not only that, since I was concided an adult once I turned 18 I should have been on SS from the month I turned 18, so I got pay back for all those months. So, if you can prove how old you have been disabled, then you may also be able to get pay back for all those months.  I did have to pay the laywer 25% of the money I got, but I only had to pay her if I got any money at all. I just want to let anyone out there know that if you are trying to get SS and are denided a second or even a third time, not to give up.  I do not really like getting ‘free money’, but I feel without it I would never be able to try and be out on my own.  I do not want to have to depend on my parents forever so I do what I can to try to be "normal."  I advise anyone who is trying to get SS to look into getting a SS lawyer, because now, looking back, I wish I had done it sooner. I just realized I am going on and on.  You guy may not even care about half of what I have said, but I just wanted to let you know hands on what you may have to go through.  Some people may get lucky on there first try, while others may be in there 3rd go at it.   I hope everyone has a goodnight.  God Bless! Peanut  :-)

Response:

I called Soc-Sec and talked to the lady doing my review and told her my concerns, she said its not up to the DR. they go by my medical records. YES IM ok, my records will say it all. the new DR. has no decision in this, they have people who study my records. IM sooooo happy now and feel IM ok, IM not worried now. Thank you everyone for support when yes I paniced. love to all of you :o ) Tina/mookeysmom  "new photos added to photo album & slide show": http://community.webshots.com/album/1423111eQdinNWDrt

Response:

Tina, you are so right about the new doc not haveing asay so in this.  All my docs had to do was send in my records and that way a lot in itself.  All I had todo was to list the docs and clinics and hospitals, and where all all the tests were done over many moons LOL. So you see the SS docs do all the checking and decision makings.  In a way that is stupid but again it is a way of new ideas  about what is wrong with you and your health.  I for one did not have any trouble with the SS system.  Got SSD on the first try, I sure wish it would be that way for all of us.  Who every day have to go one step at a time with this disease. Now the waiting begins.  Just don’t get upset over this and try not to think about it and bingo one fine day you will go to the mail and there is the answer for you.  A happy one I am sure.  You have enough on your plate to worry about.  No you did not panic, we all have been there one time or another, so we do understand. Good luck to you and God bless. Janers

Response:

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