Question:
In article <_gCI6.24819$TW.115…@tor-nn1.netcom.ca>, "Alex and Gaylan" <alexandgay…@email.msn.com> writes: >Some are even told >that their symptoms are psychological. You are very fortunate to having a >loving support group among your friends and family.
I think most of us were told it was psychological. I was told this for 15 years. Kathi
Response:
Hi Sean. Good can indeed come from this illness. I was diagnosed at the age of 42; this set changes in motion that got the unnecessary stress out of my life. I have more peace of mind and love now than when I was diagnosed ten years ago. I was told to avoid the combination of stress and fatigue and took it seriously. I’ve had only one definitely for sure flare-up since diagnosis. Doesn’t mean I’m entirely OK; I get fatigue and muscle stiffness, but I take afternoon naps for the fatigue and clonazepam for the stiffness. I’m in Canada and don’t myself follow British football (called ’soccer’ over here; aren’t we odd?). My husband is a West Ham supporter as he was born in London’s East End. He does support ‘manyoo’ (Manchester United to the uniniated) when they’re playing against European teams. Take care. Lorraine. sean murray <se…@alderleyrd.freeserve.co.uk> wrote in message
news:9cuq4i$fub$1@news6.svr.pol.co.uk… – Hide quoted text — Show quoted text -> Hello everyone, > Well not everyone ezactly…any manyoo fans out there in cyberspace can ‘do > one’ as they say in M/Cr. Basically, I am 35 years old. I was born in > Belfast, Ireland and was diagnosed with MS in January 2001. In many ways it > wasn’t a shock – I’ve always had a belief, tucked away @ the back of my > mind, that it would be something neurological that would get me. I seemed to > spend most of my childhood living on my nerves. > When the Manchester Royal Infirmary told me it was MS I was actually > relieved that somebody had finally put their finger on what was wrong with > me and given it a name; I’d been going to my GP for months and it had > reached the stage where I was starting to feel like I was an inconvenience > to him! The fact that he told me I’d been tested for MS in a blood test – > and was clear – only added to my general sense of confusion. I honestly > thought that I was going insane. > The only term I’ve heard related to my MS is secondary-progressive though I > only know this because my partner Jacqui was with me when the neurologist > was talking to us post-diagnosis. For me, I was back in the deep end of the > swimming pool and nothing was audible under water. > To be honest, it doesn’t matter to me what strain I have; out of sheer > desperation I decided to phone the MS Helpline in London one evening and the > operator there listened to my questions on SPMS and told me that "…we all > go through the various stages of ALL the strains of MS at some time". In a > way, that was the best thing she could have told me as it prepared me for > the bad days and made me try even harder to enjoy the good one’s. > As far as coventional medicines from the NHS goes, I’ve had a short course > of steroids ( to counter the ‘critical muscle watage’ in my legs, and that > is it. Nothing else. I know it takes time for the fuller picture to develop > but that doesn’t stop me worrying some days. > To be fair, I have had some physio @ the local hospital and that did help. > Unfortunately, I don’t have my own transport anymore; I had just bought a > brand new Vespa scooter when I was diagnosed so I had to sell it which broke > my heart; I’d scrimped and save so hard for so long to get my mitts on that > lil Piaggio. Without transport I have to walk to the hospital which after a > session of physio is something of a damn struggle. > The way I see it is, we are all born to die. The fact that I have MS isn’t > going to stop me living my life and having dreams and hopes. I’ve said it to > anyone that will listen but some good has come out of it. I realise how much > Love I have in my life and how special some people are to me. Having MS is > bobbins for sure but hey at least I’ve had the opportunity to feel that "big > blanket of Love" wrapped around me. > So, I’ll toddle off now folks and read a bit more about Buddhism and Yoga. > Love & Peace, > Sean
Response:
<<Gaylan writes; I am very interested in your statement that you had a blood test for MS. I never heard of such a thing. If they can tell from a blood test that people have, or do not have, MS, why is this test not more widely known? Hi Gaylan I bet the doctor tested Sean for Lymes disease or Lupus- RA Factor-those are blood related tests & they are in that wide span of Immune diseases—there isn’t any blood test that I know of either for MS–just the CSF-spinal fluid panel & of course the MRI……I supppose some blood tests could be in a MS Panel—Maybe, just to see if everything else was functionig like it should. Kris >>
Response:
oh boy I sure know what you mean, when I was diagnosed it was like finally putting all the pieces of a jig-saw puzzle together and they finally fit. so for me also it was a relief, just to know I was not imagining things and I was not lazy and I was not unmotivated. their was finally a name for what I felt and that name was MS. I still live life in a constant state of confusion, I think when I get up I just leave my brain on the pillow. ah well the mysteries of MS, don’t worry about it just go with the flow. Joyce. "sean murray" <se…@alderleyrd.freeserve.co.uk> wrote in message
