Question:

Has anyone heard from Nicole? Just concerned, Paulette

Response:

Hi all It has been a very slow weeks with lots of docs. Three doc visits and some progress. Nuero – put me on Verapmil for hopeful control of migraines and Maxalt to stop them in their tracks. I have taken two of the Maxalts and the first one worked like a charm, gone gone migraine. Today I had to get up and take one at 6 AM (way to early for me) and it is rebounding back now at 1PM. At least I have them and will hopefully not have to go for an injection. Gastro- says, Celiac Panel is negative and basically is ready to scope me. I am thrilled at the thought of this but have the procedures schedules for the 5th of next month. Rhueme- says, it looks like we are going to have to be happy with small victories right now and I said I am happy with what we can get as far as me feeling any better at all. Fevers, are still with me, and joing pain and swelling is nearly unbearable. But at long last, tiny progress with the pred, at least in my head I feel a bit more like myself not so confused and dingy. My body will follow suit hopefully. What amazed me was that he actually thanked me for all the information I brought to him about my disability, illness, tests etc when I was concerned he might roll his eyes and be put off. So, that is awesome. He is testing me for a bunch of other things, which I believe includes sjorjens (sp) and some other tests I have not heard of. He seems to really think I have kidney involvement too? I have to scedule with an opthamologist and get a tear study done as well as check on them form the plaquenil- I am a bit overdue. Other than all this, I am trying to get through the day as best I can and enjoy all the time I get to spend with my family. It is a little difficult or I should say I am – this Pred can make me nuts – hyper hyper sensitive cranky- I feel for my loved ones right now. – Hide quoted text — Show quoted text -"Mermaid" <ptaw…@tflt.com> wrote in message <news:vpi5ohbrm45a7a@corp.supernews.com>… > Has anyone heard from Nicole? > Just concerned, > Paulette

Response:

Hi Nicole! Glad to hear you’ve had some improvement.  It always seems to go so slow though, doesn’t it? Sounds like you’ve found a gem of an RD.  I’m so happy for you about that!   We all understand the pred moods here, but I know it’s difficult for other’s to.  Especially kids.   I hope you continue to improve & make it to all of them appointments okay.  You’ve really got a load on you right now with docs galore, but it’ll eventually be over & done with.  The 5th isn’t too far away & gives you a bit of time.  I’m sure if they thought it was necessary, they’d have insisted on an earlier scope.  Hang in there, kid! Hugs4u, Maggie

Response:

In article <f44bc9cf.0310250958.cd13…@posting.google.com>, Nicole C. in Austin <nrclif…@sbcglobal.net> wrote [] >He is testing me for a bunch of other things, which I believe includes >sjorjens (sp) and some other tests I have not heard of. He seems to >really think I have kidney involvement too? >I have to scedule with an opthamologist and get a tear study done as >well as check on them form the plaquenil- I am a bit overdue.

Sjogrens – with a couple of dots over the ‘o’ if you’re fussy.  It occurs as a complication of lupus, as well as being a disease in its own right. One test is Schirmers – basically putting a piece of paper in your eye and seeing how wet it gets. If you *do* have that, there are many helpful sites I can point you at. With any of these eye tests, be aware that you may not be able to focus properly for a time afterwards: don’t drive yourself to the test in case you can’t drive back. — Andy [Chair, N E Lupus Group] See http://www.kitzbuhel.demon.co.uk/lupus for more!

Response:

Andy wrote: > IWith any of these eye tests, be aware that you may not be able to focus > properly for a time afterwards: don’t drive yourself to the test in case > you can’t drive back.

So pee before you leave the office? J

Response:

Question:

That sounds like a good dose that Nina mentioned, Mair.  At least it would be over with in 36 hours & you wouldn’t have to remember to take it every two days or so.  I get so confused when my pred goes down every other day.  It’s so hard to keep up with all the meds & doses. Nina, did you start the MTX injections yet? Hugs, Maggie

Response:

"Marg Watson" <JD…@webtv.net> skrev i meddelandet news:3869-3F8488F6-46@storefull-2154.public.lawson.webtv.net… > That sounds like a good dose that Nina mentioned, Mair.  At least it > would be over with in 36 hours & you wouldn’t have to remember to take > it every two days or so.  I get so confused when my pred goes down every > other day.  It’s so hard to keep up with all the meds & doses.

You should get one of those little pill boxes! Mine has the days marked and four trays for each day, so you just load the box with pills once a week. If it weren’t for my pill box, I’d probably either forget taking half of my pills or take them several times a day. > Nina, did you start the MTX injections yet?

Not yet –  but I will soon.  It’s gonna be interesting to see if raising the dose from 20 to 25 and to injection will make any difference. How is your MTX nausea doing? Nina

Response:

Hi Nina!   Thanks for asking!  I am quite a bit better.  I decided to watch the fat intake & eat smaller portions of protein–spread throughout the day–on the day before my shot as well as the 2 days after.  The liver has a hard time dealing with fat & protein, especially organ meats, when it’s not working properly.  I am also prone to nausea.  I was a nauseated child. LOL! I think you’ll see a big difference in the injections. My doc told me that the body only absorbs about 17.5mg when taking pills, so if that’s the case then you’ll be taking an extra 7.5mg.  I do like the MTX.  I took Imuran before & compared to it, the nausea is nothing.  That stuff about killed me at one point!  Let us know how it goes, k?  You may even see a difference fairly soon as the MTX is already in your system. Hugs, Maggie

Response:

My sister has systemaic lupus.Due to meds shes gained about 150 lbs.Anyone experience this & found a way to lose it? — ************************************************************** Jake Jacobsen [ICQ-#1519089]-NetscapeIM-MSNMessenger-YahooMessenger[jakeofvt] Vermont,USA……Vietnam ‘66-’68 [6th Air Commando Sq-Pleiku,SVN] * Co-Founder of VVA,Chapter # 1 * Life Member;ACA…DAV…VVA * Helping America….one person at a time ~ Loyalty Above ALL……Except HONOR !! ~ **************************************************************

Response:

On Thu, 23 Oct 2003 20:47:50 GMT, jakeofvt <jakeo…@together.net> wrote: >My sister has systemaic lupus.Due to meds shes gained about 150 >lbs.Anyone experience this & found a way to lose it?

I assume she is on steroids. unfortunately, she’s fighting a very tough battle – the drugs make you crave foods, weaken muscle tissue and create fat deposits in certain areas.  The disease makes it hard to move around and get enough exercise sometimes. Not everyone responds this way to steroids but probably most do. there are some forms of exercise that are helpful without being too painful (for most of us) which include yoga and water aerobics.  Other than that, as long as she has to be on the meds, she will have to fight the craving as best she can.  I’ve been on drugs that induce such cravings (tricyclic anti-depressants used for sleep or pain reduction) and it is very tough thing to cope with. My best to you and to her.  I hope you get more concrete answers. Perhaps there is some advice on the Lupus Foundation’s web site? http://www.lupus.org

Response:

Jake, Welcome home!  Never too late to tell a Vietnam Vet that. I think that many of us have expeerienced the weight gain with the meds they give us to "help" with the SLE.  As Kcat said there really isn’t much that can be done other than try to control the cravings and do as much excercise as one can tolerate.  I have found water excercise classes the easiest on my body. Sherry "jakeofvt" <jakeo…@together.net> wrote in message

news:W7Xlb.3424$I04.1354@newsread4.news.pas.earthlink.net… – Hide quoted text — Show quoted text -> My sister has systemaic lupus.Due to meds shes gained about 150 > lbs.Anyone experience this & found a way to lose it? > — > ************************************************************** > Jake Jacobsen > [ICQ-#1519089]-NetscapeIM-MSNMessenger-YahooMessenger[jakeofvt] > Vermont,USA……Vietnam ‘66-’68 [6th Air Commando Sq-Pleiku,SVN] > * Co-Founder of VVA,Chapter # 1 > * Life Member;ACA…DAV…VVA > * Helping America….one person at a time > ~ Loyalty Above ALL……Except HONOR !! ~ > **************************************************************

Response:

Yeah, those steroids make you crave fatty foods and proteins.  It is like a prescription for weight gain:  eat fatty foods and then go lie on the bed! It is not her fault, I hope she knows this.  We live in such a cruel world. I have been on prednisone for over a year.  I gained 50, but I am extremely short.  But I stopped the gain there… and have actually lost 4 pounds while still on pred (kind of unheard of in my life).  Steroid play havoc with the emotions, too, so it can become a desperate thing to look in the mirror and see the facial chubbiness happening there. Be supportive in any way you can. Please remind her that it is just a phase; that we with lupus, are lucky in that we do have remissions and better periods in our lives.  I am waiting for my next "good time" Myself! Best regards Mary "herbwormwood" <herbwormw…@lycos.co.uk> wrote in message

news:0001HW.BBBEE5F40003FFBF26338F70@News.CIS.DFN.DE… – Hide quoted text — Show quoted text -> Hi, > There are certain foods that it is okay to eat  a lot of. > Most fruit and vegetables are fine and are low calorie. > Not very exciting I supppose but when she is hungry she may not mind. Also > avoid salt. > On Fri, 24 Oct 2003 4:43:34 +0100, Sherry wrote > (in message <Gd1mb.3545$yE1….@newssvr25.news.prodigy.com>): > > Jake, > > Welcome home!  Never too late to tell a Vietnam Vet that. > > I think that many of us have expeerienced the weight gain with the meds they > > give us to "help" with the SLE.  As Kcat said there really isn’t much that > > can be done other than try to control the cravings and do as much excercise > > as one can tolerate.  I have found water excercise classes the easiest on my > > body. > > Sherry > > "jakeofvt" <jakeo…@together.net> wrote in message > > news:W7Xlb.3424$I04.1354@newsread4.news.pas.earthlink.net… > >> My sister has systemaic lupus.Due to meds shes gained about 150 > >> lbs.Anyone experience this & found a way to lose it? > >> — > >> ************************************************************** > >> Jake Jacobsen > >> [ICQ-#1519089]-NetscapeIM-MSNMessenger-YahooMessenger[jakeofvt] > >> Vermont,USA……Vietnam ‘66-’68 [6th Air Commando Sq-Pleiku,SVN] > >> * Co-Founder of VVA,Chapter # 1 > >> * Life Member;ACA…DAV…VVA > >> * Helping America….one person at a time > >>> Loyalty Above ALL……Except HONOR !! ~ > >> ************************************************************** > — > for an alternative look at current events, go to > http://www.greenpeace.org.uk/

Response:

Thanks for the info all…..the "Welcome Home" was a nice touch…..thank you. Sherry wrote: > Jake, > Welcome home!  Never too late to tell a Vietnam Vet that. > Sherry

– ************************************************************** Jake Jacobsen [ICQ-#1519089]-NetscapeIM-MSNMessenger-YahooMessenger[jakeofvt] Vermont,USA……Vietnam ‘66-’68 [6th Air Commando Sq-Pleiku,SVN] * Co-Founder of VVA,Chapter # 1 * Life Member;ACA…DAV…VVA * Helping America….one person at a time ~ Loyalty Above ALL……Except HONOR !! ~ **************************************************************

Response:

Well, I made it down to see the Doc.  His chart said I had not been down since February!  I guess I lost some time somewhere… Long story short:  He wants me on less than the 15mg pred that I am now on. He drew every [pertinant] test in the book, and will have the results in about 10 days.  When he sees what my body fluids are up to, he said he will probably put me on Methotrexate three times a week.  Wowee!  I took it before at one time a week.  It was helpful to me, and I had no stomach upset.  I hope my stomach will cooperate this time around… Oh.  He also said that he will refer me to a doc down in San Bernardino.  I was so relieved about that.  My doc is the Reigning King of Rheumatology, a tall, thin, encyclopedia of a man.  He usually refers me to doctors he has trained himself, since he teaches as well as treats. That’s the dope on me.  My fantasy creatures now eagerly await my attentions.  We are all going to take a bit of a "siesta" together.  zzzzzzz Mair zzzz Dotes — stin…@earthlink.net http://radio.weblogs.com/0114986/

Response:

