Question:
Andy wrote: > Glad he was decisive!
Me too! He’s puzzled as to the cause. The MRI showed pancreas divisum, but no strictures. At that point in the discussion, he brought up the lupus again. He said he would keep after it. It took him two years to make a diagnosis of lupus on another patient. – Hide quoted text — Show quoted text -> [] > >I am to return in two weeks to see if all the changes were of any help. > Let’s hope so. > — > Andy [Editor, Austrian Philatelic Society] > For Austrian philately <URL: http://www.kitzbuhel.demon.co.uk/austamps/> > For Lupus <URL: http://www.kitzbuhel.demon.co.uk/lupus/> > For my other interests <URL: http://www.kitzbuhel.demon.co.uk/>
Response:
On Fri, 21 Sep 2001 13:27:32 -0400, "John W. Johnston, Jr." <wes…@microconnect.net> wrote: >Now for the stuff that counts around here, doctor visits. >I saw my nephrologist today in the transplant clinic. He spent over an >hour with me, as promised. Here is what he came up with: >I do indeed have pancreatitis,
just another day in paradise eh, Wes? You are in my thoughts. i’m glad you got some answers and hope that the future holds treatment that will make thing better. take care, kcat
Response:
Thanks KCat. Do they make one of those wax buckets big enough to soak my head in? – Hide quoted text — Show quoted text -KCat wrote: > just another day in paradise eh, Wes? > You are in my thoughts. i’m glad you got some answers and hope that > the future holds treatment that will make thing better. > take care, > kcat
Response:
<<The immunofluorescence of the kidney biopsy came back unclear for lupus. It could not be ruled in or out.>> Sounds like the story of your life lately. << The electron microscopy study was not back yet. It should be more definitive. >> I hope it answers the questions once and for all. It would be nice for you to know. <<He told me to continue to behave as one who has lupus, i.e. stay out of the sun, etc.>> Sounds like good advice. Take care, Sandra
Response:
Hi J, No biopsies of the mouth ulcers. We covered so much ground today that I did not want to push my luck. That’s the rheumy’s job anyway, but he didn’t do it either. – Hide quoted text — Show quoted text -J Wootton wrote: > Hello Wes, > Thanks for update. We’ll be watching for your updates and hoping for good > news at the two-week checkup. > As an aside, heard on our local news that laproscopic nephrectomy has > recently been started at one of our hospitals. > They featured a couple (hubby gave a kidney to wife). > So hopefully this will encourage others to do similar or the same. > I know my sister-in-law donated to her sister, but that was some years ago > and involved doing the surgery the hard way..both are doing well so what a > gift eh? > Did they do biopsies of the mouth ulcers too? > Hugs > J > "John W. Johnston, Jr." wrote: > > Now for the stuff that counts around here, doctor visits. > > I saw my nephrologist today in the transplant clinic. He spent over an > > hour with me, as promised. Here is what he came up with: > > I do indeed have pancreatitis, and he is going to inform my PCP that > > there is no doubt about that. Amylase and lipase continue to rise. He > > prescribed pancrease to try with every meal, and he is going to talk to > > the gastroenterologist to see if he wants to do one right away, or wait > > to see if things settle down. > > I am holding at least 15 pounds of fluid in my abdomen, legs and back > > due to renal malfunction and pancreatitis. He doubled my dose of lasix > > to 80 mg. twice a day. He also doubled my dose of Cozaar to 50 mg. > > twice a day for blood pressure control and help with proteinuria. > > The immunofluorescence of the kidney biopsy came back unclear for > > lupus. It could not be ruled in or out. The electron microscopy study > > was not back yet. It should be more definitive. He was able to see the > > sores on the roof of my mouth. They have been acting up lately. They > > looked like the crater type ulcers caused by lupus. He told me to > > continue to behave as one who has lupus, i.e. stay out of the sun, etc. > > I am to return in two weeks to see if all the changes were of any help.
Response:
In article <3BAB7884.DA26F…@microconnect.net>, John W. Johnston, Jr. <wes…@microconnect.net> wrote >Now for the stuff that counts around here, doctor visits. >I saw my nephrologist today in the transplant clinic. He spent over an >hour with me, as promised. Here is what he came up with: >I do indeed have pancreatitis, and he is going to inform my PCP that >there is no doubt about that.
Glad he was decisive! [] >I am to return in two weeks to see if all the changes were of any help.
