Question:
Hi trixxi: Trill46 is right. The process is long -I lived myself in the middle of a crisis. What finally solve my problem was a lawyer , specialized in dissability cases…because believe it or not ,all the lawyers are not familiarized with the process. I am telling you this because another lawyer recommended to me a specialized one to help me, because he tried himself to get his aunt the dissability and he ended seeing his colleage. Another very important thing…and I am trully interested in to let everyone be prepared ,SSI for us is very needed specially for the medical care. But…but…be ready to modify your entire budget because is almost impossible to live out of the benefits. Only with the help of family and friends -as usual- is posible to keep going. Lupus has the caracteristic of give us periods of "remission" -sometimes last a week,others a year+ -and then we can do normal things ,even work , until the next crisis. Medicare will send a booklet with the do’s and the dont’s in order to get some extra income when you can without loosing the benefit. Good luck to the entire group. Maria wrote in message … – Hide quoted text — Show quoted text ->i was wondering how hard it is to get ssi for someone with sle, i am a >hairdresser and im finding it harder and very painful to work also i am >about to be kicked off my medical assistance , ive had my spleen >removed ive had itp-blood disease tmj- from my joints swelling and >raynauds disease i am a single mother of a 6 year old who doesnt >understand why mommy cant get out of bed,and cant undedrstand why im so >miserable on my prednisone and plaquenil …….anyway does anyone >know about dissabiliy?? does that get you medical coverage??? >– >Surf Usenet at home, on the road, and by email — always at Talkway. >http://www.talkway.com
Response:
Hello, My name is Peggy Schindler. I found out I had Lupus about 4 months ago. I also suffer from Raynaud’s disease and terrible skin problems! (Also other problems as well!). I started going to a support group recently and talked to a woman who (eventually) got on SSI. If you like, I will get all the details about SSI for you from her. Hang in there, I know it’s hard; I feel the same way. Please keep in contact with me because I’d like to help you out and just knowing others have my same problems helps me out. My Email address is: pasc…@webtv.net. Please write! Peggy Schindler
Response:
Yes you can get SSI. And you get free medication. I am in the process of applying. I have an attorney helping me. The main thing is to keep applying. The first two places that look at your case are state run even though it is a federal program. Only on the third attempt are you dealing with a Federal Offical. That is where your best hope lays. The fees for an attorney are set by SSI and they do not collect until you do. Good luck.
Response:
i was wondering how hard it is to get ssi for someone with sle, i am a hairdresser and im finding it harder and very painful to work also i am about to be kicked off my medical assistance , ive had my spleen removed ive had itp-blood disease tmj- from my joints swelling and raynauds disease i am a single mother of a 6 year old who doesnt understand why mommy cant get out of bed,and cant undedrstand why im so miserable on my prednisone and plaquenil …….anyway does anyone know about dissabiliy?? does that get you medical coverage??? — Surf Usenet at home, on the road, and by email — always at Talkway. http://www.talkway.com
Response:
Hello trixxi. Welcome to the junglegym. Hope you will find, if not answers, then directions to follow. Each instance is different, including the disability angle. Apply for disability, SSDI, as soon as possible. Have medical reports with you that indicate your condition is SLE, all meds you have been on and currently are on. Get a letter from your employer that you are unable to do your job any longer. Also, friends who have known you for awhile and have seen the deterioration in your condition will help, even more so from family members. When you first apply for disability insurance, it is likely you will be turned down. Nearly everybody is. That’s what all the documentation is for. Appeal any denials, but make sure you have lots of paperwork to throw right back at them. If you are denied again, appeal to the Admin Law Judge. Approximately %70 of the cases are approved at this stage. Once you are determined to be disabled, then you will be eligible for medicare also (in most cases). It is important for you NOT to give up. If you need legal assistance, check out the local Legal Aid Society as well. They are usually well aware of the difficulties in dealing with any government agency and especially SSA. Keep records of how you feel each day, how much time you’ve lost from work, how often you go to the doctor, what you are no longer able to do, what you are able to do. Don’t fudge. If you hurt, say so. If you don’t feel like you can put one foot in front of the other, say so. Every part of your body that is affected by SLE should be documented. Hope this helps a little. For more info on SSDI, check out the SSA home page. It’s the usual government ambiguity, but you should find more info there: http://www.ssa.gov/ Kat posted and emailed — >^..^< Da Kat Any sufficiently advanced technology is indistinguishable from magic. – Arthur C. Clarke
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