Your rheumy sounds very good Mair. This’ll give you time for the med change(s) and stabilize things before your anticipated move. So everyone in it’s time eh? Hugs J – Hide quoted text — Show quoted text -Mair wrote: > Well, I made it down to see the Doc.  His chart said I had not been down > since February!  I guess I lost some time somewhere… > Long story short:  He wants me on less than the 15mg pred that I am now on. > He drew every [pertinant] test in the book, and will have the results in > about 10 days.  When he sees what my body fluids are up to, he said he will > probably put me on Methotrexate three times a week.  Wowee!  I took it > before at one time a week.  It was helpful to me, and I had no stomach > upset.  I hope my stomach will cooperate this time around… > Oh.  He also said that he will refer me to a doc down in San Bernardino.  I > was so relieved about that.  My doc is the Reigning King of Rheumatology, a > tall, thin, encyclopedia of a man.  He usually refers me to doctors he has > trained himself, since he teaches as well as treats. > That’s the dope on me.  My fantasy creatures now eagerly await my > attentions.  We are all going to take a bit of a "siesta" together.  zzzzzzz > Mair zzzz Dotes > — > stin…@earthlink.net > http://radio.weblogs.com/0114986/

Response:

"Mair" <stin…@earthlink.net> skrev i meddelandet news:t7Hgb.1633$av5.71@newsread3.news.pas.earthlink.net… > Well, I made it down to see the Doc.  His chart said I had not been down > since February!  I guess I lost some time somewhere… > Long story short:  He wants me on less than the 15mg pred that I am now on. > He drew every [pertinant] test in the book, and will have the results in > about 10 days.  When he sees what my body fluids are up to, he said he will > probably put me on Methotrexate three times a week.  Wowee!  I took it > before at one time a week.  It was helpful to me, and I had no stomach > upset.  I hope my stomach will cooperate this time around…

[...] Mair, your dr is probably thinking about having you on a higher (as in the higher end for autoimmune diseases) dose, say 8-10 pills, and therefor splits it in three smaller doses. You’d then take one dose, for example, Monday morning, the other 12 hours later, Monday evening, and the last one 12 hours after that, Tuesday morning. Have never been on the split dose schedule myself, but I’ve heard some people tolerate Methotrexate better that way. Anyway, good luck! Nina

Response:

Question:

Hi,Im Jamie,                                                        I am 23 years old and Ive had SLE for five years.Ive been seeing the same rheumatologist since Ive been diagnosed and though I am his only young female patient with SLE I have been comfortable with his traditional methods, but recently Ive been having some problems with anemia and some other issues so I am looking for a second opinion from a rheumatologist that has more experiance with this disease in young women my age.I live in Temecula,CA and am willing to travel a few hours to see a good MD.Please give me your advice and personal experiances.    Thanks

Response:

Welcome Jamie! I’m too far away from you to give you any names, but you might consider checking out a University hospital.   I doubt if I’ll ever switch to a private practice after experiencing the University setting.  It’s just that I have to see a couple of other doctor’s periodically & it’s all right there. They can send my records in just moments to my doc & they know who my doc is.  It’s just really cool!   I’m not trying to get you to change or anything.  You should stick with what you know & if you have a good relationship with your rheumy then you’re in fine shape.  I just thought it would be a good place for a second opinion. Hope this helps.  Others may know of a good doc near you also, but with the weekend coming on, they may not be around to respond ’til Monday.     Please feel free to post anytime, k? Hugs, Maggie

Response:

Sorry, can’t help. I’m in NJ and lucked out and found a heck of  DR that does fine by me. I take allot of meds but it seems to work very well. I’m a male, age 47. He had a difficult time getting me where I’m at today. Again, sorry not much help. Jim.

Response:

Lisa Birkner wrote: > Sorry, can’t help. I’m in NJ and lucked out and found a heck of  DR that > does fine by me. I take allot of meds but it seems to work very well. > I’m a male, age 47. He had a difficult time getting me where I’m at > today. Again, sorry not much help. > Jim.

Hi Jim and welcome. J

Response:

Hi Jamie, Welcome to the group. I have a lot of blood problems because of my lupus. My suggestion is that you ask your rheumy to refer you to a hematologist. They are best suited to handle those sorts of things. Drop by anytime. BJ-Sk. Canada "Benjamin Pratt" <benjamin.pratt.getridoft…@verizon.net> wrote in message

news:Lng1b.23593$_P1.19522@nwrddc01.gnilink.net… – Hide quoted text — Show quoted text -> Hi,Im Jamie,                                                        I am 23 > years old and Ive had SLE for five years.Ive been seeing the same > rheumatologist since Ive been diagnosed and though I am his only young > female patient with SLE I have been comfortable with his traditional > methods, but recently Ive been having some problems with anemia and some > other issues so I am looking for a second opinion from a rheumatologist that > has more experiance with this disease in young women my age.I live in > Temecula,CA and am willing to travel a few hours to see a good MD.Please > give me your advice and personal experiances.    Thanks

Response:

Welcome to the group, Jamie. I think that Judith or Jackie will respond with the name of who they see. They are both in the Southern CA area and see the same Rheumy.  I am sure it will be several hours drive for you from your area. Once again Welcome to the group. Sherry "Benjamin Pratt" <benjamin.pratt.getridoft…@verizon.net> wrote in message

news:Lng1b.23593$_P1.19522@nwrddc01.gnilink.net… – Hide quoted text — Show quoted text -> Hi,Im Jamie,                                                        I am 23 > years old and Ive had SLE for five years.Ive been seeing the same > rheumatologist since Ive been diagnosed and though I am his only young > female patient with SLE I have been comfortable with his traditional > methods, but recently Ive been having some problems with anemia and some > other issues so I am looking for a second opinion from a rheumatologist that > has more experiance with this disease in young women my age.I live in > Temecula,CA and am willing to travel a few hours to see a good MD.Please > give me your advice and personal experiances.    Thanks

Response:

Hi Jim. Welcome to the group.  I don’t remember your posting before.  Please jump in frequently. Sherry "Lisa Birkner" <birk…@webtv.net> wrote in message

news:24044-3F45C0C7-2@storefull-2118.public.lawson.webtv.net… – Hide quoted text — Show quoted text -> Sorry, can’t help. I’m in NJ and lucked out and found a heck of  DR that > does fine by me. I take allot of meds but it seems to work very well. > I’m a male, age 47. He had a difficult time getting me where I’m at > today. Again, sorry not much help. > Jim.

Response:

  http://tinyurl.com/kvfq   The link above takes you to a list of doctors in your area…   Also this doctor was listed under Internal Medicine:   Lee Donald Woo   41963 Moreno Rd   Temecula, CA  92590   HTH, Shelagh > Hi,Im Jamie,                                                        I

am 23 > years old and Ive had SLE for five years.Ive been seeing the same > rheumatologist since Ive been diagnosed and though I am his only young > female patient with SLE I have been comfortable with his traditional > methods, but recently Ive been having some problems with anemia and some > other issues so I am looking for a second opinion from a

rheumatologist that – Hide quoted text — Show quoted text -> has more experiance with this disease in young women my age.I live in > Temecula,CA and am willing to travel a few hours to see a good MD.Please > give me your advice and personal experiances.    Thanks

Response:

On Fri, 22 Aug 2003 03:47:55 GMT, "Benjamin Pratt" <benjamin.pratt.getridoft…@verizon.net> wrote: >Hi,Im Jamie,                                                        I am 23 >years old and Ive had SLE for five years.Ive been seeing the same >rheumatologist since Ive been diagnosed and though I am his only young >female patient with SLE I have been comfortable with his traditional >methods, but recently Ive been having some problems with anemia and some

I don’t know what the other issues are but I have to agree with BJ that you should perhaps get a referral to a hematologist for the odd blood tests.

Response:

For rheumatologists, go to http://www.rheumatology.org/directory/geo.asp Click on "California", then on "Find a rheumatologist".  Select the locations near you, one by one. Bruce

Response:

Hi Sherry, And thank you. I was here sometime ago but between work and health problems with my wife I stopped. My wife’s problems came first. My Lupus was pretty much under control but when it hit…WOW. My wife is again having problems and is back in the hopital. Spent about 50% of her last four months there. Not helping with my Lupus since I was told to avoid stressful situations. Easier said then done. I’ll be checking in more often now. It seems my DR has me pretty much under control. Take care and thanks again, Jim

Response:

Hi J And thank you for the welcome.

Response:

Jim, Sorry to hear that your wife is having problems and that she is in the hospital. Stress is next to imposible to avoid when you have a family and they also have health issues.  Shoot just plain ole living at times can be stressfull! Glad to hear that your doc has you pretty much in control. Do stay in touch with the group! Hugs, Sherry "Lisa Birkner" <birk…@webtv.net> wrote in message

news:25059-3F47022D-203@storefull-2118.public.lawson.webtv.net… – Hide quoted text — Show quoted text -> Hi Sherry, > And thank you. I was here sometime ago but between work and health > problems with my wife I stopped. My wife’s problems came first. My Lupus > was pretty much under control but when it hit…WOW. > My wife is again having problems and is back in the hopital. Spent about > 50% of her last four months there. Not helping with my Lupus since I was > told to avoid stressful situations. Easier said then done. > I’ll be checking in more often now. It seems my DR has me pretty much > under control. > Take care and thanks again, > Jim

Response:

Hi Jim, Welcome to the group. I don’t recall seeing you post before, but I miss things sometimes. Would you like to tell us more about yourself? There are mostly women here but we do have some men. Always glad to see someone new. It is nice to get the male slant on things too. BJ-Sk. Canada "Lisa Birkner" <birk…@webtv.net> wrote in message

news:24044-3F45C0C7-2@storefull-2118.public.lawson.webtv.net… – Hide quoted text — Show quoted text -> Sorry, can’t help. I’m in NJ and lucked out and found a heck of  DR that > does fine by me. I take allot of meds but it seems to work very well. > I’m a male, age 47. He had a difficult time getting me where I’m at > today. Again, sorry not much help. > Jim.

Response:

There are some excellent rheumies down south.  I’m in Central California… 1 hr north of Magic Mtn. My friend goes to one in Santa Monica.  He actually called her and discussed her test results…. for 15 minutes…. can you believe it? He’s part of UCLA… at a satellite office. Sean Wollaston MD 1131 Wilshire Blvd Suite 200 Santa Monica Phone 310 458 2381 I was 19 when diagnosed… so I understand the anger and frustration. Pregnancy was my big trigger. Take care Nicole

Response:

Thank you for the responses. I think finding a hematologist would be a good idea. Jamie

Response:

Question:

Like I asked you, and I asked because I am truely interested, where precisely does it say this in the Bible? — Regards Gordie

Bearing in mind that it’s all fantasy literature, try Romans 3:23 (IIRC) :)

Response:

Like I asked you, and I asked because I am truely interested, where precisely does it say this in the Bible? — Regards Gordie Bearing in mind that it’s all fantasy literature, try Romans 3:23 (IIRC) :)

3:23 For all have sinned, and come short of the glory of God; Precisely it does NOT say And everyone sins (according to the bible) by just being alive.: everyone sins (according to the bible) by just being alive.: (according to the bible) by just being alive.: (according to the bible) —  by just being alive.: by just being alive.:

I didn’t think that was in there but I could have been wrong so I asked.  Thank you for trying to help. — Regards Gordie

Response:

– Hide quoted text — Show quoted text – And everyone sins (according to the bible) by just being alive.: : Really?  Where does it say this? Read your bible cover to cover,….. all have sinned the bible says.  The only way a human can get through even a month without "sinning" is to stay Also explain why WE should pay for the "sins" (a woman being tricked) of someone who lived thousands of years ago?  Does this violent god also punish the innocent children of murderers and thieves?  Should we now start to imprison all the kids and grandkids of criminals? And everyone sins (according to the bible) by just being alive.: everyone sins (according to the bible) by just being alive.: (according to the bible) by just being alive.: (according to the bible) —  by just being alive.:

Like I asked you, and I asked because I am truely interested, where precisely does it say this in the Bible? — Regards Gordie

Response:

– Hide quoted text — Show quoted text – : : From the messages at Medjegore: : : January 25, 1991 "Dear children! Today, like never before, I invite : you to prayer. Let your prayer be a prayer for peace. : : *** Satan is strong and desires to destroy not only human life, but : also nature and the planet on which you live. *** ## Where in the bible does Satan claim any such thing????  He/she/it didn’t cause any flood that killed thousands, nor create diseases, nor claim to find the aroma of burning slaughtered animals "pleasing."  Aside from tricking some ignorant, uneducated women in a garden a few thou years ago…. what did this Satan do? : Therefore, dear children, pray that through prayer you can protect : yourselves with God’s blessing of peace. God has sent me among you so : that I may help you. If you so wish, grasp for the rosary. Even the : rosary alone can work miracles in the world and in your lives. ## I must have missed all the scriptures mentioning rosary beads in the bible. I bless : you and I remain with you for as long as it is God’s will. Thank you : for not betraying my presence here and I thank you because your : response is serving the good and the peace." : I have separated a line which speaks to this subject. : — : Regards : Gordie

Forgive me for looking anywhere else but the Bible for any answers. Perhaps you can explain how the Bible, which was pre-dated by the Catholic Church by almost 360 years has managed to become the stream that rises higher than its source? The Bible is the product of the Catholic Church.  In the Reformation the Protestant church became the  product of the Bible.  The Reformers then modified the Bible by removing some of its books.  The Protestant Bible is less than 500 years old. Which Bible do you propose to use as a yardstick to messure the Catholic Church?  What is your scriptural basis for your decision? — Regards Gordie

Response:

: : From the messages at Medjegore: : : January 25, 1991 "Dear children! Today, like never before, I invite : you to prayer. Let your prayer be a prayer for peace. : : *** Satan is strong and desires to destroy not only human life, but : also nature and the planet on which you live. *** ## Where in the bible does Satan claim any such thing????  He/she/it didn’t cause any flood that killed thousands, nor create diseases, nor claim to find the aroma of burning slaughtered animals "pleasing."  Aside from tricking some ignorant, uneducated women in a garden a few thou years ago…. what did this Satan do? : Therefore, dear children, pray that through prayer you can protect : yourselves with God’s blessing of peace. God has sent me among you so : that I may help you. If you so wish, grasp for the rosary. Even the : rosary alone can work miracles in the world and in your lives. ## I must have missed all the scriptures mentioning rosary beads in the bible. I bless : you and I remain with you for as long as it is God’s will. Thank you : for not betraying my presence here and I thank you because your : response is serving the good and the peace." : I have separated a line which speaks to this subject. : — : Regards : Gordie — Fuzzy Won…… Just more loving kindness from God…  "Therefore fathers shall eat their sons in the midst of you and sons shall eat their fathers…I will send famine and wild beasts  against you and they shall rob you of your children; pestilence and  blood  shall pass through you; and I will bring a sword upon you. I,  the  Lord, have spoken."  Ezekiel 5:10, 5:17 – Hide quoted text — Show quoted text -< ~~~ < ~~~ < ~~~ < ~~~ < ~~~ < ~~~ < ~~~

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: : Don’t mind Prominate Bethelite AKA  = * | * = AKA : He quotes all kinds of things but never backs it up through scripture, and : when he does he omits words…. What a fool you are!!!!  Look at my headers. I am not PB.  LOL!!! — Fuzzy Won…… Just more loving kindness from God…  "Therefore fathers shall eat their sons in the midst of you and sons shall eat their fathers…I will send famine and wild beasts  against you and they shall rob you of your children; pestilence and  blood  shall pass through you; and I will bring a sword upon you. I,  the  Lord, have spoken."  Ezekiel 5:10, 5:17 – Hide quoted text — Show quoted text -< ~~~ < ~~~ < ~~~ < ~~~ < ~~~ < ~~~ < ~~~

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**  And everyone sins (according to the bible) by just being alive.

Really?  Where does it say this? — Regards Gordie

Response:

**  And everyone sins (according to the bible) by just being alive. Really?  Where does it say this? — Regards Gordie

Gordie, He quotes all kinds of things but never backs it up through scripture, and when he does he omits words…. Do a google search on him and his posts http://groups.google.com/groups?hl=en&lr=&ie=UTF-8&oe=UTF-8&q=Promine… you’ll see.

Response:

: : **  And everyone sins (according to the bible) by just being alive. : : Really?  Where does it say this? Read your bible cover to cover,….. all have sinned the bible says.  The only way a human can get through even a month without "sinning" is to stay Also explain why WE should pay for the "sins" (a woman being tricked) of someone who lived thousands of years ago?  Does this violent god also punish the innocent children of murderers and thieves?  Should we now start to imprison all the kids and grandkids of criminals? — Fuzzy Won…… Just more loving kindness from God…  "Therefore fathers shall eat their sons in the midst of you and sons shall eat their fathers…I will send famine and wild beasts  against you and they shall rob you of your children; pestilence and  blood  shall pass through you; and I will bring a sword upon you. I,  the  Lord, have spoken."  Ezekiel 5:10, 5:17 – Hide quoted text — Show quoted text -< ~~~ < ~~~ < ~~~ < ~~~ < ~~~ < ~~~ < ~~~

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– Hide quoted text — Show quoted text – No.  According to the bible ONLY GOD can create.  So we have this god to thank for Ebola, AIDS, cancer, parasites, stillbirths, scleroderma, lupus disease, diabetes, SARS, mad-cow prions and all the other things he/she/it saw as "good." Sounds like semantics to me.  According to what I read God created and then Satan brought sin into the world.  Do you think sin can also be visible (the environment comes to mind)?  My choice of words will never please those who delight in correcting others but I see that as a sort of re-creation only things are somewhat broken.  I do not think we see Gods creation at all but things have all been altered and that is what we get to see. If you see nature as beautiful then I suggest it was better before the fall.

From the messages at Medjegore: January 25, 1991 "Dear children! Today, like never before, I invite you to prayer. Let your prayer be a prayer for peace. *** Satan is strong and desires to destroy not only human life, but also nature and the planet on which you live. *** Therefore, dear children, pray that through prayer you can protect yourselves with God’s blessing of peace. God has sent me among you so that I may help you. If you so wish, grasp for the rosary. Even the rosary alone can work miracles in the world and in your lives. I bless you and I remain with you for as long as it is God’s will. Thank you for not betraying my presence here and I thank you because your response is serving the good and the peace." I have separated a line which speaks to this subject. — Regards Gordie

Response:

- Hide quoted text — Show quoted text – No.  According to the bible ONLY GOD can create.  So we have this god to thank for Ebola, AIDS, cancer, parasites, stillbirths, scleroderma, lupus disease, diabetes, SARS, mad-cow prions and all the other things he/she/it saw as "good." Sounds like semantics to me.  According to what I read God created and then Satan brought sin into the world.  Do you think sin can also be visible (the environment comes to mind)?  My choice of words will never please those who delight in correcting others but I see that as a sort of re-creation only things are somewhat broken.  I do not think we see Gods creation at all but things have all been altered and that is what we get to see. If you see nature as beautiful then I suggest it was better before the fall. — Regards Gordie As Monty Python put it: All things dull and ug-ly, All creatures, short and squat, All things rude and na-sty, The Lord God made the lot. Each little snake that poisons, Each little wasp that stings, He made their prudish venom, He made their horrid wings. All things sick and cancerous, All evil great and small, All things foul and dangerous, The Lord God made them all. Each nasty little hornet, Each beastly little squid, Who made the spiky urchin? Who made the sharks? He did! All things scant and ulcerous, All pox both great and small, Putrid, foul and gangrenous, The Lord God made them all. Amen.

Heeheeheehee! Here is one we learned in the sCA: A Grazing Mace A grazing mace, how swift the blow That felled a wretch like thee! Thy helm is flat – that once was round Done in by my mace and me! (and my additions) My mace hath taught my foes to fear My flail, my sword sharp honed! And on the field all round me clear My enemies lie prone! When we have fought ten thousand days My mace and I as one! The bounty pound for pound it pays Shall buy me at last a gun! Edged wea-pons fine in wars may be And maces better still. A loa-ded forty-four you see, Still makes an eas’ier kill! Swan

Response:

: Sounds like semantics to me.  According to what I read God created and : then Satan brought sin into the world. **  Sin?  ONLY god can create.  So if this "sin" of being beguiled by a talking snake was a sin then this god created it.

[snip] I understand that sin is the falling out of fellowship with God.  In this instance our forebears have decided to run their own lives their own way without God. And we are no different – it was also our call to have nothing to do with God.  We alone are responsible for such actions, not God. In the end sin takes a grip on our lives "Jesus replied, ‘I tell you the truth, everyone who sins is a slave to sin’" (John 8:34). Yet sin and death are inseparable "… for the wages of sin is death … " (Romans 6:23).  However God has provided a way out "… but the gift of God is eternal life in Christ Jesus our Lord."  (Romans 6:23).

Response:

: I understand that sin is the falling out of fellowship with God.  In this : instance our forebears have decided to run their own lives their own way : without God. ** That’s not what Genesis claimed. The women, ignorant, uneducated and with no past to go by for experience was TRICKED!  Nowhere did it say they decided to run their own lives.  And why should’t they anyway?  No one wants to be someone else’s serf or slave.  That’s not living, it’s existing. And we are no different – it was also our call to have nothing : to do with God.  We alone are responsible for such actions, not God. ** What actions?  We didn’t create disease, parasites and other horrors…… : : In the end sin takes a grip on our lives "Jesus replied, ‘I tell you the : truth, everyone who sins is a slave to sin’" (John 8:34). **  And everyone sins (according to the bible) by just being alive.  Should we all lock ourselves in a closet or cell, least we have an impure thought or idea? : : Yet sin and death are inseparable "… for the wages of sin is death … " ** How else could they explain death to their followers?  See above.  Should we all live in a bubble so as not to be tempted in any way?  Death would be preferable. : (Romans 6:23).  However God has provided a way out "… but the gift of God : is eternal life in Christ Jesus our Lord."  (Romans 6:23). — Fuzzy Won…… Just more loving kindness from God…  "Therefore fathers shall eat their sons in the midst of you and sons shall eat their fathers…I will send famine and wild beasts  against you and they shall rob you of your children; pestilence and  blood  shall pass through you; and I will bring a sword upon you. I,  the  Lord, have spoken."  Ezekiel 5:10, 5:17 – Hide quoted text — Show quoted text -< ~~~ < ~~~ < ~~~ < ~~~ < ~~~ < ~~~ < ~~~

Response:

: As Monty Python put it: : : All things dull and ug-ly, : All creatures, short and squat, : All things rude and na-sty, : The Lord God made the lot. =====etc. LOL!!!!  This is fantastic!  ROFLMAO!!!!   :D — Marlyman…..  I submit that we are both atheist, I simply believe in one fewer god than you. When you can understand why you dismiss all other gods, then you will understand why I dismiss yours.               -Stephen F. Frost-  -=*=-   -=*=-   -=*=-  -=*=-   -=*=-   -=*=-   -=*=-   -=*=-

Response:

: Sounds like semantics to me.  According to what I read God created and : then Satan brought sin into the world. **  Sin?  ONLY god can create.  So if this "sin" of being beguiled by a talking snake was a sin then this god created it.  How can someone sin who is beguiled?  Anyone can be fooled, misled and beguiled.   Plus Satan didn’t lie when she/he/it said she would NOT DIE that day.  She lived on, if you believe this ancient myth. Do you think sin can also be : visible (the environment comes to mind)?  My choice of words will : never please those who delight in correcting others but I see that as : a sort of re-creation only things are somewhat broken.  I do not think : we see Gods creation at all but things have all been altered and that : is what we get to see. ** That depends on where you live.  Some areas of the earth have never been touched in a negative way by man. : If you see nature as beautiful then I suggest it was better before the : fall. ** The fall?  Give up your old myths and join the 21 st Century : Regards : Gordie — Fuzzy Won…… Just more loving kindness from God…  "Therefore fathers shall eat their sons in the midst of you and sons shall eat their fathers…I will send famine and wild beasts  against you and they shall rob you of your children; pestilence and  blood  shall pass through you; and I will bring a sword upon you. I,  the  Lord, have spoken."  Ezekiel 5:10, 5:17 – Hide quoted text — Show quoted text -< ~~~ < ~~~ < ~~~ < ~~~ < ~~~ < ~~~ < ~~~