Let’s hope so. — Andy [Editor, Austrian Philatelic Society] For Austrian philately <URL: http://www.kitzbuhel.demon.co.uk/austamps/> For Lupus <URL: http://www.kitzbuhel.demon.co.uk/lupus/> For my other interests <URL: http://www.kitzbuhel.demon.co.uk/>
Response:
Hi BJ, I’m sleeping pretty well, as long as I eat carefully. Hopefully, I’ll be able to add more foods into my diet now. They know me by name at the clinic now, and that’s not exactly a good thing. I was happier when they saw me but once a year. – Hide quoted text — Show quoted text -BJ wrote: > Hi again Wes, > I am glad to hear that they are sure about the pancreatitis, in the sense > that they are treating. I hope that will make a big difference in how you > feel. Let us know how you progress. I think about you lots. My husband knows > you by name now. Are you sleeping? > Fond Regards, > BJ > "John W. Johnston, Jr." <wes…@microconnect.net> wrote in message > news:3BAB7884.DA26F57F@microconnect.net… > > Now for the stuff that counts around here, doctor visits. > > I saw my nephrologist today in the transplant clinic. He spent over an > > hour with me, as promised. Here is what he came up with: > > I do indeed have pancreatitis, and he is going to inform my PCP that > > there is no doubt about that. Amylase and lipase continue to rise. He > > prescribed pancrease to try with every meal, and he is going to talk to > > the gastroenterologist to see if he wants to do one right away, or wait > > to see if things settle down. > > I am holding at least 15 pounds of fluid in my abdomen, legs and back > > due to renal malfunction and pancreatitis. He doubled my dose of lasix > > to 80 mg. twice a day. He also doubled my dose of Cozaar to 50 mg. > > twice a day for blood pressure control and help with proteinuria. > > The immunofluorescence of the kidney biopsy came back unclear for > > lupus. It could not be ruled in or out. The electron microscopy study > > was not back yet. It should be more definitive. He was able to see the > > sores on the roof of my mouth. They have been acting up lately. They > > looked like the crater type ulcers caused by lupus. He told me to > > continue to behave as one who has lupus, i.e. stay out of the sun, etc. > > I am to return in two weeks to see if all the changes were of any help.
Response:
Hi again Wes, I am glad to hear that they are sure about the pancreatitis, in the sense that they are treating. I hope that will make a big difference in how you feel. Let us know how you progress. I think about you lots. My husband knows you by name now. Are you sleeping? Fond Regards, BJ "John W. Johnston, Jr." <wes…@microconnect.net> wrote in message news:3BAB7884.DA26F57F@microconnect.net… – Hide quoted text — Show quoted text -> Now for the stuff that counts around here, doctor visits. > I saw my nephrologist today in the transplant clinic. He spent over an > hour with me, as promised. Here is what he came up with: > I do indeed have pancreatitis, and he is going to inform my PCP that > there is no doubt about that. Amylase and lipase continue to rise. He > prescribed pancrease to try with every meal, and he is going to talk to > the gastroenterologist to see if he wants to do one right away, or wait > to see if things settle down. > I am holding at least 15 pounds of fluid in my abdomen, legs and back > due to renal malfunction and pancreatitis. He doubled my dose of lasix > to 80 mg. twice a day. He also doubled my dose of Cozaar to 50 mg. > twice a day for blood pressure control and help with proteinuria. > The immunofluorescence of the kidney biopsy came back unclear for > lupus. It could not be ruled in or out. The electron microscopy study > was not back yet. It should be more definitive. He was able to see the > sores on the roof of my mouth. They have been acting up lately. They > looked like the crater type ulcers caused by lupus. He told me to > continue to behave as one who has lupus, i.e. stay out of the sun, etc. > I am to return in two weeks to see if all the changes were of any help.
Response:
Hello Wes, Thanks for update. We’ll be watching for your updates and hoping for good news at the two-week checkup. As an aside, heard on our local news that laproscopic nephrectomy has recently been started at one of our hospitals. They featured a couple (hubby gave a kidney to wife). So hopefully this will encourage others to do similar or the same. I know my sister-in-law donated to her sister, but that was some years ago and involved doing the surgery the hard way..both are doing well so what a gift eh? Did they do biopsies of the mouth ulcers too? Hugs J "John W. Johnston, Jr." wrote: – Hide quoted text — Show quoted text -> Now for the stuff that counts around here, doctor visits. > I saw my nephrologist today in the transplant clinic. He spent over an > hour with me, as promised. Here is what he came up with: > I do indeed have pancreatitis, and he is going to inform my PCP that > there is no doubt about that. Amylase and lipase continue to rise. He > prescribed pancrease to try with every meal, and he is going to talk to > the gastroenterologist to see if he wants to do one right away, or wait > to see if things settle down. > I am holding at least 15 pounds of fluid in my abdomen, legs and back > due to renal malfunction and pancreatitis. He doubled my dose of lasix > to 80 mg. twice a day. He also doubled my dose of Cozaar to 50 mg. > twice a day for blood pressure control and help with proteinuria. > The immunofluorescence of the kidney biopsy came back unclear for > lupus. It could not be ruled in or out. The electron microscopy study > was not back yet. It should be more definitive. He was able to see the > sores on the roof of my mouth. They have been acting up lately. They > looked like the crater type ulcers caused by lupus. He told me to > continue to behave as one who has lupus, i.e. stay out of the sun, etc. > I am to return in two weeks to see if all the changes were of any help.
Response:
Now for the stuff that counts around here, doctor visits. I saw my nephrologist today in the transplant clinic. He spent over an hour with me, as promised. Here is what he came up with: I do indeed have pancreatitis, and he is going to inform my PCP that there is no doubt about that. Amylase and lipase continue to rise. He prescribed pancrease to try with every meal, and he is going to talk to the gastroenterologist to see if he wants to do one right away, or wait to see if things settle down. I am holding at least 15 pounds of fluid in my abdomen, legs and back due to renal malfunction and pancreatitis. He doubled my dose of lasix to 80 mg. twice a day. He also doubled my dose of Cozaar to 50 mg. twice a day for blood pressure control and help with proteinuria. The immunofluorescence of the kidney biopsy came back unclear for lupus. It could not be ruled in or out. The electron microscopy study was not back yet. It should be more definitive. He was able to see the sores on the roof of my mouth. They have been acting up lately. They looked like the crater type ulcers caused by lupus. He told me to continue to behave as one who has lupus, i.e. stay out of the sun, etc. I am to return in two weeks to see if all the changes were of any help.
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