Question:
Nikki, you’re brave and beautiful. I strive with all my might to be half the woman you are. much love diane * Sent from RemarQ http://www.remarq.com The Internet’s Discussion Network * The fastest and easiest way to search and participate in Usenet – Free!
Response:
Nikki, I am so sorry your feeling so bad :::Big hugs::: I hope you get well really. really;; soon! Your in my prayers & thoughts Nikki, I hope you get well soon. Take care, Stephie
– Hide quoted text — Show quoted text – I’ve been having problems with severe Edema…this weekend it got really bad…I couldnt even recognize my own feet and legs, and my face was so puffy it hurt (and no, I wasnt purging). So my doc put me on 80mg of Lasix (diuretic)….I have lost X pounds of fluid in 14 hours (again, not on purpose..this is fluid that needed to come off for medical reasons. I am lucky that I didnt have a heart attack with all the fluid that was on me…I am still peeing it out). I have to go to the doc on Thursday for him to check me out a bit more and he is going to write referrals for a cardiac consult and a nephrologist (kidney doctor). I haven’t been peeing as much as usual until the Lasix..I think my kidneys aren’t working right and I am kinda scared. (I was spilling protein and bilirubin on my last Urinary Analysis..this can happen in Lupus patients). I was having the edema problems for a while, but then it just got way out of hand and worse than I had ever seen it. Even Rich can tell a HUGE difference in me since the Lasix….before he said when he would touch my back or arms (or anywhere) I was hard as a rock….now I am more "flappy" (LOL, couldn’t think of a word) and soft. My toes and feet are back to normal..thank GOD because they were freakin me out! Rich came over to me this morning and touched my legs and said there was a huge difference in them. You can actually see my ankles again (I literally had NO ankle bones that could be seen!). AND, I am not having any chest pain, which means that there must have been fluid around my lungs or heart. Also, the blurriness in my eyes is gone (doc thinks I have fluid building up behind the optic nerve, causing severe blurriness in the one good eye I have…I am legally blind in my left eye). I am still on strict orders to rest and keep my feet elevated. I cant be on the computer much, but not only because of my legs, but because my neck is really bothering me. I think the disk disease is affecting the disks there because I am getting tingling and numbness in my arms. It hurts like HELL to sit here and type. I wish I had a laptop so I could be online while on the couch. It sucks to just have to lay there….but I am reading alot (Rich got me another Chicken Soup for the Soul book…this one is for cats and dog lovers). well, back to the couch I go. Its raining and storming here…good reading/sleeping weather. I am just scared that my heart and kidneys are failing…I have been having chest pain for a while, and like I said, I was hardly producing any urine lately even though my liquid intake hadn’t changed. So say a little prayer. I am really scared that more organs are under attack from the Lupus and Scleroderma I have. I am only 28 and am having a hard time dealing with this, especially lately with the severe edema setting in. Love nikki "… lost in the darkness of my own circumstance, criticizing echoes leaving me awake in the night… the barrier and blockades that keep me safe and in control while I pretend that I am okay… "
Response:
(((( Nikki )))) You deal with so much. You are a very strong person. Plus your faith in God helps you as well I am sure. Thinking and praying for you, hon. Love, Mouse — Free audio & video emails, greeting cards and forums Talkway – http://www.talkway.com – Talk more ways (sm)
Response:
(((((Nikki)))) I am praying to the gods for you to get better!!! Luvs… — ~*rAiNbOw*~ ~ The soul would have no rainbow, if the eyes had no tears ~ www.geocities.com/spreadingarainbow/index.html
– Hide quoted text — Show quoted text – I’ve been having problems with severe Edema…this weekend it got really bad…I couldnt even recognize my own feet and legs, and my face was so puffy it hurt (and no, I wasnt purging). So my doc put me on 80mg of Lasix (diuretic)….I have lost X pounds of fluid in 14 hours (again, not on purpose..this is fluid that needed to come off for medical reasons. I am lucky that I didnt have a heart attack with all the fluid that was on me…I am still peeing it out). I have to go to the doc on Thursday for him to check me out a bit more and he is going to write referrals for a cardiac consult and a nephrologist (kidney doctor). I haven’t been peeing as much as usual until the Lasix..I think my kidneys aren’t working right and I am kinda scared. (I was spilling protein and bilirubin on my last Urinary Analysis..this can happen in Lupus patients). I was having the edema problems for a while, but then it just got way out of hand and worse than I had ever seen it. Even Rich can tell a HUGE difference in me since the Lasix….before he said when he would touch my back or arms (or anywhere) I was hard as a rock….now I am more "flappy" (LOL, couldn’t think of a word) and soft. My toes and feet are back to normal..thank GOD because they were freakin me out! Rich came over to me this morning and touched my legs and said there was a huge difference in them. You can actually see my ankles again (I literally had NO ankle bones that could be seen!). AND, I am not having any chest pain, which means that there must have been fluid around my lungs or heart. Also, the blurriness in my eyes is gone (doc thinks I have fluid building up behind the optic nerve, causing severe blurriness in the one good eye I have…I am legally blind in my left eye). I am still on strict orders to rest and keep my feet elevated. I cant be on the computer much, but not only because of my legs, but because my neck is really bothering me. I think the disk disease is affecting the disks there because I am getting tingling and numbness in my arms. It hurts like HELL