Response:

– Hide quoted text — Show quoted text – No.  According to the bible ONLY GOD can create.  So we have this god to thank for Ebola, AIDS, cancer, parasites, stillbirths, scleroderma, lupus disease, diabetes, SARS, mad-cow prions and all the other things he/she/it saw as "good." Sounds like semantics to me.  According to what I read God created and then Satan brought sin into the world.  Do you think sin can also be visible (the environment comes to mind)?  My choice of words will never please those who delight in correcting others but I see that as a sort of re-creation only things are somewhat broken.  I do not think we see Gods creation at all but things have all been altered and that is what we get to see. If you see nature as beautiful then I suggest it was better before the fall. — Regards Gordie

As Monty Python put it: All things dull and ug-ly, All creatures, short and squat, All things rude and na-sty, The Lord God made the lot. Each little snake that poisons, Each little wasp that stings, He made their prudish venom, He made their horrid wings. All things sick and cancerous, All evil great and small, All things foul and dangerous, The Lord God made them all. Each nasty little hornet, Each beastly little squid, Who made the spiky urchin? Who made the sharks? He did! All things scant and ulcerous, All pox both great and small, Putrid, foul and gangrenous, The Lord God made them all. Amen. — The last temptation is the highest treason: To do the right thing for the wrong reason.  –T..S. Eliot Walter

Response:

– Hide quoted text — Show quoted text – As Monty Python put it: All things dull and ug-ly, All creatures, short and squat, All things rude and na-sty, The Lord God made the lot. Each little snake that poisons, Each little wasp that stings, He made their prudish venom, He made their horrid wings. All things sick and cancerous, All evil great and small, All things foul and dangerous, The Lord God made them all. Each nasty little hornet, Each beastly little squid, Who made the spiky urchin? Who made the sharks? He did! All things scant and ulcerous, All pox both great and small, Putrid, foul and gangrenous, The Lord God made them all. Amen.

LOL! However, in God’s infinite wisdom, God gave us our human minds for overcoming most of the above (I just hope we don’t wipe out the shark and the squid, etc. though). Shalom, JCF

Response:

I guess fundamentalists don’t use spell-check anymore. – Hide quoted text — Show quoted text – what are apostols? Jabriol comments: "In 1938, the Archbishop of York in the NEW YORK TIMES, mentioned, that it was quite acceptable a christian to believe in evolution, Genesis 1 and 2 was not literal. Well once start calling event in the Bible untrue, you end up calling Jesus a liar, as well as his apostols, what did you expect? Queerdom is condemed in the Bible, In the New Testament, as with the Old one.  I guess anglicans don’t use the Bible anymore.

Response:

: : Jabriol comments: "In 1938, the Archbishop of York in the NEW YORK TIMES, mentioned, that it was quite acceptable a christian to believe in evolution, Genesis 1 and 2 was not literal. Well once start calling event in the Bible untrue, you end up calling Jesus a liar, ** Jesus didn’t  know any better.  He simply repeated what he was taught as a child.  That doesn’t make him a liar. as well as his apostols, what did you expect? Queerdom is condemed in the Bible, ** And yet your god created these "queers"….  just so he/she/it could condemn them? In the New Testament, as with the Old one.  I guess anglicans don’t use the Bible anymore. – Mark & Mike…  I submit that we are both atheist, I simply believe in one fewer god than you. When you can understand why you dismiss all other gods, then you will understand why I dismiss yours.               -Stephen F. Frost-  -=*=-   -=*=-   -=*=-  -=*=-   -=*=-   -=*=-   -=*=-   -=*=-

Response:

** And yet your god created these "queers"….  just so he/she/it could condemn them?

Would it be possible that God created and Satan re-created so that things are not exactly the way God intended them to be? — Regards Gordie

Response:

: : ** And yet your god created these "queers"….  just so he/she/it could : condemn them? : : Would it be possible that God created and Satan re-created so that : things are not exactly the way God intended them to be? No.  According to the bible ONLY GOD can create.  So we have this god to thank for Ebola, AIDS, cancer, parasites, stillbirths, scleroderma, lupus disease, diabetes, SARS, mad-cow prions and all the other things he/she/it saw as "good." Kammie….. Jabriol, a known sociopath, should be more careful in the way he presents himself.  Some people here might start pulling out all those Jehovah’s Witness quotes about "knowing the tree by it’s fruit."

Response:

No.  According to the bible ONLY GOD can create.  So we have this god to thank for Ebola, AIDS, cancer, parasites, stillbirths, scleroderma, lupus disease, diabetes, SARS, mad-cow prions and all the other things he/she/it saw as "good."

Sounds like semantics to me.  According to what I read God created and then Satan brought sin into the world.  Do you think sin can also be visible (the environment comes to mind)?  My choice of words will never please those who delight in correcting others but I see that as a sort of re-creation only things are somewhat broken.  I do not think we see Gods creation at all but things have all been altered and that is what we get to see. If you see nature as beautiful then I suggest it was better before the fall. — Regards Gordie

Response:

what are apostols?

– Hide quoted text — Show quoted text – http://www.news24.com/News24/World/News/0,,2-10-1462_1399925,00.html  Anglican church in turmoil. The fierce debate over the appointment of a

gay US bishop raged on within the Anglican church on Saturday, despite a call for reflection and prayer from the Archbishop of Canterbury, who has announced an emergency summit of senior clergy to head off a threatened split in the church. Announcing the mid-October summit on Friday, Archbishop of Canterbury Rowan Williams said "anxieties" triggered by Tuesday’s confirmation of openly gay cleric Gene Robinson as a bishop for the state of New Hampshire had to be confronted. The meeting was called after various conservative church leaders including Archbishop of Nigeria Peter Akinola, head of the world’s largest Anglican community, suggested Robinson’s appointment would split the church. Prior to Robinson’s appointment, a group of 24 conservative US bishops had

already threatened to leave the church if he was confirmed as bishop. Peter Jensen, archbishop of Sydney, Australia – also known for his conservatism – said on Saturday that the decision to call the summit "indicates the gravity of the crisis". Referring to the Anglican churches of Canada, the United States and Britain, traditionally more moderate than those in the developing world, Jensen told BBC Radio 4: "My guess is that even in these countries, a majority of Christians in the churches are opposed to this development." But he played down threats of a split in the international Anglican Communion – which has 70 million members in 164 countries, grouped in 38 church ‘provinces’. "This is an innovation which has caused disunity," Jensen said. "Split, however, is a bit too strong a word." Williams, who took office as Archbishop of Canterbury in February, is known for his liberal views and his support – in principle – for the appointment of gay clergy. He said he had raised no objection to the appointment last month of the openly gay Canon Jeffrey John as bishop for the British town of Reading. John later withdrew his candidacy to avert a schism between conservative and liberal factions within the Church of England. But Williams is taking extreme care not to compromise his ability to broker some kind of solution to the crisis threatening to engulf his church. "I hope that in our deliberations we will find that there are ways forward in this situation which can preserve our respect for one another and for the bonds that unite us," he said on Friday, in a thinly-veiled call for an end to public bickering on the issue. "I hope we can use the time between now and then to reflect, to pray, to consult and to take counsel." But many liberal church leaders who have for years been quietly pushing for a more tolerant attitude towards homosexual clergy, are unlikely to miss what they see as an opportunity for gay colleagues to have their say at last. "It will be very good to hear their voice in a debate that has been endangered and indeed hijacked by conservatives who, in fact, give evangelicals a bad name for narrowness and put many people off the church," said Colin Slee, the dean of London’s borough of Southwark. Jabriol comments: "In 1938, the Archbishop of York in the NEW YORK TIMES,

mentioned, that it was quite acceptable a christian to believe in evolution, Genesis 1 and 2 was not literal. Well once start calling event in the Bible untrue, you end up calling Jesus a liar, as well as his apostols, what did you expect? Queerdom is condemed in the Bible, In the New Testament, as with the Old one.  I guess anglicans don’t use the Bible anymore. – Hide quoted text — Show quoted text – McAfee VirusScan Online from the Netscape Network. Comprehensive protection for your entire computer. Get your free trial today! http://channels.netscape.com/ns/computing/mcafee/index.jsp?promo=393397 Get AOL Instant Messenger 5.1 free of charge.  Download Now! http://aim.aol.com/aimnew/Aim/register.adp?promo=380455

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Question:

Hi Guys.I have not been here in a while.As a matter of intrest for everyone my cousin has just been diagnosed with lupus any thoughts you may have on lupus being hereditary would be apreciated….Regards Peter.

Response:

On Tue, 12 Aug 2003 09:18:31 +0930, "Peter" <modelp…@iprimus.com.au> wrote: >Hi Guys.I have not been here in a while.As a matter of intrest for everyone >my cousin has just been diagnosed with lupus any thoughts you may have on >lupus being >hereditary would be apreciated….Regards Peter.

hi peter – i have to run out the door in mere moments so this will be very short, there is no evidence that lupus is directly inherited such as with known genetic diseases (HUntington’s comes to mind) but instead that there are probably a cluster of genes that impact "predisposition" to the disease or to autoimmune disease in general.  These illnesses do tend to run in families but rather than having members of the family share the disease of lupus – usually one has lupus, another sjogren’s and so on. for more info on this topic – check out our FAQ http://www.ghg.net/schwerpt/aslfaq30.htm or http://www.kitzbuhel.demon.co.uk/lupus/katfaq.htm (i hope I got that second one right…)  same document, slightly different colours :) i’ll try to remember to check bak in later and add what I can.  gotta take dog to the vet though and she’s got that "I ain’t goin’ knowwhere in this rain" look on her face. :) kcat

Response:

In article <m19njvcll5va4pr968tgd4e456edvin…@4ax.com>, kcat <kca…@newsguy.com> wrote [ >for more info on this topic - check out our FAQ >http://www.ghg.net/schwerpt/aslfaq30.htm >or >http://www.kitzbuhel.demon.co.uk/lupus/katfaq.htm >(i hope I got that second one right...)  same document, slightly >different colours :)

Yup, you did. I have played with the idea of splitting the document on my clone, so that each section is a separate page. I'd welcome any views on whether the present page takes an unreasonable time to download, or would be more user-friendly if split. (It's 128Kb of text at present.) And if people wanted, each section (= page) could be in a different shade... -- Andy [Chair, N E Lupus Group] See http://www.kitzbuhel.demon.co.uk/lupus for more!

