Question:
Wow, what a terrible reaction to Bextra! They put me on Bextra and I didn’t have any really major reactions like that, but it did cause me some gastrointestinal problems. I complained about it, and doc said it would go away in a couple days, which it didn’t. I ended up coming off it and the GI problems went away almost completely. It really didn’t seem to do much for my inflammation and certainly not for the pain either, so it didn’t seem worthwhile to me to continue taking it. I have 4 children between the ages of 3 and 9. It sounds to me like you are taking a good approach to all that is going on in your life. It’s strange how children help us do that. At the same time, I would encourage you not to "stuff" your feelings about everything to the point that you explode or make yourself ill. It was just a couple days ago that I finally let loose of some of the anger and frustration I was feeling (late at night when my hubby looked at me and said, "Ya know, people cry sometimes and that’s okay!") and it has been better for my kids and for me. I’m still exhausted, still in pain, and still irritated at the situation, but I’m not on the verge of a nervous breakdown! *laugh* My thoughts are with you. Larina "Joanne" <jcs3…@hotmail.com> wrote in message
news:7560932f.0306250340.43a31591@posting.google.com… > JD…@webtv.net (Marg Watson) wrote in message
<news:321-3EF90F23-527@storefull-2156.public.lawson.webtv.net>… – Hide quoted text — Show quoted text -> > Hi Joanne! > > I’m sorry you’ve had no luck with all the pain meds. I hope they can > > figure somthing out that works for you. > > The Ultram has been my only relief & I also take Daypro. I tried Vioxx > > & about ended up in the hospital! > > What kind of side effects did the Bextra give you. Larina, who just > > introduced herself to the group, is on the Bextra or maybe WAS on the > > Bextra (Still waiting for her reply on that) & she’s having some chest > > pains. Would you let her know, if that was one of your symptoms/side > > effects? > > Well, yours & Nicole’s story will be one for the Grandkids! You know > > it’s meant to be when something happens like that. : ) > > Glad you both are here! And I wish you pain-free days beginning > > yesterday. <smile> > > Hug’s 4 U! > > Maggie > Good Morning Maggie!!! > To answear your question about Bextra, I couldn’t breath within 40 > minutes of taking it, my throat closed up and I was rushed to ER, > where I was put on Oxygen-very scary !! Even through this my "EX" > Rhuemy stated maybe we should try Bextra one more time!! Yeah Right!!! > Needless to say that was the last time I saw him, I know have the most > compasionate and wonderful Women Rhuemy, and I truly feel blessed to > have her!! She always calls me back and she has a 3 year old and is > pregnant, so she understands the pressure of being a Mom as well. She > also is my childrens Pedi’s wife!! We like to keep everything in the > family 
! I’ve never heard of Daypro, is it a NSAID? I try so hard to > stay positive through out this, put there ar times when I get scared > of where I’ll be at in 10 years. All I know is I HAVE to go on > everyday for my beautiful children and keep negative thoughts at bay. > Gentle Hugs! > Joanne
Response:
"J Rogow" <JRo…@SpammenotNewsguy.com> wrote in message <news:bdcjdb02n1v@enews1.newsguy.com>… > It has been wonderful for me. Much less pain, more flexibility. > "Stephanie Townsend" <ler…@nospam.hotmail.com> wrote in message > news:bdce8b$79t$1@sun-news.laserlink.net… > > Hi Joanne – > > Quick question – have you had any luck with the mobic? My doc just > > perscribed me that and I was wondering how effective it is for others. > > Thanks! > > Steph
