Question:
I find it amusing a doctor would say diet has no impact on SLE at all, but one should eat well. As a general rule of health, you should try to eat well. But, that is subjective at best, based on the individual’s food preferences, sensory attributes (decreased sense of taste or smell), metabolism, etc. We’ve seen little impact of "good diet" vs "normal diet" (e.g. what he wants to eat), though we are aware some foods may be triggers. I’m with KC on this one. If it works for you, doesn’t cause you any additional flares, makes you feel better, then by all means, do what you have to. As individualistic as this disease seems to be, there isn’t one true instance that there is a "standard" all patients should be implementing, other than what is best for them. The advice of the medical community notwithstanding, each person must deal with it in the manner best suited to their own sense of well-being. The Rampant Kat "not a doctor" – Hide quoted text — Show quoted text -KCDockal wrote: > On 7 Dec 1998 01:57:36 GMT, "Kate Brennand" <Ka…@nospam.nga.au> > wrote: > >All this is interesting….my doctor believes that diet has no impact on > >SLE at all. I was told just to eat and sleep well, exercise and keep out > >of the sun ie try to be healthy as possible to help manage my illness. And > >be wary of ‘alternative’ treatments. > >Kate > Diet can have negative effects… okay who was that that posted the > wonderful long list of foods we should avoid or at least use in > moderation? > Blades was that you? > or was that Candis? > ack – brain fog. > whoever it was – a repost now and then is probably a good idea. > I don’t have a *good* diet. I eat well when my hubby is watching. > otherwise I eat very little and it’s mostly carbos. I’m not > overweight but I have a limited appetite most of the time. > Anyway…. > I think it’s all an individual thing and if you *feel* like something > is helping you than it is helping you. It may be "real" or it may be > "placebo" but what does that matter. I know of one person using > magnet therapy and she feels it’s helping her – that’s all that counts > in my book. When I eat well I don’t feel any better than when I eat > my normal light snacks. BUT – I do take vitamins and and fish oil > (both for the anti-inflammatory properties and for the lowering of > cholesterol) and I take extra calcium (AS all women should!) > kcat the opinionated
– >^..^< Da Kat Any sufficiently advanced technology is indistinguishable from magic. – Arthur C. Clarke
Response:
In article <01be2179$355e8960$c3121…@anne-o-hehir.NGA.GOV.AU>, "Kate Brennand" <Ka…@nospam.nga.au> wrote: > All this is interesting….my doctor believes that diet has no impact on > SLE at all. I was told just to eat and sleep well, exercise and keep out > of the sun ie try to be healthy as possible to help manage my illness. And > be wary of ‘alternative’ treatments. > Kate
Sure. It’s because ‘alternative’ treatments don’t bring the doctors any money. 
The way I figure it, the drugs the doctors prescribe us are as unnatural and harmful as can be. I figure ANY herb I take has got to be better for my body than prednisone, so what’ve I got to lose? Nothing… and I’ve got everything to gain. Molly "Pokernose" Malone > dehan…@ecn.ab.ca wrote in article <366abc6…@ecn.ab.ca>… > > Sensationall_ (Sensationa…@yahoo.com) wrote: > > : I have been dealing with this stupid lupus junk for 30 years. Of > > : course, I wish there was a miracle cure, but until then, here are some > > : helpful, I hope, hints. > > : Diet is very important. No sugar! I know it isn’t easy, but it is > > : important. Watch the MSG, nitrates and nitrites (no sandwich meat), > > : caffeine. If and when you > > : eat these things, watch how your body reacts. Try to eat natural foods > > : with little to no additives.
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Response:
I myself have Lupus now for 24 years. I feel I should stick to a diet but I am a weak canadid I just LOVE food. I could be thinner but with many of the medications I take it makes me heavy(Predisone)It seems like my body is fighting against itself constantly. At times it is very hard and many times I was near death. But the ANGELS seem to protect and guide me. And my attitude is someone else is so much worse then I am. I have SO much to be thankful for God has graced me with a wonderful husband and 2 fantastic kids a home food many people in the USA alone are starving everyday. I do what I can do and contiue to FIGHT FIGHT FIGHT Love me for who I am not what I look like I don"t need to prove any thing to anyone I am happy for who I am Terree
Response:
Sensationall_ wrote in message … >Diet is very important. No sugar! I know it isn’t easy, but it is >important. Watch the MSG, nitrates and nitrites (no sandwich meat), >caffeine.