Response:

Question:

Wow, what a terrible reaction to Bextra!  They put me on Bextra and I didn’t have any really major reactions like that, but it did cause me some gastrointestinal problems.  I complained about it, and doc said it would go away in a couple days, which it didn’t.  I ended up coming off it and the GI problems went away almost completely.  It really didn’t seem to do much for my inflammation and certainly not for the pain either, so it didn’t seem worthwhile to me to continue taking it. I have 4 children between the ages of 3 and 9.  It sounds to me like you are taking a good approach to all that is going on in your life.  It’s strange how children help us do that.  At the same time, I would encourage you not to "stuff" your feelings about everything to the point that you explode or make yourself ill.  It was just a couple days ago that I finally let loose of some of the anger and frustration I was feeling (late at night when my hubby looked at me and said, "Ya know, people cry sometimes and that’s okay!") and it has been better for my kids and for me.  I’m still exhausted, still in pain, and still irritated at the situation, but I’m not on the verge of a nervous breakdown!  *laugh* My thoughts are with you. Larina "Joanne" <jcs3…@hotmail.com> wrote in message

news:7560932f.0306250340.43a31591@posting.google.com… > JD…@webtv.net (Marg Watson) wrote in message

<news:321-3EF90F23-527@storefull-2156.public.lawson.webtv.net>… – Hide quoted text — Show quoted text -> > Hi Joanne! > > I’m sorry you’ve had no luck with all the pain meds.  I hope they can > > figure somthing out that works for you. > > The Ultram has been my only relief & I also take Daypro.  I tried Vioxx > > & about ended up in the hospital! > > What kind of side effects did the Bextra give you.  Larina, who just > > introduced herself to the group, is on the Bextra or maybe WAS on the > > Bextra (Still waiting for her reply on that) & she’s having some chest > > pains.  Would you let her know, if that was one of your symptoms/side > > effects? > > Well, yours & Nicole’s story will be one for the Grandkids!  You know > > it’s meant to be when something happens like that. : ) > > Glad you both are here!  And I wish you pain-free days beginning > > yesterday. <smile> > > Hug’s 4 U! > > Maggie > Good Morning Maggie!!! > To answear your question about Bextra, I couldn’t breath within 40 > minutes of taking it, my throat closed up and I was rushed to ER, > where I was put on Oxygen-very scary !! Even through this my "EX" > Rhuemy stated maybe we should try Bextra one more time!! Yeah Right!!! > Needless to say that was the last time I saw him, I know have the most > compasionate and wonderful Women Rhuemy, and I truly feel blessed to > have her!! She always calls me back and she has a 3 year old and is > pregnant, so she understands the pressure of being a Mom as well. She > also is my childrens Pedi’s wife!! We like to keep everything in the > family :) ! I’ve never heard of Daypro, is it a NSAID? I try so hard to > stay positive through out this, put there ar times when I get scared > of where I’ll be at in 10 years. All I know is I HAVE to go on > everyday for my beautiful children and keep negative thoughts at bay. > Gentle Hugs! > Joanne

Response:

"J Rogow" <JRo…@SpammenotNewsguy.com> wrote in message <news:bdcjdb02n1v@enews1.newsguy.com>… > It has been wonderful for me.  Much less pain, more flexibility. > "Stephanie Townsend" <ler…@nospam.hotmail.com> wrote in message > news:bdce8b$79t$1@sun-news.laserlink.net… > > Hi Joanne – > > Quick question – have you had any luck with the mobic? My doc just > > perscribed me that and I was wondering how effective it is for others. > > Thanks! > > Steph

Hi Steph! I’ve been on Mobic for only 1 1/2 weeks, so far a little improvment,& no nasty side effects.But I’m also on Pred again so it could mask the Mobic right now. I’m keeping my fingers crossed (Oh if I could really do that!!!)and hoping for the best!! Good luck to you with it,let me know how you feel! Gentle hugs- Joanne in RI – Hide quoted text — Show quoted text -> > "Joanne" <jcs3…@hotmail.com> wrote in message > > news:7560932f.0306240304.daab52@posting.google.com… > > > JD…@webtv.net (Marg Watson) wrote in message >  <news:6686-3EF7C410-538@storefull-2151.public.lawson.webtv.net>… > > > > HI Joanne! > > > > Welcome to the group! > > > > I’m soon to be 33 & have been diagnosed with a Lupus-like disease. > > > > Although I don’t have children, I have my doggy’s & I think I can >  relate > > > > just a TEENY bit–trust me on this, k? : ) > > > > It must be so hard at times though.  Are you trying different > > > > medications for the pain? > > > > I hope you have many pain-free days ahead, Joanne.  I’ll tell you >  this: > > > > Pain can be eased by easing your stress & stress can eased when you >  vent > > > > & venting is done right here!  You feel better already, don’t ya? : ) > > > > Maggie > > > Hi Maggie! > > > Thank you for the waem welcome!! I’ve have treid almost everything!! > > > The following have little or no > > > effect:Viox,Celebrex,Naprosyn,Bextra(horrible reaction to that > > > one!)Ultram. Now I’m starting a "new"hormone DHEA and trying Mobic, > > > along with my Pred,Plaq,Elavil,Wellbutrin,etc,etc…… > > > I do take an occasional Vicodin,but when you have 2 young ones, you > > > really need to keep your wits about you!!!And to answear your other > > > question about Nicole and I, I came upon her website and read her > > > history of her Company and it was like something told me to contact > > > her, so I wrote her a note telling her she was an inspiration, which > > > she is, and we found out we are the same age birthdays are about 1 > > > week apart,and we both have Lupus & Fibro do it was really neat! She > > > told me about this message board and the ret is history!!!! > > > So again Maggie, thank you for the warm welcome and I look forward to > > > getting to know all of you!! > > > Joanne in RI

Response:

Hi J! Did you have to stop the Mobic or did your body finally go with it?   Stephanie is wondering how well the Mobic works & I thought of your situation.   Huggy’s, Maggie

Response:

Marg Watson wrote: > Did you have to stop the Mobic or did your body finally go with it? > Stephanie is wondering how well the Mobic works & I thought of your > situation.

oh oh !  We have someone here with a very good memory <g> did ya notice how quiet I was about the query about Mobic? I took it like my doc said 15 mg daily for 2 weeks and a bit beyond. It was upsetting my gastro and not doing much for my pain, so I quit it. In fact, the last few days I was in such pain I started taking 1/4 percocets, then the weather broke to warm and some of the pain was more bearable, so I’m continuing with the 1/4 percocet and resting in between jobs that make my pains worse. However, when my hands or other parts get severely inflamed, I’ve reserved the right to go back on it, as required. That’s my story and I’m sticking to it LOL Thanks for remembering me, Maggie Huggers back to you, luv J

Response:

It has been wonderful for me.  Much less pain, more flexibility. "Stephanie Townsend" <ler…@nospam.hotmail.com> wrote in message

news:bdce8b$79t$1@sun-news.laserlink.net… – Hide quoted text — Show quoted text -> Hi Joanne – > Quick question – have you had any luck with the mobic? My doc just > perscribed me that and I was wondering how effective it is for others. > Thanks! > Steph > "Joanne" <jcs3…@hotmail.com> wrote in message > news:7560932f.0306240304.daab52@posting.google.com… > > JD…@webtv.net (Marg Watson) wrote in message > <news:6686-3EF7C410-538@storefull-2151.public.lawson.webtv.net>… > > > HI Joanne! > > > Welcome to the group! > > > I’m soon to be 33 & have been diagnosed with a Lupus-like disease. > > > Although I don’t have children, I have my doggy’s & I think I can relate > > > just a TEENY bit–trust me on this, k? : ) > > > It must be so hard at times though.  Are you trying different > > > medications for the pain? > > > I hope you have many pain-free days ahead, Joanne.  I’ll tell you this: > > > Pain can be eased by easing your stress & stress can eased when you vent > > > & venting is done right here!  You feel better already, don’t ya? : ) > > > Maggie > > Hi Maggie! > > Thank you for the waem welcome!! I’ve have treid almost everything!! > > The following have little or no > > effect:Viox,Celebrex,Naprosyn,Bextra(horrible reaction to that > > one!)Ultram. Now I’m starting a "new"hormone DHEA and trying Mobic, > > along with my Pred,Plaq,Elavil,Wellbutrin,etc,etc…… > > I do take an occasional Vicodin,but when you have 2 young ones, you > > really need to keep your wits about you!!!And to answear your other > > question about Nicole and I, I came upon her website and read her > > history of her Company and it was like something told me to contact > > her, so I wrote her a note telling her she was an inspiration, which > > she is, and we found out we are the same age birthdays are about 1 > > week apart,and we both have Lupus & Fibro do it was really neat! She > > told me about this message board and the ret is history!!!! > > So again Maggie, thank you for the warm welcome and I look forward to > > getting to know all of you!! > > Joanne in RI

Response:

Hello to all!  Just wanted to introduce myself, kind of new at all of this so bear with me!! My name is Joanne,I’m 34 and have Lupus and Fibro DX’d last June, but knew for 4 years something was wrong!!. I was directed to you all by another member, and thought it might be nice to talk to others who understand this! I have 2 little ones, 3 & 4, and I’m pretty much in constant pain.  Boy reading back I’ll be surprised if anyone posts back!! Don’t I sound like a ball of fire!! Anyway, thats all for now. I hope to "meet" you all soon and share in this journey!!!  Hugs to all!!! Joanne

Response:

Joanne wrote: > Hello to all!  Just wanted to introduce myself, kind of new at all of > this so bear with me!! My name is Joanne,I’m 34 and have Lupus and > Fibro DX’d last June, but knew for 4 years something was wrong!!. I > was directed to you all by another member, and thought it might be > nice to talk to others who understand this! I have 2 little ones, 3 & > 4, and I’m pretty much in constant pain.  Boy reading back I’ll be > surprised if anyone posts back!! Don’t I sound like a ball of fire!! > Anyway, thats all for now. I hope to "meet" you all soon and share in > this journey!!!  Hugs to all!!! Joanne

Welcome Joanne!  This is a great bunch of people, and I know you will find comfort and tons of info here.  It’s usually a bit slow on the weekends, so don’t get discouraged if you don’t get replies right away.   Hang tight, and I know the welcoming commmitee will be around shortly.  :) -Sharon

Response:

Hi Joanne! That’s definitely a scary reaction!  I’m sure glad you don’t see THAT rheumy anymore.  Seems you have enough to deal with now.  I’d have stuffed a Bextra in HIS mouth, I think! I have a lady & man rheumy.  I go to a University hospital.  I adore them both, but the mister doc seems to listen to my side effect concerns better.  While the missus just writes prescriptions FOR said side effects.  I still love ‘em with their faults though. : ) Yes, Daypro is an NSAID.  I’ve tried others during flares as well as one decent remission & nothing else works for me.  You may be senstive to Ibuprofen & like meds.  I am, but for some reason the Daypro doesn’t hurt me even though it’s an Ibuprofen-type pill.   The vioxx was awesome at first!  I had never had a med that worked so fast, but within 5 days or so, I was nearly unable to walk & had to reach for the prednisone. I get those feelings too.  I think we all do.  We think: "Geez, if I feel like this now, what am I gonna feel like in a year or even 10!?"  I try to keep in mind that they could come up with a cure soon.  Course, then I’m stressed cause of the possible COST of the cure. : )   Then there’s remission.  Oh, and being hit by a falling airplane tire–at least I’m still alive & have the pain to prove it. : ) On the serious side though, those feelings are normal & they have often made me cry into my pillow.   I think your being here on the group was the best thing you could’ve done for those feelings.  You’ll see some who have had this disease for decades, some will go into remission & plenty more will be having the same feelings as yourself.  And the fact that they’re living with the disease makes it so much easier to be understood.  Seems like all I ever get from other "healthy" people in my life is a head nod–I can actually hear a rattle if I have my hearing aid in. Just keep looking up, sweetie!   Hugs 4 U, Maggie

Response:

Hi Joanne – Quick question – have you had any luck with the mobic? My doc just perscribed me that and I was wondering how effective it is for others. Thanks! Steph "Joanne" <jcs3…@hotmail.com> wrote in message

news:7560932f.0306240304.daab52@posting.google.com… > JD…@webtv.net (Marg Watson) wrote in message

<news:6686-3EF7C410-538@storefull-2151.public.lawson.webtv.net>… – Hide quoted text — Show quoted text -> > HI Joanne! > > Welcome to the group! > > I’m soon to be 33 & have been diagnosed with a Lupus-like disease. > > Although I don’t have children, I have my doggy’s & I think I can relate > > just a TEENY bit–trust me on this, k? : ) > > It must be so hard at times though.  Are you trying different > > medications for the pain? > > I hope you have many pain-free days ahead, Joanne.  I’ll tell you this: > > Pain can be eased by easing your stress & stress can eased when you vent > > & venting is done right here!  You feel better already, don’t ya? : ) > > Maggie > Hi Maggie! > Thank you for the waem welcome!! I’ve have treid almost everything!! > The following have little or no > effect:Viox,Celebrex,Naprosyn,Bextra(horrible reaction to that > one!)Ultram. Now I’m starting a "new"hormone DHEA and trying Mobic, > along with my Pred,Plaq,Elavil,Wellbutrin,etc,etc…… > I do take an occasional Vicodin,but when you have 2 young ones, you > really need to keep your wits about you!!!And to answear your other > question about Nicole and I, I came upon her website and read her > history of her Company and it was like something told me to contact > her, so I wrote her a note telling her she was an inspiration, which > she is, and we found out we are the same age birthdays are about 1 > week apart,and we both have Lupus & Fibro do it was really neat! She > told me about this message board and the ret is history!!!! > So again Maggie, thank you for the warm welcome and I look forward to > getting to know all of you!! > Joanne in RI