to sit here and type. I wish I had a laptop so I could be online while on the couch. It sucks to just have to lay there….but I am reading alot (Rich got me another Chicken Soup for the Soul book…this one is for cats and dog lovers). well, back to the couch I go. Its raining and storming here…good reading/sleeping weather. I am just scared that my heart and kidneys are failing…I have been having chest pain for a while, and like I said, I was hardly producing any urine lately even though my liquid intake hadn’t changed. So say a little prayer. I am really scared that more organs are under attack from the Lupus and Scleroderma I have. I am only 28 and am having a hard time dealing with this, especially lately with the severe edema setting in. Love nikki "… lost in the darkness of my own circumstance, criticizing echoes leaving me awake in the night… the barrier and blockades that keep me safe and in control while I pretend that I am okay… "
Response:
{{{{{Nikki}}}}} I wish I could wave a magic wand and make you all better. Since I can’t, you are definitely in my prayers. Love to you, Butterflies
Response:
{{{Nikki}}}, I am not religious, but I *think* of you and hope you will get better!!! Love, Milenka * Sent from RemarQ http://www.remarq.com The Internet’s Discussion Network * The fastest and easiest way to search and participate in Usenet – Free!
Response:
Meg, I will send you information via email. Do you have another email addy of just the Deja one that you want me to send it to? Nikki "… lost in the darkness of my own circumstance, criticizing echoes leaving me awake in the night… the barrier and blockades that keep me safe and in control while I pretend that I am okay… "
Response:
(((Nikki))) You are most definitely in my most special of prayers & thoughts! :O) -Ears- Glinda: You’ve always had the power to go back to Kansas. Dorothy: I have? Scarecrow: Then why didn’t you tell her before? Glinda: Because she wouldn’t have believed me. She had to learn it for herself. -The Wizard of Oz
Response:
Nikki, Im not usually one to pray but Im sending loads of good thoughts and hope your way! Sounds scary and uncomfortable (edema-ugh). By the way, could you give a little overview of lupus- I am vaugely familiar. I know its an autoimmune disease but dont know the specifics. Take care, meg Before you buy.
Response:
well, back to the couch I go. Its raining and storming here…good reading/sleeping weather. I am just scared that my heart and kidneys are failing…I have been having chest pain for a while, and like I said, I was hardly producing any urine lately even though my liquid intake hadn’t changed. So say a little prayer. I am really scared that more organs are under attack from the Lupus and Scleroderma I have. I am only 28 and am having a hard time dealing with this, especially lately with the severe edema setting in.
Nikki, you’re in my kinda prayers as well as in my other prayers… Thinking of you, Adagio
Response:
I’ve been having problems with severe Edema…this weekend it got really bad…I couldnt even recognize my own feet and legs, and my face was so puffy it hurt (and no, I wasnt purging). So my doc put me on 80mg of Lasix (diuretic)….I have lost X pounds of fluid in 14 hours (again, not on purpose..this is fluid that needed to come off for medical reasons. I am lucky that I didnt have a heart attack with all the fluid that was on me…I am still peeing it out). I have to go to the doc on Thursday for him to check me out a bit more and he is going to write referrals for a cardiac consult and a nephrologist (kidney doctor). I haven’t been peeing as much as usual until the Lasix..I think my kidneys aren’t working right and I am kinda scared. (I was spilling protein and bilirubin on my last Urinary Analysis..this can happen in Lupus patients). I was having the edema problems for a while, but then it just got way out of hand and worse than I had ever seen it. Even Rich can tell a HUGE difference in me since the Lasix….before he said when he would touch my back or arms (or anywhere) I was hard as a rock….now I am more "flappy" (LOL, couldn’t think of a word) and soft. My toes and feet are back to normal..thank GOD because they were freakin me out! Rich came over to me this morning and touched my legs and said there was a huge difference in them. You can actually see my ankles again (I literally had NO ankle bones that could be seen!). AND, I am not having any chest pain, which means that there must have been fluid around my lungs or heart. Also, the blurriness in my eyes is gone (doc thinks I have fluid building up behind the optic nerve, causing severe blurriness in the one good eye I have…I am legally blind in my left eye). I am still on strict orders to rest and keep my feet elevated. I cant be on the computer much, but not only because of my legs, but because my neck is really bothering me. I think the disk disease is affecting the disks there because I am getting tingling and numbness in my arms. It hurts like HELL to sit here and type. I wish I had a laptop so I could be online while on the couch. It sucks to just have to lay there….but I am reading alot (Rich got me another Chicken Soup for the Soul book…this one is for cats and dog lovers). well, back to the couch I go. Its raining and storming here…good reading/sleeping weather. I am just scared that my heart and kidneys are failing…I have been having chest pain for a while, and like I said, I was hardly producing any urine lately even though my liquid intake hadn’t changed. So say a little prayer. I am really scared that more organs are under attack from the Lupus and Scleroderma I have. I am only 28 and am having a hard time dealing with this, especially lately with the severe edema setting in. Love nikki "… lost in the darkness of my own circumstance, criticizing echoes leaving me awake in the night… the barrier and blockades that keep me safe and in control while I pretend that I am okay… "
Response:
You amaze me. I read about what you stand up to, and I get a second wind, some courage back.