news:9cuq4i$fub$1@news6.svr.pol.co.uk… – Hide quoted text — Show quoted text -> Hello everyone, > Well not everyone ezactly…any manyoo fans out there in cyberspace can ‘do > one’ as they say in M/Cr. Basically, I am 35 years old. I was born in > Belfast, Ireland and was diagnosed with MS in January 2001. In many ways it > wasn’t a shock – I’ve always had a belief, tucked away @ the back of my > mind, that it would be something neurological that would get me. I seemed to > spend most of my childhood living on my nerves. > When the Manchester Royal Infirmary told me it was MS I was actually > relieved that somebody had finally put their finger on what was wrong with > me and given it a name; I’d been going to my GP for months and it had > reached the stage where I was starting to feel like I was an inconvenience > to him! The fact that he told me I’d been tested for MS in a blood test – > and was clear – only added to my general sense of confusion. I honestly > thought that I was going insane. > The only term I’ve heard related to my MS is secondary-progressive though I > only know this because my partner Jacqui was with me when the neurologist > was talking to us post-diagnosis. For me, I was back in the deep end of the > swimming pool and nothing was audible under water. > To be honest, it doesn’t matter to me what strain I have; out of sheer > desperation I decided to phone the MS Helpline in London one evening and the > operator there listened to my questions on SPMS and told me that "…we all > go through the various stages of ALL the strains of MS at some time". In a > way, that was the best thing she could have told me as it prepared me for > the bad days and made me try even harder to enjoy the good one’s. > As far as coventional medicines from the NHS goes, I’ve had a short course > of steroids ( to counter the ‘critical muscle watage’ in my legs, and that > is it. Nothing else. I know it takes time for the fuller picture to develop > but that doesn’t stop me worrying some days. > To be fair, I have had some physio @ the local hospital and that did help. > Unfortunately, I don’t have my own transport anymore; I had just bought a > brand new Vespa scooter when I was diagnosed so I had to sell it which broke > my heart; I’d scrimped and save so hard for so long to get my mitts on that > lil Piaggio. Without transport I have to walk to the hospital which after a > session of physio is something of a damn struggle. > The way I see it is, we are all born to die. The fact that I have MS isn’t > going to stop me living my life and having dreams and hopes. I’ve said it to > anyone that will listen but some good has come out of it. I realise how much > Love I have in my life and how special some people are to me. Having MS is > bobbins for sure but hey at least I’ve had the opportunity to feel that "big > blanket of Love" wrapped around me. > So, I’ll toddle off now folks and read a bit more about Buddhism and Yoga. > Love & Peace, > Sean
Response:
Hello everyone, Well not everyone ezactly…any manyoo fans out there in cyberspace can ‘do one’ as they say in M/Cr. Basically, I am 35 years old. I was born in Belfast, Ireland and was diagnosed with MS in January 2001. In many ways it wasn’t a shock – I’ve always had a belief, tucked away @ the back of my mind, that it would be something neurological that would get me. I seemed to spend most of my childhood living on my nerves. When the Manchester Royal Infirmary told me it was MS I was actually relieved that somebody had finally put their finger on what was wrong with me and given it a name; I’d been going to my GP for months and it had reached the stage where I was starting to feel like I was an inconvenience to him! The fact that he told me I’d been tested for MS in a blood test – and was clear – only added to my general sense of confusion. I honestly thought that I was going insane. The only term I’ve heard related to my MS is secondary-progressive though I only know this because my partner Jacqui was with me when the neurologist was talking to us post-diagnosis. For me, I was back in the deep end of the swimming pool and nothing was audible under water. To be honest, it doesn’t matter to me what strain I have; out of sheer desperation I decided to phone the MS Helpline in London one evening and the operator there listened to my questions on SPMS and told me that "…we all go through the various stages of ALL the strains of MS at some time". In a way, that was the best thing she could have told me as it prepared me for the bad days and made me try even harder to enjoy the good one’s. As far as coventional medicines from the NHS goes, I’ve had a short course of steroids ( to counter the ‘critical muscle watage’ in my legs, and that is it. Nothing else. I know it takes time for the fuller picture to develop but that doesn’t stop me worrying some days. To be fair, I have had some physio @ the local hospital and that did help. Unfortunately, I don’t have my own transport anymore; I had just bought a brand new Vespa scooter when I was diagnosed so I had to sell it which broke my heart; I’d scrimped and save so hard for so long to get my mitts on that lil Piaggio. Without transport I have to walk to the hospital which after a session of physio is something of a damn struggle. The way I see it is, we are all born to die. The fact that I have MS isn’t going to stop me living my life and having dreams and hopes. I’ve said it to anyone that will listen but some good has come out of it. I realise how much Love I have in my life and how special some people are to me. Having MS is bobbins for sure but hey at least I’ve had the opportunity to feel that "big blanket of Love" wrapped around me. So, I’ll toddle off now folks and read a bit more about Buddhism and Yoga. Love & Peace, Sean
Response:
Hi Sean It’s not much fun having MS is it? This is a good place to find yourself, people here are genuinely helpful and supportive, and we can also be silly and even annoying. It is not at all unusual for persons with MS to feel relieved when they get a dx because leading up to it can be pretty frustrating. Some are even told that their symptoms are psychological. You are very fortunate to having a loving support group among your friends and family. I am very interested in your statement that you had a blood test for MS. I never heard of such a thing. If they can tell from a blood test that people have, or do not have, MS, why is this test not more widely known? I agree with you that naming the kind of MS you have is not too important, although relapsing remitting sounds less destructive than progressive!!!! However, I have been progressive for 30 years and I’m still alive and only mildly disabled. Gaylan (Halifax, Nova Scotia, Canada) "sean murray" <se…@alderleyrd.freeserve.co.uk> wrote in message
news:9cuq4i$fub$1@news6.svr.pol.co.uk… The fact that he told me I’d been tested for MS in a blood test – – Hide quoted text — Show quoted text -> and was clear – only added to my general sense of confusion. > The only term I’ve heard related to my MS is secondary-progressive > To be honest, it doesn’t matter to me what strain I have;
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