Response:

- Hide quoted text — Show quoted text -JD…@webtv.net (Marg Watson) wrote in message <news:321-3EF90F23-527@storefull-2156.public.lawson.webtv.net>… > Hi Joanne! > I’m sorry you’ve had no luck with all the pain meds.  I hope they can > figure somthing out that works for you. > The Ultram has been my only relief & I also take Daypro.  I tried Vioxx > & about ended up in the hospital!   > What kind of side effects did the Bextra give you.  Larina, who just > introduced herself to the group, is on the Bextra or maybe WAS on the > Bextra (Still waiting for her reply on that) & she’s having some chest > pains.  Would you let her know, if that was one of your symptoms/side > effects? > Well, yours & Nicole’s story will be one for the Grandkids!  You know > it’s meant to be when something happens like that. : ) > Glad you both are here!  And I wish you pain-free days beginning > yesterday. <smile> > Hug’s 4 U! > Maggie

Good Morning Maggie!!! To answear your question about Bextra, I couldn’t breath within 40 minutes of taking it, my throat closed up and I was rushed to ER, where I was put on Oxygen-very scary !! Even through this my "EX" Rhuemy stated maybe we should try Bextra one more time!! Yeah Right!!! Needless to say that was the last time I saw him, I know have the most compasionate and wonderful Women Rhuemy, and I truly feel blessed to have her!! She always calls me back and she has a 3 year old and is pregnant, so she understands the pressure of being a Mom as well. She also is my childrens Pedi’s wife!! We like to keep everything in the family :) ! I’ve never heard of Daypro, is it a NSAID? I try so hard to stay positive through out this, put there ar times when I get scared of where I’ll be at in 10 years. All I know is I HAVE to go on everyday for my beautiful children and keep negative thoughts at bay. Gentle Hugs!   Joanne

Response:

Hi Joanne! I’m sorry you’ve had no luck with all the pain meds.  I hope they can figure somthing out that works for you. The Ultram has been my only relief & I also take Daypro.  I tried Vioxx & about ended up in the hospital!   What kind of side effects did the Bextra give you.  Larina, who just introduced herself to the group, is on the Bextra or maybe WAS on the Bextra (Still waiting for her reply on that) & she’s having some chest pains.  Would you let her know, if that was one of your symptoms/side effects? Well, yours & Nicole’s story will be one for the Grandkids!  You know it’s meant to be when something happens like that. : ) Glad you both are here!  And I wish you pain-free days beginning yesterday. <smile> Hug’s 4 U! Maggie

Response:

- Hide quoted text — Show quoted text -JD…@webtv.net (Marg Watson) wrote in message <news:6686-3EF7C410-538@storefull-2151.public.lawson.webtv.net>… > HI Joanne! > Welcome to the group! > I’m soon to be 33 & have been diagnosed with a Lupus-like disease. > Although I don’t have children, I have my doggy’s & I think I can relate > just a TEENY bit–trust me on this, k? : ) > It must be so hard at times though.  Are you trying different > medications for the pain?   > I hope you have many pain-free days ahead, Joanne.  I’ll tell you this: > Pain can be eased by easing your stress & stress can eased when you vent > & venting is done right here!  You feel better already, don’t ya? : ) > Maggie

Hi Maggie! Thank you for the waem welcome!! I’ve have treid almost everything!! The following have little or no effect:Viox,Celebrex,Naprosyn,Bextra(horrible reaction to that one!)Ultram. Now I’m starting a "new"hormone DHEA and trying Mobic, along with my Pred,Plaq,Elavil,Wellbutrin,etc,etc…… I do take an occasional Vicodin,but when you have 2 young ones, you really need to keep your wits about you!!!And to answear your other question about Nicole and I, I came upon her website and read her history of her Company and it was like something told me to contact her, so I wrote her a note telling her she was an inspiration, which she is, and we found out we are the same age birthdays are about 1 week apart,and we both have Lupus & Fibro do it was really neat! She told me about this message board and the ret is history!!!! So again Maggie, thank you for the warm welcome and I look forward to getting to know all of you!! Joanne in RI

Response:

HI Joanne! Welcome to the group! I’m soon to be 33 & have been diagnosed with a Lupus-like disease. Although I don’t have children, I have my doggy’s & I think I can relate just a TEENY bit–trust me on this, k? : ) It must be so hard at times though.  Are you trying different medications for the pain?   I hope you have many pain-free days ahead, Joanne.  I’ll tell you this: Pain can be eased by easing your stress & stress can eased when you vent & venting is done right here!  You feel better already, don’t ya? : ) Maggie

Response:

Welcome Joanne! It is great to have you here. Please don’t hesitiate to post asking for support, answers to questions, etc. This is a great group! I’m so sorry to hear about all the pain you are in, I know it is exhausting (and I don’t have kids to chase around!). We’re here as a sounding board if you need it :-) Steph "Joanne" <jcs3…@hotmail.com> wrote in message

news:7560932f.0306221702.6e4f77ab@posting.google.com… – Hide quoted text — Show quoted text -> Hello to all!  Just wanted to introduce myself, kind of new at all of > this so bear with me!! My name is Joanne,I’m 34 and have Lupus and > Fibro DX’d last June, but knew for 4 years something was wrong!!. I > was directed to you all by another member, and thought it might be > nice to talk to others who understand this! I have 2 little ones, 3 & > 4, and I’m pretty much in constant pain.  Boy reading back I’ll be > surprised if anyone posts back!! Don’t I sound like a ball of fire!! > Anyway, thats all for now. I hope to "meet" you all soon and share in > this journey!!!  Hugs to all!!! Joanne

Response:

Joanne wrote: > Hello to all!  Just wanted to introduce myself, kind of new at all of > this so bear with me!! My name is Joanne,I’m 34 and have Lupus and > Fibro DX’d last June, but knew for 4 years something was wrong!!. I > was directed to you all by another member, and thought it might be > nice to talk to others who understand this! I have 2 little ones, 3 & > 4, and I’m pretty much in constant pain.  Boy reading back I’ll be > surprised if anyone posts back!! Don’t I sound like a ball of fire!! > Anyway, thats all for now. I hope to "meet" you all soon and share in > this journey!!!  Hugs to all!!! Joanne

Hi Joanne and welcome. <http://groups.google.com/groups?hl=en&lr=&ie=UTF-8&oe=UTF-8&selm=3EC4…> Post lots so we can get to know you and you us. Hugs J

Response:

"Joanne" <jcs3…@hotmail.com> wrote in message

news:7560932f.0306221702.6e4f77ab@posting.google.com… > Hello to all!  Just wanted to introduce myself, kind of new at all of > this so bear with me!! My name is Joanne,I’m 34 and have Lupus and > Fibro DX’d last June, but knew for 4 years something was wrong!!. I > was directed to you all by another member, and thought it might be > nice to talk to others who understand this! I have 2 little ones, 3 & > 4, and I’m pretty much in constant pain.  Boy reading back I’ll be > surprised if anyone posts back!! Don’t I sound like a ball of fire!! > Anyway, thats all for now. I hope to "meet" you all soon and share in > this journey!!!  Hugs to all!!! Joanne

Hi Joanne. Welcome to the group……….sorry to hear it took 4 years to get a definitive answer to what is ailing you. Seems to be the running theme among folks here that they knew something was off-kilter for years before receiving a definitive diagnosis. I know that in my cousin’s experience, she was even accused of being a hypochondriac drama queen by one doctor!!  Sure would have like to see the look on that doc’s face when Barney was in the hospital with dx of lupus and suffering recurrent abscesses of the bowel. Small ones in the home make your position that much more challenging and frustrating.  Please don’t hesitate to post even if it just to say that the pain is so bad, and the kids are being so "wild" that you think you will lose your mind.  We all know how terrible it is to feel so bad that it seems almost impossible to tolerate even the smallest drive-mother-crazy behavior. Glad to see you found this wonderful group of folks, and look forward to seeing more posts from you. Marie

Response:

Welcome!  Why wouldn’t we write back?!? I’m Nicole, 27, mom to Adam7 and Madi 6.  Wife to John. I was dx’d when I was pregnant w/Madi. It’s been hard.  You’ll make! Glad to meet you Nicole "Joanne" <jcs3…@hotmail.com> wrote in message

news:7560932f.0306221702.6e4f77ab@posting.google.com… – Hide quoted text — Show quoted text -> Hello to all!  Just wanted to introduce myself, kind of new at all of > this so bear with me!! My name is Joanne,I’m 34 and have Lupus and > Fibro DX’d last June, but knew for 4 years something was wrong!!. I > was directed to you all by another member, and thought it might be > nice to talk to others who understand this! I have 2 little ones, 3 & > 4, and I’m pretty much in constant pain.  Boy reading back I’ll be > surprised if anyone posts back!! Don’t I sound like a ball of fire!! > Anyway, thats all for now. I hope to "meet" you all soon and share in > this journey!!!  Hugs to all!!! Joanne

Response:

Hello Joanne, Well, you’ve come to the right place. This is a very warm and friendly newsgroup. The word "support" is taken literally and seriously. Those little ones probably keep your hands full. :) (a mother of twins talking to you–they’re 28 now but those early years!) Nell Write a wise saying and your name will live forever.  Anonymous

Response:

Hi Joanne, Welcome to you. I am glad that you found us. It sounds like you have your hands full with those two little people. There will be more folks around here after the weekend. Talk to us anytime. BJ-Sk. Canada "Joanne" <jcs3…@hotmail.com> wrote in message

news:7560932f.0306221702.6e4f77ab@posting.google.com… – Hide quoted text — Show quoted text -> Hello to all!  Just wanted to introduce myself, kind of new at all of > this so bear with me!! My name is Joanne,I’m 34 and have Lupus and > Fibro DX’d last June, but knew for 4 years something was wrong!!. I > was directed to you all by another member, and thought it might be > nice to talk to others who understand this! I have 2 little ones, 3 & > 4, and I’m pretty much in constant pain.  Boy reading back I’ll be > surprised if anyone posts back!! Don’t I sound like a ball of fire!! > Anyway, thats all for now. I hope to "meet" you all soon and share in > this journey!!!  Hugs to all!!! Joanne

Response:

Question:

"WSM311" <wsm…@aol.comnolard> wrote in message

news:20030617213634.09271.00001123@mb-m29.aol.com… – Hide quoted text — Show quoted text -> I used to be on several lupus support groups. Perhaps someone here can help me > find them again. My favorite had a guy from Israel. I think he was a doc, and > his wife died of lupus. Anyone know what I’m talking about? > I am horrible at newsgroups….I forget to check back and read messages. I’d > like to get in a good email group. Any suggestions welcome. Thanks ;-) > At first I was diagnosed with lupus, then mixed connective tissue disease, now > I also have myasthenia gravis. Anybody else with lupus also have MG? I’ve met a > few on the MG list. > Wendy > Peace and Carrots Farm > Vermont > http://www.homestead.com/peaceandcarrots/ > http://www.heathershikinghiatus.com/

HI WENDY!! It’s ME……..Marie from ASD! I started hanging around here when my cousin was dx’d with Lupus a few months ago.  I knew what benefit I had received at the diabetes groups with/for Mom. This is a great group of folks who let me hang around even though I post off topic Cheesy Good Things (CGT) or farm stories a lot of the time. The atmosphere here is a bit different from ASD and MHD……..not so technical, and very much like an email group. Scroll through the subject lines for the past on any given day, and you will see that sometimes we post here just because we have a headache, and have to tell someone who cares or we will make a serious attempt to unscrew our skulls from our necks and perform brain surgery.  <Big Stupid Grin> Each of us have our own dragons to fight, and there always seems to be a dragon slayer available with kind words or wisdom gained from experience. Hang around as much as you like.  Lurk, post, whatever……….I am just tickled to see you are here, and making progress finding all the pieces to your puzzle.  I know the past year has been a roller-coaster for you on so many different levels. Feel free to email me privately anytime. Marie, Caretaker Mom T2 Dx 3/2002

Response:

In article <20030617213634.09271.00001…@mb-m29.aol.com>, WSM311 <wsm…@aol.comnolard> wrote >I used to be on several lupus support groups. Perhaps someone here can help me >find them again. My favorite had a guy from Israel. I think he was a doc, and >his wife died of lupus. Anyone know what I’m talking about?