Hi Steph! I’ve been on Mobic for only 1 1/2 weeks, so far a little improvment,& no nasty side effects.But I’m also on Pred again so it could mask the Mobic right now. I’m keeping my fingers crossed (Oh if I could really do that!!!)and hoping for the best!! Good luck to you with it,let me know how you feel! Gentle hugs- Joanne in RI – Hide quoted text — Show quoted text -> > "Joanne" <jcs3…@hotmail.com> wrote in message > > news:7560932f.0306240304.daab52@posting.google.com… > > > JD…@webtv.net (Marg Watson) wrote in message > <news:6686-3EF7C410-538@storefull-2151.public.lawson.webtv.net>… > > > > HI Joanne! > > > > Welcome to the group! > > > > I’m soon to be 33 & have been diagnosed with a Lupus-like disease. > > > > Although I don’t have children, I have my doggy’s & I think I can > relate > > > > just a TEENY bit–trust me on this, k? : ) > > > > It must be so hard at times though. Are you trying different > > > > medications for the pain? > > > > I hope you have many pain-free days ahead, Joanne. I’ll tell you > this: > > > > Pain can be eased by easing your stress & stress can eased when you > vent > > > > & venting is done right here! You feel better already, don’t ya? : ) > > > > Maggie > > > Hi Maggie! > > > Thank you for the waem welcome!! I’ve have treid almost everything!! > > > The following have little or no > > > effect:Viox,Celebrex,Naprosyn,Bextra(horrible reaction to that > > > one!)Ultram. Now I’m starting a "new"hormone DHEA and trying Mobic, > > > along with my Pred,Plaq,Elavil,Wellbutrin,etc,etc…… > > > I do take an occasional Vicodin,but when you have 2 young ones, you > > > really need to keep your wits about you!!!And to answear your other > > > question about Nicole and I, I came upon her website and read her > > > history of her Company and it was like something told me to contact > > > her, so I wrote her a note telling her she was an inspiration, which > > > she is, and we found out we are the same age birthdays are about 1 > > > week apart,and we both have Lupus & Fibro do it was really neat! She > > > told me about this message board and the ret is history!!!! > > > So again Maggie, thank you for the warm welcome and I look forward to > > > getting to know all of you!! > > > Joanne in RI
Response:
Hi J! Did you have to stop the Mobic or did your body finally go with it? Stephanie is wondering how well the Mobic works & I thought of your situation. Huggy’s, Maggie
Response:
Marg Watson wrote: > Did you have to stop the Mobic or did your body finally go with it? > Stephanie is wondering how well the Mobic works & I thought of your > situation.
oh oh ! We have someone here with a very good memory <g> did ya notice how quiet I was about the query about Mobic? I took it like my doc said 15 mg daily for 2 weeks and a bit beyond. It was upsetting my gastro and not doing much for my pain, so I quit it. In fact, the last few days I was in such pain I started taking 1/4 percocets, then the weather broke to warm and some of the pain was more bearable, so I’m continuing with the 1/4 percocet and resting in between jobs that make my pains worse. However, when my hands or other parts get severely inflamed, I’ve reserved the right to go back on it, as required. That’s my story and I’m sticking to it LOL Thanks for remembering me, Maggie Huggers back to you, luv J
Response:
It has been wonderful for me. Much less pain, more flexibility. "Stephanie Townsend" <ler…@nospam.hotmail.com> wrote in message
news:bdce8b$79t$1@sun-news.laserlink.net… – Hide quoted text — Show quoted text -> Hi Joanne – > Quick question – have you had any luck with the mobic? My doc just > perscribed me that and I was wondering how effective it is for others. > Thanks! > Steph > "Joanne" <jcs3…@hotmail.com> wrote in message > news:7560932f.0306240304.daab52@posting.google.com… > > JD…@webtv.net (Marg Watson) wrote in message > <news:6686-3EF7C410-538@storefull-2151.public.lawson.webtv.net>… > > > HI Joanne! > > > Welcome to the group! > > > I’m soon to be 33 & have been diagnosed with a Lupus-like disease. > > > Although I don’t have children, I have my doggy’s & I think I can relate > > > just a TEENY bit–trust me on this, k? : ) > > > It must be so hard at times though. Are you trying different > > > medications for the pain? > > > I hope you have many pain-free days ahead, Joanne. I’ll tell you this: > > > Pain can be eased by easing your stress & stress can eased when you vent > > > & venting is done right here! You feel better already, don’t ya? : ) > > > Maggie > > Hi Maggie! > > Thank you for the waem welcome!! I’ve have treid almost everything!! > > The following have little or no > > effect:Viox,Celebrex,Naprosyn,Bextra(horrible reaction to that > > one!)Ultram. Now I’m starting a "new"hormone DHEA and trying Mobic, > > along with my Pred,Plaq,Elavil,Wellbutrin,etc,etc…… > > I do take an occasional Vicodin,but when you have 2 young ones, you > > really need to keep your wits about you!!!And to answear your other > > question about Nicole and I, I came upon her website and read her > > history of her Company and it was like something told me to contact > > her, so I wrote her a note telling her she was an inspiration, which > > she is, and we found out we are the same age birthdays are about 1 > > week apart,and we both have Lupus & Fibro do it was really neat! She > > told me about this message board and the ret is history!!!! > > So again Maggie, thank you for the warm welcome and I look forward to > > getting to know all of you!! > > Joanne in RI
Response:
Hello to all! Just wanted to introduce myself, kind of new at all of this so bear with me!! My name is Joanne,I’m 34 and have Lupus and Fibro DX’d last June, but knew for 4 years something was wrong!!. I was directed to you all by another member, and thought it might be nice to talk to others who understand this! I have 2 little ones, 3 & 4, and I’m pretty much in constant pain. Boy reading back I’ll be surprised if anyone posts back!! Don’t I sound like a ball of fire!! Anyway, thats all for now. I hope to "meet" you all soon and share in this journey!!! Hugs to all!!! Joanne
Response:
Joanne wrote: > Hello to all! Just wanted to introduce myself, kind of new at all of > this so bear with me!! My name is Joanne,I’m 34 and have Lupus and > Fibro DX’d last June, but knew for 4 years something was wrong!!. I > was directed to you all by another member, and thought it might be > nice to talk to others who understand this! I have 2 little ones, 3 & > 4, and I’m pretty much in constant pain. Boy reading back I’ll be > surprised if anyone posts back!! Don’t I sound like a ball of fire!! > Anyway, thats all for now. I hope to "meet" you all soon and share in > this journey!!! Hugs to all!!! Joanne
Welcome Joanne! This is a great bunch of people, and I know you will find comfort and tons of info here. It’s usually a bit slow on the weekends, so don’t get discouraged if you don’t get replies right away. Hang tight, and I know the welcoming commmitee will be around shortly. :) -Sharon
Response:
Hi Joanne! That’s definitely a scary reaction! I’m sure glad you don’t see THAT rheumy anymore. Seems you have enough to deal with now. I’d have stuffed a Bextra in HIS mouth, I think! I have a lady & man rheumy. I go to a University hospital. I adore them both, but the mister doc seems to listen to my side effect concerns better. While the missus just writes prescriptions FOR said side effects. I still love ‘em with their faults though. : ) Yes, Daypro is an NSAID. I’ve tried others during flares as well as one decent remission & nothing else works for me. You may be senstive to Ibuprofen & like meds. I am, but for some reason the Daypro doesn’t hurt me even though it’s an Ibuprofen-type pill. The vioxx was awesome at first! I had never had a med that worked so fast, but within 5 days or so, I was nearly unable to walk & had to reach for the prednisone. I get those feelings too. I think we all do. We think: "Geez, if I feel like this now, what am I gonna feel like in a year or even 10!?" I try to keep in mind that they could come up with a cure soon. Course, then I’m stressed cause of the possible COST of the cure. : ) Then there’s remission. Oh, and being hit by a falling airplane tire–at least I’m still alive & have the pain to prove it. : ) On the serious side though, those feelings are normal & they have often made me cry into my pillow. I think your being here on the group was the best thing you could’ve done for those feelings. You’ll see some who have had this disease for decades, some will go into remission & plenty more will be having the same feelings as yourself. And the fact that they’re living with the disease makes it so much easier to be understood. Seems like all I ever get from other "healthy" people in my life is a head nod–I can actually hear a rattle if I have my hearing aid in. Just keep looking up, sweetie! Hugs 4 U, Maggie