Hi all, IMO, one of the most important ways to fight any chronic disease is to be as fit and healthy as possible. Low-fat eating, exersizing, plenty of rest, support of loved ones- all vital. I was diagnosed with Lupus in ‘86 at the age of 23. I was of average health then: about 20 extra pounds, attempting exersize a few times a week, etc… After the diagnosis I decided to whip my body into shape: I started eating very low fat (<20% calories from fat) with lots of veggies, whole grains, very little animal protein (beans, tofu, seiten, some seafood), I started taking a multi vitamin and also a little extra C and E. I joined a health club and workout (some days light, some heavy) 6 days a week, including resistance (weight) training which is good for bones and strengthens muscles around joints. It has been 12 years since then and I still am sticking to this lifestyle. I have had a few major flare-ups, usually after being on antibiotics for UTI, sinus infections, etc… I do have some days with fatigue/low grade fever/etc.. and slow down a bit for a day or two. I have never had to be on anti-malarials and have only been on short courses of prednisone twice (with a previous, prescription-happy doctor). My major problem is Raynaud’s (toes/fingers cold, ulcerated, etc..) I have been on vasodilators (most recently Tiazac) off and on for a few years. I now am off that and take 100mg of Nicain (vit B6) which helps improve circulation and that helps a lot. I also have upped my fat intake to include a little flax (omega 3 fatty acids) everyday- either whole seed, ground seed, or the oil and that seems to help too. There are a lot of ‘alternative therapies’ (ie herbs and such) that are hyped, but not valid treatments! I think most people taking these sometimes feel better due to ‘placebo effect’! Anyway what I do works for me and has for 12 years. But, everyone is different, and lupus varies so much from one person to the next. I think it is important that we each take control of our own bodies and lives and actively try to improve both! Thanks for reading this rant! Good Luck to all, Pam D
Response:
I like what you wrote. I was diagnosed 2 years ago and I work hard to keep my body in good shape. Iam presently alternating between 5 and 6 mg. prednisone daily. Right now it would be hard to stop prednisone becasue I can feel symptoms returning if I lower the dose. Any time you want to talk E-mail me. Iyam…@aol.com
Response:
I have been dealing with this stupid lupus junk for 30 years. Of course, I wish there was a miracle cure, but until then, here are some helpful, I hope, hints. Diet is very important. No sugar! I know it isn’t easy, but it is important. Watch the MSG, nitrates and nitrites (no sandwich meat), caffeine. If and when you eat these things, watch how your body reacts. Try to eat natural foods with little to no additives. Here are a few of the herbs I take. For heart pains, take hawthorn berries. For kidney problems, take uva ursi. It is very important to stay relaxed and happy. When that isn’t possible, get some little camomille pills, called "Calms" from the company Hilands. I get these herbs and others from the Vitamin Shoppe. I believe they have a web site now. I have bought things from them for 10 years now. Also, buy spring water and drink it. Eat raw vegetables and fruits. These simple little things saved my life, I hope they help someone. God Bless, Karen — Surf Usenet at home, on the road, and by email — always at Talkway. http://www.talkway.com
Response:
what an unproven nonsense ! B. Sensationall_ <Sensationa…@yahoo.com> schrieb in Nachricht Dnua2.18403$el4.30209…@c01read02.service.talkway.com…/// – Hide quoted text — Show quoted text ->I have been dealing with this stupid lupus junk for 30 years. Of >course, I wish there was a miracle cure, but until then, here are some >helpful, I hope, hints. >Diet is very important. No sugar! I know it isn’t easy, but it is >important. Watch the MSG, nitrates and nitrites (no sandwich meat), >caffeine. If and when you >eat these things, watch how your body reacts. Try to eat natural foods >with little to no additives. >Here are a few of the herbs I take. For heart pains, take hawthorn >berries. For kidney problems, take uva ursi. It is very important to >stay relaxed and happy. >When that isn’t possible, get some little camomille pills, called >"Calms" from the company Hilands. I get these herbs and others from >the Vitamin Shoppe. I >believe they have a web site now. I have bought things from them for >10 years now. >Also, buy spring water and drink it. Eat raw vegetables and fruits. >These simple little things saved my life, I hope they help someone. >God Bless, >Karen >– >Surf Usenet at home, on the road, and by email — always at Talkway. >http://www.talkway.com
Response:
Sensationall_ (Sensationa…@yahoo.com) wrote:
: I have been dealing with this stupid lupus junk for 30 years. Of : course, I wish there was a miracle cure, but until then, here are some : helpful, I hope, hints. : Diet is very important. No sugar! I know it isn’t easy, but it is : important. Watch the MSG, nitrates and nitrites (no sandwich meat), : caffeine. If and when you : eat these things, watch how your body reacts. Try to eat natural foods : with little to no additives. i have to agree here. i have become "allergic" to so many foods due to increased permeability of gi tract and have developed many auto-immune disorders (caused by exposure to x-rad’n). in addition to your tips, plant-based enzymes help with digestion/absorption and acidophilus (and cultured yogurt) can help with candida which is caused by an imbalance of good/bad intestinal flora (also has something to do with pH levels). drinking distilled water only has helped with bladder infection. stevia is a natural (herb) sweetener many times sweeter than sugar w/o the adverse effects. : Here are a few of the herbs I take. For heart pains, take hawthorn : berries. For kidney problems, take uva ursi. It is very important to : stay relaxed and happy. : When that isn’t