If I’m correct, he’s called B-something (not Bruce) and occasionally posted here, usually with technical information. If someone else can remember his name correctly, Google-Groups would tell you which groups he frequents. — Andy [Chair, N E Lupus Group] See http://www.kitzbuhel.demon.co.uk/lupus for more!

Response:

On 18 Jun 2003 01:36:34 GMT, wsm…@aol.comnolard (WSM311) wrote: >I used to be on several lupus support groups. Perhaps someone here can help me >find them again. My favorite had a guy from Israel. I think he was a doc, and >his wife died of lupus. Anyone know what I’m talking about?

Boaz R.   Not a doctor but a PhD. researcher with an incredible amoung of knowledge. Yes, his lovely wife, Mira, did die from complications of SLE.  Her memorial pages, http://www.zeta.org.au/~sioux/mira/  are still available as well. You were likely on Hamline’s Lupus L.  however, this forum has been discontinued because the forum owner had to move on to other responsibilities.  In addition, it wasn’t getting the same level of activity as it did in years past. You can still find Boaz and friends on ACOR.  www.acor.com/lupus/ at least last I heard this group was still active.  Set-up is very similar to how Hamline was set up.   another member of the Hamline list set up the following.  I have not visited so do not know what it is like. http://groups.msn.com/lupusfamilies/ Finally – the posts announcing the end of the group as well as discussion on "where to go now" are still archived on the hamline pages. For these go to http://www.hamline.edu/lupus/ click on "mailing lists" then click on "LUPUS-L".   Hope this has helped. kcat posted and emailed.

Response:

I used to be on several lupus support groups. Perhaps someone here can help me find them again. My favorite had a guy from Israel. I think he was a doc, and his wife died of lupus. Anyone know what I’m talking about? I am horrible at newsgroups….I forget to check back and read messages. I’d like to get in a good email group. Any suggestions welcome. Thanks ;-) At first I was diagnosed with lupus, then mixed connective tissue disease, now I also have myasthenia gravis. Anybody else with lupus also have MG? I’ve met a few on the MG list. Wendy   Peace and Carrots Farm Vermont   http://www.homestead.com/peaceandcarrots/ http://www.heathershikinghiatus.com/

Response:

Question:

Hi Peter, I always get severe muscle spasms when I am in a bad flare. Muscle twitching is a problem at other times. They get bad when I am due for my B12 injection. I have pernicious anemia as well. Have you ever been checked for that? It can cause all sorts of problems. BJ-Sk. Canada "Peter" <chy…@iprimus.com.au> wrote in message

news:3e5dc294_1@news.iprimus.com.au… – Hide quoted text — Show quoted text -> Hi Group.Has anyone had muscle spasams as a symptom of Lupus….regards > Peter.

Response:

I’m currently having shooting pains in my right wrist, incredibly painful – I suspect it’s a Lupus thing, but don’t know for sure. "BJ" <B…@sk.nojunk.ca> wrote in message

news:v5smd7o07mrq01@corp.supernews.com… – Hide quoted text — Show quoted text -> Hi Peter, > I always get severe muscle spasms when I am in a bad flare. Muscle twitching > is a problem at other times. They get bad when I am due for my B12 > injection. I have pernicious anemia as well. Have you ever been checked for > that? It can cause all sorts of problems. > BJ-Sk. Canada > "Peter" <chy…@iprimus.com.au> wrote in message > news:3e5dc294_1@news.iprimus.com.au… > > Hi Group.Has anyone had muscle spasams as a symptom of Lupus….regards > > Peter.

Response:

In article <b3m3f601…@enews3.newsguy.com>, J Rogow <JRo…@SpammenotNewsguy.com> wrote >I’m currently having shooting pains in my right wrist, incredibly >painful – I suspect it’s a Lupus thing, but don’t know for sure.

RSI? Been typing a lot in an odd posture recently? — Andy [Chair, N E Lupus Group] See http://www.kitzbuhel.demon.co.uk/lupus for more!

Response:

Andy <a…@kitzbuhel.demon.co.uk> wrote in message <news:cQF0JJDiOzX+EwKi@kitzbuhel.demon.co.uk>… > In article <b3m3f601…@enews3.newsguy.com>, J Rogow > <JRo…@SpammenotNewsguy.com> wrote > >I’m currently having shooting pains in my right wrist, incredibly > >painful – I suspect it’s a Lupus thing, but don’t know for sure. >  RSI? Been typing a lot in an odd posture recently?

Well i have servior shaking and it is part of the lupus!  been getting worse the last few weeks!!  but with new baby i just deal with it and try not to let it bug me to much!   but in a littler note baby is getting so big 10 almost eating like a horse and she rolled over on tuesday!@!   she is almost three months  smiles all the time a very happy baby she is !!!   Trin

Response:

Thanks for the good update, Trinity! "Trinity" <tri…@attbi.com> wrote in message

news:8ef4543a.0302281324.63124b99@posting.google.com… > Andy <a…@kitzbuhel.demon.co.uk> wrote in message

<news:cQF0JJDiOzX+EwKi@kitzbuhel.demon.co.uk>… – Hide quoted text — Show quoted text -> > In article <b3m3f601…@enews3.newsguy.com>, J Rogow > > <JRo…@SpammenotNewsguy.com> wrote > > >I’m currently having shooting pains in my right wrist, incredibly > > >painful – I suspect it’s a Lupus thing, but don’t know for sure. > >  RSI? Been typing a lot in an odd posture recently? > Well i have servior shaking and it is part of the lupus!  been getting > worse the last few weeks!!  but with new baby i just deal with it and > try not to let it bug me to much!   but in a littler note baby is > getting so big 10 almost eating like a horse and she rolled over on > tuesday!@!   she is almost three months  smiles all the time a very > happy baby she is !!!   Trin

Response:

That is just wonderful about the wee one Trin! Take care of yourself too though! Go in to see the doctor about your shakes or spasms…. he should be able to help out.. can’t get sick with a baby needing you! (((Trin))) — Hugs from Shelagh http://continue.to/lupus – Hide quoted text — Show quoted text -"Trinity" <tri…@attbi.com> wrote in message > Well i have servior shaking and it is part of the lupus!  been getting > worse the last few weeks!!  but with new baby i just deal with it and > try not to let it bug me to much!   but in a littler note baby is > getting so big 10 almost eating like a horse and she rolled over on > tuesday!@!   she is almost three months  smiles all the time a very > happy baby she is !!!   Trin

Response:

"Andy" <a…@kitzbuhel.demon.co.uk> wrote in message

news:cQF0JJDiOzX+EwKi@kitzbuhel.demon.co.uk… > In article <b3m3f601…@enews3.newsguy.com>, J Rogow > <JRo…@SpammenotNewsguy.com> wrote > >I’m currently having shooting pains in my right wrist, incredibly > >painful – I suspect it’s a Lupus thing, but don’t know for sure. > RSI? Been typing a lot in an odd posture recently? > —

I’m mainly left-handed, but do use the mouse right-handed. MOTH just bought me a new ergonomic mouse to see if it makes any difference. About the only other repetitive motion I make with my left hand is when I shoot the lever-action. As for "odd postures", I don’t care to discuss that, thanks.

Response:

"Trinity" <tri…@attbi.com> wrote in message

news:8ef4543a.0302281324.63124b99@posting.google.com… > Andy <a…@kitzbuhel.demon.co.uk> wrote in message

<news:cQF0JJDiOzX+EwKi@kitzbuhel.demon.co.uk>… > > In article <b3m3f601…@enews3.newsguy.com>, J Rogow > > <JRo…@SpammenotNewsguy.com> wrote > > >I’m currently having shooting pains in my right wrist, incredibly > > >painful – I suspect it’s a Lupus thing, but don’t know for sure. > >  RSI? Been typing a lot in an odd posture recently? > Well i have servior shaking and it is part of the lupus!  been getting > worse the last few weeks!!  but with new baby i just deal with it and > try not to let it bug me to much!   but in a littler note baby is > getting so big 10 almost eating like a horse and she rolled over on > tuesday!@!   she is almost three months  smiles all the time a very > happy baby she is !!!   Trin

How lovely – do you have any new photos?

Response:

- Hide quoted text — Show quoted text -"J Rogow" <JRo…@SpammenotNewsguy.com> wrote in message <news:b3rqut11sp6@enews2.newsguy.com>… > "Trinity" <tri…@attbi.com> wrote in message > news:8ef4543a.0302281324.63124b99@posting.google.com… > > Andy <a…@kitzbuhel.demon.co.uk> wrote in message >  <news:cQF0JJDiOzX+EwKi@kitzbuhel.demon.co.uk>… > > > In article <b3m3f601…@enews3.newsguy.com>, J Rogow > > > <JRo…@SpammenotNewsguy.com> wrote > > > >I’m currently having shooting pains in my right wrist, incredibly > > > >painful – I suspect it’s a Lupus thing, but don’t know for sure. > > >  RSI? Been typing a lot in an odd posture recently? > > Well i have servior shaking and it is part of the lupus!  been getting > > worse the last few weeks!!  but with new baby i just deal with it and > > try not to let it bug me to much!   but in a littler note baby is > > getting so big 10 almost eating like a horse and she rolled over on > > tuesday!@!   she is almost three months  smiles all the time a very > > happy baby she is !!!   Trin > How lovely – do you have any new photos?

No Not yet but soon~~~  i will send them to bev and she can send them out ok doke!!!  I dont have digatal cam!!1  hubby hs one but that is for work!!  sorry all i will get them soon!!!!  TRIN

Response:

Hi Group.Has anyone had muscle spasams as a symptom of Lupus….regards Peter.

Response:

On Thu, 27 Feb 2003 18:18:09 +1030, "Peter" <chy…@iprimus.com.au> wrote: >Hi Group.Has anyone had muscle spasams as a symptom of Lupus….regards >Peter.

I can’t really be sure it’s due to the disease but I am prone to muscle spasms.  For the last week or two I have had my neck "lock" repeatedly because the muscles spasm so tight. might be the 10 hours a day in front of the computer though. :-) I have had twitching and such for a long time. I suspect some of it is diet for me because I eat only about 500-800 calories per day usually. And those calories are largely sugars and fats.  Not a lot of protein so I have to add a protein drink and vitamins to my diet.  Sometimes muscle spasms can be the result of missing minerals.  Do you take a daily mutlivitamin?  Is it possible you are low on calcium, magnesium or potassium?  all three of these play a role in muscle health/response. best wishes, kcat

Response:

Question:

Hi Michael, I love all Michaels too. That is my son’s name. I am glad to hear that you feel so good about being here with us. It is certainly nice having another guy around. BJ-Sk. Canada "Michael Roeper" <Roe…@attbi.com> wrote in message

news:sp70a.174385$rM2.165452@rwcrnsc53… – Hide quoted text — Show quoted text -> Howdy Trish! > You may be "new" but you’re doin fine. > Trish was my sisters name so I’m crazy about all Thrish’s!!! > Welcome here. Of all the resources I’ve found since my DX, this is the best > game in town. Nobody can understand all that is involved in this "thing" > better than family. I’m rather new here myself and I was made to feel so > welcome I cried. > I’m not in Chicago, I live in Portland, Oregon. > But I understand that they’re connected. > Welcome! > Michael Roeper > Portland, Oregon > "socjog" <soc…@optonline.net> wrote in message > news:sKQ%9.75341$HG.14792841@news4.srv.hcvlny.cv.net… > > Hi Trish , > >  mild lupus wow that’s is great because many of our treatments work best > > when the disease is not well established . I have MCTD which is an overlap > > of scleroderma / Lupus and RA . Im on antibiotic protocol that almost has > me > > in remission and I did have LONG standing disease but it took some time > for > > the med to help me . Now Im back to jogging and playing soccer LOL and Im > 46 > > . I have been feverishly working on this new web page and its free sells > > nothing but it is about the Proven therapy Im on if you would like to peek > > at it go to http://www.rheumaticsolutions.org  Wonderful warm and friendly > > site with messages boards too . You can browse without registering if you > > want to  post then you have to register but it is 100% free and sells > > nothing . I hate Spam :)  Good luck and welcome to this group which has > > always been educational and warm and friendly too . Hugs, > >  socjog > > "Trish Beattie" <panda…@attbi.com> wrote in message > > news:csF%9.154452$6G4.16794@sccrnsc02… > > > I was dx with VERY mild lupus in March 2002….. still learning and > trying > > > to accept the whole thing…… > > > Live in the Chicago Area…..anyone else around here?!?!?! > > > Feel well….. > > > Hugs, > > > Trish