Oh, Em….this makes me feel so good! I care about you alot, and want you to get well. You are such a great person. Love Nikki "… lost in the darkness of my own circumstance, criticizing echoes leaving me awake in the night… the barrier and blockades that keep me safe and in control while I pretend that I am okay… "
Response:
(((( Nikki )))) You deal with so much. You are a very strong person. Plus your faith in God helps you as well I am sure.
Mouse, you are strong too. I know you dont see that now, but you have survived to this point, and that means something. Love Nikki "… lost in the darkness of my own circumstance, criticizing echoes leaving me awake in the night… the barrier and blockades that keep me safe and in control while I pretend that I am okay… "
Response:
I wish I could wave a magic wand and make you all better. Since I can’t, you are definitely in my prayers.
Thank you Butterflies..you are such a doll Love Nikki "… lost in the darkness of my own circumstance, criticizing echoes leaving me awake in the night… the barrier and blockades that keep me safe and in control while I pretend that I am okay… "
Response:
Nikki, I am not very religious, but in my vaguely agnostic, totally non-denominational way, I will be praying for you. You are definitely in my thoughts — I hope you know how much I admire and respect you for your strength. Brigid
Response:
Thanks Nikki, Im deffinately interested. You can send to Before you buy.
Response:
(((((nikki)))))) I have you in my prayers. – Lola — "The real voyage of discovery consists not in seeking new landscapes but in having new eyes" – Proust Before you buy.
Response:
Ouch, it sounds as though you are really struggling right now with a lot of physical problems. Hang in there. I am glad that you’re getting additional consults to check out if there is cardiacor kidney or other involvement…. I am thinking of you as you go through this pain and additional physical problems! –Connie — "Starving the flesh wastes the spirit." –Kandis Elliot
Response:
oops, sorry about the extra "e" on Nikki! typo
Response:
Nikki ((HUGGGS)) Hope you are feeling some better now…i will keep you in my prayers, and unspoken prayer requests at church, take care of yourself….let me know how you are nikki sending prayers your way 
Jackie
5 Resolutions ForChange
Response:
I’m so sorry you’re going through that, Nikkie! Remembering you, Jen
Response:
I always say your name in my prayers, and I’ll pray for you harder. You amaze me. I read about what you stand up to, and I get a second wind, some courage back. I’m sorry you are in pain, and I understand your fear– the biggest thing I send you is love. You are not alone and you know it, and that’s a good thing. You have us, everyone here. And I also wanted to tell you how much you have grown, since the first posts of yours I read. I feel peace, in that, in you…. for you. all my love always, I’ll keep praying for you. "How does the meadow-flower its bloom unfold? Because the lovely little flower is free Down to its root, and in that freedom bold." Wordsworth A Poet! He Hath Put His Heart To School. Emily
Response:
Nikki God bless you, being scared is a horrowing period and I am thinking of you. Try and have the strength of positively. I know fluid retension, chest pain, blurred vision is agonising, and your pain (physical & mental) is scary. But please take your doc’s advice and rest, keep your feet up and please "Take Care" In my special prayers Love Kath+++
Response:
I know fluid retension, chest pain, blurred vision is agonising, and your pain (physical & mental) is scary. But please take your doc’s advice and rest, keep your feet up and please "Take Care"
Kath, yes, I am taking doctors orders, as hard as it is. I spent all day yesterday on the couch, with a heating pad on my neck and my legs propped up. Most of the fluid has now gone and my feet and legs are back to the "normal" size thanks to the Lasix. So hopefully this episode is over. I am still going to rest today and hopefully catch up with posts tomorrow. Love Nikki "… lost in the darkness of my own circumstance, criticizing echoes leaving me awake in the night… the barrier and blockades that keep me safe and in control while I pretend that I am okay… "
Response:
Nikki, you’re brave and beautiful. I strive with all my might to be half the woman you are.
Wow, Diane….this is powerful. I am speechless. Thank you so much. Love Nikki "… lost in the darkness of my own circumstance, criticizing echoes leaving me awake in the night… the barrier and blockades that keep me safe and in control while I pretend that I am okay… "
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