possible, get some little camomille pills, called : "Calms" from the company Hilands. I get these herbs and others from : the Vitamin Shoppe. I : believe they have a web site now. I have bought things from them for : 10 years now. i haven’t tried these specifically, but have had gained substantial improvement with a tincture for clearing the lungs. : Also, buy spring water and drink it. Eat raw vegetables and fruits. : These simple little things saved my life, I hope they help someone. : God Bless, : Karen raw fruits/veg contain active enzymes which are destroyed during cooking and processing. reducing intake of acid-forming foods may also help if pH levels are imbalanced (it takes a lot of reading and research to find alternative remedies). you are right though – it is very difficult to change your diet so drastically but it has helped (me) considerably. "precription for nutritional healing" by balch & balch is an excellent book which describes many ailments in detail (including lupus) and offers suggestions for herbal, nutritional and supplement remedies. regards
Response:
o.K., I can easily agree that a well-balanced, calory-poor, vitamin-rich is more reasonable and favourable for nearly all kinds of patients than any type of unbalanced, calory-rich, sugar-rich junk food. B. <dehan…@ecn.ab.ca> schrieb in Nachricht 366abc6…@ecn.ab.ca…/// – Hide quoted text — Show quoted text ->Sensationall_ (Sensationa…@yahoo.com) wrote: >: I have been dealing with this stupid lupus junk for 30 years. Of >: course, I wish there was a miracle cure, but until then, here are some >: helpful, I hope, hints. >: Diet is very important. No sugar! I know it isn’t easy, but it is >: important. Watch the MSG, nitrates and nitrites (no sandwich meat), >: caffeine. If and when you >: eat these things, watch how your body reacts. Try to eat natural foods >: with little to no additives. > i have to agree here. i have become "allergic" to so many foods due to >increased permeability of gi tract and have developed many auto-immune >disorders (caused by exposure to x-rad’n). in addition to your tips, >plant-based enzymes help with digestion/absorption and acidophilus (and >cultured yogurt) can help with candida which is caused by an imbalance of >good/bad intestinal flora (also has something to do with pH levels). >drinking distilled water only has helped with bladder infection. stevia >is a natural (herb) sweetener many times sweeter than sugar w/o the >adverse effects. >: Here are a few of the herbs I take. For heart pains, take hawthorn >: berries. For kidney problems, take uva ursi. It is very important to >: stay relaxed and happy. >: When that isn’t possible, get some little camomille pills, called >: "Calms" from the company Hilands. I get these herbs and others from >: the Vitamin Shoppe. I >: believe they have a web site now. I have bought things from them for >: 10 years now. > i haven’t tried these specifically, but have had gained substantial >improvement with a tincture for clearing the lungs. >: Also, buy spring water and drink it. Eat raw vegetables and fruits. >: These simple little things saved my life, I hope they help someone. >: God Bless, >: Karen > raw fruits/veg contain active enzymes which are destroyed during cooking >and processing. reducing intake of acid-forming foods may also help if pH >levels are imbalanced (it takes a lot of reading and research to find >alternative remedies). you are right though – it is very difficult to >change your diet so drastically but it has helped (me) considerably. >"precription for nutritional healing" by balch & balch is an excellent >book which describes many ailments in detail (including lupus) and offers >suggestions for herbal, nutritional and supplement remedies. > regards
Response:
All this is interesting….my doctor believes that diet has no impact on SLE at all. I was told just to eat and sleep well, exercise and keep out of the sun ie try to be healthy as possible to help manage my illness. And be wary of ‘alternative’ treatments. Kate dehan…@ecn.ab.ca wrote in article <366abc6…@ecn.ab.ca>… – Hide quoted text — Show quoted text -> Sensationall_ (Sensationa…@yahoo.com) wrote: > : I have been dealing with this stupid lupus junk for 30 years. Of > : course, I wish there was a miracle cure, but until then, here are some > : helpful, I hope, hints. > : Diet is very important. No sugar! I know it isn’t easy, but it is > : important. Watch the MSG, nitrates and nitrites (no sandwich meat), > : caffeine. If and when you > : eat these things, watch how your body reacts. Try to eat natural foods > : with little to no additives.
Response:
On 7 Dec 1998 01:57:36 GMT, "Kate Brennand" <Ka…@nospam.nga.au> wrote: >All this is interesting….my doctor believes that diet has no impact on >SLE at all. I was told just to eat and sleep well, exercise and keep out >of the sun ie try to be healthy as possible to help manage my illness. And >be wary of ‘alternative’ treatments. >Kate
Diet can have negative effects… okay who was that that posted the wonderful long list of foods we should avoid or at least use in moderation? Blades was that you? or was that Candis? ack – brain fog. whoever it was – a repost now and then is probably a good idea. I don’t have a *good* diet. I eat well when my hubby is watching. otherwise I eat very little and it’s mostly carbos. I’m not overweight but I have a limited appetite most of the time. Anyway…. I think it’s all an individual thing and if you *feel* like something is helping you than it is helping you. It may be "real" or it may be "placebo" but what does that matter. I know of one person using magnet therapy and she feels it’s helping her – that’s all that counts in my book. When I eat well I don’t feel any better than when I eat my normal light snacks. BUT – I do take vitamins and and fish oil (both for the anti-inflammatory properties and for the lowering of cholesterol) and I take extra calcium (AS all women should!) kcat the opinionated
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