Response:
Hi Joanne – Quick question – have you had any luck with the mobic? My doc just perscribed me that and I was wondering how effective it is for others. Thanks! Steph "Joanne" <jcs3…@hotmail.com> wrote in message
news:7560932f.0306240304.daab52@posting.google.com… > JD…@webtv.net (Marg Watson) wrote in message
<news:6686-3EF7C410-538@storefull-2151.public.lawson.webtv.net>… – Hide quoted text — Show quoted text -> > HI Joanne! > > Welcome to the group! > > I’m soon to be 33 & have been diagnosed with a Lupus-like disease. > > Although I don’t have children, I have my doggy’s & I think I can relate > > just a TEENY bit–trust me on this, k? : ) > > It must be so hard at times though. Are you trying different > > medications for the pain? > > I hope you have many pain-free days ahead, Joanne. I’ll tell you this: > > Pain can be eased by easing your stress & stress can eased when you vent > > & venting is done right here! You feel better already, don’t ya? : ) > > Maggie > Hi Maggie! > Thank you for the waem welcome!! I’ve have treid almost everything!! > The following have little or no > effect:Viox,Celebrex,Naprosyn,Bextra(horrible reaction to that > one!)Ultram. Now I’m starting a "new"hormone DHEA and trying Mobic, > along with my Pred,Plaq,Elavil,Wellbutrin,etc,etc…… > I do take an occasional Vicodin,but when you have 2 young ones, you > really need to keep your wits about you!!!And to answear your other > question about Nicole and I, I came upon her website and read her > history of her Company and it was like something told me to contact > her, so I wrote her a note telling her she was an inspiration, which > she is, and we found out we are the same age birthdays are about 1 > week apart,and we both have Lupus & Fibro do it was really neat! She > told me about this message board and the ret is history!!!! > So again Maggie, thank you for the warm welcome and I look forward to > getting to know all of you!! > Joanne in RI
Response:
- Hide quoted text — Show quoted text -JD…@webtv.net (Marg Watson) wrote in message <news:321-3EF90F23-527@storefull-2156.public.lawson.webtv.net>… > Hi Joanne! > I’m sorry you’ve had no luck with all the pain meds. I hope they can > figure somthing out that works for you. > The Ultram has been my only relief & I also take Daypro. I tried Vioxx > & about ended up in the hospital! > What kind of side effects did the Bextra give you. Larina, who just > introduced herself to the group, is on the Bextra or maybe WAS on the > Bextra (Still waiting for her reply on that) & she’s having some chest > pains. Would you let her know, if that was one of your symptoms/side > effects? > Well, yours & Nicole’s story will be one for the Grandkids! You know > it’s meant to be when something happens like that. : ) > Glad you both are here! And I wish you pain-free days beginning > yesterday. <smile> > Hug’s 4 U! > Maggie
Good Morning Maggie!!! To answear your question about Bextra, I couldn’t breath within 40 minutes of taking it, my throat closed up and I was rushed to ER, where I was put on Oxygen-very scary !! Even through this my "EX" Rhuemy stated maybe we should try Bextra one more time!! Yeah Right!!! Needless to say that was the last time I saw him, I know have the most compasionate and wonderful Women Rhuemy, and I truly feel blessed to have her!! She always calls me back and she has a 3 year old and is pregnant, so she understands the pressure of being a Mom as well. She also is my childrens Pedi’s wife!! We like to keep everything in the family ! I’ve never heard of Daypro, is it a NSAID? I try so hard to stay positive through out this, put there ar times when I get scared of where I’ll be at in 10 years. All I know is I HAVE to go on everyday for my beautiful children and keep negative thoughts at bay. Gentle Hugs! Joanne
Response:
Hi Joanne! I’m sorry you’ve had no luck with all the pain meds. I hope they can figure somthing out that works for you. The Ultram has been my only relief & I also take Daypro. I tried Vioxx & about ended up in the hospital! What kind of side effects did the Bextra give you. Larina, who just introduced herself to the group, is on the Bextra or maybe WAS on the Bextra (Still waiting for her reply on that) & she’s having some chest pains. Would you let her know, if that was one of your symptoms/side effects? Well, yours & Nicole’s story will be one for the Grandkids! You know it’s meant to be when something happens like that. : ) Glad you both are here! And I wish you pain-free days beginning yesterday. <smile> Hug’s 4 U! Maggie
