Question:
Well I went back for my check up after having that balloon done…Let me tell you, I learned a few things here. First off there are different balloons they use to dialate, and some balloons do not cause pain and are easier on the esophagus…Mine being a fibrous achalasia balloon that does indeed cause pain because of the tightness of the area..Ok well that answered why I had so much pain…and I asked him about why I was not out for the procedure, and again he said I was out, but we argued and then got onto another subject..but he gave me a copy of my test and what he did give me. Now according to the amt of drugs to put me out…I had more when I had just the endoscopy. So I was right. Also this disease called achalasia and esophageal dysmotility that I have. Well he said that as long as I can get some food down, and some meaning very small meals and lots of water, and freq eating with high calories is what the hey I am going to have to live with here. And no drugs like Imdur or channel blockers or nitro is going to help it. But now the Heart specialist says YES they do help it. It all boils down to this, and I am confused as the next one. You have a disorder that is just like a patient with MS or myathenia gravis, the food will not go down some days and others yes..and the achalasia can be treated with surgery if it comes to the point the severe pain returns and wt loss is really bad like 10 pounds at a clip.. So here I am, eating all kinds of goody food, and all My life I wanted to loose wt, and now don’t have to worry. UGH. another 3 pounds every month so far..plus with lupus alone I had lost close to 30. So a double whammy for me. But I am eating small, and taking it one day at a time. The surgery they talked about it not with out side effects such as GERD bad, and Barrett’s if the GERD gets out of control. and all sorts of things. So I will continue to go slow I just thought that some of you may want to know, since I get mail from a lot of you and this is it in a nut shell. One heck of a diet, but so far I got new clothes out of it..plus hubby says you lost your butt.. Now was that a good thing. LOL Next is the heart doc, and she wanted to drop a few meds and now she says no. so we will see. Boy what a roller coaster ride this lupus and MCTD can be. But hey as they say, you only live once, so enjoy the ride.. janers
Response:
On Tue, 27 Feb 2001 23:51:42 -0500, "Janers" <rojak…@bright.net> wrote: >asked him about why I was not out for the procedure, and again he said I was >out, but we argued and then got onto another subject..but he gave me a copy >of my test and what he did give me. Now according to the amt of drugs to >put me out…I had more when I had just the endoscopy. So I was right.
docs assume weight is the main factor to how a drug will affect you. In his mind he probably assumed that the smaller dose would be sufficient yet you and I know that tolerance, clearance and all manner of things can affect the efficacy of a med. I can take 5 mgs Lortab with no sleepiness or anything. my hubby takes that much and he’s out like a light and he’s 2X my weight. >And no drugs like Imdur or channel blockers or nitro is going to help it. >But now the Heart specialist says YES they do help it.
how much research have you done on this issue? I hate it when doc’s disagree (as mine are doing right now). Ya gotta find out as much as you can and push for what you think is right. >So here I am, eating all kinds of goody food, and all My life I wanted to >loose wt, and now don’t have to worry.
I know that feeling – though I never had weight gain until my late 20s – I eat all sorts of "bad" food – high fat, high carbs, etc. it’s what I can digest. And no worries about weight gain. I know there are advantages but I believe my lack of proper nutrition contributed to this bladder problem. That said, you might want to add something like Ensure to your diet not so much to keep weight on as to help give you the right amount of vitamins, etc. The high protein version makes me ill but the plain Ensure is not too obnoxious and I think it’s keeping me afloat. >so far..plus with lupus alone I had lost close to 30. So a double whammy >for me.
<nodding> >One heck of a diet, but so far I got new clothes out of it..plus hubby says >you lost your butt.. >Now was that a good thing. LOL
not on my uh end. I’ve always had a – hm… well-proportioned backside – now it’s skinny – not falling, just not there! >Boy what a roller coaster ride this lupus and MCTD can be. But hey as they >say, you only live once, so enjoy the ride..
eh – or at least try not to puke over the side of the car – there’s people down there waiting for their turn. 
Take care hon. I hope that you can continue to eat fairly comfortably and not have to worry about that surgery stuff. Love, kcat *********************************** KCat – I am not a medical professional. The contents of this post are based soley on my experiences and opinions http://www.ghg.net/schwerpt/mypage.htm http://www.ghg.net/schwerpt/aslfaq20.htm ("`-”-/").___..–”"`-._ (`6_ 6 ) `-. ( ).`-.__.’`) (_Y_.)’ ._ ) `._ `. “-..-” _..`–’_..-_/ /–’_.’ ,’ (()),-” (()),’ (((.-’
Response:
Dear Janers, Would you help me please? My son improved my computer so much that now I am not receiving ALS. I tried resubscribing and it didn’t work. Would you mind replying to this privately if you see this message on the ng? Sent March3. Thanks very much! Hugs, Barbara
Response:
On Sat, 03 Mar 2001 21:40:06 GMT, "Barbara" <lan…@mediaone.net> wrote: >Dear Janers, >Would you help me please? My son improved my computer so much that now I am >not receiving ALS. I tried resubscribing and it didn’t work. Would you >mind replying to this privately if you see this message on the ng? Sent >March3. >Thanks very much! >Hugs, >Barbara
I’m not Janers but I’m replying both email and posting. You’re obviously getting through. hugs, *********************************** KCat – I am not a medical professional. The contents of this post are based soley on my experiences and opinions http://www.ghg.net/schwerpt/mypage.htm http://www.ghg.net/schwerpt/aslfaq20.htm ("`-”-/").___..–”"`-._ (`6_ 6 ) `-. ( ).`-.__.’`) (_Y_.)’ ._ ) `._ `. “-..-” _..`–’_..-_/ /–’_.’ ,’ (()),-” (()),’ (((.-’
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