Response:

BJ isp server problem, no she’s not hiccuping. <g> I’ll add mine to hers though Michael, so not to waste a post. Best, J – Hide quoted text — Show quoted text -BJ wrote: > Hi Michael, > I love all Michaels too. That is my son’s name. I am glad to hear that you > feel so good about being here with us. It is certainly nice having another > guy around. > BJ-Sk. Canada

Response:

Howdy Trish! You may be "new" but you’re doin fine. Trish was my sisters name so I’m crazy about all Thrish’s!!! Welcome here. Of all the resources I’ve found since my DX, this is the best game in town. Nobody can understand all that is involved in this "thing" better than family. I’m rather new here myself and I was made to feel so welcome I cried. I’m not in Chicago, I live in Portland, Oregon. But I understand that they’re connected. Welcome! Michael Roeper Portland, Oregon "socjog" <soc…@optonline.net> wrote in message

news:sKQ%9.75341$HG.14792841@news4.srv.hcvlny.cv.net… – Hide quoted text — Show quoted text -> Hi Trish , >  mild lupus wow that’s is great because many of our treatments work best > when the disease is not well established . I have MCTD which is an overlap > of scleroderma / Lupus and RA . Im on antibiotic protocol that almost has me > in remission and I did have LONG standing disease but it took some time for > the med to help me . Now Im back to jogging and playing soccer LOL and Im 46 > . I have been feverishly working on this new web page and its free sells > nothing but it is about the Proven therapy Im on if you would like to peek > at it go to http://www.rheumaticsolutions.org  Wonderful warm and friendly > site with messages boards too . You can browse without registering if you > want to  post then you have to register but it is 100% free and sells > nothing . I hate Spam :)  Good luck and welcome to this group which has > always been educational and warm and friendly too . Hugs, >  socjog > "Trish Beattie" <panda…@attbi.com> wrote in message > news:csF%9.154452$6G4.16794@sccrnsc02… > > I was dx with VERY mild lupus in March 2002….. still learning and trying > > to accept the whole thing…… > > Live in the Chicago Area…..anyone else around here?!?!?! > > Feel well….. > > Hugs, > > Trish

Response:

Hi Trish ,  mild lupus wow that’s is great because many of our treatments work best when the disease is not well established . I have MCTD which is an overlap of scleroderma / Lupus and RA . Im on antibiotic protocol that almost has me in remission and I did have LONG standing disease but it took some time for the med to help me . Now Im back to jogging and playing soccer LOL and Im 46 . I have been feverishly working on this new web page and its free sells nothing but it is about the Proven therapy Im on if you would like to peek at it go to http://www.rheumaticsolutions.org  Wonderful warm and friendly site with messages boards too . You can browse without registering if you want to  post then you have to register but it is 100% free and sells nothing . I hate Spam :)  Good luck and welcome to this group which has always been educational and warm and friendly too . Hugs,  socjog "Trish Beattie" <panda…@attbi.com> wrote in message

news:csF%9.154452$6G4.16794@sccrnsc02… – Hide quoted text — Show quoted text -> I was dx with VERY mild lupus in March 2002….. still learning and trying > to accept the whole thing…… > Live in the Chicago Area…..anyone else around here?!?!?! > Feel well….. > Hugs, > Trish

Response:

- Hide quoted text — Show quoted text -"Beverley" <beverly.brow…@verizon.net> wrote in message <news:f7G%9.1088$993.763@nwrddc02.gnilink.net>… > I’m not sure we have anyone in Chicago – but don’t quote me. LOL > Welcome to the group. We are a very eclectic group of people with similar > and very different problems. We are also a very nice group of people!!!! > Lots of wonderful friends out here. > Accepting lupus? Do any of us really ever do that? I’m still trying to > figure out how to live with it. > Bev (from the SE corner of Virginia) > "Trish Beattie" <panda…@attbi.com> wrote in message > news:csF%9.154452$6G4.16794@sccrnsc02… > > I was dx with VERY mild lupus in March 2002….. still learning and trying > > to accept the whole thing…… > > Live in the Chicago Area…..anyone else around here?!?!?! > > Feel well….. > > Hugs, > > Trish

I do i live here in IND !!  grew up in IL!!  just moved out to Crown point last year!!   email me anytime!!!    Trinity

Response:

Hi Trish:))) Welcome to the family. You will find many from around the world here with hurts and good things and daily life covered here. Bruce Ontario Canada " now it is freezing rain nothing moving wind 40mi./hr. " "BJ" <B…@sk.nojunk.ca> wrote in message

news:v3uesdcplqih90@corp.supernews.com… – Hide quoted text — Show quoted text -> Hi Trish, > Welcome. This is a good place to learn, and talk about your feeling. The > people here understand. > BJ-one of the outnumbered Canadians-Saskatchewan > "Trish Beattie" <panda…@attbi.com> wrote in message > news:csF%9.154452$6G4.16794@sccrnsc02… > > I was dx with VERY mild lupus in March 2002….. still learning and trying > > to accept the whole thing…… > > Live in the Chicago Area…..anyone else around here?!?!?! > > Feel well….. > > Hugs, > > Trish

Response:

Hello Trish and welcome to the mad house :) I hope everything stays mild for you and I’m glad you found us. Lyndal (the doc down under…..also not from Chicago) Nowra Australia "bruce" <mcode0…@rogers.com> wrote in message

news:YRH%9.257785$pDv.130690@news04.bloor.is.net.cable.rogers.com… – Hide quoted text — Show quoted text -> Hi Trish:))) > Welcome to the family. You will find many from around the world here with > hurts and good things and daily life covered here. > Bruce Ontario Canada " now it is freezing rain nothing moving wind 40mi./hr. > " > "BJ" <B…@sk.nojunk.ca> wrote in message > news:v3uesdcplqih90@corp.supernews.com… > > Hi Trish, > > Welcome. This is a good place to learn, and talk about your feeling. The > > people here understand. > > BJ-one of the outnumbered Canadians-Saskatchewan > > "Trish Beattie" <panda…@attbi.com> wrote in message > > news:csF%9.154452$6G4.16794@sccrnsc02… > > > I was dx with VERY mild lupus in March 2002….. still learning and > trying > > > to accept the whole thing…… > > > Live in the Chicago Area…..anyone else around here?!?!?! > > > Feel well….. > > > Hugs, > > > Trish

Response:

Trish, Welcome to the group.  Sorry that you have to be here…but here is a great place to be if you have Lupus. Hope to see your posts often.  Ask anything that you have on your mind and someone will have an answer or a link or try and find the info for you. Once again welcome. Hugs, Sherry "Trish Beattie" <panda…@attbi.com> wrote in message

news:csF%9.154452$6G4.16794@sccrnsc02… – Hide quoted text — Show quoted text -> I was dx with VERY mild lupus in March 2002….. still learning and trying > to accept the whole thing…… > Live in the Chicago Area…..anyone else around here?!?!?! > Feel well….. > Hugs, > Trish

Response:

Hi Trish, Welcome. This is a good place to learn, and talk about your feeling. The people here understand. BJ-one of the outnumbered Canadians-Saskatchewan "Trish Beattie" <panda…@attbi.com> wrote in message

news:csF%9.154452$6G4.16794@sccrnsc02… – Hide quoted text — Show quoted text -> I was dx with VERY mild lupus in March 2002….. still learning and trying > to accept the whole thing…… > Live in the Chicago Area…..anyone else around here?!?!?! > Feel well….. > Hugs, > Trish

Response:

Lordy Cindy, is that you? How are you lady??  What is going on with you?? hugs janers

Response:

Hi Trish Welcome.  Chicago, Chicago that wonderful town.  Sorry I had to sing.  I am only a stones throw from you though, I am OHIO…HOME OF THE BUCKEYS teehee So welcome, tell us some thing about yourself.  How are you doing? and coping too. take care and   post often janers

Response:

Welcome Trish,  I have a rather difficult case of Lupus plus other problems. I was dx’ed April 98. You have found a wonderful group here. lotsa support and love and humor  that is what keeps us going. Talk bout anything you want ask anything chances are you will get an answer. Welcome and hope your Lupus stays mild. Soft hugs Cindy W. – Hide quoted text — Show quoted text -Trish Beattie wrote: > I was dx with VERY mild lupus in March 2002….. still learning and trying > to accept the whole thing…… > Live in the Chicago Area…..anyone else around here?!?!?! > Feel well….. > Hugs, > Trish

Response:

I’m not sure we have anyone in Chicago – but don’t quote me. LOL Welcome to the group. We are a very eclectic group of people with similar and very different problems. We are also a very nice group of people!!!! Lots of wonderful friends out here. Accepting lupus? Do any of us really ever do that? I’m still trying to figure out how to live with it. Bev (from the SE corner of Virginia) "Trish Beattie" <panda…@attbi.com> wrote in message

news:csF%9.154452$6G4.16794@sccrnsc02… – Hide quoted text — Show quoted text -> I was dx with VERY mild lupus in March 2002….. still learning and trying > to accept the whole thing…… > Live in the Chicago Area…..anyone else around here?!?!?! > Feel well….. > Hugs, > Trish

Response:

I was dx with VERY mild lupus in March 2002….. still learning and trying to accept the whole thing…… Live in the Chicago Area…..anyone else around here?!?!?! Feel well….. Hugs, Trish

Response:

Isn’t it amazing how a MILD case of lupus can throw a wrench in your whole life? Yeah, believe it, you are not crazy. I’m in California, but I am just a click away. Glad to have you with us Mary stin…@earthlink.net http://radio.weblogs.com/0114986/ — Pigmet’s Weblog– http://stingo22.tripod.com "Trish Beattie" <panda…@attbi.com> wrote in message

news:csF%9.154452$6G4.16794@sccrnsc02… – Hide quoted text — Show quoted text -> I was dx with VERY mild lupus in March 2002….. still learning and trying > to accept the whole thing…… > Live in the Chicago Area…..anyone else around here?!?!?! > Feel well….. > Hugs, > Trish

Response:

Question:

My mom has a telephone appointment this morning with Sylvia Brown, who is a very well known psychic who has been on TV and has helped the police solve murders.  Mom is so devestated by my brother’s death, and is desperate to contact him.  She’s a little skeptical, and has specific criteria for deciding if this lady is "for real". Anyway, one of the questions Mom is planning to ask the psychic is "where can my daughter go to get cured of lupus."  My dear hubby says that as much as he loves me (and my parents), he’s not going to send me off to a clinic in Mexico or a healing fountain in Tibet.  Has anyone else dealt with anything like this? Gretchen

Response:

Never dealt with anything like this but would love to know what Sylvia says. She is pretty sharp I have heard her speak of autoimmune disease before just in general though. Cindy W. – Hide quoted text — Show quoted text -Gretchen wrote: > My mom has a telephone appointment this morning with Sylvia Brown, who > is a very well known psychic who has been on TV and has helped the > police solve murders.  Mom is so devestated by my brother’s death, and > is desperate to contact him.  She’s a little skeptical, and has > specific criteria for deciding if this lady is "for real". > Anyway, one of the questions Mom is planning to ask the psychic is > "where can my daughter go to get cured of lupus."  My dear hubby says > that as much as he loves me (and my parents), he’s not going to send > me off to a clinic in Mexico or a healing fountain in Tibet.  Has > anyone else dealt with anything like this? > Gretchen

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