Response:
- Hide quoted text — Show quoted text -JD…@webtv.net (Marg Watson) wrote in message <news:6686-3EF7C410-538@storefull-2151.public.lawson.webtv.net>… > HI Joanne! > Welcome to the group! > I’m soon to be 33 & have been diagnosed with a Lupus-like disease. > Although I don’t have children, I have my doggy’s & I think I can relate > just a TEENY bit–trust me on this, k? : ) > It must be so hard at times though. Are you trying different > medications for the pain? > I hope you have many pain-free days ahead, Joanne. I’ll tell you this: > Pain can be eased by easing your stress & stress can eased when you vent > & venting is done right here! You feel better already, don’t ya? : ) > Maggie
Hi Maggie! Thank you for the waem welcome!! I’ve have treid almost everything!! The following have little or no effect:Viox,Celebrex,Naprosyn,Bextra(horrible reaction to that one!)Ultram. Now I’m starting a "new"hormone DHEA and trying Mobic, along with my Pred,Plaq,Elavil,Wellbutrin,etc,etc…… I do take an occasional Vicodin,but when you have 2 young ones, you really need to keep your wits about you!!!And to answear your other question about Nicole and I, I came upon her website and read her history of her Company and it was like something told me to contact her, so I wrote her a note telling her she was an inspiration, which she is, and we found out we are the same age birthdays are about 1 week apart,and we both have Lupus & Fibro do it was really neat! She told me about this message board and the ret is history!!!! So again Maggie, thank you for the warm welcome and I look forward to getting to know all of you!! Joanne in RI
Response:
HI Joanne! Welcome to the group! I’m soon to be 33 & have been diagnosed with a Lupus-like disease. Although I don’t have children, I have my doggy’s & I think I can relate just a TEENY bit–trust me on this, k? : ) It must be so hard at times though. Are you trying different medications for the pain? I hope you have many pain-free days ahead, Joanne. I’ll tell you this: Pain can be eased by easing your stress & stress can eased when you vent & venting is done right here! You feel better already, don’t ya? : ) Maggie
Response:
Welcome Joanne! It is great to have you here. Please don’t hesitiate to post asking for support, answers to questions, etc. This is a great group! I’m so sorry to hear about all the pain you are in, I know it is exhausting (and I don’t have kids to chase around!). We’re here as a sounding board if you need it Steph "Joanne" <jcs3…@hotmail.com> wrote in message
news:7560932f.0306221702.6e4f77ab@posting.google.com… – Hide quoted text — Show quoted text -> Hello to all! Just wanted to introduce myself, kind of new at all of > this so bear with me!! My name is Joanne,I’m 34 and have Lupus and > Fibro DX’d last June, but knew for 4 years something was wrong!!. I > was directed to you all by another member, and thought it might be > nice to talk to others who understand this! I have 2 little ones, 3 & > 4, and I’m pretty much in constant pain. Boy reading back I’ll be > surprised if anyone posts back!! Don’t I sound like a ball of fire!! > Anyway, thats all for now. I hope to "meet" you all soon and share in > this journey!!! Hugs to all!!! Joanne
Response:
Joanne wrote: > Hello to all! Just wanted to introduce myself, kind of new at all of > this so bear with me!! My name is Joanne,I’m 34 and have Lupus and > Fibro DX’d last June, but knew for 4 years something was wrong!!. I > was directed to you all by another member, and thought it might be > nice to talk to others who understand this! I have 2 little ones, 3 & > 4, and I’m pretty much in constant pain. Boy reading back I’ll be > surprised if anyone posts back!! Don’t I sound like a ball of fire!! > Anyway, thats all for now. I hope to "meet" you all soon and share in > this journey!!! Hugs to all!!! Joanne
Hi Joanne and welcome. <http://groups.google.com/groups?hl=en&lr=&ie=UTF-8&oe=UTF-8&selm=3EC4…> Post lots so we can get to know you and you us. Hugs J
Response:
"Joanne" <jcs3…@hotmail.com> wrote in message
news:7560932f.0306221702.6e4f77ab@posting.google.com… > Hello to all! Just wanted to introduce myself, kind of new at all of > this so bear with me!! My name is Joanne,I’m 34 and have Lupus and > Fibro DX’d last June, but knew for 4 years something was wrong!!. I > was directed to you all by another member, and thought it might be > nice to talk to others who understand this! I have 2 little ones, 3 & > 4, and I’m pretty much in constant pain. Boy reading back I’ll be > surprised if anyone posts back!! Don’t I sound like a ball of fire!! > Anyway, thats all for now. I hope to "meet" you all soon and share in > this journey!!! Hugs to all!!! Joanne
Hi Joanne. Welcome to the group……….sorry to hear it took 4 years to get a definitive answer to what is ailing you. Seems to be the running theme among folks here that they knew something was off-kilter for years before receiving a definitive diagnosis. I know that in my cousin’s experience, she was even accused of being a hypochondriac drama queen by one doctor!! Sure would have like to see the look on that doc’s face when Barney was in the hospital with dx of lupus and suffering recurrent abscesses of the bowel. Small ones in the home make your position that much more challenging and frustrating. Please don’t hesitate to post even if it just to say that the pain is so bad, and the kids are being so "wild" that you think you will lose your mind. We all know how terrible it is to feel so bad that it seems almost impossible to tolerate even the smallest drive-mother-crazy behavior. Glad to see you found this wonderful group of folks, and look forward to seeing more posts from you. Marie
Response:
Welcome! Why wouldn’t we write back?!? I’m Nicole, 27, mom to Adam7 and Madi 6. Wife to John. I was dx’d when I was pregnant w/Madi. It’s been hard. You’ll make! Glad to meet you Nicole "Joanne" <jcs3…@hotmail.com> wrote in message
news:7560932f.0306221702.6e4f77ab@posting.google.com… – Hide quoted text — Show quoted text -> Hello to all! Just wanted to introduce myself, kind of new at all of > this so bear with me!! My name is Joanne,I’m 34 and have Lupus and > Fibro DX’d last June, but knew for 4 years something was wrong!!. I > was directed to you all by another member, and thought it might be > nice to talk to others who understand this! I have 2 little ones, 3 & > 4, and I’m pretty much in constant pain. Boy reading back I’ll be > surprised if anyone posts back!! Don’t I sound like a ball of fire!! > Anyway, thats all for now. I hope to "meet" you all soon and share in > this journey!!! Hugs to all!!! Joanne
Response:
Hello Joanne, Well, you’ve come to the right place. This is a very warm and friendly newsgroup. The word "support" is taken literally and seriously. Those little ones probably keep your hands full. (a mother of twins talking to you–they’re 28 now but those early years!) Nell Write a wise saying and your name will live forever. Anonymous
Response:
Hi Joanne, Welcome to you. I am glad that you found us. It sounds like you have your hands full with those two little people. There will be more folks around here after the weekend. Talk to us anytime. BJ-Sk. Canada "Joanne" <jcs3…@hotmail.com> wrote in message
news:7560932f.0306221702.6e4f77ab@posting.google.com… – Hide quoted text — Show quoted text -> Hello to all! Just wanted to introduce myself, kind of new at all of > this so bear with me!! My name is Joanne,I’m 34 and have Lupus and > Fibro DX’d last June, but knew for 4 years something was wrong!!. I > was directed to you all by another member, and thought it might be > nice to talk to others who understand this! I have 2 little ones, 3 & > 4, and I’m pretty much in constant pain. Boy reading back I’ll be > surprised if anyone posts back!! Don’t I sound like a ball of fire!! > Anyway, thats all for now. I hope to "meet" you all soon and share in > this journey!!! Hugs to all!!! Joanne
If you like this post and would like to receive updates from this blog, please subscribe our feed.